Chronic Radiation Syndrome

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ro-berta
ro-berta Member Posts: 134
edited June 2014 in Radiation Therapy - Before, During, and After

Hi ladies, just wanted to know if anyone out there had any knowledge or experiences with" Chronic Radiation Syndrome" (It is not a common occurance.)Just not able to find much info on google ( yes I googled hahaha, ) Anyway was just wondering if anyone was familiar and had any info to offer, just throwing it out there, P.M,s welcomed, Thanx

     roberta

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  • ro-berta
    ro-berta Member Posts: 134
    edited November 2012

    Hi mods. I was wondering if you folks know of any links for any info on this subject.I guess I am one of the few people who are being monitored for this condition not given a lot of info from R.O at this time except general things like going to a particular diet, keeping track of my weight and pain ect.

     thank you for any info that you can give and if you can,t that is O.K I thought I would try    roberta

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited November 2012

    Roberta, you might want to re-post this under the heading "Chronic Radiation Syndrome". It might bring you some responses. Some people will only open threads if they figure they can either help someone or get info, and your heading was a bit ambiguous.

    I hope you find the help you need.

    All the best.

    Leah

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  • ro-berta
    ro-berta Member Posts: 134
    edited November 2012

    Oh Leah thank you I totally missed that heading I will go find it now. I was starting to think I was the only one thank you again.   roberta

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited November 2012

    Um, Roberta, I was suggesting that you do this post again under a new heading. Sorry, I should have been more clear about it.

    Leah

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  • ro-berta
    ro-berta Member Posts: 134
    edited November 2012

    Oh duh, I thought there was a thread on the subject as you can see I am not that computer savy, least now I know I,m not "blind"  also,hahaha thanks again for holding my hand.

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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2012

    Hi Roberta! We're so sorry we're just seeing this thread -- if in the future you have a question directly for us and don't get a response, please feel free to PM us and we'll respond promptly!

    Unfortunately, we don't have any information on Chronic Radiation Syndrome at this time on the main Breastcancer.org site, but we are adding this to a list for the editorial team to research and develop information for this topic -- thanks for bringing it to our addention!

    In the meantime, as Leah suggested, we'll change the title of the thread for you to Chronic Radiation Syndrome, to hopefully elicit some helpful responses!

    --Your Mods

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  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited December 2012

    Interesting, did your RO specifically say you were monitored for this?  Usually, this terminology has been for people who were exposed to really high doses of radiation due to diasters like Chernobyl, or the bombs in WWII.  The doses that are received by cancer patients is much less than these amounts.  It is interesting, to me, that they are merging these two rather different exposures together.

    I am sorry you are having problems, Ro-berta.

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