After treatment terror

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I am completely done with treatment and taking Femara. I am having episodes of panic, terror and anxiety every time I get an ache, pain, twinge, and feel tired. I am also terrified of it coming back.

I was just placed on Lexapro. I think it is starting to help. I did read PTSD can set in after treatment.

The good news is I am trying my best to combat this. I bike, swim, and walk and light jog.

Does anyone know how to deal with the fear of the worst happening?
I do have some good moments but this one fear is hurting me.

Pam

Comments

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Pamela....I'd say you've shown you have a lot of courage by even posting!!!! You are soooo right, it is very much like a PTSD feeling, and completely understandable by those of us who have gone through the dx-tx-sx gauntlet. Do you have anykind of a bc support services where you are? Taking things one day, sometimes one hour at a time is how you start figuring out what your "new normal" life will be. The fear with each twinge....totally normal.....it does get better, which I bet you have heard a thousand times, but find hard to believe at that point in your recovery. It can be hard, emotionally, when you are still feeling so fragile and vulnerable, if family and friends have the "everything's behind you...just celebrate and get on with life" mindset. Doesn't jive with how you feel at all. I don't like the term, "survivor" because it has the feel that it's forever behind us, which is itsn't. I prefer the term "veteran", I think it much accurately describes the reality that we have gone through something really tough, it will always be a part of us, but we can carry on and live a good life. 

    Don't know if it will help you to hear this, but I am a 20+ year "veteran".....you will be too!

  • Momine
    Momine Member Posts: 7,859
    edited March 2013

    I think it happens to everyone to some extent. I also think it is almost impossible not to get scared out of your wits once in a while, after an experience like cancer. 

    The trick is not to have it take over your life, which is easier said than done. Exercise is a good idea, obviously, meds can help, probably talk therapy is helpful for some people, pets, friends, seeking out good times, shoes! (my favorite remedy ;) ).

    I also force myself to work through the worst case scenarios. At this point I am more or less at peace with the dying bit. Still not so hot on the how and when bit, but I am working on it :/ It helps me though to force myself to think it through. In the process, I am able to ID just exactly what it is that scares me the worst. Then I can try to address some of those things (living will, how I manage the doctors etc). This may not work for everyone, obviously, but it makes me feel like I have some modicum of control.

  • pamelahope
    pamelahope Member Posts: 534
    edited March 2013

    Thank you! Good advice. I needed to hear we can carry on and live a good life. The part about you being a 20 year veteran did not hurt either!!!!!!

    Pam

  • NatsFan
    NatsFan Member Posts: 3,745
    edited March 2013

    Pam - nihahi has some very wise words.  It really does get better with time.

    One trick I've used is the "two week" rule.  If I feel a twinge, ache or other unusual feeling, I tell myself that if it's still there in 2 weeks I'll call my doctor.  Most of the time it's long gone and I've forgotten about it at the two week mark, but there have been a few times that the condition has persisted and I've gone to my doctor.  (All were minor non-b/c issues.)  The two-week rule for me is a middle ground between panicking and ignoring - I acknowledge the issue but don't panic because I've promised myself to revisit it in 2 weeks and take action then as needed.

    I'm a 5 year "veteran" (I like that word better too) who will finish up femara this June.  Femara can cause fatigue and joint/muscle aches, so some of what you're feeling could well be femara s/e.  Keep up with your exercise program - that's one of the best ways to get through this.  You may want to incorporate some yoga into your fitness regime - the stretching really helps femara aches, and it also teaches you how to calm the mind. 

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Pamela....you may take some time to believe this, but at some point, you will be the one giving hope and understanding to someone else! Remember, you are still in many ways, NORMAL, I know, you don't feel that way. But doing what you're doing, the active lifestyle, plus eating healthy, finding ways to help you get through stressful times will be HUGELY BENEFICIAL  for you, and can help you feel like "everyone else". In reality, shouldn't everyone try to be active and eat healthy...bc or not! Stress, worries and OMG moments are part of normal life for everyone. Pretending you can eliminate them completely, is not living in a real world. At the moment for you though, these emotions feel so huge, and feel so connected to cancer, but everyone has them, even non-cancer people. You can have a bad day, just like the rest of the world, doesn't mean the next one will be bad too! 

    I'm 62, still hike, ski, snowshoe, bike, have fun with friends, try to eat healthy, but also let myself enjoy a glass of wine, or a handful of potato chips too! 

    Keep in touch with us! You sound like a great gal!

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    OOO Natsfan......yes yoga..I do it too.......sooo good for everyone and everything!!!!!!

    Also forgot to add, I think it is important to have a "healthy" respect for the toll that tx and sx takes on our bodies. The after affects of chemo, doesn't end the moment you walk out the door after your last dose! People don't wake up from sx either, dust off their hands and say "right, all done"...then hop off the OR table and go home to cook supper! It all takes time, and you DO have the time to "get there".

  • ruthbru
    ruthbru Member Posts: 57,235
    edited March 2013

    Pam, you are getting great advice. How you are feeling is absolutely normal after such a shattering experience...and it is like being shattered and having to put the pieces back together. Time is part of it, and here are some things that helped me. The two week rule of aches/pains etc. is great because it allows me not to 'dwell'. It is good you are exercising, it will help you physically, mentally and it lowers recurrence your risk! (If you want to have some neat exercise buddies, check out the Lets Post Our Daily Exercise thread on the fitness forum.) I bought some meditation and stress reduction CDs that are actually quite helpful to me. And, at first, I was scared to make any plans at all because of 'what if something happened?', then I realized * statistically 'nothing' should happen to me and I was wasting my worry for nothing * if 'something' does happen, well, it hasn't happened yet and I better get out there and do all the fun/interesting/good/crazy things that I want to right now while I still have the chance.....so after that I have had really a more rich life than I had going in....so you can MAKE something good come out of this rotten experience! Start out by dying your hair red, or booking your dream vacation or taking piano lessons....or anything that you've always wanted to do but didn't have the time/money/courage/whatever and go from there. (And report back what it is! Smile).

  • fredntan
    fredntan Member Posts: 1,821
    edited March 2013

    I had that. After tx was done I just crmbled. I was a mess. Almost quit myjob as nurse. I cried at home at work. Then I was crying over thought of leaving my work



    No one knows how long they have. I am doing everything possible to keep this shit away.



    In the meantime, i am going to have as much fun as I can.having little midlife crisis over here. Bought a car, didnt tell hubby. That will teach him to answer his phone

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Fredntan.....hahaha....love the "teach hubby" scenario!!!! Too funny. My hubby doesn't always answer his phone either, when I really need him to. I'm 62, but thinking maybe I'll try something like that next time I get sent to voicemail.....can I still claim the cover of a "midlife crisis"?

  • jwilco
    jwilco Member Posts: 486
    edited March 2013

    Well, you are not alone.  I go through the same thing.  Last summer my husband felt a swollen lymph node in my neck.  Put me right back to that bad place.  Got it checked and found it the lymph node was normal.  However, they did find I had a nodule on my thyroid.  So now I worried about that.  But it was biopsied and is ok.  But then I think..."will this ever end????". 

    All of the above advice is excellent and I'm taking it all in myself.  I have taken a mindful meditation course to help me learn how that practice can calm our minds and also help our over all health.  I've also started taking a yoga class.  I alread do the exercise but I wasn't doing anything to help with the worrying.

    I've also been trying to live life as others mention.  Do things now instead of putting them off.  

    I also switched my ONC dr and now see one that has made me feel much more confident about my experience and decisions.

    Hang in there.  It does get better.  There will be longer stretches of time when you don't think about BC at all.  

    I also keep coming back to this site to read posts such as yours.  They help me know I'm not alone and also I can share the great advice the others give.

  • pamelahope
    pamelahope Member Posts: 534
    edited March 2013

    Thank you. It is nice to know we are not alone. I am sitting on my front porch now just relaxing.

    Thank you for the advise of mindfulness.I am trying to practice that too!!! It is a handful staying on top of this!!!

    I have some meditational CDs. I like Ruth Naperstak? Spelling. I will look for one titled healing from PTSD.



    May we all have peace, love and strength today.

    Pam

  • jwilco
    jwilco Member Posts: 486
    edited March 2013

    One thing I've learned from practicing mindfullness.  It works.  Each time I take the time to stop and meditate or attend a yoga class I feel better.  More relaxed.  Time spent not worrying about BC, work, family, etc., etc.

    The hardest part is taking the time to do it.  But with time it will become a habit.

  • Momine
    Momine Member Posts: 7,859
    edited March 2013

    fred, "Bought a car, didnt tell hubby. That will teach him to answer his phone." You cracked me up completely. Here I feel about a measly pair of shoes sometimes. I obviously need to step up my game ;)

  • pupmom
    pupmom Member Posts: 5,068
    edited March 2013

    Yeah, Momine, get with the program! Sheeeesh. 

    BOT, pamelahope, I so relate to what you are saying! When I look at my early posts here, I was completely where you are now. Sounds like a cliche, but time does heal all wounds. I also started taking Effexor, which helped tremendously. 

    I had a panic attack recently, as I am coming up on my yearly bone and CT scans. Interestingly, when I was panicking I also believed my husband would be on a business trip during the scans. The thought of being alone if, God forbid, I got bad news, was so frightening. When his trip got cancelled, my anxiety immediately subsided. Still nervous, but not panicked.

    Best wishes!

  • Outfield
    Outfield Member Posts: 1,109
    edited March 2013

    Pam, I think we all go through this.

    I'm not in any way trying to say that I share the experience of combat veterans, but I've actually found it very helpful to work with a therapist who has worked with a lot of combat veterans with PTSD.  

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Pamela.....hope you're feeling better tonight, tomorrow is another day farther down the road to recovery! 

  • pamelahope
    pamelahope Member Posts: 534
    edited March 2013

    Thank you! I am doing better. Hope everyone here is doing well too! Pam



  • jwilco
    jwilco Member Posts: 486
    edited March 2013

    Just checking in to see how everyone's week has gone.  I went to my yoga class and felt better.  The instructor also teaches mindful meditation so she encorporated the positive affermations into the yoga.  So Monday night was good.  Work was stressful so far all week.  But I'm trying really hard to not let it get to me and be positive and thankful I have a good job.  Working on the worrying thoughts too.

    Healthwise I'm just trying to take each day as it comes.  So far so good this week. 

  • pamelahope
    pamelahope Member Posts: 534
    edited March 2013

    Jwilco, Glad your week is going well. Pam

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