2012 sisters

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Again - talk about perspective... just finished talking to a former colleauge around my age (under 40 for sure) who is basically sitting at home waiting for her luekemia to start attacking her major organs. Making the most of her time travelling and taking in NYC culture, but wow... She had chemo to prep her for a transplant, had a transplant, and then her cancer came back and mskcc has basically told her they have run out of treatment options. She sounds so mentally balanced right now - I was amazed...

  • 0000
    0000 Member Posts: 30
    edited December 2012

    My MO office just called with my oncotype score......19. My MO said that was good..he will explain everything to me tomorrow. So what do you think ladies? I kinda thought it was borderline, but I will ask questions tomorrow. So I am putting the #19 under my purple Christmads tree!

    Jenifer

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited December 2012

    Jennifer....mine was 19 and My MO also said it was good.....really the top end of low risk and for me he said chemo would not add any benefit....I'm 65 yrs.....you can see my pathology below......congrats, I say under that purple tree is the place for it....❤

  • 0000
    0000 Member Posts: 30
    edited December 2012

    Oh thank you Scottiee I am currently sobbing, because a big weight has been lifted. I feel more reassurance knowing your success. Boy, this has truly been a wake up call. I plan to continue to lose weight and keep all the processed junk food far away from me. Now, for the "tanning bed"...LOL  Yippee!!!

  • Cindyl
    Cindyl Member Posts: 1,194
    edited December 2012

    Congrats on a good score doxielover!  I know what you are feeling. My MO was recommending chemo, based on my age and the size of my tumor until I rolled a 7. 

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited December 2012

    websister, congrats!  From what I've heard the Herceptin only part is much easier.  And I can tell you one thing, your hair will probably start growing back.  When I was getting my chemo last week, there was another lady a few chairs down and I heard the nurse say the name of her drug, Herceptin, and her hair was nice and thick with the super-short post-chemo haircut.  

  • cowpower
    cowpower Member Posts: 293
    edited December 2012

    Merry Christmas Doxie Lover!

  • Outdamnedspot
    Outdamnedspot Member Posts: 297
    edited December 2012

    Doxie...great on your scoreWink

  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited December 2012

    I've been doing the every three herceptin and for me it is nothing. I drive an hour away for treatment and usually go by myself (quiet time and audiobooks!) unless the appt is later in the day then DH comes and we turn it into date night! I have no drug prep like the AC and taxotere so there is no druggy feeling. I'm in and out quick. The bag itself only takes 30 minutes! Ahhh if only all chemo could be this easy!



    Doxie - congrats on your score!😃🌈🍷smiles a rainbow and a toast to you! To all of us!!!

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited December 2012

    Doxie, great news .....

  • 0000
    0000 Member Posts: 30
    edited December 2012

    Thanks for all the congrats. Hope I will be on the way to beating this beast with rads and hormonal therapy. March on!!!

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited December 2012

    Websister- thank you for being in my pocket tomorrow. I need all I can get. As one of our fellow BCO members put in our fb group I told her to write my obit then changes it to a boobits. She wrote:

    Here lies Christy on your table

    Give her great boobs if your able.

    Make them perky if you want good tips

    And in three months she'll be back for nips.

    Lol I told her I was pinning that to my gown tomorrow lol



    Doxie- congrats on your score, let us know what they say your treatment plan will be.



  • mcook301
    mcook301 Member Posts: 509
    edited December 2012

    Hi Ladies



    Man I need to change my photo but I can't figure out on my iPad. Sue I didn't see the links but I don't think I would be offended as I know at times here I type and I am sure it comes across way different than I had meant it too.



    Man did I have a freaking rough week but as with chemo I forget most of it tonight because I feel better. I again could not breath well last night and I called my onco nurse just to bounce off how I was feeling and by chance if maybe herception was causing some issue even though I know this is a very low risk. So she sends me into the er again last night to get a CT of my chest to rule out a puliminary embulism ...so needless to say I was not excited but I wasn't really concerned but I thought I better check it out. For the love of Pete I missed my Chemo nurses as I was poked six times before they could get a line and because of all the stress I almost forgot to tell them not to touch my right arm. CT was clear but it was a long night. Funny one good thing about cancer is everyone is so nice even in the ER :) I have never been in an ER until this week so yet another experience for me. The radiologist was HOT! So even better :) hee got to find some good things about this right:) he had to come into my room and talk to me and I kept thinking ...what the heck jump him lol ( sure he would love that:)) my bf would be so proud. I feel a little better today and they gave me some more drugs so hopefully this goes away but still don't feel quite right.



    Today had PT for my arm (seems I have more doc appoints now) range of motion and cording is still not budging :( this pisses me off but the pain is better right now. I want to shave my arm pit dam it or I am going to be able to braid that shit soon!



    Well that is my fun for this week so far so I have to believe it will be calm for the rest of the week. Doc is a little pissed at me as I haven't tamaxifen but I just can't handle another thing and side effects right now. I know I need to do that so maybe tomorrow.



    I can't wait till my exchange surgery in jan! So happy for all of you that all done w this and chemo or rads! For everyone else going through treatments hang in there! Your hair will grow back and you will forget those shity chemo days! Sad but now that I am back to work ...ok please don't hate me for saying this because I don't want to ever ever do chemo again but there was some life moments with my friends and family by my side during treatments that I will always cherish and it forced me to slow down and just concentrate on me. I need to remember these lessons but when you get back to the every day race it can be hard. I have been so independent for so long and during this time I had to let people help me for the first time in a long time.



    Today I saw a post about a man who bring Starbucks to chemo patients every Thursday. It was a pretty cool story and some day I give back in some way like this.



    If you have some time check this out



    http://www.youtube.com/watch?v=fokoA4U4P4g&sns=em



    Love and Hugs!

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited December 2012

    Mcook thanks for sharing the Starbucks story .. Made me tear up.



  • Outdamnedspot
    Outdamnedspot Member Posts: 297
    edited December 2012

    Mcook....what a great story. Thanks for posting the link.

  • cowpower
    cowpower Member Posts: 293
    edited December 2012

    Cook, glad you are feeling better. Having to go to the hospital while on chemo is really frightening. I did notice when I went to ER last Summer that everyone was super nice to me, like never before. I guess you could call it a silver lining . When I was waiting to be transported to a room, a nurse I had not seen all evening came by and told me that one year ago she had been admitted during her chemo for triple neg bc, that I would be fine, and that she was living proof. It changed the whole experience for me from "oh crap it might be all over for me here" to " this is just a bump in the road and these people will help me over it." There are good people out there, and bc has revealed many of them to me. While I certainly didnt wish for this experience, it has its moments:)

  • juneaubugg
    juneaubugg Member Posts: 951
    edited December 2012

    ChrisRenee; I'm with you tomorrow!



    mcook; thanks for pursuing that link. how wonderful of him. I am going to do Look Good, Feel Better. my mother is already doing it. she's a retired makeup artist. I want to give back.

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited December 2012

    Mcook....thank you.....what a wonderful story......what a wonderful man!!!!

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited December 2012

    Juneau thank you! I need as many with me tomorrow as I can. Will try to post as soon as I can. Going to bed maybe. :)

  • juneaubugg
    juneaubugg Member Posts: 951
    edited December 2012

    christrenee, I got iv drip antibiotics during surgery and no rx for more. I didn't need tons of pain meds. in fact getting my wisdom teeth pulled was worse then my exchange surgery. you'll be fine! (((hugs)))

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited December 2012

    Chrisrenee, I am with you today ... Juneaubugg, move over and give me some room.

  • halfcan
    halfcan Member Posts: 253
    edited December 2012

    Hoping in your pocket Chrisrenee!!!  Hope you got big ones.  :-)

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited December 2012

    Chrisrenee I'm also with you as you go from the concrete blocks to the squishees- to me they are SOOOO much more comfy! (There are lots of us trying to stay in your pocket but that dang Juneau is hogging up most of the space with her new melons but atleast now we won't get a concussion if we run into them! lol) 

    McCook- thanks that was a wonderful story. It will be nice once everything is done and out of the way to feel good enough to help others through all this bc crap.

  • websister
    websister Member Posts: 1,092
    edited December 2012

    Chrisrenee - your pockets are getting crowded :) Thinking of you today, hope you were able to sleep last night.



    McCook - thanks for posting the link, made my day



    Karen - thanks for the encouragement re: Herceptin, I will have a break for Christmas then start on it alone on January 3rd, yesterday's Herceptin was decreased to 30 minutes, noticed an increase in achiness following, have heard that may happen when it is infused over a shorter time interval



    Ramols - thinking of you and waiting to celebrate with you on Friday. I find that I have a headache that starts with the Taxotere infusion so I am also hoping it is the Taxotere and won't happen for us with the Herceptin alone.



    JennieL - thanks for the encouragement re: hair growth. I had heard of people on here who started hair re growth while receiving Taxotere. This didn't happen for me, lost what little stubble I had. Then did the dreaded and not recommended Internet search - found out 6 - 7 percent of people receiving Taxotere do not regrow hair. Know the odds are that I will but makes you think.



    I got to ring the big bell in our treatment area yesterday to signify the end to chemo. The nurses all cheered and clapped for me, several patients also - very nice moment. Feeling OK today.



    Take care everyone

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited December 2012

    Websister CONGRATS that's wonderful- I bet you wanted to ring the heck out of that bell. Glad you are feeling ok today . Any update on your Mom? Hoping and praying she is doing better than expected.

  • cowpower
    cowpower Member Posts: 293
    edited December 2012

    Websister, Congratulations! What an achievement to endure all that crap! Now you can start to feel a bit more like youself every day.

  • websister
    websister Member Posts: 1,092
    edited December 2012

    Update on my Mom - made it through the surgery very well, surgeon is pleased. They will try to have her walk with assistance today. Not sure how that will go as she was using her right leg a lot to compensate for left hip after it was fractured. Now that right hip needs help could be difficult. It will show though whether she needs to be placed in a rehab facility for extra physio and also should show whether she can stay in the lodge they placed her in or whether she will need to be in a place where they can give her more care.

  • stride
    stride Member Posts: 470
    edited December 2012

    Websister, best wishes for your mother's recovery! Glad the surgery went well.

  • Sue2690
    Sue2690 Member Posts: 43
    edited December 2012

    Chrisrenee77 – thinking about you while you’re in surgery

    halfcan – You’ve probably heard all the horror stories about taxotere, so I’d like to add that my first cycle was the worst (plus I had to travel for my daughter’s softball tournament a few days after), and the second was pretty bad,but the last two were a breeze.  So don’t be too discouraged if you’re having a tough time this week.  I’m now a couple months out and other than some stiffness in my legs I feel completely recovered. 

    jenjenl – glad you had a good day yesterday.  Here’s to more good days/fewer bad days!

    _Ann_ - I had an MRI halfway through chemo and the tumor was gone… then another MRI after chemo and it was still gone, so I was trying not to get into a headspace where I expected the pCR, but it was hard!  Good wishes for you!  How many more cycles for you?  How are you feeling on the taxol?

    cowpower – I’m into my rads now too (today will be 11/28) and I’m now officially BORED with them.  It’s a 25 minute drive each way and the time is different every day.  What a pain in the butt.  Of course, this whole cancer thing is a big inconvenience!

    juneaubugg – ow ow ow a real tattoo would hurt so much on your head!  I just had a henna tattoo done!  My daughter graduated from high school in June, and I didn’t have a hat or scarf to go with my pretty dress (I only own one!).  And I never did bother buying a wig, since I wasn’t working.  But the henna tattoo was cool.  I’ve actually been considering shaving my head and doing it again since the hair is so sparse and uneven right now, but it’s getting too cold to be completely bald by choice.

    ramols – I’m only on Herceptin right now, and the only side effect is mild cold-like symptoms for a few days post-infusion.   It’s such a nice change after chemo!

    doxielover – great news!  And I’m sure you’ll feel even better when you get the treatment plan in place.  I think then you feel less out-of-control.

    My news for today is that I had bedhead twice this week!  My hair actually is growing!  The things that make you happy when you’ve been dealing with cancer…

    Big happy hugs to everyone.

    Sue

  • _Ann_
    _Ann_ Member Posts: 769
    edited December 2012

    Websister, congratulations on ringing that bell!  I love those stories.  Best wishes for you mom.

    Sue, I have 3 weekly Taxol to go.  I have done well on it.  I have a couple of draggy days each week, and I sleep a lot longer than normal, but I feel good most days.  My hair has been growing back since I started it, but it's like newborn baby hair, not really covering the scalp yet.

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