2012 sisters

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  • juneaubugg
    juneaubugg Member Posts: 951
    edited December 2012

    ramols: I'm a sucky friend.... and a day late... BUT FUCKNG HELL YES!!!!!!!! WOOT WOOT!!



    Ann: I have to correct you... I said I finally have MORE hair, not AS MUCH as, a 9 month old baby... this is an important distinction you know! :-o

  • stride
    stride Member Posts: 470
    edited December 2012

    Does anybody know how vballmom1 is doing? She started this thread, but posted only once.

  • stride
    stride Member Posts: 470
    edited December 2012

    Actually I see she has been posting on some other threads. So never mind. I' m going back and reading some of the old posts to see how far we have come!

  • Cindyl
    Cindyl Member Posts: 1,194
    edited December 2012

    No she hasn't. vballmom1 and vballmom are different people (at least so vballmom says) and vballmom1 was here only the once... just long enough to start this thread.

  • stride
    stride Member Posts: 470
    edited December 2012

    I hope she's OK. I'm glad she started this discussion thread.

  • Cindyl
    Cindyl Member Posts: 1,194
    edited December 2012

    I am too.



    OK silly question time. My coworker was recently DX with IDC. She is going with MX and immediate recon. She hasn't seen the PS yet, but is under the impression that she's going to have just the one surgery... Won't they put TEs in then swap them out after six months or so? I had an LX so I haven't paid much attention to the recon discussions. I asked her if she was sure about the one and done aspect but didn't want to argue on the off chance that I'm wrong.

  • Cindi74
    Cindi74 Member Posts: 363
    edited December 2012

    Scorchy. 

    God bless.  Hugs. 

  • iatigger
    iatigger Member Posts: 447
    edited December 2012

    Cindyl, I had a BMX with Recon and got the TE's that will be exchanged 3 months after the fills are completed. But reading other posts on other sites I am seeing where it appears some people do get immediate implants. Not sure what requirements would be needed to do this without the TE's. My PS said the skin needs time to relax before the swap.

  • RoulaG
    RoulaG Member Posts: 239
    edited December 2012

    Cindyl - I had a BMX with immediate reconstruction (straight to implants with a Lattisimus Dorsi flap). So far so good. Having some "tweaking" done and nipples this month.

  • juneaubugg
    juneaubugg Member Posts: 951
    edited December 2012

    Cindyl; as everything with this disease, different drs have different methods. I too have seen women go straight to implant, although that want my story.

  • Cindyl
    Cindyl Member Posts: 1,194
    edited December 2012

    OK. Wow.  Thanks. Learn something new everyday.  My friend is not one to ask lots of questions or do much research so it's hard to reassure her she's making the right decisions.  As I told her, I didn't  do what she is doing.  Doesn't mean either one of us is wrong or will regret our choices.  My surgeon spent quite a bit of time going over my options, then I dithered for a full week lx/mx/lx/mx and visited with the ro before deciding that an LX would be the right choice for me.  She apparently went to her appt. with the surgeon, told him she wanted an MX, no ifs, ands or buts about it.  So she didn't really get much information from him, so when she came back with "immediate reconstruction", just the one surgery, it seemed odd, certainly not what my doctor said to me, but it was a different surgeon...

  • StacyeD
    StacyeD Member Posts: 7
    edited December 2012

    CindyL - I also had one stop shopping!! At first, I was preparing for two or three surgeries, with a lumpectomy to start, but once inside...surgeon said it all had to go. Two tumors in left breast..and then two more in lymph nodes (sentinel as well). Got implant. Chemo & 36 rads and so far so good. No fibrosis! Am finally starting to feel like me again...most days.



    @Scorch...i sometimes log on just to see your cool emoticons. They are always uplifting! THANKS for sharing.



    Christmas is coming !! And that means a New Year. Oh...am so ready for a brand new year. 2012 was just not what I expected.

  • allurbaddayswillend
    allurbaddayswillend Member Posts: 355
    edited December 2012

    Congratulations ramols, websister, and everyone else crossing thresholds and getting good news!

    mcook, just if it helps info-wise, I started my tamo a week and a day after final chemo and so far, I certainly don't feel any worse - after chemo how could I? SUXS! that you got pneumonia! I hope you're doing better.

    I took an easy yoga class last week and my instructor was a 70-something year old lady who was treated for breast cancer some years ago! Inspirational.

    3 of 30 rads done and I am still so effin glad to be done with chemo that most days feel like awesome days and the black clouds of doubt don't show up as much.

  • Outdamnedspot
    Outdamnedspot Member Posts: 297
    edited December 2012

    Websister, Ramois and everyone else, Good Morning!

    Allurbaddays...Good to hear you are doing well.  I'm at 3/16 too, a little pink, but other than that, doing well.

    Did I ever have a black day yesterday...not sure what it was, but I was so miserable.  Had a great sleep last night and feel back to human this morning.

    Now if I could just get a little bit of Christmas spirit going, I'd be in fine shape!

  • lostinmo
    lostinmo Member Posts: 922
    edited December 2012

    Good morning all!  I know I haven't posted much lately but that's because I am moving on with life.  Since I am out of treatment and traveling again I don't get as much time. But I do read eveyones posts and keep up with you. So happy to see that so many are ending the active treatment phase and getting their new "girls".  

    Thoughts and hugs to any who are stuggling with anything!

    I thought I would share one of my adventures with you. Leave a comment so I know you visited. 

    http://ftrving.com/activities-on-the-road/what-a-view/

  • mcook301
    mcook301 Member Posts: 509
    edited December 2012

    Hi Lostinmo! Good to hear from you! Glad to hear you are doing well:)

  • cthynsh
    cthynsh Member Posts: 41
    edited December 2012

    Hi Everyone - having a hard time these days. While I know in my heart that the chemo is kicking cancer ass, it's hard to stay positive all the time when you feel like crap. A week after my first treatment I got pneumonia and the cough has been awful. I was feeling better before round 2 but of course that was short lived. It takes me a full week to feel even a little better which only leaves me a few days before the next round. This pneumonia is kicking my butt. I have mentally broken up the treatments into 2 sections of 4 treatments. That puts me half way thru the first section. My MO tells me that the last 4 of taxol is nowhere near as taxing on the body. I'm hoping that is true. So, after the next 2 treatments I will have another PET scan to see if the "innumerable nodules in both lungs" have gone away. No one is sure what they are at this time so that adds some mystery to this adventure. As Christmas approaches and I realize that I can't do my normal Christmas routine I can't help but think of mortality and is it possible this could be my last Christmas. I know, not very positive but I just needed to "say it out loud". Thanks for being out there as a sounding board.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    cthynsh - sending you some big hugs. Assuming you are on AC right now. If so - for me, that was way tougher than the Taxol. Taxol felt like a breeze for me compared to AC. I remember being in the thick of the AC and feeling like I couldn't do this. But looking back on it now - it already seems so distant. You are smart to break it up into 2 sections of 4. I did the same thing mentally and it helped a bit. And AC and Taxol are such different beasts - that you have to think of them separately. I'll be keeping my fingers crossed that your PET scan gives you good results. As for morbid thoughts about mortality during the holidays... It's hard to banish those thoughts, but maybe try to turn it around and push yourself to just enjoy a holiday season with your family. One day at a time. Big hugs!

  • cthynsh
    cthynsh Member Posts: 41
    edited December 2012

    Ramols - thank you so much for that. It's good to hear from one of us about the drugs. I am in the thick of AC and each time those syringes of red poison are injected I cringe. I am trying to stay in the moment for the holidays and you are right about enjoying family. I am usually positive just have moments of just plain crap. Thursday is treatment 3 of 4 AC and I'm sure you can remember the dread. It's hard to imagine this as history but damn it will feel good December 27th ! Thank you again for the support

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    oh cthynsh, how i know what you mean. I used to see those red vials coming my way and want to cry. I think I even had to take a 1/2 xanax one time b/c I started getting so anxious just knowing they were coming again. But keep the small goal lines in sight. You are halfway done with the red devil. If you got this far - you can get the rest of the way. And hopefully taxol will be a breeze for you too. Enjoy the few good days you have left before round 3 comes your way!

  • cowpower
    cowpower Member Posts: 293
    edited December 2012

    Cthynsh, I remember how much I hated ac also. I suppose if the adriamycin wasnt bright red, we wouldnt fixate so much on it, but I remember wanting to move away from the "push" too. I also used to suck cherry popsicles to avoid mouth sores while they were doing it. I will never eat another one! Anyway, I just wanted to tell you that for some reason, being 3/4 of the way through made a big differene to me mentally. I didnt have nearly as hard a time gearing up for that last one.I hope you feel that way after this Thurs. Please let us know how you are doing.



    Mcook, pneumonia? Really? Now that is just plain not fair! Hope you feel better fast.....

  • Cindi74
    Cindi74 Member Posts: 363
    edited December 2012

    cthynsh We have much in common,  stage 2, e+, PR-, Her2-. I was 2/7 lympth nodes--through one.  I thoroughly expect at least 10 more Christmas holidays, and I'm 75.  We can do this.  It is hard.  So hard.  But, with support, we will make it.  Hang in there.  Hugs.

  • mcook301
    mcook301 Member Posts: 509
    edited December 2012

    Hi Ladies- quick post bf I head off to work in the winter tundra ...Burrs it is cold this am! I feel much better except for dang frozen shoulder still no movement on that one. Boo!



    Yep AC sucks! But that drug can kick cancers ass! I promise you will get through these bad Chemo days! Just try really hard to find a little positive each day as hard as it is:) Every time I am in the BGC for my herception treatment It seems I am always sitting next to someone on their first day of AC I think the Chemo nurses plan that. It did for me on my first day. So hang in there AC and Taxol ladies almost done!



    Ugh and hear ya on Xmas spirit I have officially bought one present. I cookie sheet for my mom. HA! I do not have it in me this year ...just want to fly to an island and relax far far away from all the hustle and bustle.

  • jenjenl
    jenjenl Member Posts: 948
    edited December 2012

    I need you ladies so bad right now.  I had been waiting the last 2 weeks for the results of the Oncotype test or whatever it was.  The results came back mixed.  My original dx was ER + PR - HER2 -.  The results from this test indicate that the tumor is ER -, PR - , HER2 -.  I just don't understand how it can just change nor do I understand WTF it means?  Also, in the original path report I had a + intrammary node but the final didn't locate it.  So now radiation might be back on the table.  I just feel like things keep changing and when I get comfortable, something changes and I lose it.  He is going to have the tumor's ER/PR tested again. 

    Start chemo next tuesday (merry xmas, right)  - 6 cycles of Adriamycin, Cytoxan and Taxotere.

    I wish I could stop crying and this xnax isn't doing shit.

  • Marcie47
    Marcie47 Member Posts: 248
    edited December 2012

    Jenjenl-boy life certainly is unpredictable! You need to get that sadness and anger out, it is not only ok but this is the safest place to do it. You are surrounded by women who not only understand but will help carry you during these times. Cry, cry, cry, sleep and cry some more. Try not to let the negative creep into your thoughts, positive thoughts are the best medicine....if the weather is nice, go out and see the beauty that surrounds you, life is good, continue to believe in the beauty of it! I will keep you in my thoughts.

  • Cindyl
    Cindyl Member Posts: 1,194
    edited December 2012

    jenjenl - my understanding is that different parts of the same mass can show a different pathology.   So the part that was looked at first might have been ER+, but the part the was looked at later wasn't.  Not the most reassuring thought, but they'll look at again and figure out what you are dealing with.  They'll have an answer soon and things will get easier.

  • cowpower
    cowpower Member Posts: 293
    edited December 2012

    Jenjenl You can always vent here,, we've all been there, and someone listened to us and supported us. We will do the same for you. If you need to cry, cry! As horrid as being so unsettled is right now, there is an end to it. You will feel better when you get going on your treatment. Really! (((HUGS))))

  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited December 2012

    It is the gift that keeps on giving! Going to ER 102.4 fever and radiating cording pain

  • halfcan
    halfcan Member Posts: 253
    edited December 2012

    Good luck Karen....my thoughts are with you. Hugs.

  • Sue2690
    Sue2690 Member Posts: 43
    edited December 2012

    Wow it’s been a tough day here…

    Karen – good luck at ER. Let us know how you are, when you can.

    cthynsh – chemo sucks. No way around it – but you will get through it.  There’s no rule that says you have to stay positive all the time, sometimes we just have to let it go.  The first cycle of AC was the worst for me, it got better each round.  If you’re having trouble with side effects tell your MO – maybe you need different/more drugs?

    jenjenl – grrrr!  How frustrating!  Things are supposed to get easier once you start treatment, they’re not supposed to change things on you!  I hope you get to the bottom of all this confusion soon.

    I’m halfway through rads without significant side effects.  No fatigue to speak of yet, just some “suntan.”

    Sue

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