Calling all TNs

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  • Hopex3
    Hopex3 Member Posts: 397
    edited November 2012

    Hi Inmate, I've had four treatments of AC now, waiting to start Taxol in a week and Yes, I have been dreaming. Not every night as I really don' t sleep that well. But I have had a few of them.

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited November 2012

    Hi Inmate, glad to see you post.  I have had very vivid dreams/nightmares my entire life.  I honestly can't remember if I dreamt or not during chemo....Maybe I didn't, since I felt like I never slept well thanks to the steroids. 

    Inmate, do you miss dreaming?   My usual dream theme is that of disasters.....tornados, cruise ship sinking, large bridges collapsing and the like.  Not sure why...might not wanna know!!

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited November 2012

    navymom.......yours sound more like nightmares than dreams.  i do miss dreaming.  it's like a little escape.  i used to dream that i could fly.  the dreams were always so peaceful and exhilarating.  i do miss those ones for sure!  

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  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    Hello ladies,

    Chemo sucks!!!!!!!!! still in the mental adjustment phase. I have to go back Wed.



    Tomorrow #1 son turns 18. I hope to see him for 10 minutes - seems he's always on the move.



    Inmate - I still dream. I'd be so sorry if I didn't. I love my dream world. I'm also a lucid dreamer - which is just magical.



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  • NavyMom
    NavyMom Member Posts: 1,099
    edited November 2012

    (((OBXK)))  hang in there, girl.  Happy Bday to your young man.  I remember those days when it seemed they only came home to eat and sleep!

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012

    Our story begins at the Olympics, specifically the wrestling event. It 
    is narrowed down to the Russian or the American for the gold medal. 
    Before the final match, the American wrestler's trainer came to him 
    and said, "Now don't forget all the research we've done on this 
    Russian. He's never lost a match because of this "pretzel" hold he 
    has. Whatever you do, don't let him get you in this hold! If he does,
    you're finished!" 
    The wrestler nodded in agreement. Now, to the match: The American and 
    the Russian circled each other several times looking for an opening. 
    All of a sudden the Russian lunged forward, grabbing the American and 
    wrapping him up in the dreaded pretzel hold! 
    A sigh of disappointment went up from the crowd, and the trainer 
    buried his face in his hands for he knew all was lost. He couldn't 
    watch the ending. 
    Suddenly there was a horrible scream, and a resounding cheer from the 
    crowd. The trainer raised his eye just in time to see the Russian 
    flying up in the air. The Russian's back hit the mat with a thud, and
    the American weakly collapsed on top of him, getting the pin and 
    winning the match. 
    The trainer was astounded! When he finally got the American wrestler 
    alone, he asks, "How did you ever get out of that hold? No one has 
    ever done it before!" 
    The wrestler answered, "Well, I was ready to give up when he got me in 
    that hold, but at the last moment, I opened my eyes and saw this pair 
    of balls right in front of my face. I thought I had nothing to lose, 
    so with my last ounce of strength I stretched out my neck and bit 
    those babies just as hard as I could. You'd be amazed how strong you 
    get when you bite your own balls!"

     

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  • Tlym
    Tlym Member Posts: 115
    edited November 2012

    Ruth-Annie might be right. My MIL had trigeminal neuralgia and the pain was just debilitating. Does it get worse for you when in cold windy weather? Hers was controlled with tegretol (carbamezapine). Hope this helps.

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  • Luah
    Luah Member Posts: 1,541
    edited November 2012

    OBXK: My MIL used to call my husband, at age 18, "Roger the Lodger," but he's a very devoted son now - lol. I have 2 sons a little older than yours so I recall those times. #1 has moved out now, and #2 is 3000 km away at school. Miss them both. Enjoy the short, special moments.

    Ruth: So sorry to hear about your pain... that sounds awful. Throats are really tricky things and I have heard of several cases where conditions -- and there are so many of them don't assume the worst-- were tough to diagnose. Hope you can hang in there, be persistent and get some answers from a throat specialist. 

    Moe: Congrats on your milestone. Hope your hip pain is just normal aches and pains and can be alleviated somehow. Xrays see some things, MRIs and bone scans see others. When I had back pain, my GP ordered a bone scan, so you might ask about that if the Xray is inconclusive.  

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  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited November 2012

    Reality & Ruth - I just had some scans done about 4 months after end of treatments.   Just had to know for sure FC was gone.  Have some peace of mind now although insurance came back saying they won't pay for PET, only CT so don't know how I'm going to pay.   I also got rid of my port which I had a love/hate relationship.  I got a collapsed lung when it was put in when BS nicked my lung - that was horrible having a lung tube put in, but I liked having it during the chemos and blood draws.  Ruth, mouth/teeth pain is the worst.  I just went through some horrible pain for a week until I had a root canal done.  I hope they find the source soon so you get some relief.  I agree that you shouldn't assume the worst.

    NavyMom - good luck on PET tomorrow!

    Titan - I had the same symptoms before diagnosis - lost a lot of weight and hair falling out - and also thought it was peri-menopause symptoms.  Also had a lot of stress in my life: lost my good-paying job after 12 years with same co; had hostile takeover (by some new board members) of my president position with the humane society after 9 years and opening a low-cost spay/neuter clinic which took me 2 years to open and ran it for first 3 years on volunteer basis; lost one of my cats to fast growing cancer, and had a new job where the manager would yell at me in front of co-workers and I would HATE going in (and coming home crying).

    Born - glad you have moved on from the insensitive co-worker - definitely not worth your time.  Let us know about the mammo.  I had my first follow-up mammo last month and it was all clear, but I hurt for many days because I had a lumpectomy and it was very painful with all the pulling and squishing of my tiny foob.   I would think they would have to do an MRI for yours with BMX.

    Mags - WOW, what a long surgery and you are already walking!  Glad you like the new look.

    Dawn - Thanks for checking in with us.  Think of you often.  I also have "bad" dreams usually and don't sleep well.  I don't remember if I had them during chemo, but wouldn't miss them.  I was on so many drugs, I think I usually slept better except the first night when on steriods.

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  • Babs37
    Babs37 Member Posts: 455
    edited November 2012

    Hello ladies. This was just posted on the stage IV forum about our friend LuvRving.....

    This was just posted in the What's For Dinner thread. Thought everyone here would like to know.

    ==

    Hi ladies.  My mom isLuvRVing. I know she posts here often and many of you think of her as a friend and BC fighting sister.  I wanted to let you know that she's been having some trouble focusing and typing the last few days.  She's at Dana Farber right now for testing.  Of course they'll be looking for those ugly scary brain mets, but we're fairly confident and hopeful that this is just "chemo brain" caused by the clinical trial drug.  Either way, she could use your love, support and good wishes.  I'm sure she'd love to see your comments here or on her blog so don't hold back and send your thoughts her way.  Thanks ladies!  Good luck and love to all of you!

    ==

    *susan*

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  • Tookybum
    Tookybum Member Posts: 38
    edited November 2012

    To all my TNBC sisters; I hope your aches and pains go away.  I hope you all have happy dreams (note to self don't watch Walking Dead before I go to sleep).  To everyone that has been so supportive of the rants and tears.  For all those big shoulders out there...Thank you.  I graduate tomorrow!  My last (hopefully forever) Taxol.  I made it.  In no small part to everyone out there.  Those who told I could do it.  Mostly excited to get my PICC line out so I can use the Saran wrap for food storage and not a shower implement. Oh and my hair has started to grow back.  Big stubbly head but its coming!

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  • belleeast
    belleeast Member Posts: 653
    edited November 2012

    bernie,hilarious,thanks for the laugh!

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited November 2012

    Babs, thanks for forwarding that post to our TN thread.  Please do so again if you should get further updates.  Special prayers for friend Luv.  Cancer sucks.

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  • Titan
    Titan Member Posts: 2,956
    edited November 2012

    Good for you Tooky!  Glad to hear that the dang chemo is over for you...good stuff!!!

    Thanks for the info on Luv also Babs...I was wondering why we hadn't heard from her...

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  • LovinMyMom
    LovinMyMom Member Posts: 34
    edited November 2012

    I can't believe I have to post this ladies, but my mom, LuvRVing (Michelle) has brain mets.  They are small but theyare numerous.  She is starting whole brain radiation tomorrow.  I don't know when she'll be able to post again but I know she'll be reading your threads so please wish, hope, pray...whatever you've got.  We really need it all.  

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  • DorMac
    DorMac Member Posts: 155
    edited November 2012

    LovinMyMom - We love her too! She has always been such a great help and comfort to us here and I am very saddened to hear of her diagnosis. I am sending her great {{{{ BIG HUGS }}}} that the radiation will do it's job completely and that it will be easy on her at the same time. Please give her all my love and best wishes! You will all be in my prayers!

    Doreen 

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  • JAN69
    JAN69 Member Posts: 947
    edited November 2012

    Luv - My  heart is breaking that you have to endure more radiation.  You have been such a helpful person for me while I have come to terms with my own diagnosis and treatment.  It seems you have passed your thoughtful quality on to your daughter who posted here today.  Blessings to you and your family.  Keeping you close in my heart, my sister.  Jan

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  • Luah
    Luah Member Posts: 1,541
    edited November 2012

    Luv - so sorry to hear about the brain mets. Hoping with all my heart that the WBR does its job and blasts those suckers to smithereens. We're all here in cyberspace, with best wishes and warm, gentle hugs.

    Lovingmymom: Thanks for keeping in touch. Your mom is very special to all of us here. 

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  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    Luv - well this news sucks!!!! Glad you have a plan. Wishing you all the strength you need. We're all in your pocket.

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  • adagio
    adagio Member Posts: 982
    edited November 2012

     Tookybum - Congratulations on getting through the chemo - you are a brave woman indeed!! I haven't even started mine yet, so cannot imagine the end of the journey yet.

    Luv - our hearts and prayers are with you.

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  • Babs37
    Babs37 Member Posts: 455
    edited November 2012

    Luv- Crap... I was so hoping to hear it was SE from your new chemo only... Sending you lots of strenght so you can kick those buggers out! (((HUGS))).

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  • JazzyJ
    JazzyJ Member Posts: 126
    edited November 2012

    Luv - So sorry you have to go through this...... Our hearts and prayers are with you.....

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  • christina1961
    christina1961 Member Posts: 736
    edited November 2012

    Luv,

    I just want you to know that I am thinking of you and sending my best energy your way.  I hope the radiation will blast everyone of those mets.  You are such a wonderful, positive person. I was just telling my daughter the other day about your signature line, "Be kind to one another"- how it really jumped out at me and made me think. 

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  • TifJ
    TifJ Member Posts: 1,568
    edited November 2012

    LovinMyMom- Thank you for letting us know. Your Mom is a special part of our little group! She always has great info for us all and is always so supportive!

    Michelle- SO, so sorry you are dealing with this. I wish you were back in Missouri so I could give you a great big hug face to face. I hope the radiation works wonders and we see you posting again soon. We are all with you lifting you up when you are down.

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  • belleeast
    belleeast Member Posts: 653
    edited November 2012

    Luv,sending you strength and prayers the radiation does it's job!

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  • gillyone
    gillyone Member Posts: 1,727
    edited November 2012

    Luv - so sorry to hear about the brain mets. Let's hope the WBR zaps them, and zaps them good.

    Navy - thinking of you tomorrow.

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  • tnbcRuth
    tnbcRuth Member Posts: 454
    edited November 2012

    Luv - thinking of you with warm healing thoughts.  Cancer sucks !!

    To those with good feedback on my mouth pain...I kinda wish it was Trimengal Neuroma but I don't have most of those symptoms.  I am scared shitless and I NEED a diagnosis NOW !  Thank you for your support and comforting hugs back to each and every one.  I"ll keep you posted and I"m sure it will be good news and we'll all laugh and say, 'oh wasn't that a trip!"   :)

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited November 2012

    Luv...thinking of you....sending you love and strength and LovingMyMom sending you love and strength. We are all here for you and your mom.Please keep us posted. Your mom is  a dear and we all want her to fight this with all she's got........my cousin in Nova Scotia who is married to a doctor had brain mets and actually had them knocked out by rads and surgery. She is over one year out from the diagnosis and she was told some really bad stats about survival by the end of a year. She went into warrior mode and we are thankful everyday that she was blessed with such successful treatment. Praying yours will be the same Luv.

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited November 2012

    Inmate I dream but my paintings are my daydreams....pick up a brush, even if you have to use your teeth, and be as abstract as you can be....maybe it will help your dreams return....(I know I am weird).

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  • onvacation
    onvacation Member Posts: 1,344
    edited November 2012

    Luv - so sorry you have to go through this - you are such as strong woman I know you will kick this!

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