Mom diagnosed, minimum information!
I talked to my mom this afternoon and she told me she has breast cancer. I'm in the military and stationed 12 hours away from her. She tries to keep information from me so I don't worry and since I only see my family about 5 times a year, she's very successful. She told me what she has is treatable and curable. She had a lump near her armpit, one lower down her arm and another under her breast. She said two were definitely cancerous but they haven't found where it spread from. The doctor said she's had it anywhere from 3 to 8 years. I honestly know very little about breast cancer. I didn't really go nuts until I got off the phone with her and my husband was very comforting but he also knows minimal of cancer.
The doctor told her there would be a few months of treatment/chemotherapy and afterwards she would take pills.
Is there kind of a beginners page that breaks down the stages and what to expect with each stage? She doesn't want anyone to know and it's obviously not something she wants to talk about. I really want to learn for myself and determine the severity of the situation. I'm obviously worried about her possibly dying and I don't understand why it's a cause of death for some women and why in other women it's curable. She just turned 55 and I'm 25, the doctor said it most likely isn't genetic since she was diagnosed at an older age.
Thank you for any insight or support you can give me!
Comments
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Hi Netter. Sorry about your mom, it must be hard being so far away and not know to much. With out to much information I can only guess what is going on. First you said she will take pills afterwards so Im guessing she is ER+ (Estrogen recepters) which is good because she will be able to take the hormone thereapy pills that stops the cancer from fueling or growing. Its generally a five year pill. Like tamoxifen, arimidex, aromiasin. and others. They say most BC (Breast Cancer) have been growing even up to 10 years unless of course its an aggressive BC. If two are cancers then im guessing she has at least one positive LN ( lymph node) Since you mentioned the lump under her arm, the theory is that having a positive LN will do its job and catch any stray cells that could invade the body.
There are lots of women here who are even stage 4 and have lived for years and they are always coming out with new meds all the time. If your mom said what she has is treatable then I assume she is early stage. Going through chemo and or Radiation is not fun but doable and she will get through this. Will she be having a MX? ( Mastectomy)
Im sorry I can't post the links here but yes there is a page on the home page here that will explain a lot to you. And Im sure there will be more ladies who will come along shortly and give some good advice and support to you as well. You are a great Daughter for coming here to find out info on your mom She will get through this. Letting her know how much you love her and care is what she will need. Sending prayers for you and your mom. Please keep us posted and ask as many questions as you need. We are all here for you.
Hugs! Debbie
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Yes, there is a page built by the moderators to help educate people after first diagnosis -- but honestly, each breast cancer is amazingly individual.
The more you learn, the more you can help your mom, and reassure her that you won't 'freak out' -- and that you are ready to step up and have an adult relationship with her -- one that is honest and open. After all -- you are in the military and married! Some mom's have a hard time making the transition to viewing their children as equals-- but now is a wonderful time to get past that barrier. Frankly -- I think we worry much more about the unknown than the known.
The fact that your mom has cancer after 50 is probably good news for your own health -- but if she were 80 it would be better. A BRCA test would tell your mother if other women in your immediate family may have cause for concern about their own health... but if her docs truly are convinced she doesn't have that mutant gene, they may not ask for it (and some insurance companies will only pay for it in certain likely circumstances).
Your mother may not know much yet. The breast cancer dance unfolds slowly sometimes. She may only so far have had a mammogram and follow up sonogram which are showing problems that are so far not diagnosed.
Find out if she has had a biopsy, and if so -- ask for a copy of the pathology report. There is a wealth of information there that can help you and your mom determine what the right course of treatment will be. Surprisingly, the docs don't have pat answers anymore -- and most expect their patients to co-cordinate their treatment options. Your mom may just be assuming she needs chemo -- not every cancer patient does.
Find out if she has had: MRI, CT-scan, sonogram, lumpectomy. BRCA test? Does she know her stage or oncotype yet? Is she estrogen and/or progesterone positive?
Has she talked yet to a medical oncologist (who prescribes hormone therapy) or a radiation oncologist (who administers radiation/chemo)? She may be making fearful assumptions that may not pan out to be true in her case.
Has she spoken yet to a plastic surgeon about reconstruction, and when is her next test/surgery?
What 'lump' in the arm? Does she mean lymph nodes? Recent studies show that in some cases lymph node removal is necessary -- and in some cases it is not reccommended: "Less is More" seems to be surfacing as the new trend in the 'standard of care'.
This is a great opportunity for you to become closer to your mother. And for you to become an expert about breast cancer -- something that happens to 1 of every 8 women -- potentially may eventually happen to you, or your sister, or your mother-in-law, or best friend. You are so smart to begin the research yourself, because your mother may be too nervous right now to do that research for herself.
Very best of luck to both you and your mother -- this can be a huge "opening" in your personal relationship with your mom. She may very well need you soon... Probably not for long periods of time, but occassionally.
Not every cancer is the same. I was surprised to learn that some women are FIFTY year survivors!
Personally, I was diagnosed in May, and in November had a double mastectomy with immediate reconstruction, utilizing my excess belly fat to construct the new breasts. AMAZING. I had no clue something like this was possible. And, 7 weeks post surgery -- I feel surprisingly 'normal' -- and with all the breast tissue removed -- I now have no more chance of breast cancer! Not everyone has the sort of cancer I have -- so not everyone can choose what I did.
A couple things to remember: Probably nearly everyone in their 50's and older has some cancer cells in their bodies. Cancer is not some 'outside' disease that we catch -- it is only some cells that get over-active and forget how to die -- so they keep eating and growing. Our immune systems have natural defense against these over-achiever cells -- including the lymph nodes, which filter out cancer cells that break free and attempt to travel through the lymph system to new sites (other organs, the bones, etc). This is why lymph nodes often contain cancer -- they have done their job well -- collected stray travelers, protecting more important body parts.
Some cancers are aggressive and grow fast. These respond (in general) well with treatment (chemo and radiation). Other cancers are extremely slow-growing (like mine) so chemo and radiation do more damage than good.
Some breast cancer is fed by estrogen and progesterone -- the cancer has receptors that lock onto ER and PR in the circulatory system -- and can be tricked by hormone drugs like Tamoxofen or Femara (probably the 'pills' that your mother said she would be taking).
Please feel free to private message if you want -- but posting her publically will bring you a wealth of information, and help others in your same situation.
Good luck,
Linda
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Hi Netterz,
The page Linda is referring to is the Just Diagnosed? announcement under the Welcome forum. You can access it here for a ton of good info: http://community.breastcancer.org/forum/131/topic/775382?page=1#idx_1
As Debbie mentioned, there's also a wealth of information on the main Breastcancer.org website, which can give you information on Types of Breastcancer, Treatment options, and even how YOU can Lower Your Risk of Breast Cancer.
We hope this helps, and wish the best for your mom!
--The Mods
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Debbie,
The ER+ is probably right! I do remember her mentioning estrogen. She's pretty confused about alot of it and is going for a biopsy sometime next week. Her family doctor suggested a Mastectomy, but the surgeon she's been going to for her mammograms suggested a Lumpectomy. The moderators posted a link
Thank you so much for your help and prayers! It's greatly appreciated!!
Linda,
She's very private about things and doesn't share anything that would possibly upset anyone. She only told me her dog passed away because I was coming home and would find out anyways! She didn't mention anything about a BRCA test. Her doctor recommended she tell me about it so I could get tests done yearly just to make sure which I'm completely ok with! She didn't seem like she knew very much. This all happened in the past week and I think she's still trying to let it sink in. I know she's had the mammogram and MRIs with injections (not sure if the injection part matters). She mentioned an appointment for a biopsy. I'm still unsure what all of these reveal which I will obviously be researching about tonight. I'm going to wait to really talk to her about it next week once she calms down from this week. I think she's still quite a bit shook up. I mentioned a few women I knew who had breast cancer and she seemed relieved to know they made it through and are still alive and well! So I think she's expecting the worst
Congratulations on your recovery! It's so relieving and motivating to read all of the survivors stories and recoveries! It's an amazing accomplishment!!
Thank you so much for the wealth of information!! This is so helpful! I'll be sure to share everything with my mother!!
Thank you Mods!!
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My daughter is having a double mastectomy of the 30th of Janurary. I will be staying with her and taking care of her. I have a million questions but will stick to only a few. She is planning sleeping in her bed and her husband in one of the guest rooms.. I will also use a guest room. We have aquired monitors for each of our rooms. She is having a double mastectomy with immediate reconstruction surgery. Only thing is she cannot have the flap done because she just lost weight and her skin shrunk back and she has no skin to spare. They are doing something where they stretch the skin on her chest and it taked 4 to 6 months to finish.. this is upsetting her..we were also wondering if she can lay down comfortably in a bed? We are going to put her lazy boy in the room for fear she will not be able to lie down flat. She will have drains.. Her lump is 3 CM and not sure if lymph nodes are involved does not look like it they say. She has one swollen lymph node near where they took out the piece for her biospy..I told her the swollen node is probably fighting off infection rather indication there is definitely cancer in the node.. What are your thoughts on the lazy boy and being able to lie flat She is stage 2b with her+.. she is taking an estrogen lowering drug and it makes her feel nauseated and gives her a terrible headache. The doctor said she will be on it for a long long time.. any input for us we are new to this.
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Mom without- Sorry to hear about your daughter, I know how upset and worried you must feel, my daughter was diagnosed with breast cancer a couple years before me and remember how helpless I felt. At the time I didn't know about BCO. And didn't have all the support and advice you will get here now, glad you found us but sorry you have to be here. I'm assuming your daughter is ER+ sounds like she will be taking one of the hormone pills that is taken for 5 years. As far as being able to sleep laying down, I was able to but also slept in a recliner which was more comfortable for me, I also was able to sleep on one side but only has a uni masectomy so I'm sure it will be harder for her to do so. She should wear something comfortable when she goes in for surgery like a button top. Sounds like your daughter has a lot of support from you and her husband which is great, she is lucky to have you for a mom! I'm sure others will chime in, the weekends and late evenings can be a little slower or you can also start a new topic under just diagnosed. You can also pm me of you want. You and your daughter are in my prayers and thoughts.
Love and hugs
Debbie
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Momwithout,
Let her try the bed since she wants to be with her husband... his hand to hold could be the best medicine. I bought a wedge of foam that elevated my head and used it for a month... was able to sleep in bed that way.
If she continues to have side effects with her meds, the doc might try a different one, but many women here have said they had side effects at first that lessened or dissapeared as their body adjusted to them... so there is hope.
The best you can do is be there when she wants you and give her privacy when she wants that, too... go out to see a movie or take a long walk or something... it will be good for you, and your daughter, too.
Cancer (esp bc) is not a death sentence. It is an opportunity for personal and spiritual growth. A chance to examine our lives and cull out all the little annoyances and live exactly the way that brings us the most joy.
This extends to care-givers, too.
The very best to you, your daughter, her husband... look for the blessings along this bc path... there are ?many.
Linda
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