Fuzzy's Romp Room
Comments
-
Testing to see if something got added right
Yup it did
-
SEcond night of heart pounding and racing for no specific reason - now going burning hot......in a minute will be freezing cold, God I hate this and when I listen to myself I am so unhappy
-
Hello loveliest of all of the women to be found....Thank you all for your thoughts and prayers and the beautiful things that you have said...for your PM's, facebook messages and texts. It means the world to me and I know why I wrap myself up here as much as I do...I love you all.
Mama is slowly showing signs of preparing to pass on. My job is to keep her comfortable. I assured her that I would do that because it is a huge fear for her. I am with her most all the time...it's a 'round the clock job (Crog...how are you doing with your parents, hon?) She's started choking on things so I am now the only person allowed to put anything in her mouth...if she will need anything more...choking is not peaceful and it breaks my heart to watch her suffer through that. When she starts, it's hours of choking. She's so weak on top of it all. But, when she was able to speak well, I asked her if I was doing a good job..she said I was doing a great job. I just can't believe after 14 years of her and I doing all of this stuff, this is what it comes down to. I do believe it will be such a blessing for her to change energy and meet her maker...I do. I can't imagine my life without her...without being needed and trusted by her...without her just being right there on the other end of the phone....it's just too much right now I guess. But, I set aside my ego after a tear or two and focus on what I promised her I would do...keep her comfortable. She's on a Fentynal drip and button...I'm suppose to push the button when she needs it...it builds in your system you know...this is a tough place to be that's for sure. I have told her that you have all sent her messages and she smiled. She said I have really great friends on these boards. I agreed.
Sassy...can't talk now SugarBear. Just so consumed with mama and I know you understand. But, I do have updates to stuff that we should catch up on soon. I am so curious about DBF too!
Dunes...Did you feel that? Yup, I just reached through the computer and tapped ya upside the head! LOL I have been catching up on reading and you know we love you darling. It's ok to say what ever you need to here...you know that...and it was so great to see that you feel it again. But, I needed to give ya a love tap anyway.
Chevy - I posted that beautiflu link to my FB. Thank you for that. I never take the time to look up stuff on YouTube and when I get a link I love to see what it's about. Thank you again. Mom would have loved it too.
GG - oh girl. I creid like a baby when I read your post. Whoa. You sure got a way about you! I needed a good cry...you must have known.
I have to get back in there with Mama. I cannot tell you how much I appreciate everyone...I'll be back soon and I will try to stay current on everything too...
Goodnight sweet Sisters. Goodnight.
XOXOXOXOXOXOXOX
-
Fuzzy Love,hugs,prayers for all, mom,you, j, and the girls. Thinking right now of Bette Midler doing the song, "You are the Wind Beneath My Wings. Pax,sassy
http://www.youtube.com/watch?v=c9ZMDPf9hZw
From you to your mom.
-
I'm sitting here on a beautiful sunny afternoon having just saved my photos from my dying camera. Wish I wasn't so far away. Would love to sit down and chat. I will need a new camera before I come to the US in September. I will be in PA visiting my aunt in Pottsville. So I would love to meet up somewhere somehow. Will let you know dates as soon as they are settled. Must get DH to sit down this weekend and get some dates organised.Now have to think about dinner. Have a friends daughter satying and shes vegetarian so find it hard though she is very accommodating.
Big hugs.
-
Dunes, missed you call tonight, phone needed charged, doing so now, noticed the missed call a bit ago. You are on my list for tomorrow but call again when you have time anyway. And so you are really clearing out the extra layers and thinking of moving to your brother's in Atlanta? I hear you about needing to be able to keep your baby, I could not imagine getting better without my pets, they need me, it was til death when I adopted each and every one, I am so committed. I hear Atlanta can be a beautiful city. Like any place, it is what it is. The neighbor, hanging on to your key, would have done the same thing, tough as it is to step up for what we need. When we left the house with the OWB next door, I was so angry with the man for being so stubborn while I was so sick. We picked up mail today and found out he is not doing well at all, never wished him ill or dead, but does seem his toxic smoke is taking him down. So sad, he just would not listen. Somewhere in all of this - each encounter we have with another - there is a treasure of some type for us to take away and use.
Granny - that surgery, wish it was over for you. In your pocket.
Fuzzy, dear Fuzzy, hold on to every moment, treasure every breath. I am thinking of you.
It will be awhile before I am back, have so much to do w nailing down reports and MDs, work, a website to get done for someone, I have become loaded but can get out from under if I focus on the schedule and checking the boxes as I go. Don't worry, I am well, feeling content at the moment. Was almost 60 here today and I might be able to afford a few spring bulbs to sneak in for the April showers.
LOVEEssa
-
How lovely that you can do that with your Mum Fuzzy - its the anniversary of my mum passing today so especially poignant - if only i could live as long as she did and she was so loved by my Dad
Thinking of you so tough for both of you hope you can feel the hug across the océan....xx -
((((Fuzzy))) glad you are able to be there with your Mom.
Thanks for asking about my parents... They are still with us... It has been 3 weeks today since the doctor told us my Mom had 2 days to 2 weeks to live..... She is home with my Dad where she wanted to be. They have 24/7 care as their biggest wish was to stay in their home and we are trying to make that wish come true.....
Cindy -
Yes dear Fuzzy.... Thinking of you and your Mom brings back a lot of memories for me also... My Grandma's birthday was yesterday... And I was with her so much of the time in the Nursing home also. I just wanted "them" to keep her warm, and not get her up anymore. I took leg-warmers for them to put on her.
I went there one day, and they were trying to feed her in her wheel chair... she wouldn't open her mouth, and they were trying to shove the food in anyway... Well, I started crying and said "What are you DOING?"..... I told them to NOT feed her because she wasn't even swallowing... Seems they have a policy that they CAN'T just let them die, without trying.. And she didn't know what was going on by this time anyway. But after that, they DID leave her in bed!
After awhile, she was just sleeping... and yes, I knew we were losing time. But I kept talking to her anyway, rubbing her arms and legs. Little Fuzzy, you will remember these times... like I do, and your heart will break every time. But I just wanted her to be at peace...
They called me one night, and I ran to the Home... I didn't make it in time, but I crawled on her bed, and just held her and talked to her for awhile. She was at peace at last.... just went to sleep one last time.
I have to say though, that the staff there really helped ME through this... guess they were used to it, but I really appreciated it.
Thinking of you..... and your Mom...... I know.
-
-
Fuzzy I cried when I saw your post - Give your mom hugs for me and tell her it will be ok God is waiting at the door. HUGSSSS.
Been off the computer all weekend - after spending 40 hours a week on it, I just need a break.
Granny I am so there for you!!!
Dunes Nice chatting with you this morning !!! any other girls want to join us just PM me
Back to the typing of press releases - daylight savings time really stinks!!!
-
I'm off to the counselor (useless) and a little later Nurse Nancy (the bitch). hehe I am going to try to reach the nurse at the breast center and see if I can be hospitalized. I just don't want to go into a luney bin. I know I need help and the breast center is the only place I trust to ask for it. So, if I disappear for a few days, hopefully that is what has happened. However, I expect to initiate that tomorrow. So hopefully I will see you all some more later today.
-
Fuzzy,
My thoughts and prayers are with you and your family.
Denise51
-
Take care Dunes and be careful what you say, you don´t want them making you more unhappy.........!! xx
-
Today is one of my first pictures I took on this mountain - This is where the term, "Above the Clouds" got its name on my website -
-
We all care about you Dunes - I'm in your pocket, wherever you go, so come join the pocket party whenever you have a moment
.
-
Dunes, Crog, Fuzzy, Grannydukes, sending you all hugs, big ones.
Alyson, I'm about a two hour drive from Pottsville. I'd love to meet you!
This weekend I found my way out of my house and had some fun. I must have over did it a bit because I woke up at noon today.
I have so much to do around here. Our furnace blew up over a month ago. DH is putting the pipes in for a new furnace. The house is a mess. Still trying to decide what kind of furnace to go with...coal, oil,or gas. We've been using our electric heat. I never feel warm enough. I'm spoiled with coal heat.
Hugs! -
Dunes, What you need is a therapeutic bed and breakfast. My friend and I came up with this idea when we were both very depressed. The idea was to check in, be issued a soft teddy bear, brought tea and scones and generally be babied for a couple of days. I still think it might work. (((((HUGS)))))
-
Esther, I love your "View" in all of it's aspects but this has to be one of my favorites!
-
LADIES, you will NOT believe this, but I have grown one foot overnight.... hahaha just kidding. BUT what happened is, I managed to delete the entire writings of my early afternoon visit to this hyar machine that I'm fixing to throw out the window. So, all I can do, instead of being meaningful, amusing, regular, irregular, and just recently going back to being well-dresssed IS: I shall write an extremely short note before the computer decided to dunk my head in tea tree oil. YES, CHEVY, I think who mentioned it, we had a shampoo with that in it for our dogs, and talk about the most beautiful fur imaginable, they had it. I had no idea they made some for humans.
DUNE, you have no idea how PROUD and happy I am you are going to join your bro in Atlanta. Dah'lin, you is gonna love it down this way, weather is fantastic, hundreds of enormous parks inside and outside the beltline of Atlanta (avoid freeways), everything is cheaper, oh hon, you done good.
I'm missing others, but you know I have things to say, it's just my mind is scrambled at the moment after being treated like a lying thug. But there is always ONE LOVELY LADY, the loveliest I know, oh Fuzzy my owne true sister, I was quite teary-eyed this afternoon 3/11 Monday, thinking of your mother's final struggle. I hope the docs got her on morphine. By the by, I keep begging husband to do a digital portrait of me, lots of great ideas in my head, becuz I cannot run the scanner we have like I thought, so it will accent the eye(s) and then I shall also work on either a straight-out poem or it will probably wind up saying, "This is GG." Again, love to all before this dang machine turns my words into some old ancient Native American early computer language. And may I also say that right here in my last effort at posting, I typed some gobledeedoook and it turned into a link, which I came back to delete, that if you pushed that link and your computer appearance changed to sideways, simply go into black and white "Safe Mode" and use "system restore." I apologize for the accidental link.
IBC, IDC, Melanoma/ 5 mos ACT chemo, mastectomy, rads to 11/2011, Arimidex 1 mo
Dx 2/14/2011, IDC, 5cm, Grade 3, 2/11 nodes, ER+ -
I know Gail when I write a post or story and the computer takes it to Neverland, then I have to remember and rewrite and it is never the same. It has been said to never compose on the Internet. But I never remember until it happens again.Today I got nothing done but everything important. I will work tomorrow. I used the Rife machine, took time to read, got to talk to some great people which I seldom do. Going to make dinner and brush the newly bathed and fluffy dog. Just going to send some links to people and off again, but had to stop in and say hello.
-
Wren - great idea and there is a B&B available at my house in southern Spain (on the coast) with teddies and numerous dogs and cats with loads of love to give........seriously but we have lots of dogs so you need to be ok with them to relax here
-
Lily , so sorry about your mom, and so know how rough anniversaries can be, it's as if we relive the loss, But as you said remember the loving
AS time goes on the pain is less, but it needs time to pass.
Crog, sorry about your mom, but it is wonderful that your parents are together and that the whole hospice team is trying to make their wish to be home be true.
Fuzzy, Love-hope you had a chance to play the song for your Mom. Everyone will cry, but the words of love in it, are what I know you feel from listening to you talk about her.
To all , Dunes has left as of approximately 7:15 pm to go for her psych assessment. She was able to talk with her most trusted nurse Carole from her breast center. Carole has put in motion helping Dunes get admitted to the unit of choice. So, far there is allot of trust going on. Dunes trusted Carole, Carole trusted that Dunes would mot do anything, Carole allowed her to get her Mom to come and get her and the birds are set up for several days. Hopefully her Mom will pop back to check on them. Pray that all this continues. Dunes need beyond the spoken is that things be calm. As our dear Gail wrote a description of what can happen when things escalate, it can get ugly. To often I've seen where the medical/nursing staff allow things to go to a place that it shoudn't have, by letting there own feelings interfere with the words they could use to calm the situation. So, pray for calm. I heard hope in Dunes voice and words tonite.
Chevy sorry I haven't answered, Thanks for the tip on the Tea Tree oil & shea butter. Hands are better after several dilute bleach baths. As bad as the one section was I definitely had a bacteria trying to get a foot---erhhh handhold. The BB's fixed that.
Essa, it was great talking with you, I told Dunes I'd call and let you know. So, if I miss you, your words when ya'll talked, she said helped her
Gail your living room spa sounds ssssooooooo inviting--PARTEEEEEEEEEE.
Wren, delightful, those types of places exist, but us real folks can't afford them,DANG.
Alyson, My invitation still stands , if you are coming my way.
Veggy, hugs babe, Dunes said it was good talking with you too!
Rider ther's a few more rads treatments under your belt.
I saw this phrase, yesterday in my internet travels. It appealed to me b/c I have to work at getting back to life as I think most here would agree. So, it's here to remind to-- take a risk, do something. I tend to always take the safe road. I need to work on the wild.
-
XOXOXO
XOXO
XOXOXO
XOXOXO -
Praying for Dunes - Did have a nice chat on skype with her before she left for counselor..
I'm having a hard time this morning - just can't think of a picture - rough night with the CPAP and aching all over. Will hopefully be in a better mood and find the right picture of the day later. Plus a BC sister at our local support group - has brain mets.. not much time left for her.. I'm hating BC right now.
-
I hate bc too. (((Gma))) I grew up in Vancouver, WA and my mom lives in Portland. I love seeing your pictures. Thank you.
(((Dunes)))
-
Skipping my screams over the fog...
Ok now back to my computer job - way behind today :-(
-
Fuzzy, hope all is peaceful for your mom and you. ((((HUGS)))).
-
Gma-sorry re: your group mate. BC SUCKS. Re: your CPAP, may be the sister on STFU thread will advise. I know she was incredibly helpful during the discussion before. Hope she again comes to the rescue. If you describe some of your problems with it, may be there might be a detail that I can help with as Dh slept with CPAP for plus or minus 15 years. I'll throw a few out here. Mask fit is important and may not always be accomplished with first fitting. In fitting if you are in a laying position versus a sitting, you should get a fit that's tight to the face. This did work for DH. An airleak noise is very evident when the mask isn't seated right. Could be do to strap placement or mask placement. Final adjustment at bedtime, should be when you 've put your head on the pillow. Length of hose--should allow for movement in bed i.e. turning over. Sufficient Humidification, otherwise membranes will dry out and this hurts and they can bleed.
It does take time to get used to having the whole apparatus on your head b/c it is foreign to what we are used to. Other thoughts and problems: cleaning tubes and mask regularly with the vinegar solution to prevent microbial growth. A biggy was the supply company kept sending things that weren't needed. The charges are high and some were not covered by insurance. Solution, I told them they had to have mine or DH's verbal authorization before anything was mailed out. It worked. Good luck
-
Thought youmight like a summer picture from this side of the world. This was taken on Sundat coming home from a weekend away.
We have had little rain since December and actually the situation is grim for the farmers.
Yes cancer sucks big time.
Big hugs to all as I am late getting started, was up at 5am to get our young visitor off to the airport. It has been so lovely having her here, was like a breathe of fresh air in the house.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team