My meeting with a survivor who used alternatives
I had a meeting this past weekend with a lovely couple who I found by word of mouth. I mentioned in another post that I would share the info they gave me with anyone who was interested, so here is the story.
The wife went for a hysterectomy 11 years ago, and when opened the found so much cancer that they closed her up. What she had was neuroendocrine cancer of the uterus spread to the bladder. They gave her chemo and rads at the same time to shrink the cancer, then sent her to a major hospital to get surgery. When she went there, they wouldn't do the surgery because she didn't have long to live anyway and they would have to remove her bladder, which they didn't thing they should put her through being that she was going to die, so they sent her home and said 4-6 months. Her husband went to work researching and he basically gave her anything he could find that sounded like it might work. They didn't give an exact protocol, but gave me pages of info about the herbs she took and where she got things. I haven't been able to read every detail of every page, which a lot of it explains each thing and what it does, but I have made some sense of all the info to pass on to you:
Make sure the diet is 80 percent alkaline and 20 percent acid.
Detox the body. First the colon, then liver, then kidneys. She recommened the ones sold by Dr Schulze at www.herbdoc.com.
There are two different teas to make and drink lots of. Essiac tea is the first one and they added additional herbs to the standard 4 herb formula. The essiac is made of sheep sorrel, turkey rhubarb, burdock, slippery elm. The ones they added are california buckthorn, dandelion, red clover, montana yew tips.
The 2nd tea is made of 11 herbs which are rose hips, pau d'arco, violet, oregon grape, chaparral, st johns wort, yellow dock, prickley ash, suma, dong quai, buckthorn.
If u look it up on the internet you can find instructions for making the tea. Both made the same way. She gave me a list of where she gets things, but I bought the tea from her and I don't see it mentioned on the list. I know there are places online to get the herbs and also there are places that sell essiac, but she buys the herbs for essiac and packages them together to make what she called generic essiac.
Then there is a list of supplements that she takes:
Liquid viyamin plus-vitamin shoppe
Liquid minerals- sams club
Vit e -D alpha
Vit d3
CoQ10 - 100 mg
L-carnitine- 500 mg
Selenium - 200 mcg (no more)
Colostrum
Biodefense NK+AHCc
Olive leaf extract 500 mg
Graviola 699 mg
Modified citrus pectin
Poly mVA
Beta glucans
Calcium-magnesium-vit d liquid
Digestive enzymes
Omega 3 softgels
Noni juice
Pau d'arco
Probiotics
Asparagus extract
Germanium
After reading that list I'm going to call and ask her if she takes all of that every day. She gets things fron all different places: swanson, vitamin shoppe, any vitamin store, and a lot of stuff from a place called Herbal Healer Academy.
Anything you can get in liquid form is better than tablets.
They also had a machine to ionize water and a rife machine. They have a few friends who come in daily to use the rife.
I think that about sums it up. It was about a year later that she had scans where no cancer was found. So there it is for what its worth. Of course everything doesn't work for everyone and she had a different kind of cancer but this obviously worked for her. I know she was drinking huge amounts of the tea when she had cancer, and now drinks one cup a day. They didn't really have a protocol, just threw everything at it so to speak. I am going to do the teas and the alkaline diet and the 3 cleanses. As for the list of vitamins, not sure if I can manage that or not. If anyone has questions let me know and I will try to find it in this pile of papers as I am still leaarning myself.
Of course I am not giving medical advice, just sharing what another has generously shared with me. Thanks, HLB :-)
Comments
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Wow, this is amazing! Have you posted this on the Stage IV alternative thread?
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No this is the only place. I thought I would put it here because she did do chemo and rads, but then after I thought about it I thought it should probably go there. I typed the whole thing on my phone!
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I just wanted to mention that neuroendocrine (often referred to as carcinoid cancer) is an extremely slow growing cancer. (my husband was dx with it 3 yrs ago). Many people with this type of disease survive for decades after having the initial tumor burden removed or lessened with surgery.
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I think it depends where it is located. I work in med recs and have seen charts with them described as very aggresive with poor prognosis. this is from pubmed.
Abstract
Neuroendocrine tumors of the uterus are rare. When present, the majority is found in the uterine cervix. Several theories on the histogenesis of these tumors have been proposed including an origin from local neuroendocrine cells or from reserve cells. The latter hypothesis is supported by the fact that not too seldom uterine neuroendocrine tumors contain other histological components including adenocarcinoma and squamous cell carcinoma or even both. A firm diagnosis can usually the rendered when immunostainings and/or electron microscopy are performed, in addition to conventional light microscopy and Grimelius stain. The tumors react positively for a diversity of so-called neuroendocrine markers and several hormonal substances. Ultrastructurally, they contain dense- core neurosecretory granules. Prognosis is usually poor with most patients dying within one year from diagnosis. Survival can only be achieved in patients who present with early disease.
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HLB,
Thanks for posting. This is especially impressive because her cancer was so advanced.
Most of the long term survivors I've met have done surgery only.
Tho, another had no surgery. She went to the doctor because her leg hurt. It turned out to be breast cancer mets to the femur bone. Then further tests showed spread to the organs. She is still alive 12 years later. It was written up in the local paper. She too has an elaborate protocol. Bravo to these patients!
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Wow, that's awesome! I hope I have the discipline to do it. I made the tea yesterday and its not very tasty but its tolerable. One thing I forgot to mention, I asked her if she ever did get the hysterectomy and she said no. She had kidney problems from the chemo she had but its improving.
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Thanks for the info HLB
Ebru -
That's an amazing story. There was a woman who posted here years ago who was very enthusiastic about about Dr Schulze. At the time I was almost 3 years out from chemo and I still suffered from nausea. His superfood completely resolved that problem for me. His intestinal formula, however, doesn't sit well with me at all. I think different people will have different responses due to weaknesses and imbalances occuring for different reasons.
What I like most about the herbdoc site is the commitment to quality. Everything is plant-based and also gluten free. I've done the cleanses, although not recently. I was still drinking milk when I did the first one. I never thought anyone would ever say anything that would ever convince me to give up drinking milk, but Dr Schulze's description of the life of a dairy cow served as the tipping point for me. I gave it up in 2009. I also did not fully follow the instructions for the first cleanse (it recommends fasting), but I felt like I benefitted anyway. I went without milk for 5 days, which was really something big for me at the time. Two months later, I switched to plant-based milks, and it's a habit that still sticks today.
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Hi Althea, in the list of products she uses she wrote colon cleanse - any vitamin store, and for the kidney and liver ones she specifically recommended dr Schulze. She has done so many things that I am sort of picking and choosing and I have not done any cleanses yet. I have a week of work coming up soon and that is when I plan on doing those. I think I need to have the time to rest when I need to because sometimes I try to cleanse by eating nothing but cleansing foods and after 3 days I start feeling bad and really hungry which causes me to binge. If I didn't have to work I could deal with that better I think. I haven't used milk for many years due to the fact that I just don't believe it was meant for us. But I do love cheese! I have given that up as well as many many foods, but I allow myself pizza once a week. Been doing a lot of research on different cleanses and its hard to know what is a scam and what is not. I will probably stick with dr schulze and the info she gave me. She gave a catalog from The Herbal Healing Academy and they have tons of good stuff so I will use that too.
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Dr. Shultz got most of his information from his mentor, Dr. Chistopher. I got a copy of Christopher's book from a rare book dealer a few years ago but it may have been reprinted by now. I'm sure Dr. Christopher got the scholarship from age old remedies. These herbs are available anywhere but as Althea says, you want to get the best quality and make sure they don't come from China.
I can vouch for one of Dr. Shultz's oral herbal recipes working on a terrible skin infection! The dermatologist had given up.
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What are the names of Dr. Shultz' and Dr. Christopher's books? Sorry if the titles were posted and I missed them.
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I am now a big fan of alternatives after doing the normal main stream chemo and it not working for me.
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Thank you HLB for sharing Do you know her age?
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No but I would say 50 something. Low 50s maybe.
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HLB,
Can you take the teas and supplements while you are on tamoxifen?
Thanks,
Sarah
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I haven't looked into it but some people do say that the red clover should not be used by people with ER+ cancer. I've never taken tamoxifen but I'm taking AIs right now.
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HLB, could you please recommend a colon, kidney and liver cleanse, that has been tried and are easy to do. I know there are lots on Net, but would like to know somthing first hand, that has proved efficient. I do epsom salt colon cleanse now and then and wonder, if using a laxative is considered a colon cleanse or I should do something else too and what are the follow ups after the cleanse. Any advice is appreciated!!
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Hi Karina, I have not done the cleanse myself. I did so much research and couldn't figure out what was safe or not and just never got around to it. Then I went to holistic Dr and he told me how the body detoxes itself and what I can do to help the process. So I have been trying to do it that way, with what I am eating. Basically you want to eat plenty of methyl groups which is colorful and leafy vegetables, then you want to eat plenty of sulfur groups which is the cruciferous family like broccoli, brussels sprouts, kale etc. I have been having probs with constipation due to the meds and that's another reason I keep putting off doing an acyual cleanse, because the toxins will just go around the cycle again and be reabsorbed until I can get this problem solved. I have seen a lot of youtube videos about the epsom salts. I was kind of afraid to do them, not sure why. So without having done any myself, it seems like people really trust the Dr Schulze cleanses. I have also seen people use psyllium and I think the idea there is that the psyllium will absorb toxins that are stuck to the intestinal walls, as opposed to just making you have a bm. The psyllium gets really thick in the body which is why I was afraid of taking it because of my off and on constipation. I didn't want a big blob a psyllium full of the toxins that it has absorbed to get stuck! So anyway for now I'm doing the foods that are cleansing and taking senna laxatives as needed until I can figure out a better plan to get things moving in a reliable consistent way. The holistic dr also said to avoid fumes and avoid plastics. I also drink hot water with juice from half a lemon which is supposed to help digestion and be cleansing to the liver. Sorry I couldn't be more help with the cleanses.
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Karina one thing I forgot that the dr recommeded was chia seeds for fiber. Put two tablespoons in your smoothie. They should be ground but you can buy them whole and grind yourself by putting in the smoothie, or you can buy them already ground. I got a big bag at Costco of whole ones for $10 which is the cheapest I have seen and Costco seems to have all good Qquality items.
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HLB, thanks for your reply. Too much information on Net is really confusing and that's the reason I haven't done any serious cleanse. I can't find chia seeds where I live, but will ask my husband to bring me some from the UK. One gentle cleanse ( good both for colon and liver) I have done once recommended by a friend is the following: 60 grams of castor oil ( flavoured ones preferable), 30 grams vodka, juice from 2 lemons, 1 table spoon honey. All mixed together. I quite liked it as it didn't give me painful cramps. Let me know, if you try it.
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Read the thread with interest a few times, found it again today.
I would say the power htters in this list is Poly MVA, par d'archo or lapacho tea, Biodefense NK, noni juice (when digested turns to ellagic acid which is like the tested red and black raspberry seed powder / Hollings Institute).
The necessary for avoiding cancer is D3, probiotics, selenium, (I would add tumeric).
I had a recent PT scan and am now rethinking the protocol I was on, though I will still use those. The oncologist said that the cancer is aggress but he thinks what I have been doing is keeping it under control. Due to a hilar node and subcarinal node being affected now, I would say not enough.
I have read often the book Outsmart Your Cancer. Suggested reading for all.
Considering going on a trial in Indianapolis for a tx for immune, a pill the onc said. I think I understand that bcz I have not had chemo or rads, I am a good candidate.
HLB good sharing. Gives hope and things to consider.
LOVEEssa
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Thanks Essa, yes, I keep this lady in mind every time I get scared. Everything doesn't work for everyone but she proved to me that its possible. I wondered about the poly mva because it was so expensive. She lives about 3 hours from me in the town where my parents grew up. I've been back once since and plan to stop in at her store and visit whenever I go there to see relatives. I buy a few batches of tea when I go in. They have a store full of all kinds of discount items and a small section where they sell some of the herbs and supplements she takes. Not many though, just the tea anf graviola. She really believes in the graviola and gave me an article about it. She had some capsules but I found the extract at Swanson. Going to start that when I run out of maitake extract. I was surprised she didn't take turmeric.
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Inspiring story - one of many. It's not uncommon to hear about people who go into remission doing alternative stuff right? I know im tuned into hearing about this stuff now that ive got cancer but I know of 2 cases - relatives/friends - that got well without conventional medicine. Both had been told they had no chance of surviving, few months to live.
The alkaline/vegan diet - there's the chrisbeatcancer.com site which i heard about from another thread. He had stage 3 colon cancer and dismissed chemo 10 years ago.
I also believe in the ketogenic diet. From his website theres a video about a woman who cured herself from breast cancer with this diet. It seems the key is persistency.
The 2 people from my real life used different plants, roots, berries, nuts and papaya leaves respectively.
Also in my searches ive come across artemisinin (chinese wormwood) and ganoderma lucidum (mushroom).
I didn't have the courage to take the alternative route alone. I am about to finish my conventional therapy and finally have the energy to do things 100 %. I believe there are many ways to a cure - and some need different ways than others. It's possible. But I do have respect for this disease, it's sneakiness scares me, so my choice was doing both.
Wish the best to all of you. -
Yes it is sneaky! I am doing both as well. This lady did say that she thought radiation saved her. It was after the chemo and rads that they told her there was nothing more to do and then she started on all of the alternatives.
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I think it is also worth remembering that back in the day when there was no chemo or hormonals, many women still managed to survive simply through surgery. My great grandma was one. She had a mastectomy back in the 30s and lived to a ripe old age when she died of something different. Thing is, I don't feel like taking the chance, given the advanced cancer I had.
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I have noticed that too, and back in the day they used to take muscle and do a more radical surgery. I have to wonder if that made a difference.
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Perhaps, but I really don't know. To me it is more like saying that most kids survived car rides just fine without car seats and seat belts. It is true, but once you have the seat belt, why take the chance? If I have a 50% chance with just surgery, but a 70% chance with the drugs, then I am doing the drugs. I do realize that for women where the difference is much smaller, it can be a genuinely reasonable choice to skip the drugs or some of them. However, since 70% is still not a happy number, I am also exercizing etc. and reading what I can on alternatives.
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It was after the chemo and rads that
One more theory...Drs arent God. The woman was helped by the chemo and rads. -
Of course they helped her. But they still told her after that that she only had 4-6 months to live. Not sure what you are saying.
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HLB,
Yes, radical mastectomies did take virtually everything they could scoop and scrape out. It was a pretty disfiguring surgery and truly left women maimed. It did not yield higher survival rates and that's why it was abandoned by and large. My grandmother also had a radical mx. She developed liver mets and died.
Caryn
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