I say yes, you say no, OR People are Strange
Comments
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Blue - we'll wait with you! Delighted that you picked Wendell - like his name too.
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There are so many troubles in this world. We should all pat ourselves and enjoy good moments when we can.
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Sandy he will never replace Virg but will help fill the void. The house feels so empty.
ETA - Just went for a walk with Lilah and found a bakery across the street. I'm in BIG trouble!
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I'm so glad you picked the little gray puppy, Blue. He looked like he was most in the need of love.
Glenna and Chickadee and all those with children with life changing emotional and physical issues-my heart goes out to you and thank you for sharing your stories and loving your children. I've had some pretty challenging issues with my daughter over the years, but nothing like what you all have been through. I don't know how I got through my daughter's issues-I don't know how you ladies do what you do. I guess we do what we need to do because we love our children. Sometimes it feels like that love is not enough, but we keep trying, because that's what moms do. Even when our hearts and spirits are broken.
Hugs to everyone.
Mary
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Hugs back at you, Mary. I'm not even a parent and, frankly, I don't think I would have the strength, endurance or ability to be one. You parents are all doing something I can only bow to. As for those with difficult/mentally ill/developmentally delayed or otherwise disabled children, I can't think of anything that would do justice to your burden - what comes to mind is what faithandfifty (remember Saint's dear friend?) always says as a sort of self-affirmation ((((strength and courage))). Which you obviously all have in spades.
Even though I am a lifelong nutso I wasn't really symptomatic until early adulthood and I had no "outward" behavoral problems so I never presented a "problem" for my parents. Partly this was due to the very rigid, ultra structured environment I was in, and partly it was because everything was so quickly and meticulously swept under the rug. You could say I was the baby who eventually stops crying.
I had to handle the volcano when it erupted, by myself, as an adult. As with the cancer, I never expected people to "understand" or "know what I'm going through" - I thought that was a luxury I wasn't entitled to, perhaps. Not sure. I am conditioned to expecting no empathy, but I have also made it my life's goal to feel it, show it and express it.
But I think it's easier to be self-contained if you are tending to yourself than if you are dealing with the troubles of another - a cub, especially.
I hope I wrote this clearly and properly.
Finally, I think I found the best sleep aid of all. Had to read the most BORING article today for work. Man, this is better than Ambien!

Edited to cut content.
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Thanks to all for your kind notes. I was at chemo when I wrote earlier. Blue, enjoying good moments is what it's all about. I am always a glass half full kind of gal and look for the good in everything. I feel that someday my son will become a responsible young man .... soon would be wonderful! I know from my friends who have "normal" kids that raising kids is a challenge nonetheless. Chickadee and Mary, we know there are many parents who have extra challenges. I think there are many conversations going around right now just like ours. This tragedy at least has us talking about mental illness. It's just always been one of those issues we are not comfortable sharing. The responses we can get can be hurtful (like my mom who just thinks it's because we weren't strict enough, gave our kids too much, etc.) I had a few rough years after my chemo put me into early menopause back in 1988. I was pretty bitchy without realizing what was going on. I am human. I made some mistakes, said some pretty mean, rotten, hurtful things to my kids (like "I wish I could take you back to DSS") but all in all am satisfied with my efforts. I have talked with my kids about those things and made my apologies. I know there are things we all would do differently if given the chance. We attack raising challenging kids the same way we do BC .... we have no choice. We're not perfect, brave, heroes, or special in anyway. We do it because we love our kids.
Blue, sorry you and Lilah have to wait for Wendell. I think he's a cutie. -
Athena, I was posting at the same time. Good idea to delete these posts after a while. I would hate for my kids to find that I wrote about their problems. I just feel close to all you gals and this topic is near and dear to my heart. Thank you for being so open with us about your problems.
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And thank you for being so open about yours.
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Athena thank you for sharing.
I went back to that article about the plans to commit the young man and a paragraph was added which, though so true, still hit me like a truck. ETA not dismissing the loss of all those precious children.
From a forensic psychiatrist at Georgetown Univ in DC. she said that when a psychotic person does become violent it is usually the mother who is killed......"She's the only one who never walked away".
Heartbreakingly true. -
Oh God....
ETA: I think, in this conversation, that gender plays a huge role - without diminishing the pain anyone with girls goes through. But boys raise the extra fear of violence for parents and communities. Put guns in the mix and you are entering a potential point of no return.
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My eldest daughter is four years out of ReHab. She and I started out on different trips four years ago. Me to try to understand what it was to live with a disease. She to try to take back her life from substance and alcohol abuse and depression. Madeleine has been mostly successful. She says its because she's good at quitting things. I have been lucky to be NED for most of this time. Time savour the transition of my 6 year old granddaughter (who we had custody of 4 years ago) to a self confident, happy, empathetic 10 year old) and to welcome a new baby girl 8 months ago, and to see my daughter blossom into the generous, happy, artist and mom that I knew she could be.
Those of us who deal with the hardship that parenthood can sometimes be would rarely say that they are sorry that they became parents. Only that they wished that it wasn't so hard for their children. And that things will get better. They sometimes do. -
Believing that things will get better, sustains me everyday.
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My 28 year old son-the one who was hospitalized for depression-has found his joy in potery. He is a great artist.
In fact, I was at an art show and one of the other exhibitors called him a genius.
The guy said,"I don't know how ou feel about your son, but he is an artistic genius."
How I feel about him? I love him with all my heart. I wish life was easier for him but with his graeat talent comes some trade-offs.
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Amen, Chickadee.
I was away and missed this conversation while it was going on, but I just want to add how moving the comments are -- the extent of the struggles some of us have had, the naked frankess (which has to be really difficult) and the process of trying to understand one another. Big, big hugs to some amazing women.
Linda
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Yikes, this thread is moving quickly.
To Chickadee: Yes, absolutely.
And I think your children know this, whether or not they have good outcomes. I know that the pressure to "succeed" (whatever that is), "stay out of the papers" and "carry on the family tradition" (whatever that is), etc.... helped me even if it hindered me in other ways.
As much as I may complain that those in my life have the ability to sweep elephants under a rug, the good side of that is that it kept me on my toes. That pressure may be overwhelming - it sometimes feels huge -- but it works for me.
And love for your parents does too. I know, Chick, Glenna, Mary, Kayfh, that your children are thinking of you with love, and that they want nothing more than to make you proud in some way. My love of my "elders" has sustained me.
The fact that different people have different outcomes is due to a million things, but I think the love and pride of a parent can be an enormous source of sustainment and inspiration.
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Some of my son's pottery

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That's beautiful. I love the flowing leafy designs.
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Beautiful, Rosemary. I love pottery.
I have been hospitalized four times for mania.
I can do really, really complex things but can't get the easy ones right.
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Wasn't it Einstein who couldn't tie his shoes?
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Luckily I am a TAD more able - lol!
I didn't know that about him. I do know that he was a bad student.
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Rosemary-the turquoise bowl is especially beautiful.
Mary
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Ain't this interesting:
http://www.disabilityservices.nscc.ca/en/home/exploreyouroptions/smartsteps/smartstepfive/encouragingstories/alberteinstein.aspx
Albert Einstein didn’t learn to talk until he was four, couldn’t learn to tie his own shoes, and was way behind his classmates in learning to read. His teachers said he was mentally slow, unsociable, and a dreamer. Although he eventually made it through school, he failed the entrance examination for college. Some people think he may have had Asperger’s Syndrome, a form of Autism.
Despite his struggles in school, Albert Einstein became a theoretical physicist who came up with some of the most astounding scientific discoveries and theories. He proposed the theory of relativity and also made major contributions to the development of quantum mechanics, statistical mechanics, and cosmology. He was awarded the 1921 Nobel Prize for Physics for his explanation of the photoelectric effect and "for his services to Theoretical Physics". -
And while we are on the topic of mental illness, I would like to sing the praises of my superb psychiatrist. Good help is really hard to find. I had had my share of dunces in the past. I have to pay privately, and THAT shouldn't have to happen. I am so, so lucky and so many people are not getting the good care they need. It is thanks to him and his always going way above and beyond, his faith in me and his tenacity, and his care, that I function so very well --especially in areas like career.
It's not fair. Because if you are not able to pay in this country, the mental health care you get can be from non existent to terrible if you have a serious mental illness. That has to change. The care can be so bad that you are almost better off without it - not exaggerating.
Insurance companies continue to discriminate against the mentally ill despite the Mental Health Parity Act.
Our perpetrator did not have that p[roblem. I think his family had money. The question is whether his mother and/or father had a mental illness and whether they were impaired in their ability to spot the signs and advocate for the child.
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Yes they had money. Her divorce settlement assured her of 200k a year. If she was seeking involuntary commitment she had sought help. Whether it was to little to late is a distinct possibility.
However I can tell you, even with insurance we've left a trail of psych's behind who just don't get it and simply write scripts. We too have found a savior in the person of a psychiatrist/professor at a major university who gets FASD. It's 150 mile drive to see her but I'll do it for him.
Competent psychiatrists and psychologists are like needles in a haystack, though I'm sure they would disagree. -
Re psychiatrists and scrips ... I sometimes wonder if all the meds my son was on was a factor in his use of illegal drugs. When he left home at 18 because he didn't want to go to school and hated rules, he quit going to the psychiatrist and quit taking his meds. It's been alcohol and drugs ever since. My mom has always worried that he would hurt me. When he has had violent outbursts the past few years he has always directed his anger at things .... That I can deal with. Holes in walls can be repaired! There is no way I would ever have a gun in my house. We have found machetes, knives, etc., and taken them to the landfill without telling him
Rosemary ... Your son is very talented. I love his pottery especially the freeform shapes!
Chevyboy .... I hope my son is not still homeless at 52. I feel for your brother! How sad for him to have lost his daughter.
Kay, your daughter's success gives me hope!! Does she still go to meetings? My son is so against the 12 step program format. The rehab he is in now is faith based and he says it's not the place for him. Since he has no where else to go, I hope he stays. Since he's there voluntarily i think he can walk away anytime he wants to. They do job training, have psychologists, psychiatrists, social workers, and hopefully he will get to that place where something strikes a chord in him.
Chickadee, how old is your son? Both Roy and Lena were given hepatitis prenatally from their mother's drug use. Fortunately they have no symptoms. We found out when they tried to donate blood.
Kam, I need to look up the chained CPI you're talking about. I have told my DH he can't retire until Jan 2014 when I get Medicare!
Yeah for Time's Person of the Year. Well deserved!
I had my 2nd taxol treatment today and it went well. So far no SE's. Got a copy of my ct report from last week and my onc was NOTsugar coating. My cancer really is stable. I find his interpretations are sometimes more positive than the radiologist's so am always anxious til I get the written report.
Too long again, sorry!! -
Rosemary, love the pottery.
My dad and uncle didn't talk till they were 4. They are definitely spectrummish and possibly all the way on the spectrum. I asked my dad if they had problems speaking. He thought back (he remembers it perfectly well) and said "no." I asked if they had twin langauge and just talked to each other, long pause, "no." So after a bit of this I asked why then they didn't speak. Another long pause, and then he said that they just didn't see the point and didn't have anything they felt they needed to say to anybody.
I agree about the mental illness. If this tragedy can help getting a public conversation going and help break down some of the stigma, then some good will have come of it at least. I have always been very open about my brother's psychosis, because I believe strongly that the stigma has to go, but it has also netted me some odd looks along the way.
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Glenna, he is on his way to 24. Some holes in the wall but lots of broken cellphones, remore controls, flat screens and screen doors.
But we are here, still alive and taking it one day at a time. To his credit he doesn't smoke, drink or do drugs. He dabbled when he was in the thick of teen stupidity but thankfully walked away from it before something bad happened. I count that one as a win for all the nagging, er, counseling I gave him.
Waiting for Ativan to kick in. It's taking longer and longer now......... -
Chickadee, I agree. There is a hole in the Lanza story where his psychiatrist is supposed to be. There have been various reports that he was medicated. By whom? If his mother sought to hospitalize him (although this may just be rumor) she must have talked to some psych porfessional of some kind. I strongly suspect that he did have a shrink, but of the type who writes a script every 3 months and couldn't care less how the patient is actually doing.
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Yes she would have had to obtain detailed evaluations, most likely from a neuropsychiatrist as well as any records of routine psych visits. Involuntary committal is a complex process as it should be.......but one wishes there was an expedited process for an obviously dangerous ramp up of violent or threatening behavior.
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Yes, but even much earlier in the process, she would have had to discuss it with a professional. I guess time will tell.
When I got my cancer DX I freaked slightly. I was fine during the day, but would wake up in the middle of the night with full on anxiety attacks. So a friend told me to get some xanax. Well, in Greece, only a shrink specially cleared to prescribe addictive meds can give you a xanax script. I called a friend who is a psychiatrist, explained the situation and asked for the script. He gave it to me, but insisted that I come see him anyway. He works in a public hospital and is monster busy, but he still took an hour to talk it all through with me, to make sure I was OK, to make sure I was not going to become an addict, to see if there was anything else he could do to help me and so on. I was really impressed by his approach.
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