Starting Chemo October 2012
Comments
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i agree!
i finish chemo on march 7 ... and my eldest daughter id due with her second child on march 9th!!
what a great way to end chemo...
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Loubar- I have seen a number of women out who might be going through chemo. Since I personally have shaved my head "just because" in the past; I never assume. However I have had two different women approach me and ask/assume and comment. I've taken their comments with the intent they had -- support and solidarity; though I was taken aback at their boldness of approach. The one lady was very loud and I did have a hat on; so was a little overwhelmed. Both were survivors of over five years without a recurrence -- so that was something they wanted to share. I spent quite a bit of time w/o head coverings while in Santa Fe as it was so hot in the stores and I continue with hot flashes. I'm shyer here in our small town where I'm sure all the people I see regularly but don't know ( post office clerks, waitress, etc) would ask questions.
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Well I am officially PFC! Last of 4 rounds yesterday of TC. Met with the radiation onc today and will start radiation on 1/28 for 33 treatments. She said the last 8 will be boosts. So I am off to that discussion board. Will check in periodically with all my friends. Good luck and hang in there. Thank you for all the help and support and I may see some of you on the radiation winter boards! Hugs
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Marlene - woot!!! So excited for you! Congrats and hugs!!!
Schoolmom - Yea...PFC...One week from today will be my last chemo!!!
Toots - You've been feeling good ... When are you due for #5? I love the silver linings you wish for all!
LouBar - Chemo #5 today? I'm with you if your wearing some pockets today!
alcb70 - You must be incredibly strong!
Caitgrace, 301724, thinking of you too!
I'm hoping everyone is feeling ok today. I am at a good point now and hope to feel good for the next week till my last chemo. My worst complaint is how physically tired my body is...not sleepy but exhausted. I'm always trying to walk around a bit but even lifting and using my arms a little makes them ache all over. Anyone else experience this?
It's a soggy wet day here on the west coast. Hugs to all. Xox -
I agree....any day we wake up we're survivors! Very smart!
Loubar- I do the same thing. I passed a woman in the grocery store with a hat & we both kinda looked at each other and had that "I know what you're going through" exchange but neither of us said anything. I was at the grocery store again and the sweetest older woman tapped me on the shoulder. She asked if it was too rude to ask why I was wearing the hat. I assured her it was fine and told her. She said she asked because she was a lung cancer survivor and she just wanted to encourage me and let me know I could get to the other side. I thought it was sweet. I live in the south, so people are more forward. They just want to say, "bless your heart" and wish you well.
Other than that.....I don't see anyone...especially no one my age.
Marlene- best of luck with your little one. YOU are SO strong! To get through all of this all while pregnant! You're amazing, and your little one is already a tough little fighter!
Halfcan- I have the same thing....but mine is in my thighs. I can't walk for too long, and just getting up the stairs is awful. I have to stop half way up and let my thighs scream, then do the same at the top. Hoping it'll pass for both of us!
Toots-thanks for all your uplifting words!
I'll continue to peek in.....almost feels like we're graduating and going different directions.
I wish everyone the best! Low side effects and time passing quickly. I pray we all make it through without any recurrence!!! NED (no evidence of disease) needs to become our constant companion! My chemo is done (herceptin until Sept. though)....I'm off to the surgery thread. Thanks and love to all!
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Hugs to all! We ARE graduating, in a way. Feel free to add the 2013 Survivors thread to your list to check out. Several of us post there, too and would welcome all from this group.
Will be on vacation the next 10 days so will be out of touch. But you all will be in my thoughts and prayers.
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Congratulations to everyone that is 'getting there' and heading out of chemo whoohoo!
301724 - enjoy the vacation - come back rested and rejuvenated!
My next taxotere is due 17th - next Thursday - saw oncologist last night and because I was so ill from the last one he was really concerned - result he is going to do a reduction from 175 mg to 140 mg on the next!
Just getting back to almost normal now, eyes still runny, sore and 'gritty' still constant noise in ears hard to describe - when my kids were young I would tell them to put a shell to their ears and 'listen to the sea' that is the constant noise in my ears although when it was at its worse is went up to a high pitched whistle!
We discussed radiotherapy, last Taxotere 7th Feb, he wants me to have a bone scan when I have done, then 4 weeks free before rads start............not looking forward to that - 74 mile drive to hospital and back every weekday for 3 weeks........concerns me more than the rads LOL
Prayers for all and I hope there are lots and lots of silver linings for everyone. Take care and lots of hugs xxxx
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toots ...i can relate to the far drive... my sister takes me and she is outside the city...
i have 8 more taxol to go... and still trying to figure out what is best for surgery
BS pushing this " breast saving surgery" lumpectomy... and i am sooo not sure
I am very concerned about the impact of rad therapy...
not to mention my mom died of a heart attack she had during her last rad treatment.. sigh
im 44... a grandma, happily married a a great man for 23 years.. and feel no need to save the breast..
im so wired today... first 24 hours after treatment i always am... should crash soon..
i find the lack ofrecovery time between treatments starting to take a tole...
i am anxious to met you all on the survivor beach
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Hello everyone- sounds like a lot of folks are getting ready to be done with this phase of treatment! Yay team! For those still finishing up -- stay strong and joyful as the completion date is coming!
I've drawn so much inspiration from all on this discussion board. Now it's hard to leave...but guess I need to seek out info on the tamoxifen (read some the other morning and was happy someone here started a board talking about all the people who have few side effects cuz it was starting to look pretty awful).
I'll keep all you travelers for radiation in my prayers and thoughts. I was so blessed to go through radiation on the "partial/concentrated" course. 5 days straight twice a day; but that's it. The St. Louis cancer center had apartments and dorm- like rooms for people staying in town during treatment. I know not always an option ...
For me the hard part of radiation was anxiety about placement or the equipment possibly malfunctioning or people forgetting me etc. I found myself counting, and because I was anxious I would count faster so it would seem like they were zapping me longer...by the end I was a wreck. Lol so remember to breathe! They do have so many safe guards I shouldn't have worried ...
I've been a bit down, which I read happens often at the end of the treatment...definitely Halfcan, I have the same thing where my arms get so fricking tired ... But try to push and move . By the end of the day bed is SO nice, I miss my midday naps but need to work etc now. Knowing I was lucky to not have to over the last few months.
All my live and wishes for continued endurance as you push to the finish line, ladies! May Kali-Ma give you the strength, protect you from all that is hard and wicked, raise you up to feel the light and the wonder in this life, and reveal all the blessings you have everyday! -
Had #5 on Tues, waiting for the SEs to hit, but still feel so good knowing there is just one more to go!! When it first started it felt like it would be forever, but looking back now it has actually gone by fast. So I am feeling thankful right now.
Next step will be rads sometime in Feb, guess many of us will be meeting up on that forum as well. Hang in there everyone! :-)
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My last treatment is this coming Monday. I am so relieved to have reached the end of this process and looking forward to moving on to Radiation and completing that as well. I haven't posted a lot on this site but I check in often and get much encouragement and support even though I am the silent type. Thank you all and I will see some of you on the radiation board, etc.
Cheers,
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I decided my survivor day will be the day they took that stupid tumor from me and I was "cancer free". 8/27! It is also the day I met my best friend almost 19 years ago, so it is a special day already. I am SO HAPPY for everyone nearing the end!!! I had #5 yesterday and so I have ONE MORE TO GO! Cake is a good idea. Maybe I will think of a way to celebrate. One of my friends mailed me a bag of confetti to throw at "last chemo or whenever I want" but courteous me is worried about making a mess at the treatment center
LOVE TO ALL!!!
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Poke - at the center in St. Louis - the nurses all threw confetti so I wouldn't worry too much as long as its in your area!
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Hi Ladies - day 5 of chemo #5 doing better than the last time with taxotere (thanks for being in my pocket halfcan). Taking the benedryl at night to sleep and counter the dex, vaseline up the nose at night to prevent dryness, nuproxen and claritan for joint aches, and swishing lots of magic mouthwash in between spinach smoothies.....I can't imagine the mess of my tummy with this concoction, but it's helping
Toots - I didn't have the ear noise last time - but this time your sea-shell anology was spot on. It seems to happen after I eat, almost a surge or nausea - noise in the ears that increase and then everything subsides...bizarre. I did stop taking the anti-nausea this round, may be something to do with it?
Seems like in the next couple of weeks many of us will be getting our last chemo YIPPEEEEE!!!! I've been reviewing the rads boards getting ready and also feeling worried about tamoxifan but trying not to get ahead of myself. So ready to start to feel good again and now that it's not temporary.
I hope those that are finishing up continue to check in and share your updates on how well you are doing, I can't imagine connecting with a group more so than through this thread. You have all been such incredible supports and are truly inspiring. Cheers to better managing those SEs and getting closer to feeling good. Love to you all, xxxx
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Loubar - still took my anti-nausea so think it is just one of the SEs from the Taxotere?
Love to all xxxxx
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Hi ladies, I am happy to report that the last Taxotere was much easier than the first one. I kept expecting trouble and it never came. Mostly exhaustion in a big way. Wednesday is my FINAL chemo!!! Yes, it seems we are all working out way through this difficult part of our journey and it has been so wonderful to have each other to help get through this. I wish those who have decided to leave this board the best in the future and want to thank you for the support you have given me since I started this thread. I don't plan on leaving unless everyone does. I don't always post a lot ... depends how I'm feeling, but I read every post as they come in.
I'm off to get blood work done and see MO for approval on final chemo for the 16th. Hugs to you all. Xoxo -
Wooohoooo Halfcan - with you tomorrow with confetti and cake
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Halfcan - Fantastic cake and coffee tomorrow with you x
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Had my last chemo today WOOHOO!!!! Sorry that I've been primarily reading and not posting for the last few weeks, but I am very happy to be done with chemo for now.
Halfcan -- Congrats on ending your treatment tomorrow! My nurses made fun of me b/c my blood pressure was reflecting that I was excited that it was the last treatment, but I brought them brownies so they couldn't make fun of me too much
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Many thanks for the well wishes for tomorrow. I am wearing HUGE pockets and I want to take all of you with me for my final chemo. This is the first time that my blood work has so many flagged low numbers (WBC/3.1, RBC/2.9, HB/97, HCT/.28 and Neutrophils/1.6 but MO is pushing ahead so must not be too low. It seems some of you are already done or almost there after travelling this road together. I too will look for the Rad. board for some answers to help me prep but I will still also be here. And I am soooo looking forward to the Port getting removed in the near future.
Congrats nbnotes ... I didn't remember today was your last chemo!
I hope it goes easy for you over the next few weeks. Keep in touch once in awhile and let us know you are doing ok.
Hugs, well wishes and love to all.
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YAY!! so happy you girls are finished ...
gives me hope lol
doing taxol TX today... after today 7 more to go...seems like forever!!
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LAST CHEMO FOR NBNOTES AND HALFCAN!! HOORAY!!!!
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woohooo nbnotes - cake and confetti for you as well...
hope you and halfcan find the last one is the best one with the fewest side effects! Amazing how we adapt to manage the SEs...keep us posted, good news is great to hear!
celineflower - those seven more will go by and soon you will be celebrating, do you have more sessions as you haven't had surgery? have you made any decisions re your surgery yet or still deciding. For what it is worth, your body has been through a lot perhaps consider what will be easiest from a recovery perspective if there is no difference from a prognosis perspective. I had a the partial mastectomy and despite it still being a bit hard (scar tissue?) I recovered fairly fast and without significant pain. Just be kind to yourself, you deserve it xx
poke - how are you doing post #5? although I'm lethargic I am much better than #4...I"m usually dreading the next one but this time I"m so ready to get it over with....we're almost at the finish line woooohooo:)
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Time to dance girls!!! Let's shake it!!! We are done here and now going for a late breakfast! Thank you all for coming with me. Love to all. Xox
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Hooray halfcan!!!!!
Loubar: I'm on day 5 post #5 and I'm just in bed. So tired. Slight cramps and a little nausea but tolerable for sure. Just so tiiiiiired!!! ONE MORE! -
yay...a party..
i miss parties...
so happy for you ladies ..:)
and poke... im day 1 of #5.. and i agree... fatigue so far is the worst SE..abd the headaches... sigh...
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Poke and Celineflower and LouBar, I too have found the fatigue to be the worst SE as we get towards the end but this we expected right? I think it is our bodies trying to demand the rest it needs to recover from the chemo. Still, we need to push off the couch / bed frequently to get the blood pumping our circulation and help with energy. After getting chemo yesterday, I expect today to be pretty good and maybe tomorrow as well but no expectations. Then the steroid crash and downhill from there.
Rest easy my friends and thank you for the congrats yesterday. Xox -
Great to see so many finishining chemo!
I start 4 rounds of 3 weekly Taxotere on the 22nd (with Herceptin).
I have finished four rounds of 3 weekly AC which I had minimal side effects however from what I have read I have a horrible feeling that the Taxotere is going to hit me real hard.
I have already cancelled a cruise holiday (and lost the deposit) due to treatment and the thought of another 3 months of extremely limited activity is depressing.
Anyone have "good" experience with Taxotere such as remaining active throughout and not have a day three crash?.
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Shakari - my first Taxotere was the worst one. #2 wasn't bad and I just had #3 yesterday. Mostly it is fatigue now. Steroid Hugh today still so catching up on chores. There is a Taxotere board that I also follow...you might search it because there is lots of good info and plenty on wonderful advice. Some gals have a hard time with AC so you just never know. Best of luck and keep us informed. Hugs.
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Hi ladies,
Just catching up on everyone's progress - makes me happy that so many of you are just about done chemo!
My update is that Miss Chloe couldn't wait one more week to meet us so last Sunday, January 13, my 6 lb 10 oz girl joined the world. We're all getting to know each other now.
(Yep, she's my first.)
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