2012 sisters
Comments
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Just stopped by to do some cleaning.
Lexie Ann, so sorry to have you here. But it's a good spot to be. I made a note and will be sure to follow your blog.
I returned to work last Thursday. Half days in the afternoons for now and probably for a few weeks as I get stronger. It went well and felt so good to be back in the office again!
I also meet the new oncologist this Thursday. Fingers crosses that it goes well. Though I have heard wonderful things from current patients, so I think it will be okay.
Hope everyone is doing really well with minimal SEs and sunny days.
Scorch
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Lexie I read your blog and I too blog and did it so that I could get down my thoughts but have found it also to be therapeutic.
You have managed a lot in short order and with a young son too so kudos to you!
We are a supportive group here as you will see!
Marian
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Thank you all for the such great warm welcome!
@Scorch good luck at the new onco I am so glad I am making the switch. I actually wish I did it sooner but am happy overall. I just follwed you on twitter
@ Tazzy now i understand what the big pockets mean! Thanks
@ liefie That was the one thing I wanted to avoid 2 surgeries in a short period of time
@marian I am going to read your blog today
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Lexie Ann - welcome, make room for me in those pockets.
Scorchy - so good to hear from you again -
Lexie Ann: Welcome. Got room for me in your pocket?
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Lexie Ann: Welcome....you'll love this wonderful group of women. ....I'm in those pockets as well.
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Hi Ladies, just stopping in again to check on everyone. We are back to traveling and that makes it somewhat harder to keep up on here. But I do read and think of you all often!
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Wanda:
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Thanks Ladies for your welcome arms and coming with me to Chemo. Today I am getting a blood transfusion.Seems to be my biggest side effect so far is my blood levels keep dropping! Fun times
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Lostinmo - good to hear from you again
Lexie Ann - hope the blood transfusion does it's magic
I have Herceptin and bloodwork this afternoon
Wishing everyone a good day -
Lexie: better late then never, but welcome home. This is where I've grown my roots and how I've survived my treatments/emotions throughout this fucking nightmarish journey. I love LOVE these women.
Scorch; read your blog about being back at work... YAY! (Sorry about your plant!) -
So i had the blood transfusion yesterday feel a Little better today. Who know what it will do. hopefully my numbers don't drop so low again with the next chemo. But right on time are the aches after the shot so just took some aleve hopefully that helps soon
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LexieAnn; hang in there sister. (((Hugs)))
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Hi Ladies,
Welcome to our new friends. As you will see from other posts this is the place to be. The support is tremendous. And right now I need some of that and experiences:
So this has been a week from hell. Well it started out good. I went on Monday for my herceptin and my two BFFs came (one was getting her mammo). It involved a wonderful lunch and dinner with great company. My MO is leaving and wanted me to get a follow up CT and MUGA before she left. I already had an appt in NYC to see my BS since I thought I had more fluid filling up so we scheduled it for then. The one bright spot of the day was my sister and friend came and we had a wonderful dinner. The rest sucked. On my way to get my friend I hit a pothole and killed two tires (good thing I didn't get the new ones yet!), my MUGA ran 2 hours late and my CT did as well. I hate waiting. But whatever fine. It ended with a nice meal.
So today my MO called with the results. This is where I am stressing and immediately jump on the computer only not to Dr. Google but to my friends here to see if anyone has had this:
My MUGA showed that my heart is pumping slower than normal but still in the normal range. I can still do my herceptin in 2 1/2 weeks but she wants me to get another MUGA in 4 weeks. I worry that I will have to stop the herceptin and that will dim my April light at the end of the tunnel.
My CT showed the cavity of the seroma that I had drained in December and that some of the lymph nodes surrounding it were slightly enlarged. Could be from the infection that I had then (hence the 9 day hospital stay with high fever). Need to keep an eye on them and have another scan in 8 weeks. WTF!!
So if anyone has experience either of these things or know of someone who has any info would be great.
Thanks,
Karen
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Karen - so sorry you are going through that. My mugas have been ok but I had to have a whole cardiology workup after I had stroke like symptoms after my Exchange surgery. Postponed my herceptin a bit. Definitely a not good feeling. Fingers crossed for you and big hugs. Hang in there!
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Hi all. Haven't been on here in a while. My apologies. I had my last TC treatment yesterday. It was half a dose because my WBC is taking longer and longer to creep back up.
I have a good bit of dark fuzz on my head which makes me a bit happy. Unhappy at my 20 lb weight gain though. I too have horrible hot flashes and they suck. My Dr put me on Effexor which helps SOMETIMES!
Now I wait approximately a month and then schedule one of two surgeries...oophorectomy and exchange to a bigger implant and perfect them more.
I hope you all are well. -
I understand the hot flashes! Sometimes they are so bad.
Did anyone have the peeling of the feet while on taxol mine are so bad. I can't stand it. Wish it would stop and go away. One more treatment though and I am done. -
Lexie Ann - not only did I have that on my feet but my hands and face as well! I went through alot of Aveeno lotion. I also got a pumice sponge to help remove the peeling on my feet at home since I didn't want to risk infection at salon. Those pesky bacterias can creep in through the smallest places! The good news is it goes away rather soon. At least it did for me. My issue was it was summer and I hate wearing shoes in the summer so my nasty feet were on display. Didn't care. Another lotion that works is Aquaphor. Slather it on at night and put on socks.
karen
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Thanks Ramols. I gotta tell ya this stinks. Not so much what "could" be wrong but the waiting for tests. 4 weeks for muga and 8 for CT! At least I can make another trip to the city and hit the bakery this time (didn't have time last time). Nothing like some NY pastries! My DH grew up in Queens and swears no one makes rainbow bars like NY. I know - it's the water. But whenever I go in I get some for him and the kids.
Enjoy your weekend and PS - love the avatar!
Karen
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Hey Tracy, that is a lot. A lot to deal with. I send you hugs, and good luck.... keep us posted.
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Vent all you want Karen, that is what we are here for! :-)
MrsCich, CONGRATS on final chemo!! My last one is coming up in a few days (ok, 3 days, but who's counting?). Never thought I would say I was looking forward to chemo! But I am. Knowing it's the last one and it will be done and that chapter of my life will be closed. I don't care how bad it is, I know I can get through it and never have to do this again!
Lexie, for me it's the hands rather than the feet, but oh what a pain it is. It hurts to type right now with my poor sore peeling fingers. But "this too shall pass".
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MrsCich....congrats on finishing chemo....time to celebrate 💃
Karen ....hang in there...as you said, the waiting is the worst. Try to keep yourself as busy as possible. (Doing nice things, of course) it's what worked for me.
Everybody else....thinking of you all.....❤ -
Celebrated my one-year cancerversary on Wednesday with a mammo on Thursday. They found a cluster of calcifications on the other, non-cancerous side. I go for a biopsy this Friday. I am not looking forward to this! Ugh!
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Kjiberty.....just posted my experience with a "cluster" for you on the Arimidex thread.
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kjiberty-you know we will be in your pocket Friday!
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Thanks, Ladies!
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I will have what I think will be my final chemo on 2/6 that will be determined after my surgery. I am hoping that it is my last one!
karen - thanks for the lotion tip. I also have it on my hands. Glad they don't hurt like my feet do. When I take showers I soak them in the warm water. Makes them feel so much better.
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Great news for those finishing up chemo - wonderful, wonderful feeling of elation.
kjiberty: In your pocket.
Hugs and love to all xxxx
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I will just say 'ditto' to what Tazzy posted.
Hugs to all
Take care everyone -
kjiberty - make sure those pockets are big, as I'm jumping in too!
Hugs to all!
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