2012 sisters

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  • mcook301
    mcook301 Member Posts: 509
    edited January 2013

    Ramols - just catch on you! Glad you are home now! Sorry to hear about your surgery :( that is not another thing you needed right now but dam doesn't someone like to keep testing how strong you are:)

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited January 2013

    Ladies, I want to apologize.......someone brought me up short today.....I asked for company for my first mammo and U/S tomorrow as I'm a little nervous on the 2013 survivor thread.....of course, you ladies should have got the first "invitation" as I started my BC experience here with you, please forgive a self-centered, distracted old gal

    today.....having you guys there with me tomorrow will go a long way to calming my nerves.

  • websister
    websister Member Posts: 1,092
    edited January 2013

    In your pocket Scottie :)

  • kjiberty
    kjiberty Member Posts: 1,385
    edited January 2013

    We are here for you Scottie.  

    Karenneedshope:  Where are you at in Michigan.  I was born and raised in the Detroit area.

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Hi kjiberty- Hello! I was born in Detroit, raised in Southfield and now live in Grosse Pointe with my dear husband and two children. Where in the Detroit area are you from? Karen

  • kjiberty
    kjiberty Member Posts: 1,385
    edited January 2013

    Hi Karen.

    My name is Karen too.  My mom still lives in the house we grew up in--10 Mile and 94.  My sister lives in Troy, bro in Royal Oak, another in Marine City. My sister is a radiation therapist at Henry Ford and is a wealth of info if you need help with anything.

  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited January 2013

    Scottiee - Whatever thread it's on we're with you tomorrow!

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Karen - it is such a small world! Could I ask you how your chemotherapy went? How were your side effects? Did they get worse with each treatment or stay the same? My treatment will be four of ac and then 4 of taxol. Then a few weeks off and then I start radiation. Thanks for the offer to put me in touch with your sister - I may need it!!!!

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited January 2013

    Thank you ladies.....have to remember to wear my pants with the extra large pockets

    tomorrow.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited January 2013

    Karen--I will PM you.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited January 2013

    Scottie: YOu'll need them.  There's plenty of us in your pocket!

  • Aruba
    Aruba Member Posts: 543
    edited January 2013

     Scottiee and others need big pockets for us to be with them for upcoming appts, scans etc...well this pocket seemed appropo for this board...if you look close you can even see Scorchy in the mix!  We are with you!!!

    You can't control the wind, but you can adjust the sails
    Dx 7/12/2012, IDC, 1cm, Stage Ia, Grade 2, 0/1 nodes, ER+/PR+, HER2-Surgery 07/20/2012 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Radiation Therapy 09/19/2012 ExternalHormonal Therapy 11/14/2012 Arimidex

  • kjiberty
    kjiberty Member Posts: 1,385
    edited January 2013

    Aruba:  How cute!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited January 2013

    Aruba:  that is lovely and how cute that Scorchy is in there too.

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited January 2013

    Aruba....love it......thank you.

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited January 2013

    Scottiee - In your pocket, know that we are all with you because it's really crowded in here!  (Aruba-love the pocket)

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Aruba - That is wonderful!! Good to know we are all in the pocket together!! Karen

  • halfcan
    halfcan Member Posts: 253
    edited January 2013

    Jumping in the pocket!!! :-)

  • Marcie47
    Marcie47 Member Posts: 248
    edited January 2013

    I am jumping in too. Tell the tech/dr to speak up so we can hear.

  • NYCchutzpah
    NYCchutzpah Member Posts: 415
    edited January 2013

    Scottie I'm bringing the chocolate to share in your pocket. Cool

  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited January 2013

    Make room girls I'm jump in' in with ya! Scottie hope you're not walking all lopsided from us!

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited January 2013

    Oh ladies you are the best really.....so many of you in my pockets, it was hard to climb

    the stairs. But having you all there certainly made it easier.....practically painless, and the techs were wonderful....helps when you play the C card and tell them you are a wimp....lol....don't throw the pockets away because next Wednesday I will go for my results......yikes.....love to all......a little drunk from our happy hour together so going to

    chill for a while😋

  • Tazzy
    Tazzy Member Posts: 2,546
    edited January 2013

    Scottie:  glad you made it through the day - enjoy your chillin'.

    That is what I am doing - 1st day back at work for me.   Only did 4 and a bit hours and brain feels frazzled and tired.   So happy that I am part of society again.   Had so many hugs and great to see you back from people, made me feel kinda special.  Its a good feeling to be part of something again - something other can bc.

  • Scorchy
    Scorchy Member Posts: 240
    edited January 2013

    Juneau thank you for thinking of me.  I hope it was a nice white southern gravy with biscuits!  :)

    I hope to have many gallons of gravy to come.  I refuse to accept anything less.

  • unowhoandwhy
    unowhoandwhy Member Posts: 73
    edited January 2013

    Hello ladies! I'm checking in to say hello. I've been keeping up with everyone through e-mail updates, but I almost never make it onto the site to post myself. My BMX w/tissue expander reconstruction on Dec 4 went very well. Sentinel nodes were clear, and the only real pain I had was tissue expander related (good gravy do those fills hurt, especially the 100-150 CC ones!) and some soreness along my armpits. 

    Fortunately, I ended being very happy w/how I looked at 425 ccs, so my fills were complete before three weeks post-surgery & now I just have to wait till April for my squishies. I was back to hiking 4 miles a day less than 4 days after I got home, am currently doing the Spartan Race January Burpee Challenge, and was ready to go back to work before 2 weeks (but postponed my return till after Christmas, just in case!). So, I am well aware of how very fortunate I am, especially when I look at the stories of some of the issues you ladies have had to deal with.

    Best part is, no chemo! Just Tamoxifen for 5 years, and I've been on it for 3 weeks & haven't noticed any of the side effects that I was worried about. The first day I took it I got dizzy for about an hour, about two hours after I took the first dose. So, now I take it just before I go to bed & never notice any dizziness.

    So, here's hoping that things go that well for all of us in 2013! You may not hear from me often, but you are all often in my thoughts!

  • Cottontail
    Cottontail Member Posts: 374
    edited February 2013

    Finished yet another round of antibiotics and antifungal, but still no change in the swelling and constant pain in my breast; it's still noticeably warmer to the touch an the other side.

    I'm already on daily neurontin for lingering neuropathy, and take the max dosage of both Aleve and Advil every day; I still feel the pain. Am considering cutting some Percocets in half or quarters, as a full one makes me too nauseous to function.



    My RO has no other suggestions. I guess this is just the new "normal." Depression is as constant as the pain.



    Also, because of the way my insurance plan is structured, it's difficult to see any doctor, for any reason, in January.

  • Aruba
    Aruba Member Posts: 543
    edited January 2013

     Cottontail, so good to hear from you although I am so sorry you are still having the pain and swelling.  Had you already been checked for lymphedema?  I had cording in breast and that was tender after surgery, but have heard of breast lymphdema as well and it sounds quite uncomfortable.    With the RO having no suggestions, I would be back in touch with my BS and MO!  Can you at least call them about this?  So sad that insurance dictates visits but I do hope you will get on the phone with them and see what can be done, you should not have to suffer like this!  Hugs to you!!

  • Cottontail
    Cottontail Member Posts: 374
    edited February 2013

    I did see a PT for awhile between surgery and rads, as I did have cording which has come back a bit. The returned cording contributes to the pain, but it's at the point my PT discharged me before, so she isn't likely to see me more than once unless things get significantly worse.



    I like my MO less and less - at my 6 month post-chemo check, she was very judgmental when I requested a sleep aid for chronic insomnia (which I haven't been able to start, thanks to the antifungal), and was even hesitant to write me a new script for neurontin.



    BS won't do anything over the phone.







  • juneaubugg
    juneaubugg Member Posts: 951
    edited January 2013

    Cottontail; nice to "see" you. Sorry your still in pain. That's fucking bullshit!!! Won't write Neurontin!? I'm on it for hot flashes for the next five years! (Generic Gabepentin). Who was your Breast Surgeon, not PS or MO... Go see THEM. you should not be in constant pain indefinitely. Kept pushing and demanding answers and treatment. If you need to, get a new fucking dr to manage your aftercare. Be your own advocate. Fight for your quality of life. You didn't survive cancer to suffer in silence. Ok that's my pep talk... Hope it motivates you. 💋

  • Cottontail
    Cottontail Member Posts: 374
    edited February 2013

    She did give me the neurontin (I was surprised the script was a full years worth), but I had to practically beg for it. She said my neuropathy "should have" gone away by now (it is mild but still there, guess it didn't get the memo), and the prickly pain in the lx scar area was "nothing to worry about." (I guess it's the nerve endings. It's painful in exactly the same way the tumor was painful, so that was terrifying. Going back on neurontin at least took away that pain.)



    My first post-cancer mammo is in March, I'm supposed to see my BS directly after. Since I can't see anyone in January, I'll probably just wait until March.



    This weekend I'll try the lower dose of Percocet to see if that helps, an if the lower dose doesn't make me nauseous. If I cut them all in quarters, I've got enough to last until March.



    The constant pain is really dragging me down.


    I didn't have a PS. I didn't care for the one that was recommended by my BS- All he talked about was mx reconstruction, and when I said I wanted lx with a reduction+lift on both sides, he not only refused to do it at the same time as the lx (I've seen several ladies on this board get that and be happy with the results), then he said surgery on radiated skin was "too difficult." I saw him before my lx to talk about a time line to get the reduction/lift, and he was still just pushing me to get mx instead. So I'm just skipping that altogether. I've wanted a reduction for years but I'm tired of surgeries and procedures now. My BS says he's "the best" in town, but he lost me as a patient. Maybe he was already overbooked and didn't want another patient?


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