Have stage 2B....what will be next?

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  • libraylil
    libraylil Member Posts: 528
    edited May 2011

    Calamtykel. They must teach that phrase in medical school. My bs always says"the cat was out of the bag". Urge to punch him in the throat! Libraylil lil

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  • lago
    lago Member Posts: 17,186
    edited May 2011

    libralylil mine BS said something about the barn door opening. Another common phrase I hear that I'm not too fond of. Maybe because it's the Midwest (farm country) we use the barn door reference. Tongue out

    Sherry many women deal with depression. Hair is the ususally the biggest issue for most women. My neighbor became very depressed. She finally went to see someone. She was like a new woman after seeing someone. I think they might have given her meds too. I highly recommend you tell your onc so s/he can send you to someone. You don't have to suffer (nor should you) with depression.

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  • cheyenna
    cheyenna Member Posts: 379
    edited May 2011

    sherry56, get on an anti depressant if you need to, dont put your self through that, remember, it is situational depression! i went on Lexapro while on chemo, what a difference, pm me if you would like to talk,day or nightSmile ive been there, not good

    love Chey

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  • sds3252
    sds3252 Member Posts: 6
    edited June 2011

    Do not count on the test because mine came back inconclusive, twice.  So I did the chemo.  Horrible experience.  Loosing the hair and general bad health and weakness was really depressing.

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  • berrybear
    berrybear Member Posts: 2
    edited July 2011

    Hi,

     I was recently diagnosed for breast cancer last month (1.5cm IDC, lumpectomy, micromets to SN).  Rad onc plans to radiate entire breast 4 1/2 weeks, then concentrate over area where tumor was for 1 1/2 weeks - also will get rads to area where sentinel nodes were removed).  Has anyone with micromets gotten rads near the sentinel nodes? 

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  • pjreeder
    pjreeder Member Posts: 4
    edited August 2011

    Dear Kimberchick

    I had 2.5 cm and was stage IIB as well in 2009.  Had mastectomy and refused radiation because of autoimmue problem.  Had 8 rounds of chemo and an Oncotype score of 50.  Tried arimidex--awful stuff--then Femara--not a lot better--then tamoxifen.  That made everything inside get inflammed.  Doctor said the after chemo treatment was as much or more important than the chemo---but I can't take it.  My brother died from rectal cancer, my sister had bladder removed for cancer, and now this.  I am doing well-----don't know what is to come---I do get tired and know that intuitively it could come back especially not taking the tamoxifen---but I live one day at a time and enjoy what that day brings.  I feel blessed.  I am two year clean as far as I know.  Starting an energey trial with other survivors to work back into exercise and better eating.  Keep your chin up darling-----God has a plan for each of us.  I am sixty years old and plan to live another 25 years at least--that's my plan.  Hugs and blessings!  PJ 

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  • DianeR55
    DianeR55 Member Posts: 1
    edited August 2011

    It will be nine years this month since being diagnosed with Stage 2B BC. Tumor 2 cm.  2 nodes P.  After bi-lateral mastectomies (radiation not necessary as tumor was not close to the chest wall) did 6 rounds chemo and 4 years AIs.  Could not tolerate bone pain, fatigue, or balance issues caused by the AIs so went off early.  Most of this resolved after going off the AIs but still have fatigue issues.  I didn't find chemo difficult at all.  I really cleaned up my diet (lots of organic greens and absolutely no white sugar, white flour etc.  Only organic meats, didn't want the hormones, and I have continued to eat this way since).  I only gained 3 lbs during chemo.  I would say that the most important thing is to work with your OC to find an anti nausa drug that works best for you.  Ask for samples to try before filling a script as you may not end up using them if they don't work.  I just used samples the whole time and only used them for a couple days after infusion.  The most upsetting part of treatment after losing my boobs was losing my hair.  I decided to imbrace it and had a shaving my head party with the GFs, the wig fitting and we all went to lunch.  BC was a wake up call for me to clean up my diet and start to exercise again (my youngest was 4 when I was diagnosed at 47).  After treatment I began pilates classes and I started running at age 50.   The following year ran the 5k BC race with my daughter.   At 56 I am the healthest I have ever been.   It definately is a journey but you will come out the other side,  it's all in how you choose to see the road ahead.  Good luck with your treatment.

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  • Soccermom4force
    Soccermom4force Member Posts: 631
    edited August 2011

    Ditto what was said above for me (mostly :))

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  • drgnfly64
    drgnfly64 Member Posts: 1
    edited December 2012

    Hi,

    I am new to this site and very scared of what is to come.  I found a lump during my self-exam and had my mammogram.  The radiologist asked me to stay for an ultrasound which revealed "2 suspicious sites", they were biopsied and I was sent home.  2 days later, the radiologist called and said both sites were positive for cancer.  Had partial mastectomy (more like a lumpectomy it seems to me) and talked to doctor today who assigned me an oncologist.  The path report read that the tumors were "lobular in origin but had tested positive for E-cadherin".  Doc says that they began in the lobules and invaded the ducts.  5 nodes tested negative for cancer cells.  He says radiation for sure but not sure on chemotherapy.  I have not gotten the results back on if I am HER2/ER negative or positive yet.  I was diagnosed Stage II, Grade 3.  Do you think this means yes or no on chemo?  Very scared!

    Thank you and God Bless you all!

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  • Rdrunner
    Rdrunner Member Posts: 309
    edited December 2012

    Im in a similar spot, left masectomy, nodes were negative. They found two other small tumors one being a different type (IDC, 1cm). My main tumor is 6cm ILC. Will be having rads as very cloes to chest wall only could get 1mm margin. My surgeon said she thinks because of tumor size onc doc will want to do chemo but she is not 100% sure. Dont see onc until beginning of jan. I looked up the chemo guidelines, and I found that node positive definitely will get you chemo but they look at size of tumor, and hormone status and age also (ie pre menopause vs post). ONCo typing is relevant in our case, but I think Im a bit weary of going with that.

    .. 

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  • besa
    besa Member Posts: 1,088
    edited December 2012

    http://www.oncotypedx.com/en-US/Breast/PatientsCaregiversInvasive/TestRightForMe/Eligible

    My understanding is that the oncotype dx test can be used node positive women (1 to 3 positive nodes) if other criteria are met.

    http://www.oncotypedx.com/en-US/Breast/ManagedCare/NodePositive/ExecutiveSummary

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  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013

    >I was diagnosed with stage 2 on oct 8. Around that time, I had a needle biopsy of a lymph node and that too tested positive. It didnt show up on pet and it wasnt enlarged, radiologist just want to be sure because it looked a little suspicious on us. anyway, I am also doing neoadjuvant chemo and am onto weekly taxol now that I finished AC. When I feel my lump I do not notice a difference. However, my oncologist felt it and said that it has shrunk.. I still don't feel a difference. My thing is, she has not mentioned any sort of other test to check on size besides feeling it. Is that weird? Should I ask her for an ultrasound or MRI, or should I just trust her. I am 31 and want to be the most proactive and aggressive with my treatment as can be, to ensure the less chances of recurrence. My parents say I should just trust her and its her job, but I am scared and want to know chemo is working. If it isn't working to the best, I can change chemo regimen. Am I being silly? Should I just trust her? Is it normal to have tests during chemo to see if tumor is really shrinking? Can someone here offer me any advice?

    Also they tested my positive lymph node for her2 status because when I got tumor biopsy they never tested her2 status...... Was told I am her2- .. Does anyone know if this would be accurate being that it was from lymph node not tumor?. I know my bs is very reputable, and i should trust her methods, I guess I am just scared and want most effective treatment..so if by chance I was her2 + I would not be getting herceptin since I was told I am her2 negative ... Somebody please help me

    Definitely a 2b'er here..... Going to get double mastectomy after chemo, and want radiation also..want to do everything in my power to kill this beast

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