2012 sisters

Options
1…114115117119120…184

Comments

  • Aruba
    Aruba Member Posts: 543
    edited October 2012

    Happy Thanksgiving to all those celebrating!  I agree with Scorchy...so thankful for lots including all of you!

    · Share on FacebookShare on Twitter
  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited October 2012

    Welcome Lemons! 🍋



    What everyone else said is right on. It's a little extra insurance to make sure there are no stragglers left. I've done two sessions and its a breeze! So far.



    It's a beautiful day here in central jersey and I hope it is where you all are too! A little advice from my sister (a melanoma survivor) sit outside for a bit a get some fresh air it'll do ya good!



    And happy thanksgiving to all the Canadian cities!🍗

    · Share on FacebookShare on Twitter
  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited October 2012

    Mrs Cich enjoy your day today!



    Please watch those pesky WBCs. Over the summer I was having a bitch of a week just feeling like crap and that Saturday my sister had gotten us tickets to have lunch with Paula Deen up here in Atlantic City and there was no way I was missing that! I was pushed in a wheelchair all day but still could not get out of bed the next day. My DH had to help me walk to bathroom. So I called my onc and they had me go to ER to make sure all was ok and mine were 0.7 too. Plus a lot of other stuff was down. I think it was because after my last chemo I didn't have my neulasta shot. Landed me a 4 day hosp stay😞. They gave me a shot of it daily and massive IV antibiotics.



    Don't mean to scare you or anything just wanted to tell you my experience. It helps me when I read everyone else's. makes me realize its not all in my head!

    · Share on FacebookShare on Twitter
  • MrsCich
    MrsCich Member Posts: 409
    edited October 2012

    Thanks Karen. I don't know why my Onc didn't give me a shot of Neulasta. My RBC was on the low side of normal but everything else was ok. Perhaps she only gives it if you have a fever or something. Who knows. Any idea as to why she wouldn't???

    · Share on FacebookShare on Twitter
  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited October 2012

    My dr didn't because after last chemo they usually don't since you don't need to get your white cells up in time for next treatment. They let them go up on their own.

    · Share on FacebookShare on Twitter
  • MrsCich
    MrsCich Member Posts: 409
    edited October 2012

    Well this was my first Infusion and first lab after. Maybe shes waiting to see if they're up next lab. My next infusion isnt until Oct 19.

    I'm wondering if there's anything I can eat or take to boost the WBC myself.

    · Share on FacebookShare on Twitter
  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012
    Couldn't agree with you more scorchy & aruba - don't know where I'd be somedays without you ladies.

    Chrissera - glad to hear you are home and the surgeon is happy. Yes we have turkey... and as I am at friends tomorrow and Monday for turkey dinner I will make sure one is for you.

    MrsCich: happy to hear you are feeling OK. Just a thought... wear a surgical mask when you go to the zoo. Or even when tending to your poor 7 year old with strep.

    I still had my 3 neupogen shots after my last chemo.... Maybe cos I was going for surgery afterwards. Every facility has such different policies and procedures.

    Everyone have a good, restful weekend with minimal SE's.
    · Share on FacebookShare on Twitter
  • _Ann_
    _Ann_ Member Posts: 769
    edited October 2012

    MrsCich, I was annoyed when I didn't get Neulasta after my 1st infusion too.  Turned out my MO's policy is to wait and see if your counts come up on their own.  When they didn't, then I got Neulasta after each infusion.  But I never had labwork *after* an infusion, rather I had it the day before each one.  My 2nd infusion, counts were quite low but they let me go ahead with the infusion and then I had my first Neulasta the day after that one.  From then I got it each time.  Would save some worry if they'd explain this stuff, huh?  Anyway you might want to call your onc's office and just ask them what's their criteria for using Neulasta or not.

    · Share on FacebookShare on Twitter
  • MrsCich
    MrsCich Member Posts: 409
    edited October 2012

    Ann, I get my infusions every 3 weeks and get labs every Friday to check my counts. I'm assuming when I get them done next Friday, if my WBC isn't up, I will get the shot.

    · Share on FacebookShare on Twitter
  • PinkyWI
    PinkyWI Member Posts: 73
    edited October 2012

    MrsCich, I got Nuelasta after each AC but, mine were every two weeks (DD).  My MO said that if I were getting the standard every three weeks AC, I would not get Nuelasta. 

    I know that each MO is different though.

    Good luck!

    · Share on FacebookShare on Twitter
  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited October 2012

    There are Vegies and fruit to eat but be careful because certain fruit can be bad if your counts are low. When mine were I was on a neutropenic diet. Google it and see what you think.



    Even though I'm in the US all this talk about thanksgiving has me making that for dinner! Thanks!

    · Share on FacebookShare on Twitter
  • Scorchy
    Scorchy Member Posts: 240
    edited October 2012

    Hope everybody is doing all right today.  I'm just here trippin'.

    Wishin' you all a little chemical magic on this fine Saturday.  Peace.

    · Share on FacebookShare on Twitter
  • Cottontail
    Cottontail Member Posts: 374
    edited February 2013

    My MO had me get the Neulasta shot the day after every chemo infusion.  She also gave me very few restrictions as far as keeping myself healthy - basically just wash my hands frequently and stay away from people I knew were sick.  I had no restrictions on staying away from crowds or eating raw fruits/veggies.

    Also, I got my bloodwork done the day of each infusion, right before.  There was no checking things right after, or inbetween. 

    · Share on FacebookShare on Twitter
  • Westwoodmom
    Westwoodmom Member Posts: 11
    edited October 2012

    Back to work Monday after 10 months out for having a baby and then the cancer diagnosis! Feeling nervous and scared but also ready to get back to living!! Wishing all those going through treatment best wishes!!! Xoxo

    · Share on FacebookShare on Twitter
  • lisa2012
    lisa2012 Member Posts: 652
    edited October 2012

    yeah, the alcohol thing. I wish I could drink a glass of wine every other day. However, wine itself has been problematic since menopause, and I do find that it seems like the Arimedex and it don't get along. Messes with my sleep, headaches, etc. Mixed drinks seem better, and I only have those when I go out which is seldom.

    But who knows? I keep looking for causality and it could all be coincidental.

    · Share on FacebookShare on Twitter
  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    Cottontail :   Like you I only had my bloodwork done the day before my chemo.  Also my onc told me that the Dexamethasone unclogged and woke up the white blood cells.   I was on Dexa all through chemo.  

    There was someone on these boards who used to drink wheat grass and her counts were always good.   Geesh, bloody chemo brain...wish I could remember.

    Happy tripping' Scorchy

    Westwood:  Good luck at work tomorrow - will be thinking of you.  

    Another sunny day here.   Gonna enjoy my garden again and get the bulbs ready for next Spring.  

    Wishing you all a happy, loving date with minimal SE's

    Peace & Love Sisters !!

    · Share on FacebookShare on Twitter
  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited October 2012

    halfcan, ranitidine is Zantac, are you familiar with that? For the stomach. 

    I think I glossed over how the Power Port is accessed but now I get it - right through the skin. This must be the reason it hurts while being used soon after insertion?  

    SmileMarian 

    · Share on FacebookShare on Twitter
  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited October 2012

    Marian yes that is why! I had mine accessed 2 days after placement YIKES! My nurse told me a lot of patients have it placed and accessed the day of treatment but I couldn't since I had it placed at a hosp closer to home.



    I too had my blood levels checked right before treatment. Still do. I must say treatment is messing with my thyroid levels. I'm hypo and my levels have always been steady since I had it removed in 2002. That was my first cancer trip. Now my meds are changed every 3 months! Ugh.



    Rainy day but a good day for football. Go Steelers!

    · Share on FacebookShare on Twitter
  • Scorchy
    Scorchy Member Posts: 240
    edited October 2012

    Thanks, Tazzy.  I'm going to go straight today.  Two full days of fog is enough for me.  My lord!  No wonder Rush Limbaugh is nuts.

    · Share on FacebookShare on Twitter
  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited October 2012

    Westwoodmom....I wish you all the best ....can't be easy with a new baby and a BC dx

    and having to go back to work....that just isn't right. Try to pace yourself as much as possible. I'm 65 and decided to continue teaching for one or two more years (don't like the idea of too much time on my hands ). The first couple of weeks were tough, but I could come home and rest...guess with a baby...no chance for you....hope ou have

    Some family or friends for support.

    · Share on FacebookShare on Twitter
  • Cottontail
    Cottontail Member Posts: 374
    edited February 2013

    I had my port put in the same day as my second chemo treatment.  Luckily, the infusion nurse advised me beforehand (and luckily I remembered!) to request that the surgeon "leave the needle in."  Which just meant that she put an access needle in and taped it down while I was still under.  Then I was good to go and I didn't get stuck that first time.

    · Share on FacebookShare on Twitter
  • stride
    stride Member Posts: 470
    edited October 2012

    MrsCich, I'll echo anyone who tells you to ask your onco why you are not getting Neulasta or Neupogen. It seems like your counts would be low enough to justify it, unless there is some other medical issue involved. You need an answer to this question. Will your insurance cover it?

    · Share on FacebookShare on Twitter
  • halfcan
    halfcan Member Posts: 253
    edited October 2012

    Marian...yes I know of Zantac. It is over the counter. I think I'm doing pretty good for round 1 so far. Crackers seem to be my new friend though. Finished with the series of pills this morning with the last steroids pill. Do have a backup script for nausea and took one this morning. But I am happy today because it is my birthday and I feel ok!!! Last night we went to the inlaws for turkey dinner and had a great visit and my sis in law made me a beautiful chocolate yummy cake! Sweets seem to be losing their appeal but I ate some anyway and it was good! A good day is a day to cherish! Hugs to all...hope your day is going ok.

    · Share on FacebookShare on Twitter
  • MrsCich
    MrsCich Member Posts: 409
    edited October 2012

    Hi ladies.



    Finished the zoo, aquarium and insectarium for my daughters birthday and even though I am beyond exhausted it was a wonderful day.



    Happy birthday Halfcan!!! Here's some flowers flowers for your day! 💐🌸🌷🌹🌺


    Stride, I have no idea if insurance will cover it. I'm thinking so. I will call tomorrow and find out what my Onc didn't give me the shot. I'm thinking its honestly because I have plenty of time for my WBC to go up before I get my next infusion on Oct 19. I get labs done weekly to monitor my counts.


    · Share on FacebookShare on Twitter
  • MirandaSW
    MirandaSW Member Posts: 35
    edited October 2012

    I can't keep up with everything!  Wow. I only log on like once a week, and I can never find where I left off. So sorry If Im out of the loop.

    I had my Double Mastectomy 2.5 weeks ago. I overdo. Percocet is so good I do way too much thinking Im great and then come 4 pm I'm sore and exausted. 

    They were unable to get all the cancer as it was too close to the skin. So I will have radiation in addition to chemo. 2 of the 5 sentinal nodes on the cancer side were positive so they took that whole branch. Out of the 18 nodes, only those first 2 were positive. Thankfully.  Cancer is Estrogen and Progesteron +. The HER-2 neu came back 2+, but the FISH test says its unamplified. Appearantly its considered actually positive at a 3+.
    I had 3 drains. Still have one, but I think it may come out tomorrow. Oct 17 I get my port placed. Then I think chemo starts the 19th. I will be getting Cytoxin and Taxol (every 3 weeks for 6 doses)and maybe Herceptin (every 3 weeks for 1 year). Herceptin I maybe doing as part of a clinical trial to see if it make a difference in the prognosis of women who are 1+ or 2+ on the HER-2 neu. Ive been told that Herceptin is pretty mild. Hopefully that is true.

    · Share on FacebookShare on Twitter
  • juneaubugg
    juneaubugg Member Posts: 951
    edited October 2012

    Hi ladies. Been busy celebrating my 6 years of being clean and sober on the 5th and preparing for my next and LAST treatment. I did catch up but I don't remember who said what so ill just lay things out there.



    1) the drugs. Oxycodone is synthetic heroin. Careful or you'll end up in an NA meeting with me. Four straight days 24/7 and you will feel flu like symptoms when you stop. Warning, warning Will Robinson.



    Hydrocodone are generic Vicodine. Also highly addictive, but I don't think they are in the opiate family like oxyies.



    Ativan, Valium are in the Benzo family. Also very addictive. Take with care.



    Point is, always try perscription ibuprphan before an RX. I've met a lot of great people in recovery who got hooked from illness.



    Mrscich: I got that fungal mouth crisp last week. I let up on my rinsing religiously... So I got an additional fungal rinse, and had the magic mouthwash. And was told to keep up brushing after anything went in my mouth and then rinsing with 1/2 tsp baking soda and 1/2 tsp salt water concoction. It's working. My mouth is still sensitive to spice, but no sores or pain.



    Re neulasta I have always gotten the shot 24 hrs after my tx from the first one. Even WITH it my white count was .5 when I got the mouth thing one week after treatment.



    On a great note OUR TEAM has raised $2784 for BC so far. I have gotten two local gyms to take signage, I picked up at the American cancer society HQ here locally, and put on their counter, and two local Jersey diners are "selling" ribbons that people buy by making a donation of anyway from a single $1, and then sign/or color on for kids, and then they all get taped to the wall. It's called "a wall of hope". I will pickup the donations on walk day to add to our total.

    I can't wait to see the shirts with our team logo I created and ordered.... More so, I can't wait to walk with family and friends with you all in my heart, mind, and pocket!! 😁



    I couldn't have done any of this without you!!!!



    xxxxoooo

    · Share on FacebookShare on Twitter
  • juneaubugg
    juneaubugg Member Posts: 951
    edited October 2012

    Ps. My hair is already growing back. The woman at American cancer society said that does happen and I most likely wont loose it!!!

    · Share on FacebookShare on Twitter
  • juneaubugg
    juneaubugg Member Posts: 951
    edited October 2012

    PPS!!! 10/24: appt with PS to schedule final exchange surgery. I see the light at the end of this fucking tunnel. (Remind me of that next week after chemo when I'm feeling like hell please?)

    · Share on FacebookShare on Twitter
  • juneaubugg
    juneaubugg Member Posts: 951
    edited October 2012

    Oh yeah... Look for me if they show the American Cancer Society prize winners seating area during the Monday night football game tomorrow night! Of course "prize" winning may not be how I see it, but sure is a great gift for my DH. and I do love me some football. I'll just be eating brushing and swishing my way around the stadium!!!!

    · Share on FacebookShare on Twitter
  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited October 2012

    Juneau thats cool about the football but yea that's one win all of us would rather not have " won ".

    Speaking of BC though I saw the Ellen show is looking for people to tell their BC stories. So incase anyone is interested here is the link  http://www.ellentv.com/be-on-the-show/454?adid=100812_ellen_newsletter

    Wishing few SE's for those in the bgc and that everyone can all find a "happy spot" in  their day.

    · Share on FacebookShare on Twitter

Categories