Sleeves and insurance
I have a policy from Humana and have had no problems getting 2 sets of sleeves every year until now. I went thru the same process I always have this spring and Humana is still denying the claim. The provider is now calling me for full payment. Isn't this supposed to be covered under the federal law? Or did I dream this up? I was thinking it was covered or I would have just ordered on my own and paid for them directly at regular cost. As is they want $400 more for the sets than I would have paid by ordering on my own.
Comments
-
Journey, you need to appeal. There's help for that. Email Bob Weiss, the insurance activist for the National Lymphedema Network. His help is free of charge, and he can advise you how to proceed. Email is:
Lymphactivist (at) aol (dot) com
Please keep us posted!
Binney -
Journey
My INS said I must get a letter calling for medical necessity which my PCP wrote.They claim they will pay (80%) for 3 sleeves per yr.
-
I have military medical insurance through Humana and they do not pay at all for sleeves/gauntlets. They suggested that I go to my PCP and get a script for medically necessary equipment so the LE supplies can fall into that nebulous category. My sleeve/gauntlet provider bills this equipment with an "S" hcpcs code and they are disallowed by Humana (Tricare). They do cover other types of medical device equipment - like compression socks - but not this. They paid for my LE PT so they recognize the diagnosis. It is a mystery.
-
I know Bob works specifically with Medicare denials. Does he also work with 3rd party insurers? That's wonderful if he does. Either way, Binney is right, Bob is a great resource. If you recently became Medicare eligible, that could result in changes in coverage from secondary insurance. Medicare Supplemental insurance generally follows Medicare guidelines. Secondary plans by 3rd party insurance will sometimes cover items that Medicare denies. If your garments were covered under your employers health plan and then you go on COBRA due to retirement or changing jobs, COBRA must cover all claims the same as when you were an employee for the full time of your COBRA coverage period.
Did Humana give you a specific reason for the denial? Especially since they covered your garments in the past? If it is a coding error by your provider or insufficient documentation submitted by your provider, that could result in a denial. Letters of Medical Necessity ARE required along with your specific lymphedema history from your medical record. Your insurance must tell you why it was denied. Start there and see where it leads you.
I recently changed DME providers because all of a sudden my garment claims were being denied for the first time in 6 years. Turns out my provider was having major problems in their billing office and their documentation/coding submission was not meeting the insurance requirements, so the claims were automatically denied. After switching to a new DME provider my insurance claims were approved without any problem.
The following is a brief step-by-step guide Bob posted regarding Medicare denials. This should be helpful to anyone who has Medicare.
Medicare will deny claims for lymphedema bandages and garments, period. Most supplementary insurance policies will not cover an item if Medicare says it is not covered. In order to be reimbursed for your expenses for purchasing these items you must do the following:
1. Obtain a prescription from a Medicare-enrolled physician.
2. Purchase the items from a Medicare-enrolled Supplier. You must pay up front. You will be asked to sign an Advance Benefit Notice of NonCoverage (ABN) form. The Medicare-enrolled Supplier must, by law, submit a claim to Medicare.
3. You will receive a denial from Medicare on your next quarterly Medicare Summary Notice, with instructions on how to appeal that denial. The reason that will be given is that "This service is not covered by Medicare" or "This item does not meet the coverage requirements in the LCD for Surgical Dressings".
4 Upon receiving the denial, contact me and I will help you through the next few appeal steps, and will file for you if you so desire. But you must follow steps 1. and 2. in order for me to help.
Robert Weiss, M.S.
Lymphedema Patient Advocate
-
Hi Journey
I just read your post. I have UHC. The very first sleeves I got, they did not pay. I called them and they said no, your plan doesn't cover durable medical equipment(DME). From reading these wonderful posts for these wonderful ladies on this board, I, too, thought I remember someone saying they should be paying for them. So I called them back and pulled out the "Women's Health and Cancer Right Act of 1998" card and they then put a supervisor on the line and he said he had to check something, put me on hold and came back and told me yes, garments are covered because the Act supersedes everything. Since then, we have ordered a number of garments, day and night ones, and they have covered them without question. One hates to have to go to extremes, but it sure seemed to shut them down when I brought up the Act.
Here is a helpful link which gives you excellent information about what is covered in that Act.
http://www.dol.gov/ebsa/publications/whcra.html
Be Well.
-
LOOPHOLE?
I believe the wording in the act should change. I really don't care for :
"This act requires these health plans to provide coverage for reconstructive surgery and related services that may follow a mastectomy.How about ...' that may follow breast cancer treatment."
It may end up being more than a matter of semantics, but rather, grounds for denial.
I could really see some snags with that . In any case, my ins . will cover to a point anything ordered by a DR that is deemed MED. NECESSARY.
I did note that on my OT/PT approval letter they specifically mentioned ' massage therapy' was not covered. I will be sure to bring this to the LE therapist attaention and be certain she words things correctly, with goals such as
"channeling the lymphatic drainage to alternate pathways ' and possibly improving cirulation and lymphatic function, demonstrating proper skin care and prevention of cellulitis etc, teaching patient care for disease mgmnt. ...etc...
MLD may look more like ' massage' if not worded just right.
We have to be our own advocates, ESP. with any new gov't changes which may occur with universal.
-
Thank you all for your posts and advice! I will call Humana tomorrow and find out the reason and then go from there based on what they say and your advice. I'll post and let you know in case anyone else has this same issue. It's a shame that we have to continue to endure stress over stuff like this isn't it!
-
Just got off the phone with Humana. I had a very nice rep who spent a lot of time going thru the records with me to figure out the problem. Get this...my plan pays for Custom made garments, and not ready made. Jeez had I only known! She even tried to get my supplier on the phone to discuss with them but they have already closed for Thanksgiving. I will call the hospital next week and ask them to resubmit with "custom" codes in hopes that does the trick. Don't you just love it. Saga continues and I'll post more once I see how this all turns out. Thanks again!
-
Suggest to your PT/ CLT to talk with Luna Medical in Chicago. http://www.lunamedical.com/about-luna/letter/ They work with CLTs all over the country, who measure, and Luna in turn works with the manufacturers to get the garments. They go to great lengths to work with insurers.
-
I am not sure, maybe someone can help me. I thought I saw a link to the law regarding LE sleeves. I thought that insurances had to cover them, but NOT medicare. I remember thinking what a bunch of crap. Other insurances cover them, but the law makers made an exception for Medicare.
-
I appreciate all the information I can get, because I wear sleeves (blue cross) and mom does too (medicare).
The place that fits me says absolutely no one covers them. Hmmmm...
I will be looking into this for both of us.
-
What ???!
No no no crystal....this is wrong! Keep pursuing under DME with your ins co. -
Journey, that is bizarre they are saying they won't cover off shelf sleeves/gloves/gauntlets. I do not believe they are allowed to do that. As Binney suggested, I would consult with Bob Weiss so you know your rights. Normally, I would say just go with the codes that work, but this could have some stupid impact later that you can't foresee. The point is, they really are required to cover off shelf garments if they cover garments at all. These insurance companies are starting to make things difficult to get what we need, and we cannot let them get away with it. Bob helped me win my appeal against Blue Cross and he was amazing. He is so nice and easy to talk with.
Crystal, Blue Cross is feeding you a line of bull. According to the Women's Health & Cancer Rights Act of 1998:
"Under WHCRA, group health plans, insurance companies and health maintenance organizations (HMOs) offering mastectomy coverage also must provide coverage for certain services relating to the mastectomy in a manner determined in consultation with your attending physician and you. This required coverage includes all stages of reconstruction of the breast on which the mastectomy was performed, surgery and reconstruction of the other breast to produce a symmetrical appearance, prostheses and treatment of physical complications of the mastectomy, including lymphedema."
And don't let Blue Cross tell you that your plan in particular does not cover these garments. They have to provide it to all people because of the Act, but especially if they cover certain women in their other plans. Blue Cross' people on the phone kept telling me to take the issue up with my HR person who deals with insurance, that the company had chosen a specific plan. The HR person said they didn't have anything to do with that, it is all communicated directly from patient to insurance co. Mr. Weiss told me what to find and send to him to prove they had to cover. I swear the insurance co's train their customer service people on how to circumvent answering questions and respond in gibberish.
Here's the government website link to the whole document:
http://www.dol.gov/ebsa/publications/whcra.html#.UK6M9Wt5mSM
LindaLou gave you excellent info that Bob Weiss recently posted on how to submit requests to Medicare in a way that they are approved. Submitting forms to Medicare is like some crazy game of 'Mother May I'. -
Crystal,
Like Tina referenced the government website with the document, as I did on my post above, please keep fighting this. Please see my post above. UHC tried to pull the same stuff on me, but because I knew I had read somewhere on these boards that they are required to cover because of the Act, I referenced that Act to the insurance company and that pretty much left them with nothing to negotiate. And...since then, they have never denied me coverage and I get off the shelf garments as well as custom made. Maybe the wording on the prescription is throwing a glich in the system? My doctor must always reference my breast cancer diagnosis on each prescription and then write that it is needed for lymphedema. Possibly this might be causing some trouble?
Please keep pursuing...if I hadn't referenced the Act to the insurance company, they likely would never have paid for them. It is all about making and saving money for them and unfortunately, we are forced to be a smart consumer. It is just ridiculous that we have to be arguing after all we have been through.
Be well.
-
Anna, I didn't see you had posted the link. Too much turkey!!
-
Tina337: re the law that u referenced above, are the companies able to limit the number of garments? Coventry tells me only two arm compression per year, tough because I need for both arms....also denied night sleeve since they approved the Flexitouch. I need both and a chest compression garment for the night other than the compression bra for truncal lymphedema. I find very interesting that the insurance company feels that they know what I need as compared to what the Dr. Ordered! Thanks for any tips anyone has. I am considering writing an appeal to Coventry.
-
Beatmon, if you are diagnosed bilaterally, then I believe your insurance would have to provide for both arms twice a year (if they are willing to give one arm two garments per year). That's just silly - see the stupid stuff these co's try to pull? These are all good questions for Bob.
As for the night garment vs the Flexitouch, they are two different animals. The night sleeve is worn as compression at night and the channeled construction helps provide drainage of fluid from your arm as you sleep, like wrapping/bandaging would. The Flexitouch acts as a replacement for manual lymphatic drainage. It is not a substitute for nighttime wrapping if your arm needs it. Your therapist/doctor would argue that if you have to wrap long term, the use of a night garment will help with ease of use and compliance, especially if you are bilaterally diagnosed. By the way, night garments function differently from day garments. Whereas the goal of the night garment is to promote drainage from a limb that is stationary, a day garment's function is to maintain the current size of your limb and uses the movement of the limb and its muscles to work. A day garment should not be worn at night.
This past August at the Ohio Summit on Lymphedema, a speaker presented on the history of pumps and how they work. His conclusion was that a pump should be part of a total care program and not the sole mode of LE care. I am traveling and don't have my conference notes or recall the name of the speaker, but a few other ladies on this forum also attended and may know his name and other relevant info. It's my understanding that a lot of women can get the pumps and use when they don't have coverage for LE therapy, access to a therapist, or ability to perform manual lymphatic drainage exercises on themselves. The pump does not replace day or night garments or wrapping. -
Tina337: I see my therapist twice weekly, do mld,use the daytime sleeves, compression bra and the Flexitouch! That is why I am surprised that the insurance company gets to decide that I would not benefit from the nightime compression garment. I may end up having to wait until the first of Jan. and self purchase to count towards my deductible. The DME company is about that slow anyway. The therapist is in hope the nightie sleeve and truncal compression will keep the swelling down at a more manageable level. I can agree with what I see frequently on these posts, lymphedema is not fun! Thanks for your post.
-
"physical complications of the mastectomy, including lymphedema."
The wording of this concerns me greatly for those of us who had LX...ESP with new govt healthcare coming soon.I wish we could band together somehow and have this changed to " BC surgery..>"
-
Tina, the speaker you are remembering is Dr. Joseph Feldman, who has a lymphology medical practice in Chicago, and is the chairman of LANA, which administers a test and grants the CLT-LANA credential. I remember that he said that in his view, pumps should be used when conventional treatments fail or when a patient is unable to perform MLD, i.e. someone with a disability, or bilateral arm LE where hand issues make it difficult to perform MLD on the opposite hand/arm.
-
Purple. I believe an LX is technically a partial mastectomy, and the rules are the same (at least according to my HR person. She may have meant specifically our insurance...)
-
Carol, yes, he was not a fan of the pump at all and thought they should be used as a last resort. It is nuts that insurance co's will pay for such an expensive machine and then argue over covering a night garment. Do you remember the percentage of pumps that end up unused and sit in the back of a closet? It was some crazy number.
-
Check this out to see if you qualify for sleeves/ gauntlets at reduced or free . Sponsored by lymphedivas btw!
http://toddlerplanet.wordpress.com/2011/01/05/cant-afford-lymphedema-sleeves/ -
This is a wonderful thing Purple...but it adds to my confusion because it directly says medicare does not cover the sleeves.
I have no idea why this is all so confusing....
But I am so thankful for all of your posts and information everyone!!!!!
-
Yes chrystal - check this out from a completely different website :
http://www.brightlifedirect.com/blog/does-medicare-cover-compression-garments/261/This is why I feel ALL bc pts need to go to the initial site here:
http://toddlerplanet.wordpress.com/2011/01/05/cant-afford-lymphedema-sleeves/
and follow through on signing for Congress to pass the law that makes this essential garment eligible to be paid for . It's not just medicare . With a national health care plan on the horizon, we really do not know what we may be subject to. AND, it's not just " us" . Anyone who has had ( or will have ) BC is at risk for LE.I just wish we could get more organized in this effort.
-
Bob would seem a good resource. Given that the "elderly" are the most prone to BC and the nasty side effects of treatment, it would seem that Medicare would want to address the issues in its earliest stages, before it becomes more expensive to treat. I do find it interesting that Medicare will approve treatment in the later stages when quality of life is most affected. I am helping to pass the word on Medicare's non coverge of compression garments. I was able to get them with no problem until I went on Medicare. Now sip, I may have to use Bob myself! The following gives information and the site of the Lymphedema Treatment Act. it amazes me how many health care professionals are unaware that compression garments are not covered by Medicare
Are you aware that Medicare does not cover compression garments for breast cancer patients with lymphedema? Most healthcare providers are not. As the majority of women who contract BC are older, this is a serious issue for those who endure lymph node surgery and as a result have their lymph system compromised and suffer from lymphedma. This includes 20 to 30% of women who have endured surgery for BC. If you are on Medicare this simple inexpensive method of control is not covered and must go on to more serious issues before treatment is covered. Currently there is a measure before congress to change this situation, not only for those with Medicare, but also those with primary lymphedema who do not have their needs covered. Your support of the Lymphedema Treatment Act would be most appreciated. More information can be obtained at the following website.
www.LymphedemaTreatmentAct.org
Thank you for your time and consideration in this matter. -
Thank you, M1K.
-
My health insurance covers the sleeves as Durable Medical Equipment at 80-20 in network. Unfortunately they don't have any vendors in network that carry my particular sleeve (Sigvaris 500) so I would have to go to 50-50 out of network with a $400 deductible. In other words, cheaper to buy them out of pocket and not have to put through all the paperwork it entails for virtually no reimbursement
-
Laural
Try what I did.
I had a similar situation and called some places that had compression STOCKINGS in network ( 100% )
I went there showed them my sleeve and asked if they would look into getting them.They are .
They have contacted Divas and Juzo.
Once those accts are in place, I can order my sleeves there at 100%. Of course , there is still the deductible but ...
AS FOR:garments are not covered by Medicare
I am aware of this and find it sickening. Forget LE ( just for a second ) . Do you know how many elderly wear compression garments ? I work with the elderly.Let's just say - a LOT! I personlaly believe the reason Medicare doesnt cover has nothing to do with LE. I am betting it has more to do with the FACT that SO many elderly ( cant really guess %) wear compression stockings. Medicare STINKS - trying to cheat the eldery .
I am very passionate about this because I see the elderly getting cheated all the time. The thing is , for the most part they have no voice. We get mailers from the AARP with updates on meetings etc ..and these ppl either cannot make it or else are prioritizing what they can do at this stage. As for the ' general population' (NON elderly) who would see it as a big thing that some old ladys compression stockings werent covered ? People in general do not realize the benefit of compression.
This is Medicare's dirty little secret. I am all for getting involved with anything someone can get going to help push this through.I suggest taking it from an ELDERLY stance. Perhaps contact the AARP.
Granny worked all her life and now can't get her stockings.
-
Hi Laural,
That is why it is so important that we oldies but goodies (on Medicare) check out
www.LymphedemaTreatmentAct.org and get involved in any way we can to get this Act through Congress. I was fine re compression garments until I went kicking and screaming on Medicare. As far as I am concerned this is discrimination against those who are most likely to be affected by breast cancer and its after effects! Through the above site you can get in touch with your representatives and let them know why this legislation is so important. It is a shame that Medicare covers lymphedema only after it has progressed to a more serious and expensive state. This is penny wise and pound foolish.
Take care
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team