Don't Know How To Have Cancer

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I was diagnosed with stage 1, grade 2/3 invasive ductal carcinoma with no lymph node involvement.  I had a lumpectomy two weeks ago that came back with large, clean margins.  The incisions are healing nicely and the breast isn't going to look particularly deformed.  I don't need chemotherapy.  I will start radiation in two weeks and when that's done I'll have at least five years of tamoxifen.  It's a very good version of a lousy disease.  Intellectually I'm confident this is nothing more than a bump in the road.  Emotionally I'm terrified.   I'd give anything if I could just have a good cry but the instant I start to tear up I ask myself, "What good will crying do?"  My husband tells people I used to have cancer but I don't have it any more.  My friends hug me and say, "Boy, you really missed that bullet!"  "God was looking out for you!"  "You've got the luck of the Irish for sure!"  Of course they're right.  But I'd like to kick them and scream that they're asses and I hate them.  I don't hate them, of course, and I don't know why I'm so scared and angry.  I don't feel like I'm "over" cancer but I feel as if everybody around me is "over" it.

Comments

  • coraleliz
    coraleliz Member Posts: 1,523
    edited December 2012

    Time will certainly help your mind heal. I was diagnosed 1 1/2 years ago & time has help. I'm trying to return to normalcy. I had a bilateral mastectomy because of cancer on both sides & location of tumors would leave unacceptable results in my mind. Did not consider recontruction. Honestly, my scars don't bother me. I dodged the chemo bullet also. Doing 5 years of Tamox. People can say all the stupid things they want to me, no longer bothers me. One thing that helped me was taking a 2 month break from these BCO boards. It got to where I was checking in 3 times a day. I'm back at work fulltime & have returmed to my pre-BC level of fitness. I'm looking into volunteering for the local "wildlife rescue". It's something I've always wanted to do. I hope this further diverts my mind from BC.

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2012

    Carolyn, we're glad you found this wonderful community. You'll find support here, and other members' personal experiences to help give you some perspective.

    The Talking to Your Family and Friends About Breast Cancer section of the main Breastcancer.org site may help you find ways for those around you to understand your reality.

  • wenweb
    wenweb Member Posts: 1,107
    edited December 2012

    Hi CarolynVM.  It's a slippery slope.  When you hear your name in the same sentence as cancer, it's tramatic.  Technically if we have a lumpectomy with clear margins and no node involvement, it's gone, but we are still considered survivors because from now on, we live on watch.  It does not have to consume you, it's just a fact.

    Not to discourage you in any way, (hopefully just the opposite), as life WILL eventually return to a new normal.  A time will come when you are ready process what has happened to you, and you will be ready to go through the thought process of realizing you were diagnosed with cancer, went through the treatment(s), and are ready to move on.  I don't think it's possible to move forward without processing all of that first.

     It's unfortunate if our friends and family members have a different view.  Not only are you not over cancer, you are not done with your treatments yet.  Be kind to yourself.  Crying won't change anything, but it is a release.  I say go with it.  Your husband is doing what he needs to do to deal with your cancer, and you must do the same.

    Best Wishes

    xxxooo

  • CarolynVM
    CarolynVM Member Posts: 137
    edited December 2012

    So now, at this moment, I really don't have cancer.  On November 12 I got a phone call confirming the biopsy results,  I had cancer then.  On November 21 I had my lumpectomy.  They got everything and it went wonderfully.  So then I didn't have cancer.  I only had it for 9 days (not counting the time before I knew it.)  I thought it was wonderful that we were taking care of everything so quickly but now I feel mystified and overwhelmed -- sort of like Alice down the rabbit hole.  What just HAPPENED?  I definitely don't need to talk to any medical people any more!!!!!  They each add their own tweak that makes it more confusing, not less.  After the lumpectomy I spent four hours meeting with specialists to give me a medical overview.  Not one single person told me the cancer is gone.  A medical oncologist assured me that taking tamoxifen would increase my survival rate from 90% to 93%.  All I could hear was 10% to 7% chance of dying of breast cancer.  A geneticist warned me my daughter might be prone to breast and ovarian cancer.  A social worker told me "It's okay to cry" as if she only learned the chapter headings from her college text books.  A radiation oncologist described three different ways of radiating my breast, always emphasizing he wanted to get rid of the stray cancer cells.  Never did anyone suggest that I might be cancer free.  I understand I want to prevent a recurrence and I will take the radiation and tamoxifen but why was everyone so negative?  Did they even KNOW they were being negative?  Or am I overreacting so much that I hear good and translate it to bad?

  • pupmom
    pupmom Member Posts: 5,068
    edited December 2012

    Carolyn, you are probably stilli shock, and as has been mentioned, you need time to process all this. 10 days is not enough!

    Docs have to be cautious and vigilant. Personally, I dislike those who sugar coat the diagnosis more than those who present a more negative position. Cancer is sneaky and can get out of the breast even with no positive nodes. Those of us who follow the prescribed treatments have a better chance of survivial, IMHO. I went into surgery with no clue that I had micromets in 2 nodes. The surgeon and radiologist said repeatedly there was absolutely NO indication that nodes were involved. I didn't want the sentinal node dye put in my breast (ouch!) and even tried to talk the doctors in the hospital, on the day of my surgery, out of giving it to me to check the nodes! Thank goodness nobody listened to my somewhat loopy and tearful request (had already gotten anesthesia to insert a clip). My point is that even with every reassurrance that cancer was not in my nodes, it was. Do everything you can to beat this beast! Best wishes!

  • auntienance
    auntienance Member Posts: 4,216
    edited December 2012

    Carolyn, doctors don't use the "c" word (cured) much. What you are more likely to hear is No Evidence of Disease (NED) or talk of risk. I know it feels negative, I had much the same reaction when I was diagnosed, but that's just the business they're in.



    I wish I could tell you that at some point someone will hand you a diploma and tell you "congratulations!", but what actually happens is that you go from treatment to some kind of limboland. Your emotions may be all over the place. I know that family and friends may act like it's "over" even though you may not feel that way. It doesn't help that you look the same on the outside. That's why these boards are such a refuge for so many of us. We really do get it.



    I'm not saying these things to sound negative just to let you know that we've all been there.

  • SheChirple
    SheChirple Member Posts: 954
    edited December 2012

    Carolyn:  I'm with you.  I am also cancer free at this point.  However, I am still having complications and undergoing reconstruction from bilateral mastectomy over a year after being 'cancer free'.  I was spared chemo and radiation, but am in my first year of Tamoxifen. I am still getting treatment.  I am still feeling mutilated by my surgeries.  This is definitely NOT over.

    I just want to say, about the 7-10% risk.  PLEASE understand this is a risk of recurrence NOT a risk of death.  That was hard for me to put into the right pocket of my brain.  It is a risk that you will have  a recurrence.  Consider the initial risk of getting BC in the first place and try to imagine you are at the same risk of all other women.  That is how I categorize my risk.  It's the best I can do.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2012

    Carolyn - the unfortunate truth is that once you have been diagnosed with breast cancer there is never a 100% guarantee for any of us that we don't have cancer anymore.  It is a difficult thing to wrap your head around, but you will come to an acceptance of it as you go through treatment, and do all you can to minimize the risk for the future.  You are caught between what doctors are saying, who need to present the facts without emotion, and what your friends and family are saying, who are speaking only with emotion, because cancer is scary!  It takes some time to learn to live your life with this new outlook, but you will!  Best to you!

  • CarolynVM
    CarolynVM Member Posts: 137
    edited December 2012

    I'm still overwhelmed but I feel better.  Thank you for helping me.  I guess those potential stray cells could be real and I best be assuming they're hiding, waiting for a chance, like a flea on a dog.  Is that "remission"?  I sure appreciate knowing the 10% to 7% is chance of recurrence rather than death!!!!!!  I had that mixed up.  Ten percent odds of dying didn't sound all that great to me.  I've always wanted to know everything because it helps me understand what's happening.  With this, I actually told one of the doctors, "That's it.  I can't take in any more.  Now talk to my husband."  So the two men discussed something.  My husband took notes but I haven't asked him what the notes are about.  That's really not like me.  I guess my biggest battle now is in my head and my soul.  I never did have a guarantee of living to be a doddering old woman and this was my wake-up call I guess.

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