LE & flying

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kdholt
kdholt Member Posts: 229
edited June 2014 in Lymphedema

Hi LE sisters!

I am in need of some advice. I have a mild case of LE in my left wrist.sometimes it also bothers me under my arm in arm pit area as well as across my surgical scar on breast. I have had pt on it fro time to time but nothing in the last year. I have never needed to wear a sleeve or anything. Anyway my husband and I will be flying in may. This will be the first time I have flown since my LE developed 3 years ago. What should I expect? Will I have problems? Should I meet with my pt and order a sleeve or glove? I would welcome advice especially if you do a lot of flying. Thanks!

Comments

  • Beckers
    Beckers Member Posts: 1,883
    edited February 2013

    You should definitely wear sleeve and glove according to what my PT told me.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited February 2013

    I flew for the first time last October with a sleeve and hand gauntlet even though I don't have LE and never had any physical therapy.  After reading  the LE threads, I decided it was better to wear the sleeve and gaunlet for the 4 hours each way as a preventative measure rather than risk dealing with LE.  I went to a women's medical boutique and got measured for an "off the shelf" LE sleeve and gauntlet.  Make sure you get a sleeve and gauntlet/glove and wear both at the same time.  Just wearing the sleeve alone may cause LE.   

  • carol57
    carol57 Member Posts: 3,567
    edited February 2013

    Wearing a gauntlet with the sleeve is absolutely the best advice, because a sleeve without a gauntlet might encourage fluid to collect in your hand, and that is difficult to treat.  If you get a sleeve and gauntlet, get measured by a qualified fitter or lymphedema therapist, to be sure you buy a sleeve/gauntlet that fits.  Be sure to wear it for a few hours a day for several days before you fly, both to get used to it and to be sure it fits. To know if it fits, look here:  http://stepup-speakout.org/proper_fitting_of_lymphedema_garments.htm

    And if you look around the stepup-speakout site, you'll find lots of very, very helpful information on other LE-related topics.

    Also, most women who wear sleeves/gauntlet as a precaution while flying will wear them for a minimum of one hour before boarding the plane, and at least an hour after landing.  It's a very good idea to stay well hydrated while flying (thins the lymph and makes it flow more readily). Stay as active as you can (walk in the airport; pace the aisle in the airplane), and once an hour or so, put your arm up in the air and pump your fist ten or twenty times.  Do deep belly breaths (proven to move lymph!) as often as you think of it!  These are all simple precautions you can take to help lower your risk of your LE getting worse after flying.

    And...don't forget to have fun on your trip!

  • sushanna1
    sushanna1 Member Posts: 764
    edited February 2013

    Also remember that packing and carrying suitcases can also be risky for folks with lymphedema.  Pack light, take it easy and enjoy the trip.

  • hugz4u
    hugz4u Member Posts: 2,781
    edited February 2013

    KdHolt, I think it would be a idea to wear a UNDERARMOUR teeshirt on flight. You say you have had some pit swelling and at the back of the pit, this would be truncal LE. Your breast is affected also I see. Usually the men's UNDERARMOUR is more comfy in the sleeve area because they make the women's tee as a capsleeve and it tends to cut due to its shortness. Get a size smaller than usual. Try one on at a sports store. You won't like the high neck but the tee will save you. You could add a Kimby swell spot under that pit, under the UNDERARMOUR if you think you have noticable swell at pit area. It's about 30 dollars. You want to get "heatgear compression" for the best compression.
    Carol, if your reading, do you think KDholt needs a UNDERARMOUR? I am wary of her trunk swelling but your our frequent flyer with all that experience./p>

  • kdholt
    kdholt Member Posts: 229
    edited February 2013

    Thanks everyone for the advice. unfortunately it seems unanimous. I was hoping to avoid needing a sleeve since I haven't needed one to date but I guess its better to be safe now rather than sorry later! Ugh!!!

  • kdholt
    kdholt Member Posts: 229
    edited February 2013

    Hugs4u you are saying an underarmour shirt in addition to sleeve correct?

  • carol57
    carol57 Member Posts: 3,567
    edited February 2013

    I agree with Hugz on the UnderArmour t shirt, making sure it's a short-sleeve version so you are not putting compression on top of compression.  Hugz is a better reader than I am, because I missed the part about your truncal issues.  If you are very tiny, you might need to find a youth size large.  Hugz is correct about the problem of the women's versions having sleeves that cut into the armpit. The men's sleeves are longer and in my case, overlap the compression sleeve by about two inches, although the UA sleeve is not tight at that point, so it does not feel like it is adding compression over my compression sleeve.  Also, I think most of us wear the UA inside out, because the seams are not flat and can irritate.

    I go through the TSA checkpoints with my sleeve / gauntlet on all the time, and it has only once provoked even a look.  One time, a TSA officer wanted to swab my sleeve with the little pad that helps detect explosive substances. The other hundred or so times I have entered an airport in my sleeve--no response  whatsoever.  As for the UA shirt, which I don't always wear while flying these days (my truncal issues don't bother me very often), I do try to hide it under another garment that does not look like outerwear. One time a year ago or so, I had my UA shirt on under a sweater that zipped, and the neckline of the UA showed above the sweater.  A TSA agent insisted that I had to remove my 'outerwear' and I really, really did not want to be standing in a crowd in my super skin-tight UA. I quibbled a bit but in the end settled for a private screening.  Now I make sure that the UA does not show.  Which is not so easy, and one of our biggest disappointments with UA shirts--even a V neck hugs the neck at the top and back, so it's hard to camouflage with normal wardrobe items.

    Anyway, kdholt, these kinds of precautions are minor compared to the P-I-T-A factor if your LE worsens.  No one really  knows if air travel causes LE or makes it worse, because it would be unethical to put a bunch of patients with LE on airplanes and forbid them to use compression, just to find out.  But when I think of the water bottles that I see flexing, shrinking, and crumpling in flight...I just don't want my arm hanging out there with no protection from those pressure changes.

  • kdholt
    kdholt Member Posts: 229
    edited February 2013

    What does P.I.T.A. stand for? Sorry I'm not familiar with all the acronyms :) Thanks for all your help. Also would a control tank or cami work as well as an UA garment? I do have lots of those.

  • carol57
    carol57 Member Posts: 3,567
    edited February 2013

    Oh, dear...sorry. Pain in the posterior, if you know what I mean.  Control tank or cami might work, if it compresses where you have truncal swelling issues. That can be a hard  job for a tank or cami, if your swelling is quite close to the armpit.  

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