Faslodex Girls

Hfello, my fearless Faslodex friends,  Last week I left a couple of posts here before I left for Cape Cod which is a two hour drive from my home.  Both posts are gone.  Do you think it might have been something I said?  Or what?  It was the longest drive I've taken since last June  and since my diagnosis.  I must admit to being worn out today and was supposed to attend two very large parties today and I renegged.  I think the thoughts of being at such large parties overwhelmed me.

I see my oncologist this Thursday and my son is coming with me.  I have to admit that I'm really nervous about it.  I've been on Aromasin for two months and Faslodex for less than a month.  So, will they know anything?  Anxiety.  That's my middle name.

Teresa

Susan, my son is pretty savvy about this stuff.  He sits there with his computer and types everything into it.  I, of course, never ask for his copy.  Instead I send emails to a bunch of family and friends and he kind of agrees with everything I report.  Insanity, i think thou art sane,

Where do you go to at the cape, susan, if you don't mind my asking.  I travel all the way to the tip where I own a little condo on the bay.  My husband died six years ago but I keep the place because I love it.  I'm surrounded by gay couples but they are the best and would take care of me in a minute.  I've rented the place for the past two years but won't do that again as it's one of my favorite places to be

Susan, we continue to be so close.  i only hope that our closeness remains in our succeess with these  meds.  I'm not a beach person either, but its nice to be so close to the sea and feel the life eminating from it.  Roaring waves and screaming seagulls.  Life at its finest.

Nanakids - Wow, 13 yr stage 4 (if correct from biography) that's amazing ... gives me hope!  Tree3- what little I know about faslodex, it would be too early to see results - takes a while - months from what I've been told.

Tish, congratulations on your fantastic Bake sale!! Doesn't seem to be as many active Faslodex Girls posting. Hope all is well for everyone. I'm leaving for a 5 day Bahamas Cruise with my 3 grandkids the week of Thanksgiving. I decided not to cook and pamper myself for a week.

Tish, congrats on your bake sale!

Nanakids--your 13 years living with stage 4 gives me hope, too!  Congrats on your cruise--you deserve to be pampered.

Did I mention, I'll be getting a new bone scan and a lung x-ray tomorrow?  (I've had more pain in my right knee and hip)

Ugh....scan anxiety...prayers appreciated. 

Had a Faslodex treatment a week ago Thursday (my second one - having them two weeks apart for the first two, then monthly forever, hopefully!). Since then have had increasing pain in hip, back, and middle of buttcheek, all on the left side (a cancer-free hip). I didn't take pain meds while I was on Arimidex for two months - I felt really really good! - but tumor markers rose and the switch was made to Faslodex, and now I'm popping pills to sleep at night, and taking something to get me through the day. It almost feels like nerve pain, sometimes achey, sometimes a shooting pain. Has this happebned to anyone else?

I'm planning on gutting my way through Faslodex if it gets me dancing with NED - I'm just trying to figure out what 'normal' is now.

Hi everyone, just a quick hello to update you on my meeting with my oncologist and my markers after two months on Aromasin.  I finally figured out how my markers are read.  I go in once a month, the day before my Zometa drip to have blood drawn (3 viels).  The next day I go in for a Zometa drip and faslodex shot and then I saw my Onc.  She told me that she looked at two markers.  One of the markers showed a small drop in numbers and the other  showed a slight increase but not as high as before,.  Now, I really don't know what this all means as it's only been two months but I'm taking it as good news and that the Aromasin is working.  I feel pretty good with no side effects from my meds,  

Yesterday I was jumping up and down with joy, (almost)  but today I'm more cautiously optomistic.  Will be awhile before I have any scans  so I must learn patience.  Next week I'm going to Las Vegas for a few days and will meet my son and I've rented a helicopter for us to travel around the Grand Canyon.  This is called working on my bucket list.

Thanks all of you for being here and sharing your stories and giving us strength.

Teresa

Eva,

The fastest way to get a cold is to get on a plane. That sounds like a very worthwhile trip. Do they pay for your travel, or is that part of the volunteer effort? Do you have some special training to monitor elections? Very impressed.

*susan*

Oh dear. Stay hydrated. Wash your hands and face regularly, and enjoy your trip. Do you have power yet?

*susan*

p.s. And the trip over the Grand Canyon sounds amazing.

We did not loose our power; just a shutter. Feeling very lucky.

*susan*

Check out the website for PAE React, https://www.pae.com/career-react-opportunities

I found it tough physically this time though I've worked overseas for my entire career. Lots of working overnight, traveling on planes, trains and lugging suitcases up and down stairs, etc. 

I do sign something that indicates I am in good health (what's a little MBC). Essentially there's no health care while you're deployed. 

Do you have a supplement beside Medicare?  Medicare will pay 80% of the cost, and the supplement would pick up the other 20%.

I have Medicaid which covers the other 20%.

I sure wouldn't drop Medicare.

I'd check with your doctor's office (or where ever you get treatment).

Thanks for the suggestions, ladies!