Playing the hand we were dealt!!!

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faithfulheart
faithfulheart Member Posts: 544

To all my sisters..........pure,  sharon , both sharons,  Jennyyboog, Diana50, celetic, ect.......So many sisters I would love to name you all...............But my Chemo brain is not that sharp!!! Here I go...........I read your post pure, I can assure you 100% you are having panic attacks!!!!  Classic symptoms and rightfully so>>>>>>>>> Dear God, you have been through so much, we all have........This deck of cards we have been dealt........Well,  it sucks!!!  alot!!  With that being said,     I will say this.........In sept 2009,  laying on a cold ultra sound table thinking I had a cyst,  my 4 year old and 8 year old wait at home with grandma and grandpa.........Just waiting to be picked up and go home to life as we new it.......but..........That would never happen............Instead,   a doctor came in and told me she was doing a biopsy for cancer,     things looked really bad.........she could even see that it had traveled..............As my husband of 20 years sat in the waiting room ready to take me to a celebration lunch .........   He was called back to be told I needed a biopsy for cancer.................. You know,    I remember that moment like it was yesterday........The world stopped........I mean cold in its tracks!!!

This feeling we have is a numbing,  leave your body feeling..........we are looking down as we hear the jumbled words .......   The breast surgeon we will go to,  and  of course that inevitable  call we will get in 2 days to confirm this nightmare that has just happened in a matter of maybe an hour is really true..............In 1 hour Our lives were changed forever................the call comes to confirm this by a doctor that must be covered in ice.........coldest man that has ever been on the other end of the phone.....You have cancer..........No shit sherlock!!!!!  Whats the good news ????   I ask this warm careing,   ass of a man..........Well you better pray it has not traveled!!!!  He says......Great.....Thank you so very much...........Fear ......like a  massive wave crushed ever part of me.........everything in my life that had happen prior to this moment,  other then my husband and children was a blurr...........Thats the most unfair moment of this  journey!!!!!!    I  was in my bedroom paralyzed with fear!!   I have 2 small kids and I have cancer...........Being  The good Catholic girl  that I am,  I screamed to God.........are you F....ing kidding me!!!   I tried for  11 years to have my kids and now you are going to take me from them!!!!  The most helpless moment of a cancer patients life!!  So then our journey begins ...........Doctors, surguries,  Ohhhh, have them both off or just one ? Recon , No recon....Chemo no choice there.... before  or after,  or both...Rads or no Rads.........Hormone theropy or herceptin,  and the story goes...........Our armor is well fitted and we fight ,  we fight like hell..........cause this beast will not take us down!!   Not on our watch!!!!  We do it,  and we survive the war,  a long painful war...lots of scars and balding heads ,  weight gain,  or loss.........our souls being challenged ,  why GOD,  why now, why ever..........as our treatment ends we have a scence of relief, like a calm after a storm........  its going to be ok feeling.......... and.......For awhile its just that ,    trying to put the pieces of our life back together...........go back to work,  or stay home with the kids....Lets run for the cure!!!!!  Where pink hats that say surviovor on them......written in diamonds,  a hat that was sent to you by a friend........They thought it would make a statement and it was pretty.........Not their fault,  how could they ever understand,  and why would you want them too......... Kale,  spiniach,  vit D3, vit C........excersise...... we do anything and everything we can do so we will live!!!!!!!!!

Well........The pink hats slowley melt way into the back of the closet.......kale is still around,  just not in massive doeses,  and well we do the best we can to exercise,,,,,,,,,right?  In between going back to what people expect you to be.......They expect you to be ok,  in remission, or cured!!!!  Grateful.......... ohhh how I love that one.......You are so blessed to be alive....Yes , I am,   I am sooooooooooo grateful and I will never complain again!!

There is no room to complain you have made it through the storm,   now get on with your life damn it!!!!  So thats what we do........we get on,     the best we can.....However,   no doctor will tell you that when your treatment ends, that is truley when your journey begins!!!!    I know my sisters who have been through the storm and made it to the other side understand what I am getting at here........It is my hope that  the Newley dx will understand that I am not being negative,  I am speaking the truth.........Now I love God with all my heart , and I do believe he will give us the peace and the strength that passes all understanding.........I know this  because he did.......I am going on my fourth year since my locally advanced stage IIIC dx.........and have I been threw a few scans sistahs!!!!!  I would like to touch on what I like to call the poker face..................in this deck of cards we have been dealt,  we all get really good at poker.......The I am doing greats!!!  and I have never felt better in my life!!!!! Cancer has changed me for the better!!! and my favolrite.......I am so grateful.........and its all true..........But,  thats not how we feel, we feel scared, alone,  sometimes ugly,  and when we look at our babies,  we cry...............and then there are the days when we feel really increadable, like a true warrior...........and those days are so wonderful.........but,  and this is the reality, being dx with a life threatining disease is like being sent to a deserted Island...........You truley have to dig deep,  and I mean real deep.........Pray like Jesus is coming back tommorow!!!!!  Love like you have never loved before.......trust that you have been dealt this hand and will use it to  help another women in need.  or thousends of women!!! Who know!!! I am living ever day,  one single day at a time.........I tell myself in the morning move your legs girl..........wake those kids up... you are here...and you are not being punished,  you have done not one thing to deserve this,  this is not your fault,,,,,,,,,But, it is the hand you were dealt and you will get up and place your bet..............and by the grace of God you will win!!!!!!!!    We can't change it ,  it happened, I take my pills, don't ever be ashamed to get some help ever!!!!! You do what you have to do!! Hey life is hard without BC,  lets face it.....all the crazy BS we dealt with before are dx is still there waiting for us when were done...........That my friends is called life........and life as we know it got a lot more challeging,,,,,,,,,super understatement.....I am not a pestimistic person,   actually,   I have always been really carefree,  maybe to carefree at times...........I miss that feeling,  like anyting is possible,  the world is ours.........endless time and possibilties..................that is what cancer tries to take from us........Yesterday is gone, we can't do a damn thing about it, let yesterday go.........tomorrow, well who knows what will happen, nobody does, don't waikst time trying  to predict that one............huge waste of time..........But, today, yes today we can control...........we can control how we will react to a new ache or pain, we can control how we treat the people  in our life, and we have the power for that day, with the help of God to live our life!!!!! Today, thats all we have to do is today.........I  t that is possible..........I think if we stay in today, thats how we get through this........Some days I feel 80......I was 41 when I was dx..............I am 44 now........I have had some scares along the way........and I am sure I will have more.........But, I can choose to play this hand..........play it well, skillfully.........learn the game and most importantly my beautiful sisters, stay in it!!!!!   The cards were shitty....yes, no doubt.....however,   if played well we will walk away

winning!!!!!!!!!   I love you all so much,   be good to yourself, always .........I lift each and every one of you up in prayer everyday...........You are amazing beautiful warriors............and its ok to be scared,  in fact its a normal feeling....I have not completely lost my mind yet.......or maybe I have ......either way I do what I have to do.........what is my point...........lets all live for that ROYAL FLUSH!!!!!!!!!!!!!!!!!!!!!!!! XOXOXOXOX

Steph.......................

Comments

  • RosesToeses
    RosesToeses Member Posts: 721
    edited January 2013

    Steph, I love this post--sort of the 30-second version of exactly what it's like to go through this thing. 

    And, Royal Flush? Sounds like a plan to me!

  • geewhiz
    geewhiz Member Posts: 1,439
    edited January 2013

    Steph...I think you nailed it.

    Some days I am blending green juices, doing yoga and training for races and am on top of the world. Last week my little girl said "MOM!!, You are on your game!" It made me so happy. But then, a day later, I had a friend pass of bc and it brings all the dark, all the ugly coursing right back through my veins. In 24 hours, I cwn go through an entire range of emotions. I just learn to ride the waves.

    Thanks to you and Pure both for being so honest, and putting into words what so many of us feel. It's nice to feel "normal" here. : )

  • diana50
    diana50 Member Posts: 2,134
    edited January 2013

    Awesome post steph!!

  • NeedtobeSTRONG
    NeedtobeSTRONG Member Posts: 101
    edited January 2013

    OMG!!!!!! I so needed to read this today at this exact moment! THANKYOU THANKYOU THANKYOU! As I drove home from work tonight I was thinking of all of the wonderful things gong on right now, my job, family and finally moving the family out of my inlaws. So happy I forgot about the big C....then it hits and my body and mind hit an overwhelming feeling....you all know what I mean....



    This just helped so much! Xoxo...sitting here in tears....so great to know someone gets its...

  • apacheco2069
    apacheco2069 Member Posts: 2
    edited January 2013

    I'm new to the board.  I needed to come back.  I had all the surgeries (nodes removed, and lumpectomy in 2005)  Did the chemos and rads and then on tamoxifin for 2yrs and then femara for 3 and then thought all was fine.  ( had reconstructions in 2009)

    Then went to my annual onc visit last Monday and dr thinks he found new lump in same breast.  SO now on my way tomorrow to have mam and ultrasound.  I understand that post by Stephanie.  I cannot imagine doing this alll again:(

    I was stage 3a with 4/6 nodes affected.  

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited January 2013

    (((((Steph)))))



    What an awesome post! I drift in and out from the boards but man when I need you guys you are always here for me. And I'm hoping that I can share some hope from time to time too now. It seems like yesterday for me too Steph. We were dx the same month and year.

    Thank you for putting in to words what so many of us are feeling. And lets all play for that winning hand!!!!



    Love you!

    Sharon

  • cmdczc
    cmdczc Member Posts: 75
    edited January 2013

    Faithfulheart,

    Thanks for such a wonderful post.  You nailed it!  Thanks everyone for being here through this journey we share.

    Cindy  (IIIa)

  • caaclark
    caaclark Member Posts: 936
    edited January 2013

    Fantastic!!!  Exactly how I feel!  

  • Rachel1
    Rachel1 Member Posts: 363
    edited January 2013

    Yup, you nailed it. Love this!!!  I'm with you, Steph. I'm going for The Royal Flush!! Can we rename our board ;-)

    Rachel

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited January 2013

    Lol, I just thought of something funny---this is what I'd like to do with my BC---give it the ROYAL FLUSH---right down the toilet!!!

    Sharon

  • faithfulheart
    faithfulheart Member Posts: 544
    edited February 2013

    Just wanted to thank the girls that took the time to read this really long post........love you all and sometimes you just feel the wave to rant..thanks to those that listened......love you...xoxoxoxo

    Steph

  • faithfulheart
    faithfulheart Member Posts: 544
    edited February 2013

    just wanted to note...anyone that takes the time to read this...rocks!!!!! I know ots long but, I wish more would read.....xo just sayin........

  • katyand4
    katyand4 Member Posts: 171
    edited February 2013

    I suck at putting my thoughts into words and expressing them but you totally, totally nailed it with your letter.  Fantastic letter and congrats on 4 yrs.

  • edwards750
    edwards750 Member Posts: 3,761
    edited February 2013

    apache....so sorry. Let us know what happens. diane

  • vas4554
    vas4554 Member Posts: 5
    edited February 2013

    Thank you ladies for lfting my spirits espically faithfullheart your words really hit me like a ton of bricks was diagnosed in Nov 2012 its so true we have been dealt a card we thought would never be dealt towards oneself but now that it has been dealt we have to deal with it and pray for that Royal Flush Im 58 have never been sick accept for normal colds flu etc.....For 30 years I was on the other side as a health care provider Im trying my very best to deal with this slowing down process its difficult but,health wise its something that has to be done Chemo has slowed me down but I know it hasnt stopped me from being me.....Im a mother of three daughters n a grandmother of 12 there my upbeat treatment I look at them and say to myself there the push I need to make it to that Royal Flush,,,,,,Ladies we may be our own group but together we are a strong group Breast Cancer is no picnic its a Buffet you touch on all symptoms tears laughter ups n downs ins an outs but the biggest thing at that Buffet is you n your strenth keep that strenth an follow threw you n only you know your strenth ,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,DX11/21/2012 1CM Stage lllc Grade 3 6/10 Lympnodes hugs to you all Linda From Mass

  • jennyboog
    jennyboog Member Posts: 1,322
    edited February 2013

    Beautifully said....could not have said it any better...you nailed it girl!  Love ya Steph. BTW...I just saw this, how did I miss it :(

  • lovujja
    lovujja Member Posts: 119
    edited February 2013

    steph,

    Thank you very much for expressing so well. I literally read all and cried all the way...Beautiful. It is so good to know we all have same feelings. You nailed it down so well. Kudos to you Steph!

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