In shock
Comments
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Day 17 and I feel about the same. Still weak, get lightheaded when I move too fast or try to stand up. Some of my hair is falling out but some is still firmly attached. The biggest challenge right now are the sores on my tongue. Makes it hard to eat.
Edi, I would love to be over at your place, having homemade soup and chatting at the kitchen table. I will try some astral projection this afternoon!

What happened to Bev?
Got the wig. Here's a pic.......

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Love love love the wig Benny. Lookd very similar to mine. Color too is like mine...i got blonde highlights my cousin put in to make it feel a little more....lol
Have you done the mouth rinse? My tongue still funny too Day 12 today.
Edi cyber mummy....goid your side effects are holding back...your cake sounds awesome...Im sure your friend will be happy you took time out and made cake. Well icing done just to decorate now!!!
Lifie...take us with you....sounds amazing...dont think I could sit still on the flight right noe..id be just like my son...ants in my pants..!!!
Bevlee...how are you going??
Joanne, carlads, dakota, websister..hope you having a great weekend and anyone else i have missed -
Hi ladies!!
Benny the wig looks great!!
Edi-hope ur feeling better. Traii, carlads, bevlee, Joanne.
Hope I didn't forget anyone.
Busy hockey and soccer weekend... Getting used to the wig, and still feeling good!!
Hope all u warriors are hanging in there !! Will check in again soon ... Big hugs 😍😍😍 -
Liefie, that is almost a day travelling ! OMG you brave thing. I flew from here to Amsterdam 45 mins and almost had the vapours. lol. Hope your trip is as lovely as you are.x
Benny, That wig is lush ! You may find when yours loosens some more you just want it gone, I did and had a buzz off with clippers at the salon. At least what then comes out is short bits, easier to brush off everything. Than when that looked tufty, had shaved and on went the wig, voila ! look just like before and no one believes it is a wig either. Don't care anyway as it will grow back one day
.Hope your Sunday is better day for you, would so love a gossip over soup at my table may meet you in a dream will try the Astral travel too.
Are the guitars in the photo yours ? I am being nosey as my DH has played for about 50 years and when he is feeling a bit overwhelmed by all this BC cxxp he goes and strums away for hours.The five year old GD have small acoustic guitars too and have started writing their own songs.x
Traii cyber baby girl, SE's seem to have subsided thank goodness. The cake went down a storm with my friend. Just come back from his party. I did Karaoke for the first time in my life ! 9 to 5, Dolly Parton, lol Dh looked as if he couldn't believe it was me. Then danced my feet off, bit pooped now but what fun.
My little brother coming for Sunday roast tomorrow so looking forward to catching up.Hope your Sunday is good too. X
Dakota, told you that you would get to soccer and hockey, bet you look stunning. I pinched my DH's electric razor and took of those pesky prickles tonight, my wig tons more comfy. Going to buzz over everyday to keep it that way.x
Bevlee, Hey you ex scouser let us know how you are please. X
Joanne,Websister and any other sisters reports on your progress needed,we care about you.
My ED's friends did their head shave in huge mall in Liverpool city centre today. So far the have raised about £ 14,000.00 GBP in three weeks ! They all look beautiful too. Looks as if their friends dream of getting her family to Disney may come true. :-) Her story is on' baldy birds for lisa williams' on you tube. and the head shave video on there too. ' Baldy birds campaign 'It is awsome.If any of you watch it I am on the campaign one twice. In the supermarket 4th from left on first group, clutching a pink bucket. Then again 4th from left at end of tills. Old biddy with glasses and short reddish blonde hair ( wig no 1 ) lol.
Blessings healing, and love to you all.
Catch you tomorrow Edi X
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Hi everyone
Thanks for asking for an update, Edi - I am a little bit overwhelmed this evening but it will all be OK eventually, I'm sure. My uncle died on Tuesday, he is my mother's brother. I had to break the news to her, it was difficult for her as they lived in the same lodge previous to her latest move and were quite close. I am still getting at least one call a day from the lodge, sometimes more about my Mom and questions related to her care. I am also finding myself more tired and achy with the cumulative effects of chemo, #6 is scheduled for Tuesday if bloodwork OK on Monday. Another friend with BC was also hospitalized last weekend for serious infection post chemo 4 and a young girl in her twenties contacted me last evening following a suicide attempt, asking for help. Kind of sounds like a soap opera, doesn't it?
My husband and I went out to visit my Mom this afternoon, after our visit I received a phone call saying that Mom had fallen on her right hip when they were getting her up to go for supper, they wanted to know if I was able to come back and take her for an x-ray of the hip. I was alone as my husband had taken my youngest son to hockey so I told them that they would need to call EMS to do this. Now I wait to hear if it is broken, hopefully not.
I'm glad you are feeling better today Edi and I am liking the wig Benny, glad your friend was able to pick it up for you and hope you were able to get out and find some nice scarves today for your cowboy hat look, you will rock it.
To everyone else, I've enjoyed catching up on your posts this evening.
Take care -
Oh my goodness! That is way too much to be happening all at the same time, Websister. And your poor mom. This is a new place for her which takes adjusting to, and then her brother passing. I hope the hip is not broken. I'm surprised they would call you to take her.... shouldn't they have called EMS right away then notified you of their actions? That seems like the more responsible thing to do. Good for you for directing them to EMS. I hope the young girl will get the professional help she needs. She obviously trusts you and luckily reached out. If I'd known about your hospitalized friend I could have kept her company! Was she at the Foot too?
I hope these things are taken care of for now and you can concentrate on your own needs for a change. I am sorry you are feeling under the weather. You are such a trooper so that says a lot when you are tired and achy. Just one more to go. Just one more but..... if you are tired and achy would it be worth delaying it a bit? It might be an option if you're so inclined.
If you need me to do anything for you just email me.
Edi, you gorgeous doll, you! I saw you in the video! The video made me cry tho'. My heart breaks for her. I will share her Facebook page. Those guitars are mine, all 4 of them. An Epiphone, A Seagull and two Gibsons. Not sure what your DH plays? I have been playing (badly) for about 5 years and keep buying guitars thinking I will sound better. It hasn't worked. I fear the neuropathy thing from chemo because guitar players need their fingertips. I was hoping to play badly for years to come.
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Websister,my heart goes out to you, as Benny says you are such an amazingly positive lady and must feel knocked sideways at the moment.
Sorry to hear about your uncle,what a lot of things happening to your Mum right now and you have your own battle going on. Hope her hip isn't broken. Sometimes you wonder why they are called care homes, they only seem to do the care bit when it is giving them cups of tea. Anything that involves work and YOU get the phone call.Been there, got the tee shirt with my Mum many years ago. (( HUG ))
Poor achy Warrior :-( Will send out Reiki to you today. Hope you mend soon. Is no 6 your last one ? x
Benny, hi and so glad you saw video's, the two little girls with buckets on the campaign one are my little guitar playing GD's.
They worked really hard yesterday.My ED compiled both the video's and I am so proud of her I could burst ! I too cried but hopefully Lisa will have her dream come true and maybe prove the Doctors wrong, miracles happen and she never stops smiling.She is so loved as her friends showed in their actions yesterday.
You and my DH would so get along ! he has three guitars at the moment, I know one is a seaghull, think one a Gibson and haven't a clue on the third. You must persevere with the playing you will get better. I watch him and find it fascinating but have tried to learn and can't get fingers in the right position for the cords.!
Sending Reiki out for those fingers (and the rest of you ) hope today is the start of real healing.x
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Thanks Benny and Edi
Mom's right hip is fractured, glad I went with EMS rather than taking her myself.
Benny - my friend with BC lives in Saskatchewan. She was diagnosed about a week before me, stage 1A but HER2 + also so getting FEC - TH. We are best friends who married best friends, did everything together including having our children close together, now going through BC together. If she'd been at Foot I definitely would have introduced the two of you.
Edi - chemo 6 is the end of chemo for me, I will continue to go for Herceptin every three weeks through to August 2013 after.
I am looking forward to going and looking at the videos on YouTube -
I was recently diagnosed with BC. Grade 2-3, Stage 1, tumor is 1.1 centimeters in size and ER+. Nothing was ever felt, so this came as a surprise. Dr. says it was probably there for some time as they have been monitoring changes for a while. I am scheduled to have an MRI this week. My oncologist wants to do this so she can give me a recommendation on which surgical procedure I should have. I understand what the process is, but I would love to hear from others who've had a similar experience. Lots of unknowns but I have a deep faith and strong support system of family and friends. By educating myself I feel more in control, so any advice is appreciated! Thank you!
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AnnBR, welcome, sorry you have to join this club. Sure someone on here will have had a similar experience. Keep checking back for advice.
Websister, sorry about your Mum.Good job you didn't take her. Hope she mends fast,
Hope you like the videos.
Last chemo .that seems so far off,but must remeber you were same as me not that long ago.Thrilled for you, hope I can stay as strong and positive.
Things can only get better for you now x
Feel bit yucky sooo tired and end of tongue suddenly so sore :-(.
Catch you all later. Edi x
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Ann-
Welcome. Sorry ur here, glad u found us!!
Edi- oh hunny feel better!!!
Just tucked the kiddies in going to relax now!!!
Web sister -
So sorry about ur uncle and mom, such a tough time for u
hang in there ..
Traii, carlads, bevlee-
Hope u r having a great weekend!
Benny-
Hope ur feeling better!!
#3 A/C this Thursday getting there... -
Oh, Websister, so sorry to hear about your mother and your uncle. It is a bit unvelievable that she just moved there, and now she is back in hospital. Will also think of you Tuesday for the last chemo. Big hugs to you; it is a lot to handle at the same time.
I'm still packing and busy with last minute things, but the end is in sight. While gone I may not be posting, so I wish everybody here a joyful Christmas with many blessings, as well as a wonderful 2013. Those still in treatment, just do one day at a time, then it becomes tolerable. In January I'll be back to see what you were all up to during December. Sincere regards to you all!
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Edi, the baking soda mouth wash worked to clear up my tongue sores. The formula is 2 TBSP baking soda to 1 litre of water. I kept mine in the fridge and just took a bit out at a time. I swished with it multiple times a day and always after meals. After 2 days no more tongue sores.
Dakota, I still feel like crap, and this is day 18. Feeling weak and panicky because I am so weak. It's a long time to be sick.
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Enjoy your holiday Liefie. I will miss you.
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Enjoy your holiday leifie ..
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Have a good holiday Liefie....

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iefie, gosh how exciting, please have a wonderful, happy time. We will all miss your widom.Will send out special Xmas blessing to where you are. Hope wedding music goes well X
Benny, you are a darling ! thank you for mouthwash, just going out kitchen to mix a jug full and get going.:-)).
Sorry you still feel so awful, hope you are eating ( nag nag ) your body needs fuel to work properly. My little bro came to dinner last night. Made a roast with all the trimmings,it was rather nice but could hardly eat ( fatigue and sore tongue ) so I know I have room to talk.
DH is house sitting at ED today as she has a surveyor measuring up for house remodelling. when he comes back I will have to eat something or he nags and nags ! Then defo resting while he serenades me with one of the guitars lol. Got it wrong by the way he has 2 seagulls and a Taylor, silly me.
Have you been able to leave the house at all yet ?
Take care of yourself today x
Dakota, hope you had a good relax, feel bitter brighter today but think I just try and do too much and body says " YOU AIN'T DOING THAT MISSUS " and sends in the SE's lol.Will be with you on Thursday X
Carla, Hope you ok ? We will all be thinking of you tomorrow wherever we are. Post as soon as you feel able. Your lovely family will get you through everything and you will be on the mend by Christmas x
Websister, how is your lovely Mum ? You have so much going on at this busy time of year :-( Hopefully all sorted by Xmas. (( HUG ))
Traii, Bevlee, Joanne are you all ok ?
Namaste to all of you till later. Edi X
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I'm baaaack........ I had a busy weekend checked in read posts on the side line.
Websiter, my condolences, hope you are holding up ok .
Liefie, oh I'm oh so jealous, hope you have a fabulous time, have a safe trip, enjoy and Merry Christmas to you and your family, may it be a joyous time for you all.
Dakota, will be thinking of you on Thursday....is yours every 2 weeks ? my next treatments on the Dec 12th last Taxotere whoo bloody hoo......my feet are still sore, bearable but still bloody sore but I'm still going...my son runs to the toilet so he makes me run with him, ( we have a loooong hall way and of course he has to go to my ensuite at the other end of the house) so I run and say no pain no gain I can do it mummys coming...then stop and ahhhhhhhhhh ... lol
Cyber mummy...you think 2nd time around with treatment a little more to deal with on our bodies......I think so for me....these feet are driving me crazy.....I didnt' go to work last week.....with the feet situation and the wearing the wig just hit me.....it was all real...I wasn't myself and I had a melt down.....I ventured out once to the shops, mums house numerous times but public...well we all went out to the local pub on Saturday night and I had fun....I am soooo glad you got up and did the Karaoke...perhaps you should have givin your DH the wig so he could do the Rod Steward singalong...lol.....that would have been a laugh

Hope you are feeling a little better today......my mouth wasn't actually too bad this time around, the 'fur' didn't last as long, maybe it was the lollies I sucked on.....but next Wednesday I'll be doing the frozen feet thing too......one can only try!
Benny, I've waved my magic wand..tomorrow you will wake up , feel a ray of sunshine overcome you and venture out to see Diamond and play that guitar of yours .....

Enjoy your day everyone, I must go and try to get some beauty sleep as I'm off to work tomorrow, have christmas shopping to do Weds, work thurs and fri my cousin and her family and mine will be having a early christmas dinner for the kids to open their pressies....this year its my turn to cook so will need to venture out and see what i'm having on the menu..... !!
love to all take care x
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Hi ladies !!
Edi-
Sorry about the mouth sores hope the mix worked out for u!!! U might have to take ur own advice... Hehe rest, eat....😃
Traii -
Yes I go every other week so #3 for me this week. Good luck back to work😃
Liefie-
Have a blast can't wait to hear so stories. Merry Xmas 🎁🎁🎁
Web sister -
Hope ur hanging in there ok. We are here for you!!
Carla.-
Hope u r ok too!!!
Bevlee and Joanne
Hope u had a S/E weekend and u girls were having a blast
Benny-
Hey girl. Hope u r stringer everyday my friend. 🌞🌞🌞 -
Hiya Everyone!
Hopin this message finds you all feeling unfeasably well.
Finally, after my 4 week recovery .. I today met my new oncologist. Waiting on oncotypeDX results now.. could be up to 3 weeks away.. Christmas !! If the score is medium - high I will start chemo immediatley.. Hope 7 weeks isn't too long to wait to start treatment..
Helping out in son's pre-school class yesterday.. he walks up with a bunch of his friends and says, "Show them your cut Mum!" LOL, yeh.. nah!
Hey Lifie.. 'Happy Holiday!' Cheers To You! xx
and Traii.. 'Christmas Dinner...Wow, you're GOOD!'
Websister, 'Hope things turn around for you.. is this your last chemo on Tuesday? xxx'
Big Loves to Benny.. How are you feeling? and
Edi over there in the homeland, how are you going? Love to Dakota, Joanne, Carlads, Bearcub and all you Strong & Amazing Women... Soldier On Ladies xxx
I must go as I am falling asleep in the chair... zzzzzzzzzzzzzzzzzzzz... -
Day 19 from first chemo.... still sick and weak. Will this ever end?
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Hi,
Was just reading this thread - I am also from Calgary, and I notice that Bennymuffins and websister are also there. Maybe we can compare stories? I am also seeing a naturopath and acupuncturist to help get me through this better - I hope!
I just had my first chemo last Tuesday - ended up with such bad diarrhea that I ended up in Emerg on Sat night for 6 hours getting 2 litres of fluids pumped into me for dehydration. When I checked in with triage this morning they said it looked like they needed to reduce my dosage - but at least it showed the chemo was working!! Guess that's a better way to look at it.
Plan is to get 4 chemo and then Herceptin for a year due to HER2+ status. Keep wondering what I'm supposed to learn from all this - but just chatted with a friend who said that that learning comes with time.
Take care, all.
Susan
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Hi Ladies,
Benny I also love the wig! I hope you start to feel better soon!
Well this time tomorrow my surgery should be over! I just hope I don't get anymore surprises like the Triple neg. Still in shock over that one. I will post as soon as I can..
Prayers to all,
Carla
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Welcome Susan, gosh that was horrible for you after first one. These SE's are cxxp excuse the pun ! I dash to loo but not as bad as that. My song is now " ring of fire " lol. Hope next time lots better. x
Benny, are you still on medication ? Do you have a triage nurse to talk to, might be able to help you. My tongue has eased thank you x
Carlads, Good Luck big (( hug ))x
Bevlee, hi scouse ! Bit better today but having trouble sitting down ( see above ) means to an end. Don't worry about delay of chemo. I was six weeks and it seems about normal time to wait.
Your little tinker is a hoot, that is defo the scouser in him coming out.Keep us posted how you get on. x
Dakota, r u ok ? I am trying to take my own advice lol. Napped this afternoon and it made a lot of difference. Ate little and often too ha ha.x
Cyber baby girl, was getting worried about you ! Sorry you had melt down :-( sure it is "normal "but let's face it nothing is flippin normal anymore is it ? Hope icing tootsie's helps next time. Good luck with work. x
The pub I work in had a party of 57 people in tonight. I volunteered to help and washed all the dishes, pots and pans. Two hours sped past soooo fast and we laughed the whole time, just the tonic I needed. Got a bit of extra spending money to hit the shops with tomorrow.
Think the wig needs flinging across the room about now ,scalp still prickly !
Hope tomorrow is better for everyone of you.
night night Edi x
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Carla - good luck!!!
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Carlads - I will be thinking about you tomorrow, hope all goes well and no surprises
Edi - enjoy your extra spending money. Re: wig - my family rarely see me with a wig on in the house and if I wear one when we're out I have been known to take it off in the car on the way home.
Susan - welcome. Yes, we should compare stories. I have been given the OK for chemo #6 tomorrow, after that it will be Herceptin infusions every three weeks to August 2013. I am booked for another MUGA scan in early January to see how my heart is doing since epirubicin and now Herceptin, hopefully all will be good. I was also given a prescription for Tamoxifen which she wants me to start taking the first week of January, she didn't want me dealing with side effects of that over Christmas. My diagnosis and treatments are now back in my signature for you to see. I didn't have clear scans at the beginning - lesion on liver and one on spleen. Both organs are very vascular - they don't biopsy spleens so they will just repeat the scans in the New Year.
I will be interested to know how you find the naturopathy and acupuncture, sorry to hear about the diarrhea. I have quite a variety of meds on hand now for diarrhea, constipation, nausea and pain - and I have always been someone who hated taking medication. Hoping to get back to that after this is all over.
Benny - I emailed you, ended up hitting send before I was quite finished. I hope you aren't too tired for your oncologist appt tomorrow and that it is helpful re: reason for tiredness.
Mom had her surgery today and is back in her room, they are working on pain control but the surgeon said the surgery itself went well.
Bev - hoping your oncotype is low and no chemo is required, I smiled at your son asking you to show your cut to his friends
. 6 - 7 weeks postop is fairly standard for start of chemo
Liefie - thinking of you as you make your long trip to South Africa.
Hi to all the other warrior sisters, hope today was a good one for you. -
Hi All.
2 days of work done now day off and back on Thursday....ahhh....(well work never ends when you have a DS thats hypo)!!
Websister, good to hear your mums surgery went well

Cyber mummy..., washing pots and pans is that what you call fun for money...lols at least the time went by quick for you and you enjoyed it..(better than being on the 'dunny' /'loo' or sitting down looking at 4 walls hey !! lol.
Hows that DG of yours going ?
Carlads, we will all be thinking of you tomorrow.....I know its still a shock re Trip Neg but you are a warrior and you will soldier on and get through all this.....
Bevlee, whoo hoo you're back......lol 7 weeks isn't too long to wait, i think i waited 4 weeks, only cos my onc was persistant and I delayed it a week cos i picked up gastro !!
Welcome Susan, sorry to hear you were in hospital due to diarrhea hoping your next treatment won't find you in the toilet too much. I'm glad you have found some 'sisters' that are in your home town too...:)
Benny Benny, I'm so sorry to hear you are still feeling down on day 18..... your body just needs that little extra time to recover from chemo and the meds you were on, or are you still on the antibiotics ?
Dakota, you funny bunny.......how you going ?
To all other warriers, hope you"re feeling well
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Hi All!
I am feeling relieved today.. I have made a decision.. It was so hard. 5% better chance did not seem so much at first, but then that number seemed to get a whole lot bigger!!! 90% chance is better than 85%.. especially with a 6 year old. My brain hurts from thinking!!!
I'll be starting chemo within a week. 4 doses, 3 weeks apart. Short and sweet the onc reckons. I dunno about that but I'm goin in fighting!!! Can someone tell me about the ice in the gloves thing...? You girls have really got me as prepared as I'm gonna be xxxxx Hoping my hearing doesn't get affected.. I am already deaf and wear two hearing aids.. has anyone else had a problem with this?
I'm working on an affirmation to repeat to myself.. I have done it for years and it really works for me. "I will live a long and healthy, happy life", is a start.
I'm thinking of you lot.. my Warrior Sisters across the globe.. encouraging each other thru this awful experience .. xxxxxxxxxxxxxxxxxxxxxxxxxx
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Well Done Bevlee....taxotere I take it...3weeks off x4 im doing x 3 then 3 of another lot.
Yeh short n sweet.....!!
Ice Gloves...u can yous frozen peas etc so long as you ice your finger nails I also did the coat of Sally Hansen hardner. Just got that from Priceline.
Im going to ice my toes n feet next week ...its my last taxotere....this cycle i had pain walking like real pain (pins n needle like but not funny ha ha pins n needles if u get my drift!!)
They say ice your mouth throughout the infusion...i just sucked lollies.....i still got that 'furry tongue feeling' dont think anything can eleviate that sort of feeling or that horrid taste in your mouth.
Other than boney aches n pains its all worth it cos we're fighters...we will and are fighting to see our babies grow up and see there babies.....we will survive and kick this bitch in the bloody arse!!!
I havent had any hearing probs hun.
(Though hubby thinks differently...lol thats called 'selective hearing darling' !!!!)
Im on my phone atm so sorry its short n sweet back on line soon
Hope everyone else is all good -
Hi ladies!!!
Traii-
Yay a day off good for u!!! Enjoy
Web sister -
I also take my wig off when I get home. I can feel it constantly and I hate that feeling but my kids are to embarrased to have me seen without it.
Albertan-
Welcome to our sisterhood !!!
Sorry for the reasons u found us. We are here for u!!!
Edi-
Glad things are better for u.
I don't know why but this week I can't stop crying. Everything is bothering me. My DH ( not so dear) doesn't get it. I do everything. He doesn't live with us and is mad at me for something he created. I feel like I am stuck in such a bad place. Thank god phiscally I am ok and I can still do everything but emotionally I am a mess. Ughhh !!
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