Has anyone started a Dec 2011 group?
Comments
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Haha!!!! All this talk about my Dr last night must have caused me to "dream" (wink, wink) about him last night!!!! Bwahahahaha!!!!!!!!!!!! I had to share somewhere and facebook would not be appropriate, LOL!!!!!!!
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Is he at least hot?? LOL I can't help ya with your question. I thought I would be done with Herceptin in December (which would be one year) but since I am stage IV and it is working my MO wants to keep me on it as long as the ticker holds out!
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Lori- LOL! I missed your post somehow. Did you ever find out about when you are finished?
Kelly- are you still getting MUGAs? My last one was ok but I think I am definitely more tired the day after. I have them run mine at 45-60min after things I've read on threads here. I hope the Herceptin keeps working and doesn't cause any problems with your heart! -
markat - I get echos and I had one a week and a half ago. I assume it was ok since they pumped me up with herceptin Monday! I see my MO every other visit (every 6 weeks) so I'm not due to see her until 11/12. I feel good, tire easily but I am attributing this to my year of reduced activity. I am doing the American Cancer Society Making Strides walk this Sunday. Wish me luck that I can walk the whole thing! lol
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Good luck with the walk, Kelly. And I hope all of you only get good news with the MUGAs. I had one before chemo, but nothing since, so I just have to move on and hope all is well.
I haven't done any walks this month, but I did go to a Bingo for Boobs event at the college where I work today. I was a bit disillusioned... There was a lot of pink tchotchkes, and they raised over $200 for Strides, but that was it. Not even a passing reference to 'awareness,' or even 'get your mammograms. I had emailed the faculty advisor a week ago to offer to help or speak, but she didn't get back to me (she apologized today, saying she meant to).
I hate pink, and I hate October.
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Good luck Kelly!
I agree Rachel. It's a rough month. -
Doing a walk! I am doing good to get up out of the chair. This Arimidex is kicking my a**. Good luck to anyone who can do a walk. I hate October - it was the start of all this but pink is my favorite color.
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I hate October too....it really sucks being diagnosed during breast cancer awareness month. I "celebrated" my cancerversary last Thursday. It came and went without event. Is it just me or are there wayyyyyyy too many women with this disease? I work in a small-ish office of about 11 women. I have been there 11 years. Last week my boss was diagnosed with breast cancer and counting her that makes 6 of us over the years! It's remarkable and I am thinking maybe we need to test the water or air filtration system. Breast cancer blows!
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Hi Whatashocker, I was searching "parched" here because I'm now in the same state as you posted back in January. A week into FEC tx 1 and I feel SO dehydrated despite drinking literally gallons of water, no caffeine or alcohol, eating fruits and veggies, using Biotene mouthwash and a humidifier in my room at night. I'm wondering if a sports drink or kids' pedialite might help. Did you ever find a solution? Did it get better?
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LOL....my MO is not exactly "hot"....he's a little tiny guy but is SUPER nice.
So...I had my first "scare" this week. Saturday night, I found a lump. It was hard, like a bean. Total freak out!!!! Went to the BS on Tuesday and she sent me for an ultrasound. The ultrasound only showed a "thickening" but no mass...and it was sitting right on top of the implant. Radiologist wanted an MRI to get a better look. Had that today and got the ALL CLEAR!!! They couldn't see anything..and honestly....it feels as though the lump is getting smaller and softer. I called my PS to give them a heads up and the first thing out of my nurses mouth was, "9 times out of 10 it's fat necrosis...we see it all the time". My ovaries are stating to "wake up" and I actually had some spotting 3 weeks ago, which would have put me right in the middle of my cycle...so I'm thinking it's hormonal, right?
OH...and YES...finishing Herceptin in December...just 2 more to go!!!! Woo Hooo, girls!!! We are almost at the end of this!!! Nipple reconstruction and Last herceptin all in the same week!!! YAY!!!!!!!
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That's great news Lori!
Today's my official cancerversary...just like any other day I suppose. Hope all are doing well!
Snax- our little group is pretty quiet now. You might want to start a new topic on the Help Get me Through Treatment board. I just remember trying to drink a lot of water whenever I could. I hope treatment passes by quickly for you and take care! Hugs.
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Lori - Glad you made it through your first scare, and that everything is fine. And congrats on nearing the end of the Herceptin and the impending nipple construction. I'm still holding out on that part.
Markat - Happy cancerversary! Enjoy each milestone.
Snax - Good luck as you continue your treatments.
I hope everyone on the East Coast made it through the storm okay. I was without power for a week, and without TV/phone/Internet for about 9 days, but that was it. I just went through my latest scare - alkaline phosphatase levels were high when I went for my check-up two weeks ago. Bone scan is fine, phew. Having an ultrasound to check out my liver on Mon. It could be a lot of things, so I'm a little relieved now that the bone scan came back okay.
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Rachel so sorry about the storm and scans! I had to have a liver ultrasound last week. It was clear. I was having pain and was concerned about gallbladder or fatty liver. Who knows what it is... How often do you get bloodwork? Since I'm still getting herceptin I still see the onc every 3 weeks but bw is every other visit now. I'm waiting on nips too. I start a little part time job at a school in December so I don't want to have to get any anesthesia if I don't have to. I'm finally starting to feel better, kwim?
Mardi- are you still on track for a spring DIEP?
Kelly- hope the walk was fun! -
I go once every 3 months, with bw each time. Kind of odd when you get to a point when you think "Hmmm, fatty liver, I can deal with that." Better than the alternative. Maybe that will finally get me on a decent diet again. I've improved - more fresh vegetables and home-made meals instead of frozen TV dinners, but I love sugar and chocolate too much, and if it's around, I binge. Good luck with the new job!
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Thanks Rachel. The diet thing is hard. Especially if you're tired. Convenience foods/fast foods are so much easier, but stupid, lol. I've got to get my butt in gear. I was doing really good after chemo and before the BMX and tamoxifen, but now I'm just a slug. I think I miss my estrogen. I can't believe we've all been going through this for a year!
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Hi ladies! Glad to see a little activity here. Lori - glad your scare turned out to be nothing! Congrats on nearing the end of Herceptin and on your impending nips!
Markat - the walk was both miserable and awesome! It rained all morning and was only about 47 degrees...but I had my family with me and we were dressed in our BC best. We walked the whole 3.1 miles and it was so awesome to see the turnout and the people who came just to cheer us along the route. Definitely glad I didn't bail like I wanted to when I woke up and saw what the weather was like. My team was able to raise $1,200 too!
Rachel - glad you made it through the storm without damage, although it sucks being without electricity!
I've had a really rough year between breast cancer, losing my mom and now worrying about some health issues with my dad. I try most of the time to be the strong person everyone is used to me being. Today I saw my MO for my regular visit and Herceptin and I totally lost it! As soon as I started talking the tears just started. For starters my blood pressure was 174/103 (this after starting blood pressure meds for the first time in my life 6 weeks ago). I know I suffer from some white coat syndrome but come on! I believe I suffer from anxiety now. I am having a hard time accepting that my stage IV cancer is in "remission" as she calls it. Of course I want to believe this. I am usually a very positive person. To top it all off I have been having heart palpitations....not good when your mom just died of a massive heart attack. MO explained that even though it's not listed in the literature, heart palpitations seem to be a side effect of Herceptin. She has many patients who complain of them and she assured me they are harmless. My ejection fraction has not changed. This is good since her recommendation is that I stay on Herceptin instead of stopping at the one year mark.
Didn't mean to ramble like that....just having a rough day. I do feel better after talking to my MO. She reassured me about the heart, changed my blood pressure meds and told me again how great I am doing and that I am in "remission". So Ativan, here I come again. I hope all of you are having wonderful days. Thanks for letting me unload.
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So happy to hear you are in remission, Kelly!!! Stay on the Herceptin!!!!!!! I'm so glad you mentioned heart palpitations!!! I swear, my heart feels like it is goin to beat out of my chest sometimes....like it did when I was pregnant.
Take the meds!!!! I had a few date nights with Xanax this past week myself!!! We have all been through so much and honestly...I think we are all probably at that point emotionally where it's starting to hit us. It is crazy what we have been through this last year. We need to unload all of the emotions...the good, the bad, the ugly!!!
Hope everyone has a great week!!!!!!!
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Yes Lori, we have all been through the wringer. I'm actually happy to stay on the Herceptin, it feels like my security blanket even more than the Tamoxifen. Interestingly my MO mentioned also that Tamoxifen can cause some anxiety/depression. I am looking forward to my little Ativan pill again, maybe I'll finally get some sleep!
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Kelly- so glad the walk was good for you! I'm so sorry about the rough year. Too much at once. The blood pressure would freak me out too. Mine has shot up in the last couple of months, but still under the high category. I'm glad your heart tests have been good and that you can stay on the H. Tamoxifen has messed with my emotions too. We all unload and rant and rave. Here is the safe place to do that!
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Thanks ladies, I know I can always count on support here. My DH is great, but no one understands like you do
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Thanks Markat. Good idea.
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Kelly - You've really had so many other things to deal with this year on top of BC, you have every right to be upset and stressed from time to time. And it's good that you seem to be able to reign it in as well. Sounds like your MO has a good attitude.
I'm stressing now about my liver US. When the bone scan came back okay, I decided it must just be, at worst, a fatty liver, but now I'm having trouble pushing the negative thoughts back. And I keep reading about how when TN comes back as Stage IV, it's like wildfire, so I'm trying not to lose it. I just keep trying to stay busy. Tomorrow and the results will come soon enough.
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Rachel, I hope you can try and get some rest tonight. How was your ultrasound. Did she take any measurments? Any arrows pointing towards anything?
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Yeah, little arrows whenever she hit the little button. Made me nervous. I had been fine until that. I didn't notice any measurements.
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Did they check your gallbladder? I'm sending you good thoughts. I thought it was a decent sign that my Onc didn't call the night of the test. But every doctor is different.
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This is the first step. I've heard a number of women who had gallbladder issues, so I'm hoping it's that, or I'll even take a fatty liver at this point.
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Thinking of you Rachel. I know just how hard it is to keep a positive outlook but try to do just that. I think the arrows and measurements are quite normal, they measure everything when it's normal too. Sending positive thoughts your way....keep us posted. Thank you for the kind words too....I am feeling a little better today. You ladies are all awesome!
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True Kelly! I Just remember that breast ultrasound where looking back on it, it was pretty darn obvious, lol.
Have you called yet Rachel? -
Rachel....just thinking about you!!! I have been checking all evening to see if you have posted anything yet!!!!!
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Thanks, ladies. Nothing yet. I called around 4:30 and was told the nurse or doctor wouldn't be able to get back to me today. Urgh. Trying not to read into that. Hoping I hear first thing tomorrow.
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