What could nurses do to better help you during treatment?
Hello
I am a nurse and am wondering if there is anything you think that nurses could do to better help you during your treatment...?
Comments
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I have to admit that my oncology/chemo suite nurses were fabulous. They had all the nitty-gritty on the day-to-day issues I was facing, that I didn't think to ask my MO. Like how to pamper your feet when neuropathy sets in, the best places in town for wigs, where the really good (and oncology-experienced) massage therapists were, and why it hurt some much to eat tomatoes, but not carrots. It was these practicalities that made my days a bit easier.
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well, not being actively rude would help. My husband was treated last year at a major cancer center, and when the nurse addressing him by his legal first name, I said, you know everyone calls him by this nickname - it might make it more comfortable for him if you used that name.
Her answer - if you want us to call him that, why don't you change his name legally! Very bitchy tone.However, when the doctors' nurse totally fouled up the scheduling for his first day of chemo, the head chemo nurse was my total support, made a real effort to get what he needed. And apologizing for the messed-up actions of others.
So, maybe, being your patient's advocate, being gentle and kind, is what we want the most. -
My nurses were rockstars, wouldn't change a thing. Now the docs and the PAs, that's a different story.
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Check out what these woman are saying on a no-reconstruction thread. http://community.breastcancer.org/topic_post?forum_id=82&id=789067&page=56 My hospital experience was pretty good. I didn't have chemo. My RADs nurses were GREAT! My oncologist & his office are a different story(but I don't deal with nurses there). BTW I'm a nurse.
Particularily disturbing to me is the employee health dept decision on flu vaccine. A nurse was involved. Here's that story....
I had bilateral cancer with bilat nodes removed. That leaves me a "lymphedema risk"in both arms. At the hospital where I work, if you don't recieve the flu vaccine, you are required to wear a mask for all patient care. I asked if I could get the vaccine in my leg, not wanting to risk a localized reaction that could trigger lymphedema in my arms. The CDC guidlines state that the thigh can be use as an alternate site. The emp health RN took my concern to the medical director. I was told "no" because the vaccine was only tested with the deltoid site. The empl health RN also told me she spoke the nurse manager on the cancer unit of the hospital I work. She was told that if I was a patient on her unit, the doctor would be involved & it would be decided which arm they could use for needle sticks & BPs. But that Patients in my situation "indeed" get needle sticks & BPs taken in at risk extremities. I'm furious because in the rest of the hospital, BPs can be taken in the leg & IVs can be done in the feet or neck, blood draws in the feet. The doctor just has to order it!
So for the rant..........but what you can do if you ever run into a patient in my situation, is advocate for her. I have outpatient surgery in 1 1/2 weeks, hopefully they will accomodate me. I'm more afraid of the needles & sequencial BPs than I am of possible having another cancer(uterine CA is being ruled out this time)
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NurseJ, If any of your patients are using cold caps to keep their hair, please be very encouraging. My chemo nurse was nice enough, but I never felt like she cared that I had found a way to keep my hair. She basicly told me that losing ones hair was no big deal. I felt as though she was aggravated that the caps worked!
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My nurses and techs were great. The only complaints I have about any of them is that sometimes it was hard to get hold of someone when I had a concern so "return those phone calls promptly!" would be number one on my hit parade. And watch the phone numbers. I'd call, leave a message with my cell phone number for a call back and they'd call my home number and leave a message, that I'm not going to get until after the pharmacy closes...
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That's very thoughtful of you to ask.
I don't have an answer, because I'm not high maintenance that way, so I didn't need or want anything from the nurses during my treatments - just wanted to get in, do the treatment, and get on with my life, you know? So, for me, I'm good, but thank you so much for asking.
The only time I even got annoyed with my treatment center was after a holiday and there was a horrendous wait - I would have appreciated being called and told not to show up for a few hours, instead of being forced to waste my time sitting (OK, pacing) in some stupid waiting room for so long. So, I guess, just please respect that my time is as valuable as anyone else's.
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