Can't Stand the Radiation
Tomorrow I will start week 5 of radiation with 2-1/2 weeks remaining. I hate it so much. The techs treat me so impersonally. I feel like a slab of meat on a table. My breast hurts and I'm afraid I may be developing lymphodema. I hate that every day is radiation day. When the weekend finally arrives I'm too tired to take advantage of two days off. I hate this whole miserable experience from "something looks odd on your mammogram" to biopsy to lumpectomy to radiation. I hate it. hate it hate it hate it.
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I hated it too. It was going to give me a breakdown. I quit rads after 12 days and organised a bilateral mastectomy. Feel like it was the best decision I ever made!
I'm sorry you are going through pain both physically and mentally...
Hugs, Jenn -
CarolynVM, please, please talk openly and honestly to your RO, your nurse, and your techs. All of them are meeting your physical needs, but it doesn't seem any of them are aware of your need for human communication. They have to know your concerns or they can't fix them. I was ready to quit on day 3 for pretty much your same reasons. I spoke to my techs, who as it turns out, not only have the power of speech, but are delighted to explain everything about their machine and their roles. They also introduced me to their department head. The head tech spent an hour with me. Just a bit of very human conversation and 90% of my apprehension/fear/horror disappeared. Today will be day 7 and, for now, at least, I'm dealing with rads. Fiercy independent though I am, this process is one I don't think I could do alone. I'm absolutely counting on my RO, my nurse, and my techs to get me through this experience.
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Before you know it, it's finally Done I hated to leave my home everyday even cried at the end I just did not want to go. I almost quit but everyone talked to me and I hung in there. It will pass I will be done with everything this Tuesday it been a total of 15 months from diagnoses.
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When I was lying on that table with my arm over my head in that huge, cold, cavernous room all alone, I would visualise myself like GI Jane: army fatigues, combat boots, shaved head (well, in my case, bald), guns holstered on either hip, poised and ready. When the beam switched "on", in my mind I hit the ground running, blasting each- and every cancer cell that crossed my path. None of them survived. And when the treatment ended, I packed up the visualisation to bring back the next day. And the next. And every day until it was over.
It got me through it. You can get through it too.
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Well, I still hate it but the end is in sight now. I never considered stopping the treatments so when Jent said she had quit I realized I DO have a choice. It's much easier to do something awful when I'm doing it by choice rather than being forced into it. I do have lymphedema an that's going to be three times weekly for PT. I'll be done with radiation on March 21 so the next couple of weeks will be full of cancer care. I think I hate being a "cancer patient". I hate being a "cancer survivor" or "cancer warrior" just as bad. There is nothing I could be labelled that would be acceptable if it included the word "cancer."
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Carolyn, sorry you know already on the LE but you have a HUGE set of VERY knowledgable folks on these boards
check out the LE threads and ask all your questions, Binney is the pro!
You'll make it, it is all about life
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Carolyn, it's funny how we react. The techs all thought that I would like to talk to the other ladies in the waiting room and bond and enjoy the tapes they played during radiation. I was the opposite. I read magazines, spoke to no one and asked them to "please turn off that music" when I entered the room ( Nothing worse than rads with Barry Manilow, nothing against him, just not my taste) I thought of it as a job, one that I wanted to get through and didn't want the fluff. The techs immediately turned off the music when I came in and didn't speak to me much and didn't throw the "sparkles" when it was over. I think that everyone is different. I did become extremely tired towards the end and went on temp disability. When it was over I left a spectacular giant Mum from my garden for my RO, she called and left a thankful message in shock! I think that no one knows what bugs us until we tell them and your RO is the head of the ship. Please call and ask if you can have "a few minutes to talk to her" before your next radiation. You don't really have to explain it to the receptionist, just say, "it's personal and I would rather speak with her privately" Your feelings and experience count. Let us know how it turns out and many hugs, it's almost over. You're doing great.
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I was feeling sort of like you to C. I made myself go for about two weeks. Autopilot...no choice, I felt so thankful I didn't need chemo that I knew had to do rads. But everyday I felt like a crazy person letting them do to me what every healthy person in the world would never allow someone to them! I finally had myself a bit of a melt down after another night of anxiety and nightmares. I started to cry before my treatment, my nurse saw me, whisked me to privacy gave me Kleenex and within seconds the ro was with me. We had a great chat discussed my fears, he offered me Ativan on the spot! He recognized how much I had been holding in. I went for my treatment and it was obvious that the techs had been briefed on the tears! They could not have been kinder or more compassionate! I got done with tx that day and was greated by my nurse with a hug and a prescription for Xanax. let them know how you are feeling, you are not the first. What you are describing is an internal freak out. They will help you, if they know! I'm two weeks done, healed and movin on...bless you!
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I'm happy to have helped :-)
I think very many women (and men) forget that they have choice in this whole process. My oncopsych told me that many women change their minds about different treatments along the way, and that is OK.
I hope the last treatments are gentle on your body and spirit!
regards Jenn -
Carolyn, we're all quietly cheering you on through your last two weeks of radiation.
• Your Mods
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Carolyn - It all came back to me. I had rads 4 years ago and the techs seemed so cold blooded. I just had the mastectomy and, when they told me to raise my arms overhead, I could only do it slowly. I was threatened with "We'll have to tie your arms up if you can't do it".
There was no talking to the techs. They were so busy with a waiting room full of people and interrupting us with hospital patients who get first dibs.
I also felt like a piece of meat - so impersonal - so degraded - lying half naked on a table in a huge room with no dignity, even getting dressed back up in the hospital gown (hurry up!). I also lost 3 lbs. over one weekend, which is not easy for me, so it was scary.
Good news is, I'm going on 5 yrs, Stage IV, with no advancement in the cancer. When the rads are over, Carolyn, hopefully you'll get good results too.
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Carolyn- I can totally relate to you! I hated, hated, hated radiation. To me it was so humiliating laying there. However, I felt i needed to do everything that was recomended to beat the cancer. I felt that chemo was killing the cancer but rads was killing me. Hang in there, you are almost done!
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I felt like this too, I was just a slab of meat and when I was man handled by men I just cried, the techs said they thought I needed psych help - NOOOO I just needed human kindness and recognition I was and am a living feeling woman
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Wow listening to you all I am thankful where I went for radiation I had several Techs and they ALL would talk to you and treated you very well they even give you a completion certificate when you where all done.
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I also feel very lucky on many levels. I HATED the thought of radiation and the possible silent side effects. I only had 16 sessions, but did get a nasty fungal condition under my breast that peeled twice. However, the actual experience was made bearable by the friendly techs and the feng shui design of the room, which was named "Serenity". The lighting was mellow and the music wasn't too bad, but I don't think I will ever need to listen to Rod Stewart again! I took them a Narada cd of very new-agie but pretty music, but it was only on once. I hope things go better on your last two weeks...hang in! I visualized Lady Pacman munching on any leftover cancer cells -- and, for some reason, she had rhinestones around her mouth and a big pink boa!
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