Starting Chemo February 2013
Comments
-
You are a masterpiece
. Hope things get better for you with SE
-
Went into the shower with hair - came out with a family of dead hamsters in my hands. Guess I need to go figure out how to wear that scarf before I go to work tomorrow. This too shall pass...
-
kkmom, I've definitely noticed a mood shift when the steroid starts to wear off - for me the second and third day. I feel very flat at first (numb brain) and then I can easily cry or feel really irritable over nothing. My MO, in a very understanding way, cautioned me to count to ten before opening my mouth
!
Wildlyshel, The first two times I went for chemo I was the only person without hair - 1 out of 8 men and women. Anyway, last week there were three women wearing hats, including me ... nice to have company! We had a few laughs ... I've wondered what some of my friends would look like bald, but haven't shared that thought with them!
NBalla1956, You've had quite a ride with all of the changes re: your treatment - including your chemo protocol - holy cow! Glad to hear you're tolerating AC and hope you kick that infection soon.
Rdrunner, Hope your tooth gets better this week!
slv58, I have red eyes as well - they go well with the flushy puffy face that I have for a few days I'm using Eucerin Intensive Repair on that bumpy dry area - seems to work well.
ywheels, good to see you here as well and a few others I recognize from the January group ...
Hope everyone has a peaceful and confortable day, Martha
-
My daughter's little friend asked me last week why I was wearing hats. I explained the medicine they give me made my hair fall out. Today, she came over while I was wearing my wig and said "well I see you grew all your hair back".
Sasha, I hope you are feeling better soon.
-
DiZZyMom - that is hilarious - one of the few things on the board that has made me chuckle!
-
so I got my shot on sat. Been taking the clariton and Tylenol and so far only have some mild tailbone pain. still also taking the nausea meds as i remember from last time i needed them for about 5 days? Question is how soon for those of you with bone pain did it start and how long did it last?
Im also amazed some of you are back to work. I am still so tired and to be honest sore from the tissue expander's. they just kill me and i get no sleep from them. I am bored to death sitting home, but i just don't think I could make it through a day of work yet:-(
-
The bone pain for me started about 2 days after the shot and I felt it mostly in my thighs, lower back and tailbone. First time, I did not do the clariten and this time I did. It made a little difference but there was still some pain and I had to take advil a couple times. It's now a week since I had the second shot and there is very little pain anymore.
I know what you mean about those expanders. If you are still getting fills, it's intense. I had problems taking pain meds after surgery. But when I was still getting fills, I would take valium just to be able to stop the pain so I could sleep.I also found it more comfortable sleeping on the couch almost sitting up. Lying down felt like there was a ton of bricks on my chest. How many more fills are you having? I had the last one 5 weeks ago and there is no pain at all anymore.
I hope you feel better soon.
-
Tangles-I get my bone pain the day after the Neulast and it seems to get amazingly better by Monday. I get it in my upper back, neck, back of skull. low back, and hips. I also do the Claritin and use tylenol. During these several days I find that my best friends are hot baths/showers and the heating pad.
NBalla-Hope you are feeling better soon! What ups and downs you've had, hopefully things will smoothe out soon for you!
DizzyMom-That really made me laugh! Kids just have a totally different view of the world!
Hope everyone has a great week, thinking of all of you heading to the bar this week! Praying for no SE's!!!
-
Lisa- you say you get the pain the day after then its better Monday. What day is the day after?
I have heard the pain is better with more fills. I have only had a few fills because of getting sick and being in the hospital for 10 days and then back in the ER. My Doc wants to see how my white count goes this round of chemo before I go having any needles stuck into me. They also want me to get a blood count before I get a fill. I thought there is no hurry as I cant have them swapped out until this chemo is over, but if it would help the pain of them a little then maybe I will try and push through a few more fills.....
-
Tangles: Hi! I get my Nuelasta shot on Thursday. The pain starts Friday and by Sunday is better. I actually have pain meds because the SE's from the first time were so bad. It helped the second time. I do the Claritin as well, but Advil/Tylenol didn't put a dent in the pain so that's why I got pain meds. I am very, very tired though, through about Monday, with it getting better each day after. By Thursday, I feel pretty good through the following Tuesday, the day before my next treatment.
As far as expanders. I am 7 weeks post op. It gets better with each week. I only get fills on my off treatment weeks and only get 30 cc's in each side. Anything more is just too much for me and it hurts too much. I have two more fills to go and will be done. If you have pain, ask if you can get fills every other week and if you can get less cc's. You may have to have more fills, depending on what your size will be, but I found it was easier for me to do a little each time over a longer period of time. Also, ask for some pain meds. It will help you sleep better and you need to rest.
Don't feel bad about not going back to work. Everyone is different and our treatments are different. It is most important you rest. On days you feel okay, try to get a bit of exercise. A short walk. It might help with the pain and fatigue. I found it has helped me. It's not always easy and there are days I have to drag myself out of the house to walk just 15 minutes.
Keep us posted and good luck!
-
Dizzy mom that is hilarious! My hubby asked me why I was laughing. It made him smile too when I read it too him.
We've decided to paint our heads like Easter eggs on Easter--he is bald too. I will try to post a pic if I can figure out how.
Neulasta - I took white willow and had absolutely no pain from the Neulasta. Only at the site of injection a little sore. I got the list of things from the book Herbal Medicine, Healing and Cancer. He works with MOs to compliment the chemo.
My friend gave me a cookbook last night called The Cancer Fighting Kitchen. It has a section for recipes to use for recipes for specific side effects, what recipes are good during the first week after chemo, taste bud troubles, etc. I am looking forward to trying magic mineral broth for Nausea. They even have recipes for sore mouth and difficulty swallowing! Thought I would pass it along in case anyone was interested. I cant wait to try some of the recipes. They look good! -
Wildlyshel - I have The Cancer Fighting Kitchen cookbook too. Haven't tried any recipes yet but planning to start this week. Think I will look for Herbal Medicine, Healing and Cancer - is your MO okay with you following it? I get fairly confused on what's okay to take while on chemo and what isn't - there doesn't seem to be complete agreement.
-
Didn't get the neulasta shot for the first round and thankfully my count is up on its own to 2.7 and rising. My doc says I will get the shot with round 2 because I dropped to 1.2 and I've seen that some of you have gotten pretty sick without it. While I'm not thrilled with getting the shot I'll be happy with one less thing to worry about. They also told me that if I have another allergic reaction to it that I will probably be done with chemo. Day 12 and still no sign of hair loss but I know its coming and its driving me nuts wish it would start to fall out so I can just get it over with and stop crying about it! Anyone else feel spaced out?
Dizzymom, my sister told my 6 year old nephew that my hair was going to fall out and he said the sweetest thing: He said may may your still going to be pretty-I love what comes out of kids mouths when they are that young its absolutely precious
-
Tangles- I get my chemo on a Wednesday every 3 weeks, thaen Neulasta on Thursday. My pain from the Neulasta starts Friday morning, & seems to be gone by Monday. I've been taking tylenol pre-shot & every 6 hrs after. I think next time I am going to try aleve instead. My onco isn't crazy about the aleve because it's a NSAID & can affect the platelets, but I am only going to be taking it for 4 days. I can't see where it's going to kill too many in so few doses! I have to be functional & be able to work too!
I don't know that I'd be working like I am if I'd have had to have mx & recon, along with chemo at the same time. I think that is ALOT for a body to handle in a short period of time! You ladies dealing with all of that at once truly are superheroes! -
ywheels you say only getting fills on off treatments weeks? I am having Chemo every three weeks so are you getting a fill the last week before chemo starts back up. I had Chemo Friday and feel pretty rough today.Hoping the end of the week will be better. Im not sure how many fills I have left. I think I only have about 250-300 in now and Im not sure what amount I am going to. I wanted a full C???
-
Wow you guys are really super heroes. Just had a really rough Sunday. Neulasta suddenly hit my chest. I couldn't catch my breath. I had Claritin earlier then Tylenol. Nothing. I forgot I had Percocet in my medicine cabinet. From the bc surgery. Ended up in the er. Next time. Will take drugs earlier w including anti anxiety just couldn't breath. Hopefully next round won't be so brutal. Trying acupuncture this Thursday.
-
I get 2nd chemo treatment on Wed and Neulasta on Thursday - last time (3 weeks ago) I thought I would be going back to work Monday but that didn't happen - I did go in on Tuesday but only lasted 4 hours -- by Wednesday I finally felt good... I hope I am better prepared this time.. but I really dread the whole thing!
-
I too had pain following the Nelasta shot but was advised by my onc to take Aleve D. For some reason the decongestant with the Aleve works. I pre-med with that and have had little to no bone pain following the shot. This has worked for last two chemo cycles. Also a heating blanket helps, actually helps with everything--like being wrapped in mama's arm.
-
To Heidi9256: I found the best type of scarves are the long oblong scarves, not squares and definately not silk or shiny fabirc as it slides all over unless you wear a skull cap underneath. Put the scarf on your head pullling the ends to the back with one side about 2/3's longer than the other. You can double wrap, twist or even work a braid onto the second layer and it keeps you warm. Add a pair of great earings and you are good to go. You also have a good excuse to buy new funky earings.
-
I have purchased 5 scarves from 4women.com they are pre-tied and lined in a soft cotton so all you have to do is slip on your head and because they are lined in cotton, even the silk one stays on! I also purchased velcro bangs that I wear with the scarf as I have had bangs for most of my life and having a bit of hair sticking out from scarf makes me feel "less chemo" looking.
3rd chemo tomorrow and have to find out about my red swollen eyes! Hopefully I can get some drops or something, I did take a Claritin this morning, figured it wouldn't hurt (neulasta on Thursday) and may reduce the swelling. Hope everyone's SE are minimal.
Still have my healthy fuzz on head, although it doesn't seem to be growing-hope its not an indication of how well (or not) chemo is able to kill fast growing cells. -
My Oncologist said the pain you get from the shot is "bone": so no amount of antinflammatory will work because its not inflammation its pain in the bones. She said Tylenol round the clock and I can ad a tramadol or if it got real bad a Laratab. I asked about the Clariton, she said take it if you want it wont hurt you to try so I am. My heart seems lie it is more racy then normal so I sure don't want to go with the clartion D I think I would then be a real mess. Its so hard to know what to do with all this different information. ( maybe why the hubby says stay off the Internet)??
-
To be completely honest my MO doesn't want me taking ANYTHING that isn't a drug but after reading the book and the section on what things help with chemo and don't interfere I still do. But I have only taken a kidney and bladder tea for two days after chemo to support my kidneys from the Andriamyacin that is sooooo very hard on them and the white willow twice for the shot which is the origin of aspirin and is an anti-inflammatory. So I am not crazily taking a bunch of stuff.
-
today I have my first ever UTI, thought maybe I had one yesterday morning but drank cranberry juice and it seemed to help but then I had the most miserable night - am waiting for the dr to call in an antibiotic... also tomorrow is chemo day but they don't think this will interfer with that..
-
Tangles - that's strange since there is even a medical term for bone marrow inflammation. Oh I reread it. I thought the pain was from the inflammation. Clearly, I need to do more research.
-
Here's a thought: dealing with and fighting this BC has just made giving my son driving lessons a whole lot less scary!!!
-
LisaMM - there is always a good side to everything..
-
Hey ladies. Just wanted to check in. Has anyone experienced chemo acne? I'm breaking out like crazy
Today is day 9 of cycle 1. Today I am tiiiiiired and have flu like symptoms. My mom came to help out with the baby, thank goodness!!! My hair started thinning at day 5, slowly shedding. It's a lot harder for me emotionally than I thought it was going to be, but it will grow back. My scalp is super sensitive!!!
Trying to eat better and searching for some great cookbooks, any suggestions? -
Mirmirpanda- my face has finally cleared up (I am lucky enough already to have bouts of adult acne) but the back of my poor, bald head has started breaking out. Trying some good, old fashioned hydrocortisone cream on it.
-
LisaMM- I experienced breakouts on my scalp after the hair started leaving. I used some Neutrogena T-Gel shampoo which helped clear those up plus had a prescription antibotic gel to help keep any infection away. Hope your head feels better soon!!!
-
Melrose- thanks! I'll have to get some of the dhampoo & give it a try. I was also considering trying some tea tree oil also.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team