In shock

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Comments

  • curveball
    curveball Member Posts: 3,040
    edited October 2012

    @bennymuffins, I don't think a seroma or hematoma will go away by itself, and an infection, if that's what it is, most certainly won't. If it's a seroma, draining the fluid will require another needle in YPOB, but it will take away the swelling, and that will make the POB feel better afterwards. I needed fluid removed from my breast after the drain was pulled and never felt a thing, even without anaesthetic, but with a lumpectomy you may not be as numb in that area as I am. If so, you can ask for a local anaesthetic before having the fluid drained and that should prevent any discomfort.I think you are right to plan on an ER visit if it gets any worse, rather than toughing it out until Monday.

    I think you may have misplaced a decimal point on that wig price. Other wig prices I've seen on BCO are in the hundreds of dollars, and some even below $100. Also I'm not sure how this is regarded by the Canadian health care system, but I've read of some women in the US whose wigs were paid for by insurance as a "cranial prosthesis" prescribed by their doctor.

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited October 2012

    Benny, when I was first diagnosed I talked to my hairdresser and he said that if I needed a wig that the Raquel Welsh wigs are really nice. I have looked them up on line and they are really a decent price.

  • NSJ2
    NSJ2 Member Posts: 227
    edited October 2012

    Hi Benny

    Here's a couple wig places on-line someone here highly recommended. The prices seem pretty reasonable. The second link are for hats with hair, just in case you wanted to look at those.

    1. http://www.wigsalon.com/

    2. http://www.hatswithhair.com/

  • beacon800
    beacon800 Member Posts: 922
    edited October 2012

    TLC on line catalog has some very reasonably priced wigs, though there are fewer long styles, there is at least one nice one, the Elizabeth.  Pretty sure these are actually a Rachel Welch product rebranded for TLC.  TLC has a great return policy.

     Wigs.com is very good and they have a large selection of human hair wigs.  Since you have long hair, if you want a human hair wig, get the Revlon Lana.  It's the best one for the money.  If you have lots of extra money for a wig, try the Angie by Renau.  Wigs. com has videos of the wigs so you can really get a good idea how they look.  Not so sure Wigsalon is very good - heard different things......

    My sister had a hair loss condition and started using wigs, which got me into it somewhat, even though I have enuf natural hair.  Wigs can actually be very fun.  With chemo the scalp can be really sensitive so consider a wig cap/liner to help reduce friction on your scalp. 

  • edithesther
    edithesther Member Posts: 183
    edited October 2012

    Benny glad you are bit better, :-). Defo no more than 10lbs, a neighbour of mine is out 17 years she told me that she hasn't lifted more than 2lbs with her arm since !! Not being funny but my kettle weighs more than that. About having it drained it DOES NOT HURT, I felt nothing  but sweet relief,

     I know you don't like being poked and proded about, who does ? I have a place in my head I got to when they start, you could go to Diamond, start grooming her and before you know it they are telling you it's all over and you can go.

     As for the wig thing I might get one, but think beautiful scarves  are going to be more comfy and low cost. You tube has some great video clips on how to tie scarves  in unusual and attractive ways.

    Off to see tiny GD having a riding lesson soon she loves it so much it is a joy to see.

    Bearcub hope you doing ok, thinking about you  (( hug )).

    Bonnets, good luck with Rad's, my steri strips gone too, trying to keep them dry while showering/bathing not funny.

    Joanne I have worn a bra to bed for many, many years due to painful breasts. Doctor told me to and it always helped, even more so now. :-)

    Beacon sure you are spot on about Benny's barn friend's wife . Horror stories aren't what any of us need right now.

    Well gorgeous Girls this old biddy is off to have fun with my reasons for living. Love hugs and healing to everyone of you.

  • MsBliss
    MsBliss Member Posts: 536
    edited October 2012

    Dear Bennymuffin,

    I want you to know you have a kindred soul in me.  

    Hope you are healing well and taking good care of yourself.

    All my best,

    Bliss

  • MsBliss
    MsBliss Member Posts: 536
    edited October 2012

    Bennymuffins,

    I had a seroma after breast surgery for a benign mass....it was so easy and painless to drain because it wants to open up and do that.  It felt a lot better and healed quickly after it was allowed to drain over a few days.  If it comes to this, don't be too fearful of lancing it--in my experience, it was well worth it.

    Here's to horses, cats, dogs, all the critter kingdom, and of course, molasses cookies!

  • bonnets
    bonnets Member Posts: 769
    edited October 2012

    Benny,

    My seroma is about 75% gone today! SO apparently they can resolve on their own . May depend on their location and size. Jean

  • NSJ2
    NSJ2 Member Posts: 227
    edited October 2012

    Hi Benny

    Been a few days since we've heard from you. I hope you're doing good. If you get a chance, maybe post to say "hi"?

    Love,

    NSJ2

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Hi NSJ! As usual I am way behind here and have been spending every possible minute with the giant plush toy (rolls eyes) Embarassed

    I saw the surgeon today and finally have 'the scoop'. Some ~good~ news and some bad. He said the cancer in the breast was 1.7 cm, BUT of the 15 nodes removed 6 of them had cancer. It's the infiltrating kind. I completely forgot to ask for a copy of the report (slaps side of head). I did remember to ask when I could start riding my horse tho' (slaps head even harder). I asked if I needed a second surgery and he said every path report is reviewed by two oncologists so the second oncologist might recommend a second surgery but as far as he was concerned, no, he got clear margins. I asked what stage and he said 11b (Beesie, you called that perfectly!). I have to start chemo in another 3 weeks or so. I can't ride my horse for another 2 weeks, so that means I'll get a week of riding in before the yucky part comes. I also admitted I had been quite *inconsistent* (read, outright negligent) with doing my exercises and had even been out hammering spikes above my head yesterday to repair a horse shelter. He said it was all okay. He was impressed that I had the range of motion I had considering few exercises. So there it is ~sigh~ I am taking a day off from the farm so will get a chance to get caught up here and see how everyone is doing. Diamond will survive a day without me (she's probably relieved haha). I'd better update my signature too!

    Oh yeah, and it's estrogen positive? Need to research that I guess.

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Benny, the wig thing sucks, and it was very hard for me too. It does not have to cost $3000 though. I bought a very cute one from www.wigsalon.com for $102, including shipping. I phoned them to help me with the colour choice, and found them very friendly, patient and helpful. I am glad that you finally have your path report, and that treatment plans have been made. Now you can really move forward, and get this thing over and done with. Easy there with manhandling the haybales and hammering in nails. You can do all that again in a few months, okay?

    We were in Calgary last weekend - great city with friendly people! Best wishes and hugs to you! Enjoy your horse; they are such lovely animals.

  • Lesleyanne67
    Lesleyanne67 Member Posts: 225
    edited October 2012

    Benny not everyone feels "yucky" the whole time. It is so individual. I did a 14 mile hike in the Sierras, some bike rides and some evening walks...not everyday and I wanted to slap the marathon runner gals....all I am trying to say is I totally thing there will be good days with your big plush toy and it will be healing and restorative to spend time with your horse when you have good days. You are building a great bond already and my guess is rhe horse will intuitively know what is up and totally "be there" for you. ER (estrogen) PR (progesterone) positive is the lucky cancer card if there is such a thing...

  • bearcub
    bearcub Member Posts: 485
    edited October 2012

    Benny, I am glad you got your pathology back, looks like your nodes did the job of grabbing those loose cancer cells. Now you can get on with more surgery if required, chemo and rads?? Make sure you get a copy of the report.



    Benny, you can try Paula young.com for a wig that will get you through a few months if you prefer a wigs. You can also check out head covers.com also for scarves and wigs but be prepared with them to pay extra for duty at the border. About 20 dollars an order, so if you order from them get everything you may want in 1 order....all in all they both are very reasonably priced.



    Lesley is right, I am usually tired the first week after chemo but still manage most days to ride 16 km. a day on my stationary bike....I try to do it 5 days a week. I also walk my dog outside. You may be one of those people that have minimum SE. I have been very lucky that way. I am sure on your good days you will still be out on Diamond...

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Liefie, I imagine you were busy while in Calgary but if you're ever here again and want to meet up, just let me know! The weather here lately has been great. I think it was 18 C yesterday.... I was walking around in a T-shirt.

    Lesleyanne, there's an old saying "You can't lie to a horse". That's because they are so intuitive and perceptive. Diamond is a prime example. Yesterday at the farm she was prancing around and tossing her head, anxious about being tied in the arena. I had a moment alone with her and just completely broke down. I grabbed her neck and just sobbed. She immediately stopped prancing and just stood still, leaning her head into my neck. I am guessing that because my lymph nodes were so loaded with cancer that my chemo soup is going to be pretty powerful? I have an appointment (consult) today with the oncologist and I feel just sick over it all. I'll know more this afternoon.

    Bearcub, do I use double-sided tape to keep scarves on my head? I'd better watch some videos on Youtube. Thank you for the wig references (and you too Liefie). I will check them out.  I hope I am as fortunate as you in terms of side effects. I am expecting the worst. In fact, I am expecting I won't be able to handle it and just decide to quit and die. Really. I cannot get through 5 months of feeling sick. Time will tell.

    I am sooo not wanting to go to this appointment this afternoon. I miss my horse already. She keeps my mind off my troubles. Every time I have to go to an appointment it reminds me of the mess I am in. I prefer to live in denial.

  • edithesther
    edithesther Member Posts: 183
    edited October 2012

    bennymuffins, you are not alone and you know it. Cried   when I read about you breaking down with Diamond. Wish I had  a large plush toy to weep on. At least they don't tell you to stop crying.

    I too am scared about chemo, but as our lovely ladies on here say we have to try it and see. Hopefully we will be on here soon telling everyone how it wasn't as bad as we expected.

    Going next week to learn lovely ways to tie scarves, also may get a wig as at least it will keep my head warm. It is really chilly here brrrr.

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Edithesther, I think I will buy a wig too. It's freezing here today, cold and rainy, and only going to get colder. I can't imagine not having hair to keep me warm?

    The appointment this afternoon was a complete downer. I cried all the way home. Because the cancer in the breast was 1.7 and the lymph nodes were 6/15, the oncologist said I likely have 'micrometastesis'. So the one little hope I had been clinging to (clear scans) was thrown out the window because he said it's likely spread and we just can't see it. Thanks. Oh yeah, and it's not 11b, it's 111a. There wasn't one shred of positiveness during the appointment. They had a booklet set out with the survival stats (67%). And on and on and on. And all the while he talked about all these dismal horrible things, he had this weird smile on his face, like that would somehow make it all better. I just cried all the way home. I have to go on this FEC-D combo and they encouraged me to participate in some clinical trial for Herceptin, which he admitted wouldn't likely help me if I even got in the group. Ugh, so sad. No wonder I prefer to live in denial. At least there's some hope there.

    Will go scarf shopping next week, stock up on ginger ale and gatorade, and buy a thermometer. Oh, and cut my hair.

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Dear Bennymuffins, you are way more than a statistic, so don't get hung up on that, please. People beat the odds every day. It is best not to dwell on that. The oncs thrive on that, but we don't have to. On these boards there are many women who are Stage 111, and who have been around for a very long time after diagnosis. It is understandable that you feel sad on hearing what you did not want to hear, and it is so human/normal to cry, and feel down about this. But tomorrow is another day, lift up your head, and go ride your horse. You have already proved to all of us here that you can face adversity and overcome it. Step by step, one day at a time, you will do it.

    As for the chemo, if you are on a three week cycle, you will only feel bad the first week or so. The next two weeks you feel reasonably okay, and can function normally. Some people even work full-time during chemo. Everybody reacts differently, and it is not a given that you will have bad side-effects. Rather see chemo as a great weapon in your arsenal against cancer. It may make you feel bad for a while, but it kills cancer.

    I met Websister last week in person. I think you know her too. She's from Calgary, and came to Vancouver Island where I live. What a warm, gentle person she is! If I come to Calgary again, I will make a point of visiting with you two. I promise! (((BIG HUGS!!!)))

  • bearcub
    bearcub Member Posts: 485
    edited October 2012

    Benny...your onc sounds like a winner, no bedside manners....go on the stage 3 thread and you will see those ladies have been around a long time. They are making leaps and bounds with cancer treatment, think of it as more of a chronic disease, not a death sentence. Did the onc say you would loose your hair with that regiment?...yes, u tube has lots about tying scarves. A doorag works great the little ones that tye in the back, head covers.com sells them. I also bought a beanie type of pad that goes under the scarves, it helps so scarves don't slip plus they add warmth.

    Do not fear the chemo, it is doable, most don't get all the SE. On your good days spend with Diamond riding. Remember it is being done to give you many more years with Diamond. When you go get chemo take a picture of her with you.



    Try and go to the look Good Feel Better class, they teach about scarves, wigs and you get a beautiful makeup kit.



    You will do great Benny, and next summer chemo will be done and you will be out riding the range.....SMILING!!!....it will happen.



    Edithester did you find out if you will be doing chemo and radiation?



    Hang in there girls it will be okay.

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited October 2012

    Benny, listen to the others. Your MO sounds like a real prince. Remember the reason for your treatments is to kill the cancer ... Are you HER2 + ? That would be the reason for the Herceptin.

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Liefie, thank you for the booster shot. It is much needed. After meeting with that oncologist I felt worse than I've ever felt. I'm a wee bit mad at my surgeon too, who made it seem less serious than it was. And I am in a bit of shock (again) over this news. It scares me that in order to just survive I have to beat odds. I didn't think I'd be fighting for my life at age 54. Yes, I do know websister and, yes, she is a wonderful person. I have not met her in person but I email with her. She has offered to meet me at my first chemo appoinment.

    Bearcub, yes, the oncologist said I would 'lose all that beautiful hair' (same weird smile). He said it might be curly when it comes back and even a different color. He kept talking about how the cancer in the lymph nodes was worse than the cancer in the breast and how that demonstrated the aggressiveness of the cancer and why it needs to be treated aggressively. He is definitely a doom and gloom kind of guy. But then he said it's the same treatment plan as a stage 2 patient so a bit of a contradiction there. Anyway, I hope I won't have to see him again? He scares me. Regarding the beanie caps.... are they just normal beanies like you get in Wal-Mart?

    Joanne, the surgeon said I was estrogen positive, the oncologist didn't say but did say I'd have a year of hormone therapy after all this. So does estrogen positive mean HER2? He did say I was one of the 'middle-of-the-road' hormone women, meaning that studies have NOT shown Herceptin to make a difference.

  • Beesie
    Beesie Member Posts: 12,240
    edited October 2012

    Benny,

    Okay, take a deep breath.  The MO told you some things today that have scared you, but the truth is that nothing really has changed, and importantly, nothing about your diagnosis is worse than it was yesterday.  

    First, about the staging.  You knew that you had 6 positive nodes. With 6 positive nodes, yes, it is Stage IIIA.   When you first posted with your pathology results, I saw that you had 6 positive nodes and I realized that you weren't Stage IIB but you were Stage IIIA.... however I didn't feel that I was in a position to say anything to contradict what your surgeon told you. Staging rules are clear and any more than 3 positive lymph nodes moves a patient into Stage III rather than Stage II.  So the stage is different, but the diagnosis - and what you and your doctors are going to do to deal with this diagnosis - has not changed.

    As for the news that you may have micromets beyond the breast and nodes, I understand and completely appreciate why this is shocking and scary.  But did you know that this is a very common concern, even with women who are node negative?  In another thread a few days ago I explained that according to Dr. Susan Love, 20% - 30% of node negative women are actually believed to have undetectable micromets beyond the breast/nodes.  This is the very reason why so chemo is given, both to women who are node positive and even often to women who are node negative. If your scans had showed cancer in your body, that cancer would be too developed to be eliminated.  Chemo might be effective at stalling the growth of the mets, but it wouldn't work indefinitely and it wouldn't be able to kill off the cancer.  The big and very significant difference in your situation is that it's believed that you have undetectable micromets and this means that we are talking about only a very tiny amount of cancer that likely hasn't taken hold yet or started to grow and develop. At this point, chemo can be very effective.  The role of chemo is to kill off these rogue breast cancer cells that have moved into your body so that you never do develop detectable mets and instead, you nip it in the bud. 

    It was always assumed with your diagnosis that you would get chemo.  Chemo is only given when there is reasonable risk that there might be undetected micromets.  So really, since chemo was part of your treatment plan all along, nothing has changed. Your MO has provided a clearer explanation of why you will get chemo and this wasn't explained to you before, but it's not at all a change from what your doctors were assuming when they first said that you would need chemo.  

    I don't know if any of this is reassuring or helpful or not.  The way I see it, although things have been explained to you more clearly and the risks have been outlined more directly, you are in exactly the same place as you were yesterday, with the same prognosis.  And the prognosis still puts the odds in your favour. 

    ((((Hugs))).  I'm sorry you had a bad day, with difficult news. 

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Hi Beesie, thank you for the informative response. I guess I didn't realize how advanced it was before I had this appointment today. I can't get past the fact that I have stage 3 grade 3 cancer. It's like I'm hearing the initial news all over again. It's hard to stay positive with that kind of news, and I am in shock all over again.

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Dear Benny, you are in my thoughts and in my prayers, and for some reason you have resonated with me from the beginning of your journey here - maybe it's the fact that you're an animal lover like me? I'm not sure why, but it is hard for me to see you struggle with this. You will process what happened today, and will find the courage to forge ahead. Beesie gave you such a good analysis; she is almost as good as an onc on these boards.

    I had one positive node, and had to get chemo because of that. Was I upset? Oh yes, was I ever! I was hopping mad. Just hated the idea of  those chemo drugs running into my healthy body, and wreaking havoc there. Eventually I made peace with it, and decided to see chemo as my ally, not my enemy. I remember sitting in the chemo chair as the drugs were running in, chanting under my breath,' KILL, KILL, KILL KILL!' That made me feel good, and boosted my mood. I felt I was really doing something to fight the cancer beast.

    Hope you can find some peace, Benny. None of us wanted to be on this rollercoaster, but here we are. This too shall pass, just like everything else, good or bad. It is a great idea for Websister to come with you to your first chemo. She's halfway through her own chemo, and she's a veteran by now! You will also go far to find a gentler, kinder person than her. She will also do Herceptin if I remember correctly. ((((HUGS AGAIN!!))))

  • bearcub
    bearcub Member Posts: 485
    edited October 2012

    Benny, Beesie and lifetime have given you excellent information. I was node negative grade 3, but am still having chemo. I think of it as a insurance policy. I also will be doing radiation and then herceptin for a year and then 5 years on Tamoxifen. You must be Her2+. Do you know when your first chemo is? I am happy you have someone to go with you. I would cut my hair to a bob or shorter before treatment mind you it is a personal preference.



    I have never seen the Beenies at Walmart. The one under the scarves I use is a padded quilted circle thingy that sits on my head and comes down to my ears. I have bought a wig from Paula Young very reasonable...I never wear it though...good luck on your journey, it will get easier each day as the shock wears off...just keep moving forward.

  • Lesleyanne67
    Lesleyanne67 Member Posts: 225
    edited October 2012

    Just remember stage 3 is NOT stage 4. I am 3 and 41 years old at diagnosis. There is a ton of hope at 3. I think if you look back at what I posted the one GOOD thing for us is we get hit with the big guns and we don't have choices to an extent so we don't have to second guess ourselves. I am 3 years out and totally cancer free. You can do this and treatments improve ALL the time so treatment now buys time



    As someone else mentioned this is just like having a heart problem, which can be deadly too, but you would not pass up having a bypass if it bought you time try to think of it that way : ). We do what we have to do. Diamond is a gem - literally hee hee



    Big ginormous hugs this is the rough time it will get better and letting it out is better than holding it in Benny it will get easier, I promise



    Lesley

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    I actually slept a bit last night, surprisingly. But the first thing that popped into my head this morning was 'stage 3 grade 3'. I am trying to keep positive but I find myself thinking things like my cat will outlive me (my first priority is the best home for him, Liefie! Benny is my number 1 priority. He and I are so closely attached; I wonder how he would go on without his mom) It's funny how material things don't really matter any more. I have a lot of stuff to dispose of. Anyway, enough of that.

    I will do the chemo but I worry that the cancer will get me anyway and then I've spent the last months of my life in misery. I know, I know, there is hope. I still cannot fully believe I am in this situation. I will try to think of chemo as my friend, but it's the friend I never wanted to have.

    I'm going out to the barn today to forget my troubles. Thank you for the responses Liefie, Bear and Lesley. It means a lot to me. ♥ I am so sad and can't yet stop crying. Cry

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Cry all you want, dear Benny. Tears are therapeutic, and when those tears stop, you will dust yourself off, get back up, take the reins, and ride on. The chances that Benny will outlive you are very slim. Don't torture yourself with these thoughts. Last night I read on Websister's blog about a woman who was diagnosed in 1999 with stage 3 and 6 positive nodes. She is still here, still going strong, still cancer free. Worry won't change any outcome, but it will make your life miserable. So I hope sincerely that this stage will pass quickly, and that you will be back to your old practical self to take charge of the situation. I treated it like a project (unwanted, I know!) and a temporary stumbling block, I devoted about 8 months to do what I had to, and now I'm back to my old life. Enjoy the barn and the animals - they often understand MUCH better than people because they are such good listeners! (((Hugs!)))

  • Momine
    Momine Member Posts: 7,859
    edited October 2012

    Boo to your stupid onc. Yes, the chemo sucks, but you will be ok. Try to exercise. Take pro-biotics (to help with thrush and intestinal troubles). Drink lots of water. Eat lots of veggies and fruits.

    With the FEC, I usually crashed the day of the chemo, then had 2-3 days of not feeling so hot, but then usually OK until the next round. Make sure to take all the anti-puke meds they give you, at the times they tell you. I never even had nausea, thanks to the pills. I routinely walked at least for an hour a day and I took the dogs for a long walk every morning as well. My approach was to skip all the stuff I do NOT enjoy and save my energy for the things I do enjoy. It worked out pretty well. By skipping housework, boring business dinners and a bunch of other nonsense, I found that I had plenty of energy, even with chemo, to have a pretty good time most days.

    As for the stats, yes, the bitch may be back one day. Still, I plan to be in that 67% and meanwhile, I try to live as well as possible. No man knows the hour, so it doesn't do much good to dwell on it.

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Liefie, thank you again for the compassionate and supportive words. I'm having a hard time getting out to the horses today as I'm in a bit of a slump but am doing laundry and have been on the phone non-stop with friends and 'those medical people' who keep phoning me. Tomorrow I will get out to the farm for sure. I had a chance to talk with the disability insurance lady this morning and she reassured me that I can move seamlessly into long term disability for as long as needed for treatment, so that's one less thing to worry about.

    Momine, thank you for the response. Yes, the oncologist was a donkey. No, I like donkeys, he was a jerk. After he gave me the bad news I started crying and in the middle of it he said "Do I sound like your GP?" I had to ask him 3 times what he said as I didn't get what he was asking. He finally said he and my GP have the same accent because they're from the same country. I wanted to say "WHO CARES!!!" but I held my tongue. Completely inept and clueless.

    You actually had me laughing about skipping the boring business dinners and housework. I will have no problem doing that.

    I just had (another) disturbing conversation with the nurse navigator, who told me that some people don't respond to chemo. OMG. What then?

  • Momine
    Momine Member Posts: 7,859
    edited October 2012

    Benny, don't you just have the medical team from hell, you poor thing. Yes, there are cases when the chemo doesn't work. It is not common. Forget about it for now.

    As for the housework, cancer sucks bad enough as it is. At least make sure you milk it for all it is worth. You will be amazed by the good times you can get out doing that ;) Usually I am terribly dutiful, so I got a real kick out of alluding to the cancer, looking wan and getting out of stuff as a result. Best part? Totally guilt-free.

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