DIEP 2013
Comments
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I have found Cocoa Butter (the real stuff, not palmers) to do wonders on my belly scar. It is smoothing out and starting to look ok. I also read that you can dab lemon juice on the scar after you are totally healed to lighten it. I'm sticking with the cocoa butter. I wore a compression garment on my lower half for a few weeks. That really helped bring the swelling down.
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Will PS be able to do a DIEP or TE on flat chest? I may need Rads after MX, so I'm thinking delaying the recon. The surgeons generally will save the extra "potential" good skin for future recon, corrrect? What if I want a clean cut? I guess for furture DIEP, the PS will need to use TE first to have some extra skin, then do the flap? Is that how it works? thanks in advance for any comments
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Winter... All PS are different... Some might use a TE, but there is no need to expand the pec muscle for DIEP, so I wouldn't want that. Another might slip an implant in as a place holder. And another would just do the DIEP and overstuff that side to accomodate for shrinkage due to radiation. And yet another would not preserve the skin and use your abdominal skin at time of DIEP.
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I am 5 week post-op yesterday. Like Jackie, my ab-incision opened up and it pushed my recovery back by 2 weeks. The abdominal wound is almost closed now and I am doing some work from home and went to a two hours meeting yesterday. Well after the meeting I took a 4hours nap :-). My ps did a great job shaping my new breasts and they look just as good as the post "stage II", if not better, because i had NSM. The breast incision lines are very fine and most part smooth right now. The ab incision line is going to be yuky, but the ps will fix that later. He promised to make it look like the lines on the breasts. I did have some drain problems the first week I came home and my ps took care of them on the same day I emailed him. Oh, I also had a couple of very troublesome pains unrelated to my surgery: cold sore in the mouth and a bad toothache. I would prefer not to have surgery onthat tooth! smooth healing to those post-op. Best wishes to those waiting. Tammy
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Hi, all! Today is 2 weeks out from surgery for me and I can't complain. I still hunch over and my back tires easily, but the more I move around the better that seems to get. It's easy to overdo too, though. Frequent but short, gentle get-ups & walks seem to be the ticket.
In some ways I swear I have more aches than earlier, but that might be b/c I'm pretty much off pain meds. And I think I may have overdone some (light) work around the house in the last two days. It's tough to find the right balance! I think I at least need to be taking regular strength Tylenol; took some a bit ago and feel better. Maybe that will help with sleep, too; I've been waking up a lot from the aches and have trouble finding a comfortable position. Still can't sleep on my side, my preferred position, so the back sleeping is getting old (and achy).
My mother-in-law left today so we'll be on our own for cooking, laundry etc. I was really spoiled. Boys, get ready for orders! -
Jackie,
Glad to hear you are moving forward with your recovery. Do you mind saying why your surgery took 18 hours? How much was for mastectomy time and how much for DIEP?
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Pinkheart, I don't mind at all. I knew going into my BMX/DIEP procedure that my vascular system was "small" ; as in small veins and arteries. My two surgeries were to run 9-10 hours. They completed the procedure on time, but my right breast developed "venous congestion" where the vascular system was slowing down the blood flow....and the surgeons lost Doppler on the breast. My surgeon did exactly what I would have done, had I been in his shoes- he re-opened my abdomen , "fished" around for a more suitable vein, and redid the whole right breast transplant, and voila! Right boob saved!
:-). So glad he did, as I am very happy with the preliminary results.... :-)
Namaste, and God Bless......Jackie -
Jackie,
Sounds like you have a super doc! Glad you didn't lose your flap. My complicated mastectomy portion was 7.5 hours alone, and haven't come across anyone with such a long mastectomy so that's why I wondered.
After failed implants and radiation damage the following year, I had bilateral SGAP surgery. I had the imaging the day before and read the medical records with data tables listing arteries and size and a few said "medium" but mostly said "large."
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i have a question......what made you decide to do the DIEP? you did the research and saw the healing time, the surgery time....the extent of the surgery itself and you read from everyone else what recovery would be like. i really want the DIEP but i'm sooooo freaked out over what it entails. what made y'all decide this was the surgery for you and worth every bit of what you have gone thru?
again, i'm freaked, but i really want this surgery. i don't want to have to do it every again and i don't want to put anything foreign in my body. i also don't want to jeopardize my muscles. i'm 48 with a 7 yr old boy who loves the outdoors and sports.....i need to be able to keep up with him.
what made you decide this surgery over the other ones?
thank you in advance for your thoughts.
much love!
Ally
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Ally,
This is not an easy decision for anyone... But it all SOUNDS harder than it really is. I had some complications, and even after that I have no regrets... In truth, the first two weeks are hard, but it usually improves greatly after that... I think almost anyone could put aside two weeks for this surgery... At two weeks post DIEP, I had been off meds for a week, was driving and doing normal stuff - but no lifting or exercise for 4-6 weeks. I went back to work 4 weeks post DIEP... Which was 8 weeks post GAP/MX (as I said I had a complication)... But after GAP, I was off meds in like 4 days, and also driving 2 weeks out... Of course some people need more time, but I suggest planning for normal recovery and just have it int he back of your head that you may need more time.
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Ally, if you are doing a DIEP or GAP flaps you are not jeopardizing your muscles. I doubt any of us rushed into this surgery, but I know a lot of women are rushed into implants as that is all their PS knows. I spent about 7 years just exploring DIEP. When my implants were originally placed many, many years ago the reconstructive procedures of today were just a glimmer in the eyes of some very progressive surgeons. A type of lat flap was available at major medical centers, but my PS readily said it would create significant muscle problems. So I watched and waited with my implants in place. And then came these highly specialized flap procedures. I knew a few women who had them about 6 years ago. Some went well and others had significant problems. The significant problems were complicated by unresponsive medical professionals (they could have been a lot less significant had the MDs communicated better). So I spent lots of time looking at surgeons who preformed the procedure. I knew that I didn't want to replace my 2nd set of implants with a 3rd set. I wanted my own. My DH & I attended a presentation given by Dr. Marga Massey. Half way through, my DH leaned over and said "she's the one". And she is. I am a work in progress and am anxiously awaiting Stage 2 to see how this progresses.
Please don't dwell on the things that make you nervous. You won't be able to make the best decision on a PS. You won't be able to make any good decisions as you will be worrying endlessly. If you would rather have your own tissue, this is the way to go.
Yes, you will be down for a time (not that long) and you will be able to keep up with your son. Recovery is faster than you think, but don't rush it. Your body will let you know in a variety of ways that you are not giving it what it needs. Just breath - the decision will come.
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Dnadebbs, I originally was just going to do a BMX with no re-con. I am 58 years old, and thought I didn't need to do that. However, my BS refused to do the surgery until after I had met with a PS to learn my options. I honestly went into that mtg totally ignorant of the world of post-MX reconstruction, other than implants, which I knew I would not like, I knew very little about the other options. (I think I was in denial about my new "normal"). The PS surgeon laid out ALL the options, and after considering them all, I decided on the DIEP was the one for me. It's all natural. And although I am slim everywhere else , in the belly region I carried excess fat ...... The allure of a flatter belly pushed me over to that camp. Recovery for me would have been probably 2weeks sooner, except for the complications. On the other hand, ANY time you do surgery, you run the risk of complications-although usually the risk is low. I LOVE my new girls, and even with the setbacks, I would do it again. Good luck to you as you navigate this process, and I am sure you will end up with the procedure that works best for YOU. :-)
Namaste and God Bless- Jackie -
Diep seemed the best option for me too. I thought I would rather have my own fat used and not some implant. I had the extra tummy to get rid of. With other procedures , mostly implant there may be a shorter surgery and recovery but you are going back about 3 times to complete the look. Diep is a long surgery, and a longer recovery 6 to 8 weeks . My work involves lifting and arm lifting so I will probably need the max time off. You go back just to do nipples, which is can be a simple in and out procedure. When you are under anestic whether its for 3 hours or 10 hours the risks can be the same. Muscle is not used for diep. Do the research , talk to your PS about your concerns. Go with your gut feeling and don't look back , don't think too much. I just got out of hospital on sunday and am hobbling around , sore tummy , swollen and sore breasts but nothing unbearable. Hardly any painkillers now. You will defn. throw that ball with your son again.
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My choice for doing the DIEP came after consulting with PS's in Michigan. One wanted to take my stomach muscle and the other wanted to do the lat flap. I came home so upset. Then I got back on the Breastcancer.org site that had helped me 10 years earlier. That is how I learned about DIEP. I have to admit that the allure of a flat tummy was a positive. To get that however, a large scar would be born. Then came the hunt for a surgeon. I need someone who had done hundreds or thousands of these. Someone directed me to the NOLA thread and the rest is history. I am almost 2 weeks out of stage 2 and am amazed at what my surgeon did. (Dr. Marga Massey) I didn't look bad before surgery and yet I look better now. Best of all my breasts are warm and they are me. That was important to me. It may not be for everyone.
The first recovery went well with no complications. I was off pain meds in one week, hit a low around 3 weeks in, got my last drain out at 4 weeks and sailed from then on. My stage 2 was simple with only 4 days on meds and my last drain was out in 9 days. You could be back at work in two weeks. I am in compression for a long time however.
Do your research and make a decision on what is best for you!! When the choice is yours your first step is a positive one and you will have the right frame of mind for it. You have to feel comfy with your surgeon because you are in their skilled hands.
Good luck with your decision! -
I am curious Cherie what is stage 2? I was told that once I heal fully ,in a few months, that the only thing left was nipple work . Tattooing is the easiest and fastest method.
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I'm curious too.
I've heard about 'Stage 2' a lot on these threads, but my PS told me that it was a one stage procedure, followed in a few months by nipples.
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Stage 1 is to place the tissue and get a good blood supply. Stage 2 is where aesthetics are incorporated. Breasts may be lifted. They are sculpted to properly shape. Scars are revised. Fat is grafted in areas where needed. Dog ears are removed.
For example, during Stage 1, I had my implants removed, the scar tissue was chipped out, the tissue and blood vessels harvested and attached in the appropriate location. During Stage 2, my left side will be lifted and moved with fat grafting to fill hollows. My right side will be cleaned out as there are the remains of a hematoma that required a second surgery 2 days after stage 1 so we could save the flap. At some point the dog ears at the abdominal incisions will be repaired and the dog ears left over from the initial mastectomies will be corrected. Later we will go for nipples and other adjustments as needed.
In a few months, you may notice divots and need fat grafting. You may find that the breasts don't match and the symmetry is lacking. Scars may need revising. Work with your PS and be sure you get the final result you are happiest having. Your new breasts should look normal and natural.
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Hi Ladies, just back from a girls weekend away. Great support group of friends, who planned this as a pre-surgery "pick me up". Perfect timing, as I had started to have some panic meltdowns just a few days before.
Stage 2, usually means when the surgeon does whatever "tweaking" is determined to be necessary (or sometimes, just "desired"), to the breasts or tummy scar. Some people have a lift or other type of procedure done to the remaining natural breast, to get better symmetry at this stage. Some people even breakdown Stage 2 into a, b, etc, meaning more than one surgical session of "tweaking". It could also just mean nipple reconstruction, if no revisions are done. Some people seem to use the DIEP as an opportunity to have lipo done in various areas also. I think some people refer to Stage 3, as meaning tattoing. It really is more of a "terminology" difference, than a surgical difference.
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ok now I understand , thanks. I am hoping that the only thing I will have to do are nipples and will chooe the tattoo method.
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Marty and Nihahi did a great job of explaining. My stage 1 was tissue placement and making sure there was a good blood supply. After healing, my nipples (nipple and skin sparing) literally went south. In stage 2 I had my breasts lifted and had fat grafting for symmetry. Also, my dog ears were removed at this time. It is my choice to continue as my abdominal incision is like a knotted rope. This can be fixed and I want it to be. I may be done unless the fat grafting gets reabsorbed and need to be tweaked.
I am not out for the perfect body at 58, however BC has taken a toll and this new body has been a real lift to me. (Nice pun.) I am eating better, exercising, etc. I feel younger than ever. Yahoo!!!!!!
We have to be comfortable with our own decisions. I didn't want to settle for looking okay if I can look great! I deserve it.🌺 -
For those who have already had their DIEP and had external radiation treatments prior to their reconstruction, I have a question. Did the radiation effects make healing slow? Was your plastic surgeon concerned about the flap "taking"?
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sbelizabeth - I had rads. My recon was delayed after MX, chemo and rads.
My PS wasn't concerned, he thought it was more of a concern for implants, not diep. My healing is going great! 5 weeks tomorrow and the flap has taken no problem. -
My radiation side has healed faster and nicer than the other side. I had a BMX.
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Great, thanks Cherrie and Kiwimum. My radiation side just seems to be so stuck down and hard, it's difficult to imagine how the surgeon will make it into a breast.
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I had radiation 4 years before my recon and was also worried, as the skin on that side seemed much thinner. I had a hard time imagining it accomadating a flap. But my PS wasn't worried and so far, it's been just fine - I can't believe how healthy that side looks now, actually. Though I'm only 2 weeks out.
My PS said past radiation would be more an issue with implants. As I consider possibly doing implants later under my flaps - I only had enough tummy fat for very small new girls! - I wonder about the radiated side again. But I think as long as tissue expansion isn't required, it should be ok? -
Interestingly, it looks like past rads may be an issue for nipple recon, however - see the question someone just posted on this.
I've been undecided about whether to go that route anyway (have been leaning toward tattoo only), but I didn't know about this issue. I'll be sure to ask my PS at my one-month appt. -
My surgery is coming up tomorrow and I'm slowly but surely becoming a big ball of nerves, yipes!
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Cuetang, you will have a nice nap tomorrow and ready for the road of recovery. Best wished. Tammy
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Aw, Cuetang.....not surprising at all to have the nerves "ramp up" the day before. I'm sure we all will be the same. Hope you have friends, family or activity to help distract you today. Do you have to travel for your surgery? Sounds like you gals on the East coast have had quite the winter so far. I'll be thinking of you, and sending hugs today and tomorrow.
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Best wishes to you, Cuetang, and remember we are cheering you on!
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