2011 Sisters

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  • TinaT
    TinaT Member Posts: 2,300
    edited November 2011

    Merlinda - Hi, I'm glad you're halfway through.....that's like the glass is half full, right?  Wink  I hear you on the long travels - I've made at least two dozen trips to my PS this year (125 miles away).  I had post-MX surgical healing problems.  If I knew then what I know now I'd still do the traveling.  I hope you feel the same!

    There's a pretty active Arimidex thread here.  I hope you'll check it out when the time comes.  I started in April.  I've had some side effects, but I'm sticking it out and hope to make the full five years.

    Hang in there!!!

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited March 2012

    Hi 2011 ladies....................On March 15th it will be one year since my surgery................seems like just yesterday......................wishing, and hoping, and hoping and praying, for another year..................that is the only way we can do it....................1 at a time...............

    I've been on Femara since July 2011........hesitated, but did it..........doing ok, nothing I can't handle.....somedays are tough, but I get through them ok..............once I get all wheels moving I'm good................

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  • odie16
    odie16 Member Posts: 1,882
    edited March 2012

    Congrats Ducky!!!!

    Wishing you many more cancerversaries.... Sounds like it is time for a red solo cup party!!!

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  • TinaT
    TinaT Member Posts: 2,300
    edited March 2012

    duckyb1 - Congratulations!  So many bittersweet anniversaries now...unfortunate and sad, but we're still here so TAKE THAT BC!!!!!

    It's been an up and down year for me (as expected), but I'm doing really well overall.  Some days it seems a bit hard to "move on" when dealing with hormone therapy, upcoming tests for lumps, and some minor revision surgery.  But, I try to take it one step at a time and that seems to work for me. 

    Hope all the 2011 sisters are doing OK.   

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited March 2012

    Thanks Odiel.................................Red Solo cup raised.................yowza.

    Tina........Hang in there, that is all we can do..............take each day one at a time.......I always say "when I wake up in the morning, I never know how the day will end"......so we have to embrace the good times..................as few as they; can be...............the hormone therapy, is not a walk in the park........................it has its bad days, but like you said "TAKE THAT BC"

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  • jnbg88
    jnbg88 Member Posts: 9
    edited May 2012

    Hi ladies. I'm new to posting....wanted to say thank you for the encouraging words so many of you seem to share. I was dx on November 29th of 2011, so I'm a late arriver to the 2011 group. Going through surgery, chemo and radiation is just starting. Good luck to all of you

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  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited May 2012

    Hello, Ladies -

    Guess I'm a 2011 sister, too...

    Dx'd on September 15th, 2011; had my BMX w/TEs on December 5th, 2011.

    Got my final fills (620ccs) in March of this year, but have delayed exchange until Fall, so I can lose some weight first.

    Since I'm on a medically-supervised liquid diet, my MO gave me a pass on starting the Arimidex - don't have to start til sometime in September. WooHOO!

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  • midnight1327
    midnight1327 Member Posts: 1,475
    edited May 2012

    hi there, i am a 2011 sista as well. DX 12 Aug IDC grade 3 stage 1A. i have just had follow up mamogram after rads and surgery  six months ago, mamo was on 18th this month, still waiting for results, have not been asked to go back for repeat ones, so i am taking it as been clear, quite nervous in the waiting, i may ring, but i am a big chicken at doing so. its been a week, but they had to compare from the first mamo and also they had to sent from one to place to another ie, hospital did it this time, last time it was breast screaning on other side of town. so will give them a couple more days if not heard tomorrow. so hope everybody is as well as can be.  take care ladies

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  • w6uqfcgomeo
    w6uqfcgomeo Member Posts: 31
    edited November 2012

    Hi Everyone:  I am a 2011 sister and would like to make friends with other 2011 sisters.

    Please post and let me know more about you.  Mary

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited November 2012

    Hello all not sure if this is still an active topic but I wanted to chime in.  I was dx in March 2011, started out as a stage 0-1 came out of surgery a 3c. BUMMER!! I do not know if I am IDC or IBC or IDCS?  I think I recall asking my onc but he didn't really answer me, I think he kinda shrugged his shoulders like it doesn't really matter at this point.  I love my onc he is a great guy but I will ask him again when I see him in january.  It started in my ducts and broke out and headed to the lymph nodes. Anyway, here I am a year or so later. I have had double mx with reconstruction, I am not sure I like the implants they are not very comfy and I miss my natural girls!! 

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  • auntienance
    auntienance Member Posts: 4,216
    edited November 2012

    Cheryl, when you see your mo, ask for a copy of your pathology report. It has all of that info in it and it's good to have a copy for many reasons. Best wishes to you.

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited November 2012

    I don't know if I want a copy I will just end up obssessing over it.  My onc is a straight shooter who will not sugar coat anything so I will see him every 3 months and just hope for the best.  

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited November 2012

    W6u.....I was diagnosed in Feb. 2011. Welcome, sorry your here, but these ladies are the best. Check out other areas. I do have my favorites. Your about to meet a great bunch of ladies. Again, welcome.

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  • odie16
    odie16 Member Posts: 1,882
    edited November 2012

    I was dx July 2011, had bmx in Sept and exchange in November 2011... One year into the Tamoxifen tour and doing well... Does seem the whole thing was surreal or a brief nightmare.........

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited November 2012

    Oldie good seeing you. Started o Femara, but fell in the "gap"and the cost went up to $1500. For a 3 months supply. Now on Letrozole. Hate taking this crap. Aches, pains. Oh we'll,we do what we have to. All the AI'scause problems. On it about 18 months. Just want QOL. Like that's gonna happen. ........hugs.

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  • NancyHB
    NancyHB Member Posts: 1,512
    edited June 2013

    Wanted to bump up this thread in the hopes that 2011 sisters would join in and share what's going on now, a couple of years later.  How is everyone?

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  • TinaT
    TinaT Member Posts: 2,300
    edited June 2013

    Nancy - I just passed the 2 year mark on Arimidex and it's been a bit rougher than I would have imagined with the side effects.  Mostly joint pain and stiffness.  I am now officially osteoporotic and just started Fosamax and physical therapy.  I also just had revision of my bilateral reconstruction so once again in healing mode (third surgery since diagnosis).

    However, overall I consider myself very lucky to have been diagnosed early and to have a great medical team helping me through.  I like to say that it's been a terrible and amazing experience.

    How are YOU?

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  • odie16
    odie16 Member Posts: 1,882
    edited June 2013

    A year and a half out and doing well. I consider the experience a bad dream short lived. Still taking Tamoxifen but am exercising daily so I am stronger than ever.



    How are you Nancy?

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  • lifelover
    lifelover Member Posts: 553
    edited June 2013

    Hi Nancy, Tina and Odie,

    I've been on tamoxifen for about a year and 8 months now.  I have lots of hot flashes and have gained about 20 lbs.  I was keeping a good weight until I became injured at the gym.  I will take if off eventually - had to give up gym though.

    I decided not to have any more breast surgery to fix reconstruction and I also can't be bothered with getting tattoos.  The feeling is returning in both my breasts - pretty exciting - thought it would never come back.

    I accept myself now.  Just the way I am.  My life is a lot slower.  Won't and can't work long hours.

    And I'm healthy. No evidence of disease :)

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  • NancyHB
    NancyHB Member Posts: 1,512
    edited July 2013

    Good morning!  So glad to "see" you around again!

    I think life is finally settling down to "normal" (whatever the hell that is anymore!)  I'll be celebrating my first birthday in about three weeks, on the anniversary of my final rad and the day I was told I was NED.  Finished grad school in April (still looking for a job though!).  Tried Tamoxifen, then Aromasin, then went BACK to Tamoxifen, then gave them all up.  SEs were too much, I opted for QOL instead.  Back to running intermittently; yoga-ing when time permits.  Helping my son as he prepares for his kidney transplant (my daughter is the donor).  Spending time with my grandbabies.  Helping my parents as they transition into later life and dealing with health issues.  In some ways cancer has become a part of my past and I almost forget from time to time.  It's nice to be on "this" side of the journey, though I now worry with little twinges and pains about "what might be." 

    So grateful for every morning.  If nothing else this battle has really reinforced my desire to enjoy my life.

    {hugs} to you all!!

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  • Kayce234
    Kayce234 Member Posts: 249
    edited August 2013

    Hi All - I'm a 2011 Sister and happy I found you.  I'm a little over 1 1/2yrs out and currently dealing with some hip pain.  I spoke with the oncology nurse inquiring if it might be from the Tamoxifen - have heard joint pain can be symptom and have had pain in joints that have had injuries and that the tamox can also cause bursitis.  I'm going to my orthopedic surgeon on the 26th to have it checked out and praying it's the bursitis and not mets.  Other than that I'm doing pretty well.  Amazed that my "hole" is still painful from the surgery, but he had to go into the muscle so I guess it's normal!

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