Calling all TNs

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  • mags20487
    mags20487 Member Posts: 1,591
    edited November 2012

    Well leftie did not make it. The flap has failed and must b removed today. Doc says we can try again in three months...sad turn of events but what are ya gonna do



    Maggie

  • belleeast
    belleeast Member Posts: 653
    edited November 2012

    aww,Maggie,that just sucks!!!!! you have had a hard time,were they able to do anything about the le? stay strong!!!

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012

    Maggie darling, we are all thinking of you

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012

    One day while jogging, a middle-aged man noticed a tennis ball lying 
    by the side of the walk. 
    Being fairly new and in good condition, he picked the ball up, put it
    in his pocket and proceeded on his way. 
    Waiting at the cross street for the light to change, he noticed a 
    beautiful blond standing next to him smiling. 
    "What do you have in your pocket?", she asked. 
    "Tennis ball,? the man said smiling back. 
    "Wow," said the blond looking upset. "That must hurt. I once had 
    tennis elbow and the pain was unbearable!"  

  • EnglishRose75
    EnglishRose75 Member Posts: 147
    edited November 2012

    Melissa and Tooky--congrats on getting to the end of chemo!

    Luv--thinking of you and your family.  You are such a source of wisdom and comfort on this thread.

    OBXK--hoping the chemo is beating those mets in to submission.

  • txjunebug
    txjunebug Member Posts: 212
    edited November 2012

    Maggie - sorry to hear about the flap. That stinks!!! Thoughts and prayers to you!!

    Got my port installed today.  Wasn't as bad as I imagined.

    Hugs to everyone



  • whaevah
    whaevah Member Posts: 354
    edited November 2012

     Inmate Saw your post about dreaming and wow...what timing for me. I just started dreaming again , like 3 nights ago. Just had this conversation with DH, chemo really messed with my mind for sure.

    I always was a dreamer, and like you really enjoyed them for the most parts. Of course BC sent a few doozies but then once I started DDAC, they stopped. I just finished #10/12 Taxol and the dreams started again. I too found it weird not to dream at all.

    Best wishes for cool dreams again. Smile

    ETA: LUV, sending healing energy waves your way , I always appreciated your responses

  • melissa119
    melissa119 Member Posts: 172
    edited November 2012

    Ok! So officially done with chemo! And now onto follow-ups every 3 months. There's where the anxiety comes in. But for now I am going to enjoy the holidays and my birthday in January!! First follow up in February.

    Hope you are all having the best day you can have!! Thinking of you all. Anyone bravo g this nor'easter hope all is well and it is nothing like sandy! They was horrible. My parents have a place at the jersey shore that they cannot even get to yet. So sad. My kids are debated. But we will rebuild and it will be even better.

    Have a great night!... When can I have a little celebration drink!! Lol

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited November 2012

    Hello Ladies, I don't post often but do keep up on the thread.  I'm so sorry to hear of Luv's spread but think radiation will zap them into oblivion.  I do think and pray for everyone everyday.

    Got my BRCA test results back today, turns out I'm BRCA1 positive, on to more surgery.  A little pissed off at the world right now and scared of the double mx - afraid I won't be able to get reconstruction since righty was radiated after lx. 

    Hope everyone is doing well, it sucks that you have to be here but Welcome to all the new ladies, your in a wonderful support group.  I wouldn't have made it thru without these ladies and congrats to the ladies finishing up chemo, life will slowly start to get back to normal.

  • moe0279
    moe0279 Member Posts: 200
    edited November 2012

    Luah, Thanks My scans were yesterday..I had a breast MRI...wow so uncomfortable..lol, but very greatful that my Dr. understands my worries and considers them!  I also had the x-ray, but the dr. did not see anything with that...we are waiting on the official reports from the radiologist..I wonder if i should ask for more or should i go to a general dr. for my hip? Dr. thinks it just joint pain..arthritis...he did tell me to take advil.. I'm eager to hear results, and relieved that I had the opportunitiy to have these scans...

    Luv---praying..praying...praying..

  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    Moe - hope the radiologist concurs!

    Have you had chemo? Like rada it is the gift that keeps on giving. So sorry you are worried about your hip. I hope the Advil helps. Have you had a bone scan?



    Heather - knowledge is power! I know it may not seem like that now, but those deadly gyn cancers, don't make themselves known, until it's way too late. We're all here to hold your hand, make you laugh and let you cry.



    Melissa - hugs from hurricane alley. I feel your pain. I hope your parents shore home, dodged the bullet. Waiting is so hard! Raising a bottle of water to toast the end of your chemo!



    Bernie - love it!

    -----

    Free to good home - a pair of C cup Knockers and 6 40c bras. I only wore them twice - I'd rather be a flat top.

    So far, this treatment is not as bad as the last. Today was gemzar only.



    Hugs all around...









  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited November 2012

    Heather - so sorry you have to endure more surgery but I am sending hope that this will keep you safe from further trouble.

    OBXK - hoping your treatment knocks out the mets for good!

    Dawn - thinking about you and sending hugs!

    Stay warm and safe, ladies!

  • Hopex3
    Hopex3 Member Posts: 397
    edited November 2012

    Melissa...Congratulations on being done with chemo! And if your up to it, have that celebration drink!



    Mags, I'm so sorry about your flap. Be strong and hang in there!



    Txjunebug, glad your port was successful. I forget I even have mine.



    Obxk..glad your treatment went well. I know someone from my home town that is on Gemzar and is having great success with it. I pray you do too.



    I've been so tired this week but I'm not going to let the little f er get me!



    Sweet dreams,



    Erin

  • JAN69
    JAN69 Member Posts: 947
    edited November 2012

    Karen - I'm with you --- I'm totally flat on top, but have a muffin top middle.  Glad you are able to tolerate your new chemo tx.

    Luv - Good to hear from you today.  Hope your rads aren't too rough on you.

    I had an other 3 month check with MO today.  Found out I'm 1% Estrogen positive!  Never was told.  MO says 1% is same as 0.  Anyone told differently?  She also tried to talk me out of taking Metformin.  Not sure where I stand. 

    Special warm thoughts for those in path of the nor'easter.  Jan

  • journey4life
    journey4life Member Posts: 517
    edited November 2012

    Heather - I'm sorry you're BRCA1+. It definitely changes your tx options. I agree with Karen - its better that you know so you can do everything possible to prevent recurrence and ovarian cancer. I can honestly say I know how you feel. The day the MO called me, I fell apart. But I'm giving it all I got and hope its enough. We're all here to help you through this.

    Mags - thinking of you and sending you healing vibes for a quick recovery. Sorry the leftie didn't make it. Another reality of BC that most people don't know.

    Luv - good to see you!

    Karen - keep kickin' cancer's ass!

    To everyone new - sorry to see you here but glad you found us.

    And finally to all - thanks for helping me get this far. This is the time for cancerversaries and I don't know what I would've done if I hadn't found such a wonderful group of ladies. ((((Hugs to you all))))

  • minxie
    minxie Member Posts: 484
    edited November 2012

    Hi all, been awhile since I posted though I've been checking in on you all. Inmate, I hope you are feeling better - I think about you a lot. OBXK and LuvRVing, I am so sorry to hear of the mets, you are both in my thoughts as well - stay strong.

    Me, no real BC news - I'm in limbo as I can't reconstruct my half-boob until next year. I occasionally have the usual recurrence anxieties, but I've been so busy I can't spend much time on them. My main issue is that my job has been making me utterly miserable and horribly stressed out, and we know stress leads to cancer... but I'm the primary breadwinner and if I up and quit I don't think we can stay afloat. I feel like my job has not been at all sympathetic to my situation... I've had BC not once but twice, I have lots of doctor appointments, I have kids, they get sick... and work fights me tooth and nail about every hour I miss. Not sure if I'm asking for "special" treatment or not, but I feel like I deserve... something? Some compassion, sympathy, understanding because of what I've been through? Anyone else ever feel this way, that you were... owed?

  • bak94
    bak94 Member Posts: 1,846
    edited November 2012

    I am kinda embarrassed to post here again:) My emotions were crazy after my hysterectomy, and I think I had just had it with cancer, just angry with everything and all the crap we all have to go through. Also, the pain medicines I was on were really making me crabby. It was not right for me to take it out on the women of one of my favorite threads. I so appreciate all the warm messages.

    I am so sorry to hear of the new struggles many are enduring, and of the ongoing ones. I just don't get it, and never will. Cancer and illness just breaks my heart.

    On a lighter note, I just love all the pictures of all the dogs! I will have to post one. I will also have to post a picture of my chicken that likes to give the "stink eye".

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited November 2012

    Bak - I'm glad to see you posting again. Sorry your having issues with th hysterectomy. I dont know what was said but was sad to hear you were leaving.

    Having just tested positive for BRCA 1 I'm feeling pretty bitter and pissed off that I have to have my ovaries out and a double Mx. Guess that means I have to finally give up the hope of having kids. Although I'm 42 I still wasn't facing it. Now I'm mad I have to go thru surgeries again and now its a new job and they are so much more strick on hours and crap!



    Minxie it would be nice if people understood but the only way to make that happen is to have them go they the experience and that would be awful.



    I'll have to post my favorite pics of my dogs. One is currently dreaming and barking up a storm.

  • journey4life
    journey4life Member Posts: 517
    edited November 2012

    bak - so glad you're back! Hun, most of us have those days when we're so sick and tired of where we are and what we're doing that it only takes one thing to make us explode. I recently had that kind of day when I went to MO for 3-month check up. It wasn't pretty...I imploded and the appt was a nightmare. Don't be embarrassed - we're all in this together!

    minxie - its great to see you. I know how you feel. Although I don't hear it, I get the questions like "where are you with this project?" "how much longer will it take to get this done?" Just that underlying hint of "you're not doing your job satisfactorily." I want to scream out - "I'm fighting for my life...I've worked here through surgery, chemo and radiation...how dare you question my performance!" Of course I don't say that...I plod along and do the best I can. I think I'm due a little compassion...maybe an atta-boy. I doubt I get it though...

    Gotta get to work. Enjoy the day to the fullest! hugs to all

  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    Minxie and Journey - I don't know how you have worked through treatment. I'm so sorry your companies haven't at least cut you a little slack.

    I think a lot of people have trouble with illness - some even see it as a weakness worse are the ones who are jealous of the attention you may get.

    I hope the Universe puts some more evolved and empathetic people along your path soon.

    In the mean time, for what it's worth - ladies you rock!!!!



    Bak - I recently had a day when I strongly suggested to my beloved husband, that he limit his answers to me as Yes, Mam. The week before, I licked the paint off a stupid bank teller. We get it - no shame or blame here. Hope you are feeling better.

    ----

    I'm feeling pretty good this morning!!!

  • EnglishRose75
    EnglishRose75 Member Posts: 147
    edited November 2012

    Sorry if this is a daft question, but what are the implications on having an mx followed by reconstruction if you've previously had a lumpectomy followed by radiation?  Does it make it out of the question, or does it just limit the options?

    Karen--Yes, ma'am--love it!  Last weekend, when I was feeling crappy from the Taxotere, I yelled at my husband for looking at me the wrong way!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Too many posts to respond to all but (((((gentle hugs)))))) to you all.

    Some of you are going through so much more, puts my feeling shitty from rads into perspective.   Thanks ladies, you are such an inspiration.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012
  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited November 2012

    English Rose - no such thing as a daft  question where BC is concerned.  I had a LX then had BMX with TEs.  You should talk to a good PS about your options.  

  • mags20487
    mags20487 Member Posts: 1,591
    edited November 2012

    mccrimmon--I had bmx last year followed by rads and am just in the recon process...the flap that failed was my rads side but doc said she thought it would b the other one that would not make it.  Failure is rare being radiated or not.  So make sure take you time and talk about the options.  NOLA has the best experts anywhere!  they can make things happen that are not possibily anywhere.  They also worked well with my sucky insurance.  I am truly sorry for your pain right now

    Maggie

  • TifJ
    TifJ Member Posts: 1,568
    edited November 2012

    Bak- I am so happy to "see" you again!! We are all entitled to bad days where our mouths have a mind of their own!! I also don't know what happened to make you leave, but it doesn't matter because your back!!!

    Karen-Glad to hear the Gemzar is being kind to you!

    Michelle- You amaze me. Here you doing WBR and you are still  posting encouraging words to all. I send good thoughts to you everyday!

  • EnglishRose75
    EnglishRose75 Member Posts: 147
    edited November 2012

    Thank you, Luv. I will get the genetic testing done after radiation in January, and am already thinking about what I will do if the tests return positive.  Everything off and out probably.

    I forgot to say earlier that yesterday my team at work told me that they have all registered to do the "Moonwalk" in London next May to raise money for breast cancer research.  I don't know if it's an international thing, but it's walking 26 miles over night. Needless-to-say, I burst in to tears when they told me (not good when one's chemo face is painted on with soft kohl pencil!).  I'll join them obviously.  After this chemo is done, better get training.  My feet feel sore just thinking about it.

    Thank you everyone on this forum for just being so wise, caring and supportive.  I can't tell you how much of a comfort this group is to me.

  • NavyMom
    NavyMom Member Posts: 1,099
    edited November 2012

    Hello everyone.

    Bak, welcome back!  Glad to see you post. 

    Mcrimm, Sending a hug your way. Cancer takes so much....I hate it.

    Well, ladies, I have good news.  My PET came back clean, and CA27-29 levels are normal.  Big breath for me.  Hip still hurts so going for a few xrays and some physical therapy.  A HUGE thank you to all for your kind support while I endured the waiting.....Love to all of you.  So glad you are here to help keep my sanity.

    In a hurry today, will try to post again later

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited November 2012

    Hello bak94

    I was so glad to see you posting again and I hope that what I said to you somehow helped.

    Please pop in to say hello to your UK friends when you can.

    Keep well and happy.

    Best wishes.

    Sylvia xxxx

     

    Hello mccrimmon324 (Heather)

    I was sorry to hear that you have tested positive for BRCA1 but it was a good thing that you decided to get tested. At least now you can do whatever is needed to make everything safer for you. I hope you are well settled back in Pennsylvania.

    Think of you often.

    Best wishes.

    Sylvia xxxx

     

    Hello adagio

    Thank you for your PM. I hope you read the detailed post I wrote for you on my own thread. Please do not be afraid of treatment.

    Best wishes.

    Sylvia xxxx

     

    I just want to send best wishes from the UK to everyone at whatever stage of their treatment. You can get through this.

    Sylvia

  • txjunebug
    txjunebug Member Posts: 212
    edited November 2012

    That's wonderful news Navymom!!!!!

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