Calling all TNs

LuvRVing

Bernie - LOL!  It seems so true!

christina1961

http://www.cleveland.com/metro/index.ssf/2012/11/breast_cancer_vaccine_research.html

Some good news - I've read about this doctor and his research. I'm glad to see he received more funding. 

Annie, I understand.  I'm starting to get anxious because my three month oncologist visit is coming up the last week of this month.  I just saw my breast surgeon last week. I haven't had my port flushed in three months which is terrible but I avoid going to the chemo room.  I'll get it flushed next week when they draw blood for my tumor marker tests which I wish I had gotten already.  I hate waiting after the appointment to get the results.  They went up a point or two last time but still well within normal range.

InspiredbyDolce

Sanjay Gupta, MD Medical Correspondent for CNN, said that with the Moonshot Project they expect to be able to cut the death rate in half from TNBC within a couple years.  It's a 10 year project, so it was nice to see that perhaps the TNBC community could see some real advances within the next 24 months.  Let's pray for that!

Tazzy

CS - good luck with your mammo.  Thoughts with you.  

Yes Bernie - thanks for starting the day with a chuckle.

Hugs to all xxx

BernieEllen

Hi all my check up is next monday.  Hoping the can do something about the truncal lymphedema.  

onvacation

Good evening ladies!  I have my first mammogram tomorrow since diagnosis.  I am a bit nervous!  I hope they don't make me wait too long for the results!  Also have my port removal scheduled for Dec 7th.  Live goes on I guess!

Gearing up for cooking for Thanksgiving!  I am thankful to be here, and thankful for this board and all the support!

HUGS!

5thSib

I really appreciate all the posts -- the advice, the encouragement, and the frustration. Everyone is real and that is important. I'm a little frustrated with hearing "oh, breast cancer is so curable now." It doesn't feel that way when it happens to you especially with TN.



Got my port in today. It is pretty sore. Prescription pain meds make me sick so I won't take them. it may be a long night. Maybe a Tylenol PM will help.

onvacation

Shirley - hope the tylenol help with the port pain!

Babs37

Stuff you didn't know, you didn't know!

Men can read smaller print than women can; women can hear better. Coca-Cola was originally green. It is impossible to lick your elbow. The State with the highest percentage of people who walk to work:Alaska. The percentage of Africa that is wilderness: 28% (now get this...)  The percentage of North America that is wilderness: 38% The cost of raising a medium-size dog to the age of eleven: $ 16,400  The average number of people airborne over the U.S. in any given hour:61,000 Intelligent people have more zinc and copper in their hair. The first novel ever written on a typewriter, Tom Sawyer. The San Francisco Cable cars are the only mobile National Monuments. Each king in a deck of playing cards represents a great king from history: Spades - King David Hearts - Charlemagne Clubs -Alexander, the Great Diamonds -Julius Caesar 111,111,111 x 111,111,111 = 12,345,678,987, 654,321 If a statue in the park of a person on a horse has both front legs in the air, the person died in battle. If the horse has one front leg in the air, the person died because of wounds received in battle. If the horsehas all four legs on the ground, the person died of natural causes. Only two people signed the Declaration of Independence on July 4, John Hancock andCharles Thomson. Most of the rest signed on August 2, but the last signature wasn't added until 5 years later. Q. Half of all Americans live within 50 miles of what?A. Their birthplace Q. Most boat owners name their boats. What is the most popular boat name requested? A. Obsession  Q. If you were to spell out numbers, how far would you have to go until you would find the letter 'A'? A. One thousand Q. What do bulletproof vests,fire escapes, windshield wipers and laser printers have in common? A. All were invented by women. Q. What is the only food that doesn't spoil? A. Honey Q. Which day are there more collect calls than any other day of the year? A. Father's Day In Shakespeare's time, mattresses were secured on bed frames by ropes. When you pulled on the ropes, the mattress tightened, making the bed firmer to sleep on. Hence the phrase...'Goodnight , sleep tight'. It was the accepted practice in Babylon 4,000 years ago that for a month after the wedding, the bride's father would supply his son-in-law with all themead he could drink. Mead is a honey beer and because their calendar was lunar based, this period was called the honey month,which we know today as the honeymoon. In English pubs, ale is ordered by pints and quarts... So in old England , when customers got unruly, the bartender would yell at them 'Mind your pints and quarts, and settle down.' . . .It's where we get the phrase 'mind your P's and Q's'. Many years ago in England , pub frequenters had a whistle bakedinto the rim, or handle,of their ceramic cups.When they needed a refill , they used the whistle to get some service. 'Wet your whistle' is the phrase inspired by this practice. At least 75% of people who read this will tryto lick their elbow! YOU KNOW YOU ARE LIVING IN 2012 when... 1. You accidentally enter your PIN on the microwave. 2. You haven't played solitaire with real cards in years. 3. You have a list of 15 phone numbersto reach yourfamily of three. 4. You e-mail the person whoworks at the desk next to you. 5. Your reason for not staying in touch with friends and family is that they don't have   e-mail addresses. 6. You pull up in your own driveway and use your cell phone to seeif anyone is home to help you carry in the groceries... 7. Every commercial on television has a web site at the bottom of the screen. 8. Leaving the house without your cell phone, which you didn't even have the first 20 or 30 (or 60) years of your life, is now a cause for panic and you turn around to go and get it. 10. You get up in the morning and go on line before getting your coffee. 11. You start tilting your head sideways to smile. <wlEmoticon-smile[1].png>:)   12 You're reading this and nodding and laughing. 13. Even worse, you know exactly to whom you are going to forward this message. 14. You are too busy to notice there was no #9 on this list. 15. You actually scrolled back up to check that there wasn't a #9 on this list. ~~~~~~~~AND FINALLY~~~~~~~~ NOW you’re LAUGHING at yourself! Blessed are they who can laugh at themselves, for they shall never cease to be amused!"

OBXK

Good luck to all of you having tests. Remember the odds are in your favor.



Bernie, thanks for the smiles.



Annie - Make plans!!! And plan to visit me!



I ordered a mattress topper for my new deluxe bed. I needed a little padding for my shoulder pain. It arrived today. I thought the sewn pockets would keep the foam fill from shifting. It felt like pockets of rocks! So I stole the foam egg crate from DH's bed, added it to mine and gave him the new lumpy one



Tomorrow is my last day to feel good for a couple of weeks - I wish the weather was nicer - cold wind and rain here.



Take good care...

Hopex3

Onvacation: good luck with your mammo tomorrow. Will be thinking of you.



5thsib: funny, someone just told me today, oh, you will be fine, breast cancer is curable.

And just kinda waved it off. They have no idea.



Take care everyone. Your all in my thoughts and prayers as we travel this road together.



Erin

BernieEllen

A couple had been married for 50 years.
They were sitting at the breakfast table one morning when the wife says, 'Just think, fifty years ago
we were sitting here at this breakfast table together.'
'I know,' the old man said. 'We were probably sitting here naked as a jaybird fifty years ago.'
'Well,' Granny snickered. 'Let's relive some old times.'
Where upon, the two stripped to the buff and sat down at the table.
'You know, honey,' the little old lady breathlessly replied, 'My nipples are as hot for you today as they were fifty years ago.'
'I wouldn't be surprised,' replied Gramps. 'One's in your coffee and the other is in your oatmeal

Cocker_Spaniel

Hi Ladies

Good one Bernie.

Karen had my mammo today. They even took one of under the arm on the breast cancer side so I was quite pleased about that.  The radiologist said he can't see anything but it still has to go to the big guns for checking so I hope this means good news, keeping my fingers crossed.  Re my plans I won't have any leave again now until the middle of next year (June) when I get another four weeks as I took the five weeks I had left for my radiation. But I haven't forgotten my visit and will be aiming to come sometime next year, god willing.  Re your hubby losing his egg crate, I would do exactly the same and the old feller probably wouldn't even notice or say anything if he did notice.  I would have told him off if he did that to me lol. You do realize you won't ever get out of that lovely new bed now and will be  in your jammies all day, lucky sod.  I have to get into my uniform every day now I had forgotten what it felt like.  Going down to work is making me tired by the end of the week and I go to bed now at a ridiculous time, early evening, but it is good to talk to all my work mates again.

Yep ladies people do think cancer is something you easily get over and are cured by especially if you are looking well but they have no idea at all what people suffer through. 

I just cannot for the life of me drum up any enthusiasm for anything at the moment.  I'm supposed to be making lots of christmas cakes but have only done two. Until I get these tests out of the way everything seems too hard.  I go for my ultrasound of the ovaries and liver this coming Friday and I'm already like a cat on a hot tin roof, so jumpy and can't seem to settle to anything.

But still thinking of you all and sending lots of love and big hugs.  Catch you later. Annie   

sylviaexmouthuk

Hello Babs37

I really enjoyed all that information on your recent post and I hope you will not mind that I have pasted it onto the UK TN thread for their enjoyment.

It was nice to see someone posting from Quebec. My husband and I lived in Montreal for three years in Pointe Claire and Dollard des Ormeaux on the West Island. Montreal was very interesting. We also liked Quebec City.

I hope you are doing well since your treatment finished.

Wishing you well.

Sylvia

sylviaexmouthuk

Hello Cocker_Spaniel

I was interested in your post about combating cancer with baking soda. Sometime ago I posted information about this on the TNBC UK thread. I read about it on the CANCERactive site and I have faith their information. I do take a teaspoon of baking soda (in the UK we call it bicarbonate of soda) with a little warm water. I figure it cannot do any harm. There are theories about fungal problems and breast cancer. When I was first diagnosed and reluctant to have orthodox treatment, I got in touch with a well known herbalist here and he believed that there was a connection between breast cancer and the yeast infection candida. He prescribed wormwood tablets and the immune boosting astragalus capsules. I think they helped, although I did have orthodox treatment in the end.

I wish you well and if it is of any encouragement to you, I was diagnosed seven years and five months ago with a large 6cm+ TNBC and had a mastectomy of the right breast, six months of chemotherapy before this and three weeks of radiotherapy. I am sti;l alive to tell the tale.

Warm greetings to you in New Zealand from the UK.

Sylvia

Luah

Sylvia, Babs: I was born and raised in Montreal. Lived in Rosemere then Beaconsfield on the West Island. Cheers to you both. 

Hopex3

Cocker spaniel, that is good news about your mammo. I bet you hear the same for your scans. I will be thinking of you then. I will be facing those scans in the spring after surgery and I'm sure I will be nervous too. I guess we will always be looking over our shoulder while telling people at the same time, "I,m fine." I don't think the worry ever really leaves.



Put some Christmas music on and bake those cakes! You will feel better!



Have a good day ladies.



Erin

DorMac

Another original Montrealer here. Born in Montreal North and lived there for 21 years before moving to Ottawa. I actually live in Elliot Lake now since my husband and I retired. We still have our house in Ottawa which we will be looking to sell this year but it sure came in handy when I was going through surgery and chemo in Ottawa. Quite a difference to go from Mtl. to Ottawa to a city of 13,000!

We are heading back there on Saturday as I have my first post-chemo mammo and follow-up appt. with the oncologist coming up. It is also my MIL's 90th birthday so we are having a family celebration.

Sending HUGS to everyone going through treatment or SEs and especially Inmate, Luv, Hope60, OBXK and everyone having a hard time right now.

Love,

Doreen

HopeFaithCourage

My lump just seemed to show up too. I'm 39. I have four teenagers, a wonderful husband, finally a job i love, and a granddaughter on the way. This is bad timing. I need to be well!! My tumor is 4 cm across and is triple negative.

onvacation

CS- yea on the mammogram.  Mine was similar today, looked ok but has to be compared to my old films (which of course they didn't have) so a week or so of waiting for me!

I agree people think we are all done because our treatment is done and our hair is growing back.  half the time I don't have the energy to explain it to them!  I get a lot of "aren't you glad this is all behind you" comments!

OBXK

Annie - We'll keep the light on for ya. I hope that when this battery of test are over, you can put this behind you, and look forward to all the fun times ahead, without fear and worry.



Bernie - good one!



Tomorrow is chemo day for me. I'm feeling so good right now - it's going to be difficult making that long drive to the poison center!

Tazzy

Karen:  hugs and positive vibes for you tomorrow.   Here's to kicking cancer's arse.  Great you feel good.

I will be flying off tomorrow so will check in a couple of days time.  

Here's to minimal SE's, lots of love, sunshine and happy memories.

Titan

It seems that most of our dang lumps just show up...I remember it well...Sunday am, January 19th, 2009  rolled over in bed..my arm brushed "something"...wasn't there the day before..I swear...

On a side note...today I'm 44 months out from surgery...oh yeah...!  and on Saturday I decided to jog 6 miles and I did it...

Am I still "on guard"...you betcha....

I sincerely hope that all of us will reach 44 months plus many, many more...it isn't easy...but it does get easier....does that make sense???

Happy Thanksgiving to everyone..including our Canadian and NZ and European friends...what's not to like with taking a day to be thankful?

BernieEllen

BernieEllen

Cocker_Spaniel

Tazzy dear friend you have a wonderful time with your family.  You have fought so hard for this and you deserve every minute of it.  Don't worry about tissues your mum will have plenty!!.  Travel safely dear Taz but don't stay away too long cause I sure will miss you.

Luv glad its your last radiation,  now its off to Vegas for you dear one and a hot air balloon ride.  Have a ball girl.

Karen will be thinking of you tomorrow with your chemo. Remember that poison will keep you with us forever I hope.  Yes keep the light on for me please. When my mum was dying every light in the house was subdued and I cannot stand houses without lots of windows and light. If I move I make my old feller put in lots and lots of lights, I don't care if it costs a bomb as long as there is light everywhere.       

Titan I don't think we will ever drop our guard or at least I won't.  Every night I check in the mirror to see if there are any lumps or bumps that wasn't there in the morning. It's like treading on egg shells every day and I wonder whether it will ever stop and we can be totally happy again with no worries.   Congratulations on your 44 months out and and make sure you make another 44 months.

Did anyone mention exercise!! I'd better step up that flag waving.

Hopex3 If everything is ok with my ultrasound on Friday I will do exactly as you say and put on some christmas music and sing along with it while decorating my cakes. Thank you so much and when spring comes we will be there holding your hand for your scans.

Sylvia we too call it bicarbonate of soda. I printed it all off and I am going to take it in to work. One of our doctors is really interested in alternative health.  I will let you know what he says.  I do wonder if there is some truth  in it though because I have always suffered with thrush at different times and had yeast infections so just maybe that is what feeds the tumours. Only my theory but it makes sense to me that cancer could be a fungus. or what else can we call it.

Onvacation I also have to wait about 10 days before I will finally know if the mammo was ok because it has to go up to our main hospital for reading.  The waiting is a killer. I'm just hanging onto the fact that the radiologist in our town said he couldn't see anything.  I don't think he would say that if he could see something, would he?

HopeFaithCo cancers timing is always bad when it shows up. But you will get through this.  You have a great family to fight for and you will and can do this.  Thinking of you and sending warm hugs.   

Love and prayers to everyone. Annie

Cocker_Spaniel

Look at this wee petal. So sad to think he is going to end up on someones dinner plate.

  

Tazzy

CS:  thank you so much.  I will be sure to have a great time.  Oh! and I loved your little picture of the pig and laughed even louder at your comment.

Hugs, peace and love to all with minimal SE's xx

Hopex3

Titan! You rock! 44 months out. And jogging 6 miles! That is awesome!

Tazzy: enjoy your time with your family!

InspiredbyDolce

PinkPower78 has her surgery tomorrow on Thanksgiving Day.  Please everyone PM her and wish her the very best - she is also TNBC.