The Hermit Club

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  • Stormynyte
    Stormynyte Member Posts: 650
    edited November 2012

    Oh my gosh! I just pee'd orange! Ha! I didn't run away, tho I was thinking about up to the point they had me hooked up, figured it was to late then.

    Chemo went fine. I was in a little room with 4 recliners and a tv. The nurses were right there all the time, very friendly. They even fed me pumpkin pie with a big ol blob of whipped cream!

    Not sure what all they gave me tho. There were 3 syringes.. I think. All anti nausea meds, one with an added relaxant. Then 2 small IV bags, both clear, not sure what that one was now, I meant to wright it down, but I was slackin. Then 2 BIG syringe with red kool-aid. I think I've had more drugs today than I have had in my entire life combined. Lol And I have no idea what they were.

    I have to go tomorrow for a nulasta (sp?) shot and some IV fluids. 

    bgirl, my mom is the same way. Drives me insane. As soon as I tell her anything she is on the phone telling EVERYONE she knows. Ugh.

    I hope you get the all clear. I don't think they ever do end. At least it gives us something to put in our date books. :P

    Has Camille checked in yet? Hope her scan went well.

  • Delilahbear
    Delilahbear Member Posts: 466
    edited November 2012

    FLWarrior - So sorry to hear about your situation. It is tough during the holidays. I live in fear of getting fired every day I go to work. It is no fun, but a job is a job these days. Will pray you get another one soon.

    Camille - hope things went well for you today.

    Hugs to everyone.

  • markat
    markat Member Posts: 909
    edited November 2012

    Oh Stormy, that's the lovely Red Devil. Are you going to take Claritin before your Neulasta? It supposedly helps with the bone pain. It didn't for me, but a lot of women on here say that it does. I used left over pain pills to help with the bone pain. Glad it went okay!

    Camille check in!!

  • LizLemon
    LizLemon Member Posts: 540
    edited November 2012

    Hello ladies - I'm a newbie to these boards (about a month now). I've been reading through your posts, and admire the fun, spirited conversation and support here. I have a healthy sense of humor and love to help others when I can.



    FLWarrior - my heart breaks for what you're going through right now with the lay off. It's happened to me twice before...but with having BC too - that's just cruel and unusual.



    Stormy - glad you made it through your first chemo ok. I had that same combo when I was originally dx 12 years ago.



    LizLemon

  • markat
    markat Member Posts: 909
    edited November 2012

    Welcome LL ;-) If you're super outgoing, just don't brag about it, k? Lol!



    Fl, I wish we could all take you out:( It would be weird to all skype in a bar probably.



    Bgirl, I actually get a months reprieve from the MO, I'm so excited.

  • LizLemon
    LizLemon Member Posts: 540
    edited November 2012

    Markat - LOL! I am an extrovert (true confession) - but I do absolutely HATE to talk to anyone on the phone. I can't even stand to order take out!

    LL

  • Teka
    Teka Member Posts: 10,052
    edited January 2013

    Welcome to a kind and supportive thread.Wink   I'm off to bed!!!

  • markat
    markat Member Posts: 909
    edited November 2012

    Me too! Except for the extrovert part. Honestly Liz, WWLLD? (What would Liz Lemon Do). Stay at home in her jammies and avoid people :)



    Skitttle, I missed your posts yesterday. I don't know how you teach all day! That would be absolutely exhausting with our exhaustion issues.



    I'm wired. Took my tamoxifen too late and giddy about tomorrow. I'm going to stop at the local pastry shop and get my nurses some treats and a thank you card. They've been absolutely wonderful this year. I've seen them more than any of my friends!

  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    I'm here at 5:30am---crashed when I got home.

    First things first===FL I can't express how bad I feel for u--being alone myself forever I can feel the horrid feeling in the pit of my stomach. First off can u collect unemployment? It not like working but it's something. And during that time go on Craigs list and start looking for u'r type of job---Now they won't pay u what u'r used to cuz (I hate to say this) but the business are taking full advantae of the situation with jobs-They get the money the want but turn around and not pay the employees what they normally pay if the job thing was good, Which I think is deplorable. cuz if they did than people would be able to spend and the economy would start moving. I'm sorry I'm not trying to get political, but u have no idea how bad I feel for u. My SIL has been unemployed for so long, he's in construction when the economy was good he mad $40.00 an hr. Now he gets little jobs doing anything for 10.00 an hr. He doesn't look for 40, but 10 is hard for a family to live on.

    My money is mostly paying bills but I don't make that much either and went thru all I had all these yrs. cuz of BC--The fear of paying rent happens every month and now with Christmad--So I so sympathize with u and mad this has happened to u.

    OK now the computer can help big time rather than running around to places and they usually ask for a resume then they will call u back, don't say what u used to get paid st all, say it's negotiable. And put every little thing thst u know on it as u'r accomplishment, so u vary what u can do. U can always learn--if someone else can do it u can too. U could just say u'r rusty on a certain thing. So if u don't know anyone to help u get a job, use u'r computer alot. There are different job sites on there too.

    I'm sorry FL I wish I could help u, bjut we are barely making it ourselves. Good Luck.

  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    WELCOME LL---I hate phones too and I can't type well either. We are a wonderful group her the girls are great even tho we are forced to be around people and we just simply care about one anither. So I hope u post often, we're fun too. (I think)

    Stormy I'm glad u started and yes marat she's on the red devil I think most of us got that Yea pee changes cokor a bit LOL now keep us informed everytime u have one cuz from time to time they change how u feel and if u have any SE let us know right away.I hope u do well, OK at least OK on this cocktail u'r stuck with.

    All right my scan was done today and I've gotten the results (oops yesterday) the lump??? was OK just hace loads of arthritis, mor than before so that's done but I never was concerned i knew it would be fine--But I see the heart Dr. Thursday--and this I'm more concerned about and I admit it. But I do have to tell u--When the teck came to get me for that stupid shot I stood up and I had instant diarrea --it exploded--so I told hime i was going to the bathroom while we were just stand there and pkease get me to one. Well I always bring more clothes and stuff so I got all cleaned up, went to the nurse for her to acces my port and viola agin I stood up and all over the pkace (it goes thru my depends alot of the time) so I go and clean up. Well I had to wait 2 hrs. so I spent most of that time in the bathroom. and I cleared out. LOL When I went back the tech got me and said If u want to postpone this--no no no put extra pads on the table and don't stop that thing. LOL And I got my results in an hr. But I was so tired (my body( I really crashed out So that's done ladies and still OK about cancer getting any more complicated than it is. So I'm fine. Thanks for u caring.

  • bgirl
    bgirl Member Posts: 538
    edited November 2012

    Cami, I guess saying the techs learned that "shit happens" would be a bad pun.  Sorry you had a hard time, but glad that scan went well as far as results.

    LL -we can all be fun and happy .... but still prefer to cocoon at times.

    Markat ... happy dance for you today ... don't actually see MO for another 3 months ... just all the others apts .... should get a break in the new year.

    Stormy ... hope the morning finds you well

    FLwarrior ... I am so sorry this is happening to you, especially at this time of year.  I hope you are able to find a job quickly.

    Hi Teka ... really need to take a page out of your book and become a woman of few words.

  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    Jane how are u feeling? I hope ok.

    Oh marat I love not seeing Drs. at least for a while--to me it's like a hamster u'r just sping and trying to keep them straight. Right now I'm back on the wheel for seeing them and when I don't I try to do nithing. Maybe that's why we get hermitty cuz for periods of time we're forced to see Dr. and nurses and such and when u get a break it's so nice to be quiet. But u start u'r job next week right? So u'll be among the living again (in person, is what I mean)

  • markat
    markat Member Posts: 909
    edited November 2012

    Ugh, I've typed out 2 long posts from my phone and neither would post! Is Teka our new Moderator, LOL!

    Camille, so happy for you! Glad that's over and hopefully the heart doctor will look gooood Thursday! So sorry about your son in law. That is total crap. I wish we could magically fix all of this stuff.

    Jane thank you!! I really need to make an appt with the gyn. Did you notice more yeast problems with Tamoxifen or things like that? I have a situation going on.

    I'm supposed to start the job Monday, but the state had to approve the new program I will be involved with. We all know how that goes. It could be after the new year. I hope not, I really need the Christmas money.

  • Teka
    Teka Member Posts: 10,052
    edited January 2013
  • whaevah
    whaevah Member Posts: 354
    edited November 2012

    markat! WOO HOO you are done!!! Congrats, *happy dance* ...I am sure it wasn't easy.

    I guess now you can revisit getting deported !?

    bgirl...I don't tell my family much, I do tell one sister who then passes around what we decide they all need to know. As for inlaws, mine are not worth talking about.

    I do think that if you feel guilty about saying or not saying something to your family, consider it a sign that you were putting yourself first...and that is a good thing!

    camillegal..yay on the scans but wtf with the Dtrain...enough already! hugs~

    welcome newbies!Smile

  • LizLemon
    LizLemon Member Posts: 540
    edited November 2012

    Thanks for the warm welcome, ladies!

    Cami - so glad your scan went well!!

  • bgirl
    bgirl Member Posts: 538
    edited November 2012

    Just back from BS - MRI is stable, so happy, happy.  Will see her again next Sept. close to my anniversary. Yeah!

    Markat - I haven't had that problem, but know that quite a few do.  Tami has anti-estrogen effect on breast tissue, brain, etc.  But has an estrogenic effect on uterus, ovaries and bones.  So bones is good news, but for those of us premeno it causing thickening of uterine lining and can also cause a lot of ovarian cysts.  So I am having an edometrial ablation, will get rid of lining and reduce or get rid of severe bleeding problems.  Already had endometrial biopsy and pap (both clear) so they will go ahead with doing procedure.  Pantyliners helped me be less irritated with the increased discharge tami causes.  Hope that is not TMI.

    Whaevah, hope you are doing okay today ... thanks I think it is time to ditch the guilt and put me first (not very good at that).  I gave my mom another chance this weekend and she turned around and tossed it away.  Let her gossip about her own medical issues .. it is her favourite topic anyway.  Loves med stuff ... thinks pills, surgery, etc. cures all.  The more the better.  Personally if I never saw another dr. or took another pill, or dealt with another SE, I would be very happy.

  • markat
    markat Member Posts: 909
    edited November 2012

    Yay Jane! That's wonderful news!! I think you're right about the situation with Tamoxifen. I need to invest in some of those liners I guess :(  Will you have to switch to an AI after the ablation or still take the Tamoxifen? I agree about not wanting to ever see another doc again! That's a huge reason I'm putting off nips. Bright side if I don't end up with this job for some reason, is that we will go on vacation near NOLA and I might be able to get the fabulour 3d nips! So sorry about the deal with your mom. Ugh. I hope I'm never like that with my girls.

    I'm done, I'm done, I'm done....Woohoo! My sweet nurses gave me a cake and it made me cry! I brought them some cookies, bagels, fancy cream cheese and a thank you card. I will honestly miss them. Maybe I will go to the infusion center to get my port flushed. I don't think I will be deported for at least a year. MO and I agree to keep it in for a couple years to get past the 2-3 year mark unless getting it flushed drives me nutty, since I'm her2+, young, and I have this weird feeling that as soon as I have it taken out, then I will recur. I know that's stupid, dumb, and stupid...but I am what I am.

    DH and went shopping after my treatment. I've never done that before, lol. I honestly don't know how you guys that work went back to work after your chemos, rads, and other treatments. I get so sleepy and down. Hats off to you guys!

    Whaevah, hope things are going well. How's the dishwasher?

    Stormy, hope you are feeling okay today!

    Camille, Teka, Liz Lemon, skittle, FL, K, and everyone else, hope you are having a wonderful day!

  • Teka
    Teka Member Posts: 10,052
    edited January 2013
  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    OMG teka--I/m LOLing so hard--u actually had to edit thst. wow--U'r talking wsy tooooo much .

    YYAAAYYY Markat u'll miss the niceness of thst feeling with the nurses. And when u go for a while without anyone then u start loving it and when u go back for check-ups it such a big deal, but u still have u'r trusty meds to remind u. LOL

    Bgirl sounds good now. U sound like u know what u'r doing so that's great.

    Oh and u guys know I still have my port and it's used all the time even for tests now they just get a nurse, so but like Markat I feel the same way.

  • whaevah
    whaevah Member Posts: 354
    edited November 2012

    bgirl...I like pills Tongue Out they got me through the past 10 months without ending up in jail...

    As markat said "stay away from assholes", and as we know assholes are everywhere including our family. Harsh having a mom who doesn't 'get it' , but I have found that those who are miserable LOVE to gossip about those who have real hardships. I ditched a friend who is so miserable she feeds on trouble. My trouble, anyone's trouble. Of course the story is related as "poor so-and-so", could be the neighbor's sister's boyfriend's cousin twice removed... The thing is they really do not know how repulsive they are.

    Tell those kind that you are doing GREAT, couldn't be better, happier. Starve them. Innocent

    I read something last week that sent me over the deep end. I almost had to break my fingers to stop from replying...the stupidity, insensitivity and ignorance ...but I am aware of misplaced anger and  just back away from trouble. I am saving it up for a few choice targets . Mwahahaha.Kiss

    Me, I am feeling GREAT, couldn't be better, happier...LMAO, j/k and thanks for asking...I am really feeling a little better each day. 7 days PFC, one day at a time. :)

    Glad your MRI was stable. I LOVE good news Cool

  • Teka
    Teka Member Posts: 10,052
    edited January 2013

    I came to the realization, before ruffling feathers, that one face for bgirl and markat was not cool.Embarassed

    camillegal,

    Oops! I forgot yourCool.Kiss

  • markat
    markat Member Posts: 909
    edited November 2012
  • bgirl
    bgirl Member Posts: 538
    edited November 2012

    Thanks for the happy face Teka!

    Markat, no change for ablation ... would end up on AI only if I had gone for oophrectomy.  Then I would be in surgical meno.  Understand .... I am so paranoid about saying it is gone.  Kind of have my own 12-step program of one day at a time.  Wow that would make a good vacation story.  I got tatoos  .... and then don't tell people where ... just keep them guessing.

    Whaevah, don't get me wrong,  love my drugs for specific things ... just the cure-all mentality some people have that drives me nuts.  Thanks  .... Fine, Great are some of my fav words lately.  Mostly works as lots of people think it is all better anyway ... and hopefully it is.

  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    Oh Teka u really unloaded u'r words. Thanks for all that info. LOL

    Oh Drugs I love/ meds not so much--there is a difference. OK a tupid story. After about 1 yr. of seeing my onc. I was in her office and she came in and said How are u feeling--I said Fine--she said . Oh u can't be fine after all this time something must be wrong. I said Oh u'r really aking me. She said I'M U'R DR. U'RE SUPPOSED TO TELL ME EVERYTHING ABOUT HOW U FEEL, I said Oh I thought u were just asking politely and I was answering politely. So I told her--she put me on morphine--I think she was thinking shed shut me up--she was sorry she asked. Hahahaha

    OK enough about me. It's usually stupid anyway.

  • Teka
    Teka Member Posts: 10,052
    edited January 2013

    I just heard on the "National News" that scans are revealing evidence of chemo brain.   Although, I still feel some slight chemo brain, my medical team has never said a word about chemo brain.

  • whaevah
    whaevah Member Posts: 354
    edited November 2012

    the moderator didn't give me a face...my feathers are ruffledCry

  • Teka
    Teka Member Posts: 10,052
    edited January 2013
  • whaevah
    whaevah Member Posts: 354
    edited November 2012
  • markat
    markat Member Posts: 909
    edited November 2012

    Teka I was never officially told about chemo brain, we just joked about it. My onc is weird about SEs, she acts like I'm the first patient to experience some things. I'm sure I'm not lol.



    Lol whaevah!!

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