Calling all TNs

Hi everyone! I have not posted for a very long time but try to check in on you all when I can. After hearing about the latest research regarding TN's and ovarian cancer cells similarities, I read more about ovarian cancer txs. I read that platinum drugs(Cisplatin) is used with Taxol. When I was diagnosed in Feb 2012 I joined a clinical trial at DF where Cisplatin was given with Taxol and a third oral drug Rad 001 (which was the one being studied). I joined because I had read a previous study showing promise with Cisplatin. I met another woman in the trial on Yawkey 9 (for those of you familiar with the place!!) and we both had similiar responses (almost complete) which were hopeful. The response was measurable due to chemo being neoajuvant. Surgery followed then DD A/C (clinical trials inc. full "protocol" of chemo as well). I'm now on day 5 of rads so hopefullly the home stretch! Given the MD Anderson study I'm suggesting that MO's be asked about using platinum drugs for TN. It may also mean the elimination of anthracyclines in the future and the toxicity they give!! Stay positive..... Nance

Navy Mom - I must be full of chemo brain today because I can't figure out how to PM you.  Wondering if you every made contact with the sewing person at the Painted Turtle?  I started having trouble and found I was using .com instead of .org.  She's sending me the pattern and I'd be happy to share it with you if you still want/need it.

Jan

Taz are you up for rads today.  If you are good luck but I am sure you will be ok.

Where is Kathy??

OBXK, I was BRCA neg. I will be sending positive thoughts your way.....Nance

So at my son's football game the other night.  I was surprised as they got my son a pink jersey to wear and made me honorary captain.  I was so shocked and excited.  I will post a pic of it.

Aww, KS, that is so nice.  Those fellas can surprise us sometimes.  Hope you enjoyed every minute.

Titan, I will be asking the same thing when I see my Onc at the end of the month.  Although, the thought of another surgery just sends me to crazyland.

KS - how sweet!

Titan - that sounds like a great plan.

Annie - I hope you were able to either start working, or go out and enjoy a bit of spring fever.



Oncologist tomorrow. Just blood work, and getting a biopsy appointment

Titan and NavyMom - My gyn ordered a vaginal ultrasound to check the uterus and overies.   All they found was some small cysts/fibroids.  I was also told that the lining of the uterus was thin like it should be so no trace of anything wrong.   That made me feel a lot better.     It was easy and painless.  Maybe you could go that route instead of prophyalatic surgery.

 I was told, though, that my bone density dropped a lot in the last couple of years.  I am a small, thin person, so may be prone to osteopororsis.   I don't know what to do about it except to increase exercise now that I am getting more energy back.  I am also starting to cut back on all the acid-reflux medicines I have been taking which was a lot to get me through chemo.   All the inserts say that those med's can reduce the amount of calcium absorbed.   I know I have enough calcium and vit D as I just had them checked and they were both on the high of normal range.    Just wondering if the bone loss could have been due to all the chemo and radiation??  Anyone else have this problem after treatments?

Karen, I hope they hurry along with the biopsy and treatment.  It must be awful waiting to start.

I was advised to have an ooph because of BRCA 1+ and the increased risk for ovarian cancer. Since there are no screening tests for ovarian cancer, often when its found, it is advanced and much more difficult to treat. I also had a vaginal US several months ago and everything looked good. I would rather not have that nagging fear so have opted for the ooph. Its scheduled for 11/20 and since I'm past childbearing, I say take the darned things out!

In an effort to keep you informed, here are the definitions:

GUTS - Is arriving home late after a night out with the guys, being met by your wife with a broom, and having the Guts to ask: 'Are you still cleaning, or are you flying somewhere?'

BALLS - Is coming home late after a night out with the guys, smelling of perfume and beer, lipstick on your collar, slapping your wife on the ass and having the Balls to say: 'You're next, Chubby.'

I hope this clears up any confusion on the definitions.

Medically, speaking there is No difference in the outcome.

Both result in death.

Titan & NavyMom - are either of you BRCA +? If you've said before, forgive me...chemo brain at its finest!

Hello ladies!

Onco is making an appointment to biopsy liver to make sure it hasn't morphed back to + and I have to get a port put in, then I start chemo... Again. See onco again on 2 weeks. Not looking forward to the biopsy. I saw it on YouTube - yikes!



I'm doing really well emotionally. The minute I got in the house, I had 8 kids to feed! This weekend I will be busy with our town festival.

I have a big brunch on the porch as the parade passes and dinner before the fireworks.



Love K

OBXK, glad to read that you have a plan in place.  Wishing you comfort and safety for that liver BX.  Your days sound busy with family and friends.  Have fun.

J4L, I am BRCA 1& 2 negative.  I have had uterine fibroids for the past 6+ years.  I had a vaginal ultrasound about a year ago.  Dr. said at that time that both ovaries looked small, as they should for a menopausal woman of 50+.  But I try to stay aware of what the latest research is uncovering...and I ask a ton of questions during my appts.  Ooph. will be added to my list.

Not being unappreciative of the American democratic system,  but I am getting so tired of the nasty, political tv commercials and I am saturated with the automated phone calls.  Enough already!  And don't even get me started on how much money is spent on campaigns.

DorMac - thanks for the chuckle!



Tina - I was told to take 2 cal + D a day. When my blood calcium started to climb, I added a serving of calcium to my diet, and cut out the extra D - and increased my fluids. Next test was back in normal range.



Annie - hope your spirits are better.



Thanks for being here for me. I feel the love!