Starting Chemo February 2013
Comments
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@Gina - I am so sorry about the passing of your Dad.
Today, 8 days later I am just recovering from chemo 2. It was as bad as chemo 1. I went to the ER again this past Tuesday for fluids. I spoke with my MO and for the next chemo - 4 days later, I have scheduled a day for extra fluids instead of going to the ER. Four days after chemo, seems to be when I hit rock bottom. My taste buds are so shot - nothing has any taste now. I am just trying to stay focused on spring - warmer climate, sunshine and knowing I will be further along and finished with chemo in May.
Honestly, in the beginning - I was so focused about losing my hair - I was sickened. I had my head shaved about a week and a half ago. For those you are just waiting for it to happen, know that once it is behind you, compared to what we have each dealt with after chemo treatment, hair doesn't seem quiet so important. I almost think of it as a badge of courage and bravery. After I read these post, we each have a similar situation, but so unique.
Everybody keep warm and stay strong.
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I have not worn a bra since my Surgery in January. I don't see a reason to. My PS said if I wanted to wear a sports bra I can but they are tight and hot so I am skipping it. I am going for a fill Monday. I have only had a few fills as I had such bad luck with that first chemo I have put it off, but I need to start getting them. I am about an A cup now and would like to get to a C
kkmom I am 7 days post 2nd chemo today. My taste buds are SHOT too. I live on protein shakes and pudding and jello. I have lost ten Lbs and dont need to lose anymore. It is a struggle to eat. I am feeling better but still have major tailbone pain from that shot. Each day gets a little better. May can not come soon enough! Headed to the Doc today to get my blood counts checked so I dont end up back in the Hospital again like last time. Hope they all check out good today. Take care all............
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Tangles,good luck with your blood counts- positive thoughts your way. Let us know how it goes
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So my White count was "elevated" Now I would think that is good, but the Doc said it can mean your body is fighting an infection. Gezzz how do you know??? She said most likely it is the shot that has elevated it so dont worry. Then in the same breath she tells me I should probably wait to have any fills until Chemo is all done with. I pretty much burst into tears. I am counting on getting these HORRIBLE TE out 3 weeks post chemo.( sometime in June if all goes well) I want to be healed up before my daughters Aug 10 wedding. If I dont get the fills until after, this wont happen. She said now would be a good time, but to be totally safe wait. Well I think I am going to take my chance and get a fill Monday. She was also surprised I was still having bone pain from the shot because it was a week ago. Hopefully it will start to go away soon.
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Tangles I have heard other women say that the shot is what caused the elevated levels. I know you've had a tough go of it and I feel for you. I am getting my shot for the first time after my 2nd round next Thursday and am dreading it.
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Hi everyone.
Today the first since the feb 25th chemo I felt good. I actually worked. Not sure if it's time acupuncture or adding meat back in my diet what ever. Next chemo is March 18. This time acupuncture before and after. And will keep the meds close by to avoid another hospital visit. Wishing you all well -
I have not heard of acupuncture with Chemo. How many sessions have you done? How did you know about this treatment? What do they do and how long does it take? I know it is something insurance wont cover but if it helped it may be worth it. I felt Ok this morning, but it caught up with me this afternoon. You are 4 days ahead of me so I am hoping I am feeling better next week. I am still un decided if I am going to go back to work at all during my treatment. Maybe I will change my mind and want to get out, but right now I could never work with how I feel. I dont have a job I can walk in and out of or call in sick. If I go back I start to book apt for myself and things get very messed up if I dont show up or cancel and leave so might be best to just take the leave until mid May mid June. Good thing hubby makes good money. That I am thankful for.
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I've been fortunate enough that my boss is ok with me working from home on days that I just felt like I couldn't make it in. I can work, take a break lay down if needed and then get back at it when I'm ready. It would definately be more difficult to work when dealing with clients and committing to an appointment because you never know what to expect next and how you're going to feel. When I'm working, it takes my mind off of me and the reality of what's going on. Work is my escape. I think if you can't work, try to absorb yourself into something even if its a book, I think it helps.
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Tangles, I've been doing acupuncture the day after chemo (ideally should probably be two days after, but that's a Saturday and the office would be closed). There is at least some scientific evidence to suggest acupuncture may help to relieve chemo-induced nausea. Can't really tell if it is helping or not, since there are other confounding factors, but my nausea has seemed a bit better on rounds 2 and 3 than it was on round 1. One thing's for sure - when I'm on the table during the acupuncture treatment I feel more relaxed than I have since diagnosis, and that alone for me is worth it.
LW, I'm like you. My boss is open to me working from home while going through chemo. Makes it a whole lot more manageable, but allows me to feel engaged with my co-workers and adds a sense of normalcy to my life. In fact, on the days right before chemo when I'm feeling really good, I sometimes almost forget that I have BC. Another advantage of working from home is that it keeps me away from all the germs that are usually circulating in our cube world at this time of year.
Have a great weekend ladies! -
The wellness center associated with my oncologist has an Integrative Medicine program that includes nutrition reflexology reike acupuncture yoga. I really believe in acupuncture. But didn't have time to schedule it before my my fist chemo. I will now have it once before and after chemo. I'm only entitled to 8 but will pay out of pocket since it works for me. I had a splitting headache and no energy. It might be the time factor. But my headache finally went away and I have some appetite. I can work from home. And it felt so good to do something. I still am taking it very slowly. If you can do it give it a try. The session should run about an hour and she added aromatherapy. Not sure if that did anything. The main thing for me was energy and no headache. As far as working. It was really hard for me not to work since my company really relies on me. I couldn't believe. How out of it I was. And couldn't focus on anything. They were so relieved yesterday. But I'm lucky. They understand and have been very supportive. The owner is taking me for my wig next week and we're very good friends. She's having a hard time explaining where I am. I didn't want the world knowing. No negative eneryry till I'm through this. Are you telling everyone? Except close friends. I haven't told many people.
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my job has been so good to me - if I can't come in they are ok with it and when I can come in I am there.. my director told me right in the beginning they would be behind me 100%..
I wasn't going to tell everyone but rather than have people wonder and especially when I started wearing the wig, I just started to tell people. I have had nothing but positive reactions..
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today I really feel weak and am short of breath - chemo was wednesday - other than that I feel pretty normal -except food doesn't taste right... anyone else have those side effects?
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Gina - I am so sorry for your loss. I hope you are feeling well enough soon to visit.
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Yep, I felt shortness of breath also with one and two. No taste buds to speak of either, think tht is why I am craving spicy foods, just so I can taste something!
As far as telling people, I am an open book. Everyone who knows me I have told and word has been spreading. EVERYONE (who feels comfortable approaching me about it) has been very positive and I feel that energy helping me feel loved and not alone. My mother died of BC when she was 45, and never told a soul (other than my father, and I found out by catching her visually.
This always left me feeling angry that she suffered alone and wasn't able to have the support and love from everyone, which is probably why I have told so many. I figured they would know something was up anyway, between my days off work and changing appearance. -
me too I had shortness of breath for a while after treatment but feel back to normal now
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I have been extremely short of breath. Just running my vacuum makes my heart race. Makes me sad as a few months ago I was in spinning class 4 times a week. My taste buds are shot. Everything looks and smells so good and one bite YUK!
As for my Job I am a hairstylist. I book people out 4 to 6 weeks. They count on that apt. I am on my feet and my arms are above my head reaching all day. No place to rest or take a break. If I cant work they are stuck with no one to color or cut their hair. They would say how about tomorrow and I would already have a full book tomorrow. I have decided for now to take my chances that I may lose 50% of my clients and just take a leave of absence. I would rather them make an apt somewhere else and not have to have me cancel on them. Plus it is a small salon and lots of germs coming in and out the doors between all the stylist and clients. You wouldn't believe the people who dont miss a hair apt when they are sick, they still come anyway!! I went to walmart for an hour today and felt like I was going to pass out. There is no way I could be on my feet all day or even half day. My salon owner is very understanding and said come back whenever you want to. Hubby can pay the bills so I may not go back until June.
Everyone I know knows I have cancer and has been so supportive. I have lost count on all the cards I have recieved in the mail.
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Hi ladies
I had my second tc on feb 28 but didn't have the neulasta shot this time because my WBC was so elevated. I am worried that its gonna come back and bite me and I'll end up sick this time and i the hospital like tangles. I have to stay away from crowds this weekend. The weird thing is even though i didn't get the shot i got terrible body aches two days after chemo. The shot isn't where all the pain comes from. I couldn't put my neck back because my neck was killing me. Then i noticed a week after chemo my throat feel weird almost like there's rice stuck in it when I swallow. My tastebuds were off for three days. I forced myself to eat amd drink lots of chicken and stars soup.
I was wondering if hair falls out 14 days after each treatment. Will I lose the rest of my buzz in one week.
Gina -
Chgogemini I have noticed that there are different doses of the neulasta a 3 and a 6. Which did you have? I didn't have it on my first treatment but they want me to have it on the second and I'm thinking I might ask for the lesser dose???
I finally had to buzz my hair last night and put my wig on today, my hair looked like road kill. I found out I'll look good with a pixie. The wig is really not that bad but i'm thinking I'm gonna get one of these too. Its built in to the hat (no velcro) so just throw it on and go. On the upside it only took me about 15 minutes to shower and get out the door today.
http://www.ultimatelooks.com/henrymargu/classichatblackhm.htm
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I asked my Doc yesterday if there was different doses of the shot and she said nope just the one dose. HUH thats odd.......
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tangles - my dr told me the same thing.
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Tangles & IamNancy- I don't think the neulasta cones in different dosages but it can be adjusted. I give myself the injection and the syringe is marked-easy to adjust. I've been wondering if I shoukd ask for a lower dose also, as my onco wants me to take it after every tx regardless. I don't want to buck it too much since I do work in healthcare (lots of germs there!) & a kid in elementary, a kid in middle school, & a kid in high school who all like to bring germs home.
I'm also noticing my fingers & palms are kind of sore. I saw an earlier post about this. -
the skin on my hand - my thumb and forefinger especially looks burned .. it started out itchy and then felt burny and now its like shiny red blistery skin.. it started with the first treatment and got worse with the second.. looks so disgusting..I keep a heavy hand lotion on it but am not sure its helping.
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Tangles: take the time you need if you can. It's better for you to be better and heal. Your career will be there when you are back to 100%!
I had AC#3 Wednesday. I also get the Nuelasta shot and I asked for a smaller dose and was also told no. I had mild nausea, nothing much, and the usual aches, pains and tiredness, which a vicadin helped 'cure'. My taste buds are shot too. I just eat to just eat and hope I don't ruin foods for me after this is all done. The only new SE I've noticed is my eyes are dry and burn a bit. Nothing horrible but new.
Good luck all!
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I had my third AC two days late this session because I had to have a tooth removed. My doc is using neupogen which you have to do 8 shots of but I do them myself so it easier. Get bone pain too but its ok until shot no 7/8 then its really bad for a day or two. The last cycle my eyes started to get dry and sore etc.. I use visine drop and a bit of vaseline over lids and around the eye at night and I cranked the humidifier and it all helped.
My taste buds are done also and Im finding even with the steroids for 2 days after chemo my appetite is lessening and I have to force my self to eat.
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I actually read that somewhere on one of these boards, I'll see if I can find it
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My second AC was yesterday. I complained about the Zofram headache and the fact that I was nauseated for 11 days. They said they could switch me to something else injected into port during chemo that was far superior than Zofram but couldn't offer it unless the patient complained. Perhaps insurance billing issues? I am tired today but I have absolutely no nausea. It supposed to last for five days. I am thrilled.
Still haven't lost any head hair except for a couple strands. I think it will happen in a couple days. But...I did lose almost all my hair down there during the chemo treatment lol. I told you all I am an odd duck. -
Rdrunner: I will try the Visine. I wear contacts but don't notice a difference when I have them in or out. Hope #3 goes well for you with miminal SE's.
Wildylyshel: My hair fell out right after #2. I have some fuzz but am wondering when that will all go too. I still have my eyebrows/lashes but have heard those go once AC is done. That stinks!!!! I do use Latisse (actually have used Latisse on my eyelashes for the last two years.) Not sure it will help or not. Time will tell.
Good luck all!!!!
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IamNancy- Hope you don't have Hand Foot Syndrome which is another one of those chemo side effects. Here is the link to the BCO mainwebsite so you can read little more about what it is. From what you described, you may have this.
http://www.breastcancer.org/treatment/side_effects/hand_foot_synd
Dry eyes - Another one of those side effect of the chemo. You may want to try some OTC lubricating drops-- Gen-Teal eye drops or Refresh eye drops that you can get at Walgreens, CVS or Target. These were suggested to me by my opthamoligist before I started chemo.
Wishing everyone a good week, especially those heading to chemo this week and minimal side effects!!! You, February ladies are doing well; keep pushing forward!!!
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Gina,
My hair start "shedding" like crazy on day 14. I went ahead and had it buzzed around day 20. My buzzed head is continuing to shed. The shedding is moving from the front of my head to the back. So I really look weird. I still have a good 1/4 inch of hair in the crown of head and back along my neck. I figure by the time I finish chemo all of my hair will have shedded.
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Melrosemelrose - thanks for the link.. I hope thats not what it is but it sure sounds like it - I hope it just stays on my hands.. when it was starting I showed it to dr and he didn't seem real concerned - just told me how chemo may affect my nails too..
Kkmom - I had to end up shaving those little hairs that were left behind after buzzing it - they were sticking everytime I layed my head down and they ended up really hurting
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