Calling all TNs

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited April 2014

    Karen, we are thinking of you today as you go through treatment

    Luv, congrats on final radiation.  Live it up now in Vegas!

    HopeFaithCo, we are all here for you as you go through the process.  My lump also sprang up overnight out of nowhere, and was further back in the breast, towards the chest wall.  Lean on us all you need to.

    And to EVERYONE, have a very Happy Thanksgiving.  I'm so thankful for all my new friends here and all of the well wishes you have sent my way.  

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  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited November 2012

    Hello Luah,

    We do keep bumping into each other,

    I was interested to know about your Montreal connection.I had friends in Beaconsfield.

     My husband and I arrived in Montreal in January 1977. We went into shock with the cold!Greetings to Dormac and Babs 37. After Montreal we moved to Ottawa(Nepean) and lived there for more than nine years.

    Happy Thanksgiving to all you American women from  the UK

    Best Wishes,

    Sylvia.

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  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    Debra - thanks for the good thoughts!



    Today at chemo, onco said we could try skipping the neulasta shot, this cycle!

    That's going right under having all of you in my life, on my Thanksgiving graditude list.



    Gobble - Gobble

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  • JAN69
    JAN69 Member Posts: 947
    edited November 2012

    Friends -  I want to say how very touched I am with the care and compassion that is constant on this thread.  We truly are lucky to have each other for support.  Here's to many more Thanksgivings!  Jan

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2012

    Jan you give the same to us and and are there for us every minute of the day.

    Karen is that good or not that they have not given you the neulasta shot.  As far as I know we don't have it here so I am unsure.  

    Happy thanksgiving to all of you.  Will be thinking of you. Annie

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2012

    Inspired it wouldn't let me PM PinkPower78 so will wish her tons of healing vibes for tomorrow on here.  Big hugs to you Pink.  

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012

    Hugs and well wishes to Pink

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  • bexH
    bexH Member Posts: 49
    edited November 2012

    Hey all!  I was diagnosed on 5/31/12.  I kinda knew before my OB/GYN told me.   I found the lump myself because I was nursing my Isaac and a part of my breast seemed to have a hard time draining and after it was empty I could feel it.  I am really kicking myself in the butt for not getting my mammogram the year before because we didn't want to irradiate his milk.  So, I'm at least a Stage 2b.  I only had one SLNB and it had 3mm cancer in it.  Oh, I'm 42 (just had my bday last weekend woot woot).  DX at 41. Lumpectomy, 4 rounds DD AC followed by 4 rounds Taxol.  Starting 33 rads on Dec 3. 

    I also had a port put in and my MO wants me to leave it in for 6 months.  My cancer antigen 15-3 has gone up and I'm hoping the rads will take care of whatever is left.  I have 3 kids to live for and my DH.  Has this happened to anyone else?  It's making me nervous.  I'm happy to not be alone.  It's good to here from survivors as well.

    Happy Thanksgiving

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  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    Bex - I was first DX at 42 had about the same treatment, but since I was er positive the first go round, I did tamoxifen for a year. It came back 7 years later as

    TN. I hope the rads are easy on you. Rest when you need to, and if you are not up to eating, drink Carnation Instant Breakfast (it's less expensive than Boost).

    Take good care.



    My 85 year old friend is an hour and a half late for Thanksgiving dinner. I am starving!

















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  • Kazzie61
    Kazzie61 Member Posts: 452
    edited November 2012

    Hi ladies......I introduced myself a week or so ago, mets diagnosed in May, radiation on the 2 spots, a stable scan 2 months later & now I've had 'major skeletal metastasis progression'! It then goes on to name a stack of bones affected......most I've never heard of!



    Anyway, getting port in on Wednesday & starting chemo the following week, Dec 6th (merry Xmas...LOL). Chemo regime is Paclitaxel & Gemcitabine for 6 to 8 cycles depending in how I handle it & obviously if it does the job!



    Anyone had these drugs & if so, how we're the SE's?



    Have a good weekend all....



    Karen x

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  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    Karen - I have taken taxol and gemzar, but not together. Taxol is a lot like the taxotere , I see you've had before, gemzar is an easy one.

    I do one week carbo/ gemzar - then a week of gemzar only. I have liver and chest node mets. I hope this cocktail works well for you!





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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2012

    Hi Bex and Kazzie welcome to our home.  You will find lots of helpful advice on here to help you through.

    My doc rang me today to say my mammo is fine.  One down, one to go. Had my ultrasound of ovaries and liver today and have to wait five to seven days for result, should never be allowed all this waiting.

    Well I'm tired tonight so going to bed early after a busy week so will catch up with you all later.  Sweet dreams to everyone. Annie   

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  • onvacation
    onvacation Member Posts: 1,344
    edited November 2012

    WOOHOO CS - glad you mammo was good! I'm sure your next round will be the same!

    Have a great day!

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012

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  • Hopex3
    Hopex3 Member Posts: 397
    edited November 2012

    Cs: great news on your mammo! I have a good feeling on your other tests too! :)

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  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    Annie - enjoy your good news.

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  • mags20487
    mags20487 Member Posts: 1,591
    edited November 2012

    so so happy for you CockerS...this is great news!  Have a spectacular weekend

    Maggie

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  • JAN69
    JAN69 Member Posts: 947
    edited November 2012

    Annie - Yeah!!!!!  And now I'm holding your hand as you wait for the next results.

    OBXKaren, Dawn, LuvMichelle -  Hoping you and your loved ones had a warm, love-filled gathering.  There's nothing like having our family around us.  Hugs to you, my friends.

    We have had our oldest daughter and her family here since Wednesday.  This is 5 little wonderful, funny, loud, mess-makers, kissers, hungry, delightful kids.  They are 6, 4, 4, 4, 3 years old (yes, triplets).  We have an attached guest house with 2 bedrooms, etc., but they have spread into all parts of the main house.  And I have not felt this old since chemo.  Oh the energy to keep up with them!!!!  We've had perfect weather, so they have been outside going on bear hunts and looking for Bigfoot most of the time.  A wonderful Thanksgiving. 

    Joy to all this weekend.  Jan

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  • minxie
    minxie Member Posts: 484
    edited November 2012

    Hope you all had a wonderful Thanksgiving! We had a great time here.

    I am looking for opinions on an idea I've been kicking around for awhile... After contributing for 16 years I have a nice chunk of $$$ in my 401 K at work. And after my local recurrence this year, I honestly don't know if I'll be around in 20 years to use it. There are things I want to do now, mainly travel, while I still have my health, and of course they all require money. I've talked to the Fidelity people and one option is to take out half the 401K (employers contribution), roll it into a Roth IRA, and pay the income taxes. Once it's in a Roth I won't have to pay a penalty for taking money out.

    This seems short sighted, taking money out of my retirement fund, but again, what if I don't make it to retirement? Any thoughts, anyone done something like this?

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  • Titan
    Titan Member Posts: 2,956
    edited November 2012

    Cocker my girl I betcha your ovaries and that liver are just fine!

    Bernie...you never cease to amaze me with your jokes..keep 'em coming

    jan...love the idea of all the kids around..I have two nieces age 5 and 2 that I dearly love...

    Minxie..I hear you...I really like my job but for awhile now I just don't want to work anymore...can't afford to retire now though..but how long can I wait???  I don't want to wait until tomorrow anymore..I want to do it NOW! 

    Hope everyone enjoys the weekend...! 

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  • bexH
    bexH Member Posts: 49
    edited November 2012

    Minxie, don't do it.  You made need that money to live on if you have to stop working....I know it's tempting to do fun things because we are afraid we won't be around in 20 years.  But, we have to remember we are likely to need it in case we can't work anymore.  I know I'm a bummer and totally practical for the most part.  I know exactly how little social security disability paid my mom and it took 6 months for her to get!  No one can really live on that!

    I got a lot of the kid's playroom clean...of course that's why I'm up.  I keep sneezing from all the dust...guess you all know how good I am at keeping a clean house.  And, I lost half my nail.  Ouch it hurts.  On the bright side, I found a box of flexible fabric fingertip bandaids (try saying that fast 3 times) on amazon for abt $13.  It really pads the nailpad pretty well.

    I'm glad to hear of all the good test results

    Sherry, don't give up yet.  God is Good and works miracles sometimes

    Jan, want to come borrow my 3 kids??  I could use a little break.  jk.

    Thanks for the welcome and I'm happy people are putting their names on their posts.  I have a hard time tracking people by their user names.

    Becky

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  • bexH
    bexH Member Posts: 49
    edited November 2012

    Kazzie, I had pacilataxel (aka Taxol).  I had major body aches abt 3 days after.  No nausea (woot woot).  Numbness in toes then fingers later with nail changes and I just lost part of a nail.  Fingernails are lifting away from nailbed.  Taxol felt a whole lot easier for me than Adriamyacin and Cytoxan (puke city).  You will have to fill out a neuropathy survey before each round to keep track of symptoms.  Not great but didn't TOTALLY stink like AC.    Praying for minimal SE's for all.  Buy dermal gloves and slather eucerin on at night and put the gloves on at night.  The less they get dried out the less likely you'll be in my spot.

    Becky

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  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    Jan - it sounds like a wonderful time at your house!

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited November 2012

    Hi everyone!  We had a fabulous Thanksgiving with lots of food, fun and family.  Now DH and I are airborne, on our way to L as Vegas for four fun-filled days.  We are going on a hot air balloon ride on Monday and we are scattering my mom's ashes on Mt  Charleston, just outside of Vegas.  I am doing pretty well - I've recovered my balance and most of my typing skills.  My hair is gone, perhaps never to return, but I have a new wig and I'll buy a couple of inexpensive but fun ones so I have choices.  Showers are really quick these days.

    Annie - woohoo!  Great news!

    I hope everyone has a fabulous weekend!

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2012

    Hi ladies. Happy thanksgiving to you all and I hope you have a great time

    Minxie you said it yourself. You want to travel while you have your health . So I say go do it. Like Titan I always loved my job but just lately I don't want to do it any more.  I want to do what you have the chance of doing.  So if it was me I would have my bags packed and be outer here. Go now love while you still have your health and enjoy every bloody minute of it. The future will take care of itself. Yea you will still be around in 20 years but by then you may not feel like travelling. This way in  20 years time you will have wonderful memories of your travels. Grab your bags and get yer get up and GO.  Sure will miss you for a while though.  

    Jan must be wonderful being at your house right at this moment.  All those lovely little ones running around, laughing at the funny things they say and seeing them eat all of your wonderful cooking. Life seems far too short for us at the moment so like Minxie enjoy every bloody minute of it.

    I went Christmas shopping AGAIN today and had a ball. Just cannot resist buying lots of things for my girls and my grandchildren.  I love Christmas but the old fellers face looked as  glum as his empty pockets by time I got home. Still there's three weeks to go yet!!!

    Tonight I am singing Christmas carols and icing cakes and I'm not even going to think of those looming results.

    Have a great night everyone with no side effects and nothing but restful,  healing sleep. Annie

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2012

    Oh yea been wondering what to do about my christmas tree once its up with Chloe around. I hope I don't come home to no baubles and nothing but bare branches lol.

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  • Nanc620
    Nanc620 Member Posts: 38
    edited November 2012

    Hi,

    I'm Nancy from Michigan and I'm part of this club.  My lump popped up suddenly like so many of yours.  I would lay in bed at night and literally roll it back and forth wondering what the heck?  Of course I knew...and my knowledge was quickly confirmed.  Have ahd my surgery and port placement which were quite easy, thank goodness.  I love my surgeon, he is a kind, quiet peace filled man.  He gently insisted I meet the rad. onc while I was clear headed and feeling well, good advice.  My onc is also a nice man, but as someone else said he appears overworked and frazzled. I don't care for the infusion center so will be visitng another on Monday after my Feel Godd Look Beeter class.  We are blessed with an active network of support systems here.  Have gone to Gilda's Club and am meeting with and integrative medicine team.  

    I want to kick this nasty bugger's butt.  I am blessed with two wonderful kids (22 and 18), my patient and loving DH and a houseful of dogs and the kid's friends.  THere is too much life in my life to lay down and be placid.  I am drawing strength from each of you...like Sheery I am only 59...lots of life left.

    THank you for your love and support...allow me to reciprocate.

    blessings

    Have 

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012

    “Twenty years from now you will be more disappointed by the things that you didn’t do than by the ones you did so. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sails. Explore. Dream. Discover.”

    Mark Twain

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2012

    Couldn't agree more Bernie. So dust of those suitcases Minxie and go and discover those far away places and dreams.

    Nancy welcome. You seen to have everything under control and a wonderful family to fight for. You will kick this cancers butt and come through fighting fit.  The ladies on here are wonderful and you will draw great strength from them as well.  Sending you big hugs. Annie 

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