January 2013 surgery

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  • SherylB
    SherylB Member Posts: 450
    edited December 2012

    mirmirpanda, So sorry that your friend who one would hope would be supportive and instead attacked you. I don't know why people do that but let me share a small story. First of all my husband of 28 years is hard and cold on the outside but he does have a soft side however, no one including me has hardly ever seen it. When he took me for my lump and slnb they kind of ran him all over the hospital while I was in surgery and recovery and he has really low tolerance for this type of crud. on the way home he said if he had know i was going to be there that long he would have gone home and let someone else pick me up(day surgery). I was blown away to say the least. I found the lump 11/12, biopsy 11/20 and surgery 12/6 so hit hard and fast. Anyway it was all I could do to not break down and cry my heart out. Next day he was fine researching my TN and chemo etc. I realize it is fear that made him strike out at me. Having said that the hurt doesn't go away and it is harmful to our relationship. It took me a couple of days and talking with a sister who is good for me but the conclusion I came to was that I will take care of me and he can go jump off the roof. While it hurts when I had my port put in yesterday I didn't even ask him to take me I had a niece take me. I feel like I am rambling but the moral of my story is that no matter what it takes I am going to take care of me and do what is best for me and the chips will fall where they may.

    Hang tough,

    Sheryl

  • peanutsgal
    peanutsgal Member Posts: 161
    edited December 2012

    Ok, so I'm what you would call an excessive planner and have begun packing and preparing for "S" day. I have finished all my pre-op visits, had cardiology clear me for surgery and finished my pre-op lab and interviews at the hospital. Now I am packing a bag for my family and mainly my husband to keep them occupied. Here's what I have so far:

    ~~3 days worth of my daily medications (I have MS and am on specialized medicines that sometimes the hospitals have and sometimes they don't)



    ~~A card for my husband with a picture of us inside.



    ~~A notepad for keeping up with medications and instructions



    ~~Snacks for everyone in the waiting room and a roll of quarters in case someone wants something from the vending machine.



    ~~Packet of Clorox wipes. They clean rooms between patients, but they are not completely disinfected. My mom has strict instructions to wipe down everything my hands will touch such as bed controls, door handles, remotes, faucet knobs, side rails, etc. (trust me, I used to work in a hospital and I've seen some poorly cleaned rooms)



    ~~iPad and charger



    ~~small containers of hand sanitizer



    ~~Phone and charger and list of people to notify when surgery is over



    ~~iPod to block out hospital noises....some of these can be really loud and annoying!!!



    ~~Small bottles of mine and my husband's favorite beverages. These are not always readily available.



    Anyone have any other suggestions???

  • Tamiami
    Tamiami Member Posts: 396
    edited December 2012

    Good morning everyone!

    I just wanted to check in and say hi.  I've been with my daughter, son-in-law, and baby grandson since Christmas and just got home last night.  Getting ready for my busy surgery week...working today, tomorrow, Wednesday and Thursday, then the big day on Friday! 

    I'm scheduled for 2:30pm, so it's gonna be tough for me not to drink anything after midnight...I'm a huge water drinker!  I'm starting to ween off the caffeine today, so I made 1/2 and 1/2 coffee...wish me luck with that Surprised

    I see that our "list" is growing.  It's sad, but good to be in good company.  I hope you all had good holidays and have some fun plans for New Year's.  Bring on 2013!!

    Tami

  • liffeybloomer
    liffeybloomer Member Posts: 72
    edited December 2012

    Hello,

    I am Joan, in Maryland, and was diagnosed with HER2+ on Dec. 12. I will have a lumpectomy on Jan. 22 at Mercy Hospital in Baltimore. I understand that this will be outpatient and I will be home that same day, so I am grateful that I won't have to deal with major surgery. My question is how soon will I be able to work? I teach at a community college but will have a reduced class load this spring (two classes, one of which will be online). My surgery is on a Tuesday, so I wonder if I could expect to be able to teach the Thursday following or if I should wait until the next week? Thanks, and am both glad and sad to be joining this group!

  • Hoya03mom
    Hoya03mom Member Posts: 135
    edited December 2012

    to all who have surgery yet to come....I had bilateral mastectomy with muscle sparing tram 7/25/12 and one piece of board advice I REALLY wish I had done was to photograph and measure arms prior to sentinel node surgery.  They "think" I have lyphadema since my left arm fluctuates from 5 - 10% bigger...but maybe it was always that way.  I now have pump and sleeves and softest arm in history from constant bio oil massages (probably not a bad thing) but without prior measurements or photos, just hard to tell for sure.  To measure take measuring tape (easier if you have friend/family help) and mark off every two inches from wrist to shoulder on both arms then measure circumference at that point.  Log it in along with photos of both arms together.

    If anyone wants details of my journey you can access my posts or feel free to call 203-792-0208.  I talked to so many prior to making decisions and afterwards as well.  It helps to have support!!  Good luck all.  I am SO happy I went the way I did...feel good, "girls" look great and cancer is thankfully gone.

    PS...take those laxatives after surgery even if you think you don't need them....or you will regret it!  Prune juice as well.  Those narcotics really play havoc with your systems!!

  • MMSS
    MMSS Member Posts: 103
    edited December 2012

    Welcome, Joan. You might want to think about having someone else cover for you for the on campus class for at least a week mostly because if you have a drain and most people do it can be both uncomfortable and difficult to find something to wear that will disguise it. While campus dress standards have relaxed a lot in recent years I am not certain that they are ready for a teacher in sweats. However they are perfect for teaching online. I remember Mercy Hospital. My husband took his residency at Uof M and they did a six month rotation there, still have friends in the area. All the best to you with your surgery. Remember you will heal faster if you don't push yourself too much at first. Just having a general anesthetic is a shock to your system and will take a while to totally clear from your body. Rest is an important part of the healing process. Be good to yourself and your body will thank you.

  • JRMH
    JRMH Member Posts: 59
    edited December 2012

    Sheryl- I am sorry to hear that your husband is not being as supportive as he should. I am glad that you know you need to care for yourself and I hope you will be able to find support in other places as well.

    peanutsgal- Thanks for sharing your list. What great suggestions!

    Hoya03Mom- Thank you for the tips!

    Joan- I updated the list to include your surgery date.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited December 2012

    Hi everyone,

    Thanks to Jennifer for starting this list. As you can all see from my info below, I've been through a lot, but I'll spare you all the long tale. I'm having a revision to my left breast (not even the cancer side) on January 10. The surgeon has said that he thinks we can do it under twilight sedation instead of general. I'm happy because it's an easier recovery, but I'm also worried because I don't know what to expect from it, as I've never had it. I know exactly what to expect from general now.

    Best wishes to everyone in this group! If I can answer any surgery questions, please feel free to ask.

  • Ariom
    Ariom Member Posts: 6,197
    edited December 2012

    Just thought I would let you know Cookiemonster, I have had Twilight Sedation several times, and each time I have just woken thinking that the procedure hasn't started yet. Slightly groggy for a short time, maybe 10 minutes and that's it.

    You've been through so much, this is really quite different.

  • jojo2373
    jojo2373 Member Posts: 662
    edited December 2012

    Happy to know so many strong women! January arrives soon, one step closer to living cancer free for all of us.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited December 2012

    Thanks Ariom. I don't have a surgery time, but plan to sit my butt on the couch for the rest of the day no matter when I get home just to be sure.

  • Tamiami
    Tamiami Member Posts: 396
    edited December 2012

    Cookie Monster~

    I had a golf ball sized tumor removed from my breast under twilight and it was fine...didn't feel a thing, and didn't remember a thing!  Recovery was a breeze!  Good luck!

    Tami

  • liffeybloomer
    liffeybloomer Member Posts: 72
    edited December 2012

    Thanks for that advice, MMSS and for adding me to the list, Jennifer. I am eager to get this thing out of me and to begin the long process of chemo and radiation. I am HER2+, so apparently I have to have Herceptin for a year.

  • alcb70
    alcb70 Member Posts: 166
    edited December 2012

    Hi everyone! I'm looking at having surgery at some point in mid-late Jan. (bilat. mastectomy with reconstruction).  I'm 42, married, and the mother of two girls who are 18 and 22 (and have guardianship of a nephew who is 18).  I was diagnosed on Sept 14th with a grade 3, 4cm tumor on my R side.  I had one lymph node biopsied and it was completely taken over by tumor.  My MO decided to do chemo first so that he could shrink the tumor (and stop any sneaky little bits that may have gotten loose).  So far, it has worked really well, and you can barely feel my tumor anymore.

    My last chemo treatment is on Jan 9th (wooohooo!!!), and I see my surgeon on Jan 10th.  My surgeon told me at my last appt that if my numbers were ok, I could have surgery as soon as 2 weeks after my last treatment.  If my numbers aren't ok, I may be bumped to Feb.  Thanks to (the hell that is) Neulasta, my numbers have been ok all through treatment. I've (unfortunately) had MANY surgeries in my life, so I consider myself a vetran at this point. None-the-less, it's still very daunting to go into something like this.....especially in a weakened state.  Not knowing what to expect, and knowing that it's still many procedures long (fills, exchange, nipple reconstruction) is unnerving.

    I've met some really great women on this site, and have gotten a lot of practical advice.  I'm also lucky to have the best husband in the world supporting me and taking care of me.  It's made all the difference in getting through chemo.  I'm hoping to join with you as this part of the journey begins. I hate seeing so many names on the list though! :(  I hope this time goes quickly for all of us!!    ~Andrea

  • alcb70
    alcb70 Member Posts: 166
    edited December 2012

    Liffeybloomer- yes, you will have Herceptin for a year.  If it's any consolation though....other than fatigue (which could be completely my chemo agents), and an occasional headache.....Herceptin is a breeze! :)

  • trailertrash
    trailertrash Member Posts: 22
    edited December 2012

    I'm seeing my name in print, for reasons none of us want...and I see it says I'm having recon. But I'm not. I don't have any idea how to fix this! I'll start with my own profile, to make sure that matches.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited December 2012

    trailertrash - If you're talking about at the top of this thread, I suspect Jennifer just made a mistake. I'm sure she'll fix it when she sees your comment. The person who starts the thread can go back and edit the original post which is how she added all of the names and dates and info.

  • NatsFan
    NatsFan Member Posts: 3,745
    edited December 2012

    Crescent5 added some great advice - yes, be sure to have Colace or other stool softener on hand - the anesthesia and pain meds will pretty much stop you up, and that can be extremely uncomfortable.  And she's spot on about walking - the hospital will probably have you up and walking the halls no later than the next morning, IV and all.  When you get home try to walk at least once daily, doing a little more as you can each day.  My surgeons encouraged me to get up and get moving - even if all I could do that first day was shuffle down the sidewalk to the next driveway and back. (That first day I was in my old sweats and slippers, and was unshowered with dirty hair - pretty much a mess.  As I shuffled down the sidewalk, I had visions of one of the neighbors calling police to report a vagrant in the neighborhood!  Tongue Out)

    To ease the strain on your dh or whomever will be making the post-surgery phone calls, organize a phone tree or else collect email addresses so he can either make one or two phone calls at most, or even easier, he can send out a single email or text blast.  Your dh or other loved ones who will be in that waiting room while you're in surgery will be exhausted from stress, and probably won't feel like making phone call after phone call, and yet there are so many people who care about you out there and will want to know how it all went.  Collecting email addresses or being part of the phone tree is one of those things you can hand off to someone who has offered to help - let them do that for you and your immediate family.   

    Hopex3 is right - this first part is the very worst part emotionally.  It really does get better as you get into your game plan.  Hang in there ladies - January is when you finally get the d*mn thing out, and it's amazing what a good feeling of relief you have once that's done.  There are many many women who have walked this path before you and are there to support you. Take our hands and take courage from us as you walk.  You CAN do this, and before you know it you'll be reaching back with a helping hand to those who are walking the path behind you. 

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited January 2013

    Best wishes to all for a speldid and joy filled 2013! Hopefully the worst will be over this month for all of us.

    Not to be negative, but a word of warning, given the number of people on the list, it seems likely that one or more will have some sort of complications - failed TE or something else. Please please, don't be afraid to let us know what's going on, we're here to support you throught his all, the good and the bad.

    HUGS to each and every one of you.

  • Butterflylady2012
    Butterflylady2012 Member Posts: 187
    edited January 2013

    I am scheduled for a preventative left sided Mx with TE on Jan. 23rd.  In May I had a right sided MX for ILC and five weeks of radiation.  I'm feeling the emotions coming up a little for this second one.  Even though I am better prepared this time and the cancer is out of me, I know the nerves will hit me more the closer I get.  One step at a time...

  • kkuziel
    kkuziel Member Posts: 191
    edited January 2013

    I too will be scheduled for some type of surgery this January. Right now my surgeon is taking lumpectomy. Have an MRI scheduled for January 3. Tumor was difficult to locate and my surgery scheduled in another hospital in December was cancelled. New surgeon, larger hospital, another delay. Encouraged to see that what I thought had to be done within a week of diagnosis seems to take longer, as most of you have had your diagnosis for several weeks or more. I always thought you had to "move" on these things like yesterday. Now see that there is time. Encouraging. Best of luck to all with their surgeries.

  • Scatsm
    Scatsm Member Posts: 18
    edited January 2013

    Happy New Year to everyone!

    Thanks for the list of what to bring to the hospital...I have my BMX on 1/7... Others have suggested a pillow for the car ride home to cushion the seatbelt.

    Glad you all are here!

    xoxo

  • liffeybloomer
    liffeybloomer Member Posts: 72
    edited January 2013

    Cookiemonster, I'm still learning the lingo and acronyms. What is a failed TE?

  • Tamiami
    Tamiami Member Posts: 396
    edited January 2013

    The very first "board" that is called: New to Breast Cancer?  New to These Boards?  Start Here, has a link to all the abbreviations.  Hope this helps Smile

  • liffeybloomer
    liffeybloomer Member Posts: 72
    edited January 2013

    Thanks, Tamiami. I googled tissue expanders, and I don't think I have to worry about that with only a lumpectomy, right?

  • Tamiami
    Tamiami Member Posts: 396
    edited January 2013
  • Tamiami
    Tamiami Member Posts: 396
    edited January 2013

    AuntieEm~

    Good luck tomorrow!  I will be thinking of you and hoping for health and healing in 2013!

    Tami

  • JRMH
    JRMH Member Posts: 59
    edited January 2013

    trailer- Sorry about the mistake. I am so glad you pointed it out so I could fix it. :)

    I updated the list to add several more people.

    Auntie Em- Good luck tomorrow! I am thinking of you and wishing you the best.

  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    AuntieEm....Thinking of you tomorrow!!

  • Nat23
    Nat23 Member Posts: 45
    edited January 2013

    Good luck tomorrow auntieEm! I will be thinking of u! Sending u my positive thoughts and prayers! I wish u speedy recovery! 🌺💜🌺

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