Sept 2012 chemo
Comments
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I can't wait for the cherry blossoms:-)
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Toastiecat - Good luck with your surgery/
Mariposa - was is Ovation for hair? Is it a shampoo?
Chemo #7 tomnorrow, hopefully! Just want to get it done at this point.
I hope everyone is having a great day, with no SE's.
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Toastiecat... Good luck tomorrow! Try not to be to nervous... I know that's hard to do but your gonna do just fine..
Thanks for the comments about my pic I had a photographer come over and take pics thru shoots for a cure so it was rather inexpensive. I get all my proofs back this week. I figure why notcapture the moment cause I am pretty hopeful I will never be bald again!
Field trip with my son today..... Going to the fredrick meijer garden to see the christmas tree displays and then a movie!
Have a great day everyone! -
Oh btw I still have eyebrows and lashes but have been using lattisse since the beginning.
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Queen kong ... I'm Glad that your surgery went well ... Specially that chemo did its job... You will be fine for spring we all will be!!!!
Toastiecat good luck with your surgery ... Sending white energy!!!! Everything is going to be alright!!!
Knock on wood but I still have my eyelashes and eyebrows lost few of them but I still have them and my hair is growing I look like chia chiaaaaaaa lol.... But who knows what will happen cause I just started Taxol on Wednesday ... It's been 5 days and feeling ok....
Had a great weekend... My DHs family came to celebrate early Christmas with us from New York ... My nephews and brother in law are very young around their 20th ... I have always been their favorite aunt.. I had always made them feel like if they were my age when I was 28...and they all are boys!!! So this weekend they took care of me!!! Hug me and cried with me since they weren't here when I was diagnosed !!! They carried me... Dance salsa , merengue and some oldies till 5 am!!!!!! But most amazing thing is that all of them told me that I was such a great woman and survivor that I would get through this!!! And one of my nephew slowly lifted my hat and kissed my bald head... And I just cried cause they showed me so much love and it felt so good to have my "fans"love me so much!!!
We are all strong woman here .... We put up a hell of a fight every day!!! DON'T YOU FORGET THAT!!.........
No SE...please!!!!!! -
Patricia: I love the story of your nephew taking off your hat and kissing your head. How beautiful:-)
Amy: hope you have fun with your son today:-) I kept my first grade daughter home today and we are going to Ikea for lunch. Maybe it is my anxiety, but I feel like I need her more today than she needs school. She can go tomorrow!
butterfly: Ovation is a hair care system that is supposed to help you grow hair. www.ovationhair.com They had a special Holiday pack that comes with the shampoo, conditioner, cell therapy, supplements and styling sprays (which I don't think I will need for a while!) anyhow, I have no idea if it will work or not. Has some nice videos from other cancer patients - but has mixed reviews on the boards. I figured why not ask for it for Christmas! It smells super good and I am noticing growth, but it could have been the growth I would have had anyway:-)
Okay - off to Ikea! Wish me luck!
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Mariposa... I love Ikea! And I to am guilty of keeping my kiddos home here and there to spend quality time with them... Cancer def makes you enjoy the little moments more..
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Toastiecat: hope everything went well for you today!!
Patricia: what a great story about your nephews. Made me cry!
My eyelashes and brows are thinning too. I haven't tried anything and I can't draw on a brow besides I don't know if I want that look. I need to go to that makeup class.
I work in a middle school office and I have to tell you all, it was an Erie day. Only half the kids were there. We had 3 sherrifs walking around all day. We had to keep all the doors locked. It was creepy. I hope it snows tonight so they have a good excuse to cancel school tomorrow. Then we are off for break.
Eating like a pig tonight. Can't seem to stop....hear that? Fridge is calling my name again.. -
Thank you so much everyone for the well wishes! All your good vibes worked. The surgery went very smoothly. This little swap was not even on the same planet as the BMX. For instance, I walked out of the hospital at a normal pace, and even walked my dog when I got home. That took almost a week with the BMX. Only downside is that I have drains again, bleh.
Patricia, what a wonderful story about your nephew!
Hope, can't imagine how sad and
unsettling it must have been at school today. I am looking at everything differently now.
Hugs everyone! -
I don't know if anyone else has done this or not but I was looking at the active boards today and jumped on to October, November and December 'starting chemo' groups....ugh! To read about the wonderful ladies who are behind us in this journey made me want to cry! I know we have or are in the process of paying it forward with our knowledge but what an amazing feeling to know that most of us are done or almost done with our chemo, only to begin the next part of the journey.
Wishing everyone a safe, SE free journey!
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Hello Ladies , met with My MO today said blood work was great , I still have one more chemo to go but I don't have to take the neulesta shot thank god .
I have a question for all . Do any of you feel extremely tired all the time like you can sleep all day? I feel so exhausted all the time -
Cherioo... I feel exhausted all the time... And even when I do suddenly feel like I have a burst of energy it is very short lived !
Def doesnt take much to wear me out. Crazy thing is though even with me being tired I cant sleep worth a crap... Very frusterating.... -
Hi Cherioo - Not only have I felt like I could sleep all day and night after chemo, I have a done it a couple of times. The exhaustion is unreal.
My blood work was good for chemo #7, just got back. Need Neulasta shot tomorrow and have chemo #8, the last chemo scheduled for Dec 31!!! yay, what a great new years present to myself.
Starting to get stubble on my head, cannot wait for hair to grow back. Someone on the board previously mentioned taking biotin supplements. I spoke to someone that had breast cancer 10 years ago during chemo today (she was there for her husband) and she said the biotin worked to help speed up hair growth. I asked my MO and he had no issues with me trying it.
JoJo - I asked about monitoring, PET scans, CT scans, blood work. My MO said that he does no scans unless I have some type of symptom or, he finds something suspicious. He said he would start out monitoring me every three months, and doing blood work each visit. It makes me a little nervous about recurrence, but I do not want to dwell on it.
So far only SE is fatigue, I hope everyone in BGC this week had no SE's.
Have a great day!!
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Went in for my neulasta shot today and some extra fluids. Had chemo #5 on Friday, definitely the SEs are hitting me a little harder and sooner this time...just need to remember this will pass and then only one more! Yes, very tired, but also having trouble sleeping at night...hot flashes, sweats, insomnia...ugh. agree very frusterating. I hope to be feeling better in the next few days, fingers crossed.
Hope everyone else is hanging in there, no SEs, and doing well.
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Hi everyone--just thought I'd check in and say hello. I've been feeling really anxious today. Not sure why, but just analysing every ache and pain and wondering what it might be. Probably all post chemo residue stuff, or my mind running wild. I've been thinking alot about how to manage worry after treatment is all done. How do all of you think you will approach this? I've just taken a Diazepam which should sort the problem out for this evening (!) but I'm sure that there must be better strategies than constantly raiding the medicine cabinet!
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Rose, I've been feeling similarly. I guess the end of chemo is a trigger, but I've been very nervous about recurrence the last few days/week. When I went in for herceptin this past Friday I met a woman who had a recurrence and was in for her first chemo this time around. We chatted and she was very nice, but it was sobering.
Last time I was at acupuncture, the nurse did some guided imagery with me. It was very nice. I feel like a need some more practice to be able to snap into my "happy place" but it feels like it might be a good way to deal with anxiety. I also like Rescue Remedy...it works for acute anxiety. -
Interesting article on potential cancer fighting effects of marijuana: http://www.salon.com/2012/09/23/study_marijuana_prevents_spread_of_cancer/
We just got medical marijuana in NJ, but it's regulated to a ridiculous degree. Something like 100 people in the state are taking part in the program. -
EnglishRose- I am now 4 months PFC and recovering pretty well from the last 10 months of surgery/ chemo/etc. I know how you feel about wondering what is next after all of the treatments are done. Know this..... your life awaits you and you can choose how to live it with all of the gusto and passion and joy that comes from being alive and finished with treatment. One gets into a routine during the treatments (chemo/rads) and now that those are done, it is pretty normal to feel have those "let down" feelings and not know what to do next. It's that feeling one may have after completing a very long complicated and tedious project and focusing for such a long time solely on that one project. Once the project is completed, it is sometimes hard to figure out what to do next. As you continue to physically heal and recover from your treatments, your emotions may now catch up with the rest of you. I often ask myself did I really do all of that--- have a UMX, have chemo, have many many scans/ tests..... did that really happen to me? The answer of course is "Yes" and I am here today because I did. You will find your center and inner peace and calm will follow. As always, be easy on yourself. It just takes time.... HUGS, my sister across the pond!!!
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Thanks for the post melrose... It hit home!
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Melrose..boy, I needed to hear that today. Thank you!
I'm really having a rough time too with the afterwards....last chemo is next week.
I'm so scared of reoccurence. It is all i think about. I just feel I'm not going to be around in 5 years. I've got to figure out a way not to be so negative. Maybe it's because I hurt all over from Taxol. According to my journal, I should be feeling better by Thursday.
I'm just so sad that this has happened. And pissed off! -
Off to chemo number 12 today... Only 4 more weeks to go!
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Good luck to all you girls ending or getting close to ending chemo, may you have minimal SE!
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I'm just joining this now and wish I had found this group earlier. This has been so scary to face. Now it's nearing the end and I'm scared to finish, what's wrong with me? I had my 3rd taxol Monday and maybe it's the decadron crash making me feel low. I'm scared that without chemo the cancer is going to rear its ugly head again.
Does anyone else feel strangely scared to end chemo? -
Chemo #10 tomorrow-ONLY six to go!!!! WOOHOOOOOOO! I cannot wait to get this poison behind me! I hope it is kicking this cancer's butt so far NEVER to return! For every one of us! I wish I knew how many radiation treatments I will need. Most likely 33? Is that the maximum number? I don't even want to think about this dragging out a minute after that. Somehow in my mind I think I am going to go right back into my old routine (whatever that was) when this is all over. I do not even want to think about cancer again-yes I know this is unrealistic. Somehow I hope that I can get wrapped up in my kids' lives and activities again and cancer will not dominate my thoughts. I am hoping if I feel well then I will not think about it as much........that's the goal, right!? It is a process and will not happen overnight but we will get our lives back. They may look a littel bit different in some ways but we will still get them back. I refuse to let this cancer get the best of me. If we can physically get through this, then mentally, we have to think of ourselves as survivors and nothing short! Through this, we have earned the right to live our lives to the fullest and that is exactly what I plan to do! (as soon as I have a good immune system again
Today I took a gift to my hairstylist for Christmas and showed her my head! I miss her very much and going in for my cut and color every 6 weeks
It was wonderful to see her and I cannot wait to see her for a CUT. But, that will be a while! She was impressed that I still have my brows and upper lashes. Lower are pretty much gone. My nails are hanging tough too! Many blessings to all this next week. It has been a tough road-one that none of us deserves or wanted-but through it we will come out stronger and more empathetic to others. Merry Christmas to all!!!!!! May 2013 be our BEST YEAR EVER!!!!!!!
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Feeling a little down. On day 8 of my 2nd round of taxotere and doing so much better than round 1. Much less pain and swelling, side effects were manageable. Had my neupogen shots reduced from 7 to 5, because my wbc were 27 last time and are usually around 7. I was feeling great, like I can do this!! My last two sessions had been moved two days later because of the Christmas holiday, which bummed me out, but I was still feeling optimistic. Was counting down the days til being done!
I think because they reduced my neupogen shots, my MO asked me to get a blood test early. So I went and got one a week after my chemo. The MO office just called to tell me that my WBC is at 1.9 and that I will need to take 3 more neupogen shots and a weeks worth of antibiotics (precaution, I think??). And they told me not to take my dex (pre-meds the day before) next wednesday, but just to come into the MO's office on Thursday. I'm so sad. I was feeling great and now it seems like they aren't even sure if they will give me treatment on Dec 27. I don't want anymore delays. I was counting down the days til moving on to the next step - surgery. I am so ready to start feeling better. I am wondering if it takes longer for my body to react to the neupogen shots. I've never had to take a test one week in, maybe its always low at that point and fine by treatment day. Maybe the test was a mis-read? Why are they already acting like I can't have my treatment as scheduled??? Dec 27 is plenty far away for my counts to rebound! And due to my possible allergic reaction on treatment 1, I had two extra days of dex for treatment 2 (maybe thats whats affecting my counts). And now they don't even want me to pre-medicate??? So if they do decide to give me treatment, I'm not gonna have dex first except through IV? That sounds scary! Sigh, I wish they would wait til I do my usual blood test before treatment and then just tell me to pre-medicate as usual. Doesn't sound promising, and I am sad. Depressing when you feel great, but your blood test says differently. My mindset is more like Timbek2. I so want this to be behind me. I'm not feeling scared to end chemo, I am desperately anticipating it. Maybe there are two groups of us - the ones that are afraid to end it, and the other group that have a mind consuming desperation to end it. Maybe we can change camps, but right now, I'm firmly in the group that wants and NEEDS to be done. The two day delay was enough to depress me, this new news has me irrationally depressed.
Thanks for listening. Hopefully my mood somehow lifts today.
But on a more cheerful note, congrats to those of you who ARE finishing chemo or are getting really close. I can't wait to join you. I can't wait to join the HAIR HAIR HAIR forum!!
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That's true about the 2 camps, all along I've been desperate to finish chemo, feel better, have it behind me, etc. I think as crappy as it makes me feel I felt protected by getting it every two weeks. I'm now worrying about other things like recurrence.
Like I said, it may be the dex crash. But also may be that I'm having the b/l mast post chemo and am dreading surgery.
I hope my post wasn't callous sounding towards those of us desperate to finish. I just feel like no one else in my life understands how crazy this has made me, and wanted to know if I was normal (as can be considering!) -
NjeanRN--I don't think your post was callous sounding at all, and because we are all going through this at the same time, plus or minus a few weeks, it's a safe place to be able to share how you feel. I know exactly what you mean. For me, treatment provided a comfort blanket. My cancer couldn't possibly come back during chemo, right? Even though I still have radiation to go, I feel worried now like when I was first diagnosed about it coming back. I'm trying to be rational about it, but it's those moments at four in the morning when it becomes more difficult. I think that before this happened, I simply assumed that I would be around until I reached a ripe old age. I certainly never even considered not being around to see my kids in to adulthood. At the end of the day however, I suppose that no-one knows what is around the corner, and although I don't think I could ever say that I am glad that this has happened to me, I hope that in many years' time I will look back on this as one of those lightening rod moments which taught me to not take things for granted. I think I might actually find someone at some point who has proper training who can teach me how to listen to my rational, not my "Oh my God I'm doomed" voice!
Melrose, thank you for your sensible words. I'm glad you're still checking up on us regularly!
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Hey ladies just got home from chemo . ONE more to go thank god. My MO told me that if I don't want to take the neupron shot tomorrow I don't have too. Heck no am I taking that bone aching bed ridden shot.
NjeanRN welcome ! This group is awesome . I feel like I have a group of sisters here that I can get advice from, cry an laugh with . You say what ever you want .
Girls we are doing this.... We HAVE kicked cancers butt !!!!! Positive thinking gives positive results . -
Thanks English Rose! That's the exact feeling- that cancer can't come back if I'm getting chemo, crazy.
I feel almost an overwhelming rush of conflicting emotions knowing the end of treatment is here. I think I've been holding a lot in. It's helpful just to read the words of other women dealing with this. Thank you! -
Thank you for the warm welcome Cherioo! I hope you have an easy weekend free from SE's! I too have one more left, I can't believe this day is finally coming.
I'm usually positive, except on this dreaded decadron crash day, it's always when fear and negative thoughts creep up on me! All of you are inspiring to me. And reminders of how far we've come!
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