Starting Chemo February 2013

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  • shadytrake
    shadytrake Member Posts: 142
    edited February 2013

    Well ladies, I'm as ready as I can be. I found lots of cheap comfy chemo clothes at the goodwill, DH and I sanitized the bathroom top to bottom today, and I moved our toothbrushes to the kitchen.



    If I have to get that neulasta shot, I'm gonna dig into my morphine stash left over from my surgery. ;-)



    I started to panic a little now that it's time for bed, so I took a 1/4 pill and a couple of Advil liquigels. I'm going to be floating in sleep very soon. Tomorrow is a big day.



    Hugs to all. See you tomorrow.

  • Debzah
    Debzah Member Posts: 2
    edited February 2013

    Hi all...starting AC on 2/20...had a port placed on 2/8 and still sore and it feels strange when I swallow. I am encoraged by all I have read on here. Thank you all for sharing your experiences.

  • Lmimp64
    Lmimp64 Member Posts: 219
    edited February 2013

    Debzah, my port still feels sore and very weird in my neck when I swallow.



    Good luck, shady.



    Regarding nausea - do you take the meds on a schedule to prevent it, or only take after you feel it? Thanks.

  • TMM60
    TMM60 Member Posts: 190
    edited February 2013

    Hi everyone- I am joining your ranks. Although I had negative nodes, my Oncotype score came back 28. I have a 19% chance of distant recurrence in 10 years. I don't like that number and my MO strongly urged me to do chemo. I agree. I want to do everything I can to lower that risk and not have to kick myself in the butt 10 years from now wishing I did.

    I've been reading your posts and have really appreciated your sharing of both the positive and negative. It has been helping me get prepared. Thanks for that!

    I start 4 cycles of TC this Friday, followed by rads then Arimidex. Off we go!

  • ywheels22
    ywheels22 Member Posts: 230
    edited February 2013

    Rdrunner: I am in envy of your ability to run/walk during this. You rock! I took a 20 min walk the day before my first treatment (AC) and was exhausted. I asked my PS about getting back to my routine (I work out with a personal trainer, show horses, spin, etc) and he said 8 weeks at best (double mast/immediate recon). I am going to try to walk on the days I feel okay,

    I did take Claritin and I will talk about pain meds. I guess the Nuelasta did not agree with me. Maybe it will get better with each time?

    I am heading to the Am. Cancer Society Live Well Feel Better thing now. Will let you know how it was. Best to all.

  • tangles
    tangles Member Posts: 508
    edited February 2013

    Lmim64- I had my port put in two weeks ago today and it still hurts. I even had the Doc check it as I thought something might be wrong and he said it looked good. I think for me I did it too close to my first chemo and it has been slower healing because of my white count being down. I am hoping there is a day soon that I dont even feel it. Hate to think this is how it will feel for a YEAR:-(

  • tangles
    tangles Member Posts: 508
    edited February 2013

    Im with you Ywheels there is NO WAY I could go back to the gym run or even power walk. Im Jealous! I thought because I already was a "gym" person I would walk right through this surgery and be back in the gym week 4. NOT....... I am not even close. I carry a load of laundry up my basement steps and have to stop at the top and rest. Yesterday I cleaned toilets, and did laundry and dishes and I was totally exhausted. I am no where near working out. Not sure if its the surgery or the Chemo. One thing I have been doing as I read post is looking at what Chemo & surgeries others are getting because I think that makes a difference on how you feel

  • Lmimp64
    Lmimp64 Member Posts: 219
    edited February 2013

    I am with you Tangles. Our bodies are still healing. We need to listen to them.



    Looking forward to hearing about the class. Thanks ywheels22.



    Welcome tmm60.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited February 2013

    Lmimp64- If you are given a prescription for anti-nausea meds, you need to take them to help ward off the nausea in the event you have nausea.  I took Decadron for 3 days beginning the day before the chemo round and took Zofran for 3 days beginning the day after the chemo round.  I also received the same drugs in my chemo IV at the time of the chemo round.  You need to try to stay ahead of the nausea because once it appears, it can be hard to get control of.  Make sure you take your meds on schedule with food and plenty of water.

  • Lmimp64
    Lmimp64 Member Posts: 219
    edited February 2013

    Thanks Melrose. I will. I wasn't sure about that.

  • Hildy910
    Hildy910 Member Posts: 319
    edited February 2013

    Like MelroseMelrose, I had a schedule of drugs to take in the days before and after chemo; thank goodness the nurse wrote the whole thing down as it was hard to keep straight. It's important to stick to it. 

    Also had mouth sores, which were a pain, but they were the worst the first cycle, and got better after that. 

    Regarding the wigs and feeling silly wearing them. I felt like such an idiot the first week or so I had that sucker on, I couldn't see how anybody could look at me and not see a giant 'WIG ALERT!' flashing above my head.  Then a friend of mine who has also been down this road pointed out that people look at you and expect to see hair so really, that is what they see.  You are feeling all the wind blow through and so on, but they have no clue; it's all hair to them.  

    I would look around the chemo room at my fellow patients, and even though I knew that there were wigs in that room, they didn't really leap out at me.

    Tangles, are you going every two weeks or every three for chemo? If it's every three, Neulasta is less of a given. 

    Hope that helps! Good vibes to those heading to infusion this week...

  • tangles
    tangles Member Posts: 508
    edited February 2013

    Im going every three week. I feel like today is a huge difference. It has been 10 days, I am starting to feel more energy. Still a bit tired as I went for a fill this morning and then to the drugstore but dont feel like I need a nap or anything! Oh and I managed to get a shirt over my head with limited pain. That was nice! Baby steps!!!

  • ywheels22
    ywheels22 Member Posts: 230
    edited February 2013

    Tangles: Right back at you. I am a major workout person and thought the same...I'd be back by week 4 (this Wednesday). NOT. My PS said 8 weeks.

    I got a script for a percasat (sp) for the SE of the Nuelasta shot since it was really bad for me. My nurse also said for the majority of patients it gets easier each time. And my MO said I don't have to have it when I start the Taxol (as long as my counts stay within the range he is happy with.) I guess there is a light at the end of the tunnel!

    Lmimp64: The American Cancer Society Feel Well, better thing was nice. You get a free bag of nice make up and they show you how to do eyebrows (which I never did before) and other tips. They also show you how to do scarves on your head, talk about wigs, nails, etc. It is worth going and you meet other cancer patients. This was nice for me because I realized there are others who have it far worse, which stinks because it's bad for all of us. One gal has had treatments since November! She ends in March! I thought it was worth it.

    I am hoping I can walk tomorrow some. The weather has warmed here in Upstate NY some so maybe I try that. Baby steps I guess. Best to all.

  • smethot
    smethot Member Posts: 161
    edited February 2013

    Ladies- i started my chemo (AC-T) Feb 8th, dense dose with a Neulasta chaser after every round ( i hang out mostly on the Jan chemo thread...check it out...they're ahead of us time-wise and a wealth of knowledge, humour and ATTITUDE!!!).  I don't feel too bad...sleepy and ridiculously HUNGRY but manageable.  Wanted to mention- NO GREEN TEA.  Anti-oxidants are for AFTER chemo...not DURING chemo.  Most chemo introduces free radicals as a means by which to destroy any cellular insurgents you may have.  Anti-oxidants (green tea, omega 3's, vitamin C in high qty) are actually working against AGAINST your chemo.  The time for "healthy" is AFTER chemo...right now, you should be checking everything you want to "add" to your diet past your MO...why put ourselves through this s*** only to be shooting ourselves in the foot by taking the wrong supplement or vitamin?  Seriously...look this up...you won't regret it...we should all get MAXIMUM benefit from our yucky-ass chemo...and i know i want to do everything i can to make sure i destroy any and every cellular insurgent that may be lurking.  DEATH TO CELLULAR INSURGENTS!!! 

  • bcfree2013
    bcfree2013 Member Posts: 94
    edited February 2013

    Smethot, I thought green tea was ok during chemo. Then should we eat kiwi, orange, etc that are high of vitamin c?....

  • lmcclure4477
    lmcclure4477 Member Posts: 180
    edited February 2013

    I was also told not to take antioxidants during chemo for the same reasons. So I stopped and took that as a time to start making small changes to my diet. I also heard carbs are good during chemo but to limit them once chemo is over.

  • smethot
    smethot Member Posts: 161
    edited February 2013

    i'd suggest talking to your MO- but i was told specifically (and its all over if you seach the info) that green tea is s NO and anti-oxidants are a NO.  Most of us clear our diets through our MO's...you want your chemo to perform to its very best.  i say if we have to suffer, it'd better be the BIGGEST benefit we can get.  And every MO is different- some say no yoghurt, some say ok.  Mine says natural source vitamin c in serious moderation, others have different opinions.  Pls be VERY sure to clear all supplement and vitamins and "health" things through your MO- we all want our nasty-ass chemo doing its job 100%!!!

  • lmcclure4477
    lmcclure4477 Member Posts: 180
    edited February 2013

    Are all of you take a multivitamin during chemo? Is this ok to take??

  • AuntieEm
    AuntieEm Member Posts: 30
    edited February 2013

    OMG! So glad you ladies are around! I am about to get my next AC on Friday and I'm still learning. No anti-oxidants and no raw foods. Something I've learned in the past week. Again, it is so nice to have you all around to bounce these things off of. When you're in the doctor's office it seems like there is much information thrown at you it is impossible to remember it all. Also, anyone else notice that chemo forgetfulness? I normally remember the majority things I have to do but lately I have to write everything down or else...



    Blessings to all!

  • bcfree2013
    bcfree2013 Member Posts: 94
    edited February 2013

    For food, my MO just said no to raw food, fruit that cannot be peeled, any vitamin supplements, eat from food bar in super markets. I think Bacteria infection is his main concern.

  • tangles
    tangles Member Posts: 508
    edited February 2013

    Odd I got NO food restrictions at all. They just said eat healthy. In fact yogurt was one of the things they offered us during chemo. They even had a dietitian come in during my chemo session talking about healthy eating and she didn't say anything was restricted???

  • DiZZyMom
    DiZZyMom Member Posts: 245
    edited February 2013

    AuntieEm, I think they call it "Chemo Brain" Tongue Out. I've heard from several girls that they got forgetful while on chemo. I'm already pretty ditzy to start with, I hope I don't forget my kids somewhere some day!

    For you girls discouraged that you're not feeling ready to get back to your regular gym, check with your doctor to see if your hospital offers breast cancer exercise classes. I live in the Dallas/Fort Worth area and the hospitals here have a program called NEAT. It's free if your doctor refers you. The classes are supposed to be tailored to your level. I'm going to check it out. I'm starting back at my regular gym this week (9 weeks post-op) but I want to see what kind of classes they have. Even if I don't get as much of a workout as I'm accustomed to, I thought it would be a good place to meet some other women in the same boat.

  • bcfree2013
    bcfree2013 Member Posts: 94
    edited February 2013

    My chemo center offered fruit juice (paturized) and sandwiches (no veggie). The chicken salad sandwich made me really sick after my first infusion. I will never eat chicken salad again.

  • Rdrunner
    Rdrunner Member Posts: 309
    edited February 2013

    ywheels dont get discouraged !! you just had a huge surgery!!. I had unilateral mx and it was a month before I started running again. I started out walking and just gradually increased. Honestly i ran again today.. and it was effort between the nausea and bone pain, and I was very tired afterwards. 

  • Lmimp64
    Lmimp64 Member Posts: 219
    edited February 2013

    Ywheels22, thanks for telling me about the program. I will definitely go.



    My mo said raw fruit and vege will only be banned if my counts drop too low.

  • Debzah
    Debzah Member Posts: 2
    edited February 2013

    Hi TMM60!



    My OncoDx score was a 31 and I am right there with you...bummed cause I thought i could get by w/o the chemo but my recurrance rate is 24.1 in 10 years...too high for me so i start AC on the 20th... Hugs to you!

  • TMM60
    TMM60 Member Posts: 190
    edited February 2013

    (((hugs))) to you too, debzah! Never thought I'd be doing chemo with negative nodes, but there it is. Let's go kill some cancer cells!

    Got my hats from headcovers.com today, wig later this week. YAK!

    ywheels22- thanks for the tip about the ACS Feel good thing- I knew about it, but wasn't really thinking about going- now I will.

  • jayjayc
    jayjayc Member Posts: 69
    edited February 2013

    no "raw foods"....... does that include veggies, cause if so I'm in alot of trouble because raw veggies and dip are getting me through......  or is that only if your WBC drop really low??

    I'm in shock over how much they DON'T tell you...... most of the good information I've gotten has come from you guys... I just started taking 100mgs of B6 today (after checking with my MO) because everyone here talked about it....

    And I can't believe some of you are talking about gyms and RUNNING ?!?!?!?!  I try to do a 10-20 minute walk and my skins start screaming.... and my toes tingle and feel numb...... I knew you guys were all super women..

    And on a lighter note.... I wore my wig to work today for the first time.... I was a nervous wreck and felt like it was obviously a wig...... luckily I only saw around 6 people and 2 of them said they liked my hair......  of course is that because it looked sooooooo bad they felt they had to be nice...... 


  • Lmimp64
    Lmimp64 Member Posts: 219
    edited February 2013

    Or it and you looked that good. :)



  • slv58
    slv58 Member Posts: 1,216
    edited February 2013

    I had a samilar incident. Went food shopping and my regular cashier was busy, so I went to the next check out, we caught site of each other as I was leaving and she said she really liked my hair, I couldn't stop wondering if she knew it was a wig and was trying to be nice! It's funny how self conscious you get wearing a wig.

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