Starting Chemo February 2013

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jkeller3
jkeller3 Member Posts: 15

Hi, I will be starting chemotherapy in two weeks.  I am 38 years old with 2 young boys and a loving husband.  Anyone else out there starting soon?

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  • Alicethecat
    Alicethecat Member Posts: 535
    edited January 2013

    Hello J Keller

    I'm not starting chemo in February 2013 but I did go through eight rounds of chemo in 2012, starting in March (4 x FEC and 4 x Taxotere).

    As you can read, I am alive and kicking. Some people have no or few side-effects, others have more. It may be daunting but it is doable.

    I'm the biggest wuss around but if I can do it, anyone can do it!

    Best wishes and good luck

    Alice

  • slv58
    slv58 Member Posts: 1,216
    edited January 2013

    Hi ladies, I just got home from a day full of appointments-I am starting chemo this Thursday so I will consider myself a feb chemo member! Found out that I am triple negative, stage 2,grade 3 and will do 6 rounds of chemo, then surgery. I will post more tomorrow, I'm too tired right now. Thank you for the encouragement Alice, it's nice to hear a more positive experience. To be honet, I am more nervous about the picc I need! Good night for now :)

    Shari

  • jkeller3
    jkeller3 Member Posts: 15
    edited January 2013

    Good luck on Thursday, Shari!  I start in two weeks and still don't know what regimen I'm doing! Not because of my onc but I questioned it and now he opened it up to two options.  Pros and cons to both.  I just want to make the right choice!

    Thanks for the encouragement Alice!

  • Alicethecat
    Alicethecat Member Posts: 535
    edited January 2013

    Hello SLV

    A PICC line made chemo much more comfortable for me.

    I soldiered on for six rounds of chemo until my veins objected and Taxotere leaked out into my skin so commonsense prevailed and I had a PICC line put in.

    Painless.

    Painfree for the remainder of chemo and Herceptin (still continuing until July 2013.

    Hoping you will have a similarly good experience with it!

    Best wisehs

    Alice

  • slv58
    slv58 Member Posts: 1,216
    edited January 2013

    Thank you ladies. I am nervous and woke up crying last night, fearful of 'triple negative' wondering why? Isn't it enough to have bc?

    Tomorrow I will try and bravely walk into my hospital and welcome the treatment that will help me save my life. I will welcome all the help of those wonderful people who will be my caregivers, knowing I need their help and expertise. This is something I am not use to-having always been very independent emotionally. I also need and welcome all your positive thoughts and will return when your time comes, good night everyone, Shari

  • Alicethecat
    Alicethecat Member Posts: 535
    edited January 2013

    Hi Shari

    All sounds very normal before your first chemo! Everyone is scared. But we do it.

    I just imagined all the cancerous cells that were being killed as the chemo went in and it helped.

    Good luck!

    Alice

  • smethot
    smethot Member Posts: 161
    edited January 2013

    Hi Feb Chemo Friends.  I had lumpie removed Jan 18th (woo hoo) along with ax nodes- drain was removed today!!!  I should be starting chemo by mid-Feb.  I am 40 with no exisiting health issues so i anticiapte (and want) a long, nasty-as-they-can-throw-at-me round of chemo.  With lumpie and the nodes out i consider myself cancer-free (fu bc!!!).  Now we just have to anhiliate any stray cells (i call them insurgents) with chemical and radiological warfare.  Bring on the chemo!  We WILL survive...but we'll also take all the help, love, info and encouragement that the chemo-veterans (and everyone else) can throw our way.  I've been lurking on the January chemo thread- those ladies are a wealth of info, humour and spirit.  Onwards and upwards, ladies!

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2013

    Hi February group!

    Just stopping in to provide some more helpful links, starting with the main Breastcancer.org site's section on Chemotherapy, including what to expect, types of chemo meds, and side effect management.

    There are some really helpful key threads here in the Chemo forum too!

    Great tips and practical advice on the following discussion board threads:

    Also, Last Month's Chemo thread might be informative!

    Hope you find this helpful!

    --Your Mods

  • slv58
    slv58 Member Posts: 1,216
    edited January 2013

    Hi everyone, thought I would give a quick update. Picc placement was the hardest for me, although it didn't hurt,it just felt very foreign and somewhat uncomfortable. It didn't help that it had to be done two times as my vein kept moving. Of course after he told me he had to do it again, I shed a few tears- but they were so wonderful with me. Chemo was really fine! I wanted to do some meditation but I had so many people talking to me about everything , instructions,side effects, medications,insurance etc. hopefully next time will be a bit calmer. So far side effects are, insomnia (but I really haven't slept well since this started) , a bit of queezieness (which I promptly took anti nausea pill) and a headache. Nothing bad at all. I hope everyone is doing well!

  • jkeller3
    jkeller3 Member Posts: 15
    edited January 2013

    Yeah Shari!!!

    I went to my "chemo class" yesterday.  Oh boy, here we go!

    Smethot, I'm almost 40 as well.  Any children?

  • smethot
    smethot Member Posts: 161
    edited January 2013

    2 stepsons, 12 & 14.  They think the fact that i will have no hair is cool.  No fear, just curiosity and the utter conviction of children that after surgery, chemo & rads, i will be 100%...i LOVE their attitude.  Surgeon just confirmed chemo starts mid-Feb- meet with the MO sometime in the next week.  Got my chemo hats today in the mail (too cute!) got my wig appt (Feb 6th) and got the GREAT news that i am staged as a IIa...i went into surgery knowing i had at least 2 positive nodes...turned out those little beauties (warrior princesses!) did their job and they were only 2 positive nodes of 25!  THANK YOU!  Cat scan came back clear today andn i'm feeling pretty danged fine...we will kick ass, chew bubble gum and ladies, i am all out of bubble gum!  Onwards and upwards! 

    Shannon

  • AuntieEm
    AuntieEm Member Posts: 30
    edited January 2013

    Hi everyone! I got my port on Thursday. Feels a bit sore but i think it will be ok. Starting February 1 with chemo ( 4 Adriamycin Cytoxen & 4 Taxol). Got my wig, hats, etc. as ready as one can be. I guess it's time to pinch my nose and jump in feet first! Here comes the next chapter! Positive thoughts and prayers to you all as well!

  • IamNancy
    IamNancy Member Posts: 1,158
    edited January 2013

    Hi Everyone! I will be joining this group - going to have 4 treatments 3 weeks apart.. will be meeting with the nurses for consultation and instructions on Monday ..and then will start mid-Feb..I seriously just want treatment over with :)

  • jkeller3
    jkeller3 Member Posts: 15
    edited January 2013

    I ordered my wig and a hair piece to wear under hats.  Ordering some scarves and other comfy hats today.  Meeting with my Oncologist on Thursday to set up my schedule for the next week.

  • tangles
    tangles Member Posts: 508
    edited January 2013

    I am leaving in one hour to get my port, tomorrow a heart test and I start Chemo Feb 1st. Of course I am SCARED to death but its not forever. I will be doing 6 rounds taking 18 weeks. Not looking forward to the hair loss as hair is my world. I am a hairdresser so that part wont be fun. I ordered a wig and it came in the wrong color so hopefully the next one will come soon and be the right color. Im hoping to go back to work in a few weeks, but right now that seems so unreal with the limit of arm movement I have. I pray every day this year goes by fast for me and for all of us!!

  • Hildy910
    Hildy910 Member Posts: 319
    edited January 2013

    Hi Feb '13 ladies, 

    I've been keeping an eye out for this thread.  I'm a Feb. '12 chemo adventurer, and wanted to send good vibes and kick-ass attitude to you all.  Everybody has a different experience, but for me, at least, it was not that bad. Not a walk in the park, either, but still managed to pretty much live my life as normal, except for the cold head. I hope you all are taken care of and nurtured--it feels like forever, but one year later, I'm sitting here pretty much back to normal, except for my TE exchange surgery. 

    Also happy to answer any questions as far as I am able--I had four dose-dense treatments of Adriamycin and Cytoxan, followed by four more of Taxol, so that's  my area of dubious expertise.  I did not have a port; for what it is worth, I didn't enjoy getting the A in hand veins, so if you don't have a port, there's something to think about. 

    Re: Wigs. I was very religious about wearing my full cranial prostheses, but I have littlish kids and wanted to keep things as normal-looking as possible.  Lots of poeple just rock the scarves.  

    I have two wig-related tidbits that may be helpful: 1. If you get a artificial-hair wig, be careful about cooking with it--I kept frizzling my bangs opening the oven door!  and 2. If anybody has long hair and is interested in using it to make a halo wig for themselves, you can do that online at a website called hatswithair.com; I mention it as it requires a little planning ahead.  We used my daughter's hair, and every time I put that wig on, I felt like I was getting a hug. 

  • McKatherine
    McKatherine Member Posts: 300
    edited January 2013

    Hello! Just found out today that I'm starting chemo next Tuesday - Feb. 5.

    Had hoped to do the I-SPY2TRIAL, but tissue samples didn't cooperate. So, we're back to standard. TCH for 6 rounds, every three weeks.

    Got my port last Thurs. feeling much better now!



    I'm 37 -also with two young boys, 7 and almost 5.

    :)

  • tangles
    tangles Member Posts: 508
    edited January 2013

    McKatherine* How long did it take for your port pain to go away.I got one yesterday and it was a bit more then I expected. It is VERY sore this moring and I am starting Chemo Friday Feb 1st........... YIKES!!!

  • jkeller3
    jkeller3 Member Posts: 15
    edited January 2013

    McKatherine I will probably be on TCH as well slight chance of AC-TH.  Tangles, My port was put in about 10 days ago and is just now feeling better.  It is still really tight though.

  • DiZZyMom
    DiZZyMom Member Posts: 245
    edited January 2013

    Hi girls. I'm starting TCH on Friday after having my JP drain in for eight weeks (it is coming out Thursday). I apparently have a lymph leak and it is not going to stop draining anytime soon. So my BS is going to see me weekly to drain any seromas if necessary so we can move forward with treatment. I had my port placed during my mastectomy and with everything else going on then, it wasn't an issue. It does feel very weird especially when one of my kids slam against it, but I think it will be my friend for at least the next year.

    I hope you all have as easy time as possible with your first round. I am getting anxious. It has been scheduled and cancelled 4 times because of the drain issue. Now that it actually seems eminent, I'm trying to remain calm! Happy we all have somewhere to come for support and information. I've been following the triple positive group for a couple weeks and there are some sweet, helpful ladies so willing to help us "newbies".

    You all take care!

    -Susan

  • Rdrunner
    Rdrunner Member Posts: 309
    edited January 2013

    Im starting on FEb 5, ACT, dose dense for 4 months

  • lmcclure4477
    lmcclure4477 Member Posts: 180
    edited January 2013

    I start chemo Feb 11th. I get my port put in next week. Had a bilateral masectomy 2 weeks ago and finally feel healed from that. I am triple negative so I am getting treatment for 16 weeks every two weeks. I am nervous for the side effects. Getting a wig this weekend and already ordered hats and scarves. I have a 2 and 6 year old so don't want to scare them.

  • blackcat2012
    blackcat2012 Member Posts: 242
    edited January 2013

    I am getting my port on Friday and I start AC-T for 16 weeks on Feb 5th.

  • bcfree2013
    bcfree2013 Member Posts: 94
    edited January 2013

    Hello all,

    I am getting my port on Friday and first chemo on Monday. Hope both of them will go well for me!

  • tangles
    tangles Member Posts: 508
    edited January 2013

    Well I was under the impression that I would not be put out for my port, just sedated. Wrong they highly suggested I be put out. I thought I would be in and out of the hospital in a few hours and was there 6 hours. The side they put the port was VERY sore for the first 24 hours. Just lifting a coffee cup hurt. I will say today is starting to feel better. I have a Mugga scan this morning and I am hoping they dont use the port as I can still feel a bit of soreness. I am hoping by my first Chemo tomorrow it will be Ok to use. I do think I have a low pain tolerance so for me this is probably normal. I am praying I have minimal side effect from Chemo. I have heard many positive stories so I am praying I can in the future be a positive story teller too!!!!

  • ywheels22
    ywheels22 Member Posts: 230
    edited January 2013

    I am staring next week Feb 4, 5, or 6. I had a double mastectomy, reconstruction surgery on Jan. 16. I am 44, with a 7 year old son. My husband is 46. I am fit, healthy, strong, eat well and found the lump in November. I am Stage IIA as they cancer was in the sentinal nodes (4mm) but all the axillary nodes (10) came back negative. I will be starting with AC for 8 weeks (4x2) and then Taxol, 8 weeks (4x2). I am very scared on how I will react to the chemo.

    I have so many questions too.

  • ywheels22
    ywheels22 Member Posts: 230
    edited January 2013

    Hi

    Hildy910: I will be starting the exact same treatment you did. Next week is my first cycle. Dose dense, 8 weeks of AC (4x2) and then 8 weeks (4x2) of Taxol. I will have a port.

    Did you get a scalp protector to wear under your wigs/hats? I love hats but will have one real hair wig. No scarves for me. I have to get on this because my chemo starts next week. Any hair/wig advice would be helpful and where you got your stuff?

    How was the chemo for you? I am very worried about it. Thanks!

  • melissa119
    melissa119 Member Posts: 172
    edited January 2013

    Slv58...just saw that u are triple negative and just started chemo. Just want to let you know I am also triple negative and did the same treatment as you. Started last June and finished in November. I did it thru IV all 16 treatments and believe me I am such a baby when it comes to needles but I got thru it mind u my veins were giving up but my wonderful nurses made sure I got to the finish line!! Anyway it is doable and the side effects very manageable. I took care of my 9 and 6 yr old all summer while going thru treatment. So if you or anyone else has questions about anything just ask. I am always here scanning the boards.

    Have a good day with minimal SE's!

  • Hildy910
    Hildy910 Member Posts: 319
    edited January 2013

     ywheels22,  Good luck! It sounds like you are ahead of the game at the outset, from being in good shape. I was 49 at diagnosis, and am a runner/skier/hiker, etc., and I think that it helped that I had good energy to start.   I was just thinking about this, as today is the one-year anniversary of my first chemo, and while it is scary to start with, once you get into the routine, it's manageable.  I have a 10 year old and a 12 year old, and for the most part, I was able to shlep them hither and yon per usual, as well as continuing to work. (I work out of my house, which made that much easier.)   

    What else? I kept up running and walking, which was hugely important. Even if you totally don't feel like going out for a walk, go anyway.  Also: Lots and lots and lots of water. I am not a big hydrater, but starting the weekend before the next infusion (mine were on Mondays) I would just flood myself. I actually drank a whole lot the entire cycle, just upped the ante prior to that.  

    I never got sick, or really felt particularly nauseous, although I did have heartburn and trouble with constipation. If you have a history of that latter problem, best to start treating prior to the infusion. 

    As for wigs and stuff, I never wore anything under my wig--for whatever reason, it didn't itch me or bother me very much. I had the one full wig that I got at a local place that specializes in treating women with hair loss for a variety of reasons. I actually went in there right before my hair was scheduled to fall out and had them shave it, as I didn't want to deal with a gradual shedding. It feels so odd and confronting to walk around in a wig those first few weeks, but it passes. 

    The other wig I got is what is known as a halo wig;  I think I mentioned before that my daughter gave me her hair, and we sent it here:

    http://www.hatswithhair.com/Wig_Made_With_My_Own_Hair1.aspx

    Hope that helps! Happy to answer any other questions that may come up.

  • tangles
    tangles Member Posts: 508
    edited January 2013

    Ywheels22---I am a hairstylist and did a TON of wig research before I ordered my wig. I thought a real hair wig was the only way to go but after much research I decided to not go with real. I went with a Raqual Welch wig. It is a monofilimant top with a lace front. It is heat resistant so oven wont hurt it and you can use a low heat flat iron on it. It holds its style unlike human hair. With this wig type you can part it anyway you want and restyle it. Whatever style you put it in it will stay in. Real hair falls flat with humidity and style come out with wind ect. This wig is very realistic, feels like true hair. I also ordered a few hats without the open ponytail holder in the back and bought several scarfs. I started with hair down to my bra strap and after getting the diagnosis I cut it up to my shoulders. As soon as I can get my hands above my head I will cut it a bit shorter as I will probably lose it in a few weeks:-(

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