Calling all TNs

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited October 2012

    Alrighgt ladies,  I'm going to he beach with my sister and her best friend this weekend so I will report back as to the view fronm the rocky shores of the San Juans.  I just hope it is a similar view.  Should make those shots of tequila go down a little smoother.........hehhehehe

  • rachelvk
    rachelvk Member Posts: 1,411
    edited October 2012

    Inmate - Have a great time and enjoy the company.

    EnglishRose - Good luck with the Taxotere. If you haven't checked them out, there are threads on Taxotere (Taxotere Toolkit is particuarly helpful). I iced my hands and feet and fortunately only had passing bouts of neuropathy. Also, throughout all my chemo (TACx6) I swished and swallowed olive oil twice a day. Took a while getting used to, but it really saved my taste buds. I only lost my taste a day or two each round, and even after the last round, my taste was back to normal within a week or two. Wishing you all the best. 

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited October 2012
    Dear God: Let me give you a list of just some of the things I must remember to be a good dog.
    1. I will not eat the cats' food before they eat it or after they throw it up.
    2. I will not roll on dead seagulls, fish, crabs, etc. just because I like the way they smell.
    3. The litter box is not a cookie jar.
    4. The sofa is not a "face towel."
    5. The garbage collector is not stealing our stuff.
    6. I will not play tug-of-war with Dad's underwear when he's on the toilet.
    7. Sticking my nose into someone's crotch is an unacceptable way of saying "hello."
    8. I don't need to suddenly stand straight up when I'm under the coffee table.
    9. I must shake the rainwater out of my fur before entering the house-not after.
    10. I will not come in from outside and immediately drag my butt.
    11. I will not sit in the middle of the living room and lick my crotch.
    12. The cat is not a squeaky toy so when I play with him and he makes that noise, it's usually not a good thing.
    P.S. Dear God: When I get to Heaven may I have my testicles back?
  • Spica16
    Spica16 Member Posts: 130
    edited October 2012

    Inmate - I've hiked those rocky shores. The "view" better wear sandals!!!

    Have fun! ~ Shar 

  • NavyMom
    NavyMom Member Posts: 1,099
    edited October 2012

    EnglishRose....saw this and thought of you

  • Babs37
    Babs37 Member Posts: 455
    edited October 2012
    Imagine the "oceanfront" ...Tongue out
  • journey4life
    journey4life Member Posts: 517
    edited October 2012
    Inmate - relax and enjoy yourself! "Jose Cuervo, you are a friend of mine...lalala" Cool
  • OBXK
    OBXK Member Posts: 791
    edited October 2012

    Lory - what great b'day news. Enjoy it !!!



    Inmate - LOL as I think of our bald mug shots, on Nancy Grace!

    I'm still wonderfully numb - when does it wear off?

  • TifJ
    TifJ Member Posts: 1,568
    edited October 2012

    Hi Inmate! Good to see you posting! My MO is retiring in June and moving to the San Juan Islands- He will be there in a couple weeks looking for a home. Small world!

    Wow Annie! My husband doesn't look like that either- who do I have to talk to to get my husband an ass like that!!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    Yes Babs imaging the "Ocean Front".  Boy is my imagination working.  Really pepped up my day. 

    Titan - down girl lol.    

  • Titan
    Titan Member Posts: 2,956
    edited October 2012

    hey..cocker...a girl has to dream doesn't she...?

    Inmate and all...my hubby and I are heading to the beaches of South Carolina on Monday...I'll be on the lookout for the "ocean"  ha ha...

     My friend just finished chemo today!  I hung out with her and we skipped out..she was so happy!  She took off her wig and I saw some peach fuzz there...so all is well..now time to heal...she has rads coming up and she is red head (or she was)...I told her that she may experience a little burning but hopefully not too bad...I was lucky that I have a more olive type complexion...and didn't experience any burning at all

    The weather in SC is supposed to be in the high 70's and no rain..I'm not using anything higher than an 8 lotion..for the first day...after that...burn baby burn

    Inmate..let's plan on that shot of Tequila...when and where?  pm me your cell and we will enjoy one together...seriously!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    Titan wait for me. I want to see the "Ocean".  I too am a red head or was, now I'm coming through gray-ish or something like that. .  But I never burnt with rads and only got slightly red which faded about a week after I got home and no blisters at all.  When I sit in the sun I always burn first and then go a deep brown. I thought I might dye my hair silver when its grown a bit more.  Anyone got any suggestions on  what color it might turn out.

    Karen  - hope you are having a good day. What a stupid thing to say! but I do hope you are coping ok and not getting too stressed out with your doc's visit next week.

    By the way ladies I  asked that chap to do a 180 d and I was very dissapointed!!  You just can't tell nowadays can you. So its back to me old fellars arse,  at least his is not air brushed. Annie  

  • gillyone
    gillyone Member Posts: 1,727
    edited October 2012

    Titan - I too am a (former) red head (well, still am with some help!) and hardly "burned" at all with rads. My skin held up really well. I did ask, and apparently there is no correlation between burning from the sun and how your skin will react to rads.

  • Luah
    Luah Member Posts: 1,541
    edited October 2012

    English: I take a baby aspirin daily (when I remember - lol). I figure it can't hurt. 

    Unbelievably, I forgot I had a follow-up mammo scheduled for today until I got the reminder ping on my outlook calendar 5 minutes before! Is this chemo brain or life moving on? I whipped over to the center to get squished by the waffle maker. Ooo-Ouch! Fingers crossed all is okay - will hear in a few days if not.

    You ladies enjoy your beach time. We have a long weekend coming up in Canada (Thanksgiving)... heading up north for a family gathering, turkey the whole bit. Ds, 20, is flying in from out west.... can't wait to see him... We're going to cycle and hike the "mountain" - and enjoy all the fall colours which are absolutely stunning this year. These moments are so extra-special to me now.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2012

    Wow, I am reading this so much; most of you ladies have to wait days for your mamo results? I am blessed our center give us results while we wait! Even my MRI results, my radiologist calls me within 2 hrs

  • OBXK
    OBXK Member Posts: 791
    edited October 2012

    Annie - life goes on, with two boys in the house. I meet the Danish exchange student on Sunday. Loved the beach shot! My husband has a great bum ;)



    Luah - your holiday plans sound wonderful. I hope you mammo is unremarkable!



    My dryer died and I have to wait on another part. I hope it stops raining here soon, I hate the laundromat!

    Here's the bed I want...

    http://item.mobileweb.ebay.com/viewitem?itemId=170814815109&cmd=VIDESC

  • DesertMama
    DesertMama Member Posts: 47
    edited October 2012

    OMG, I think that is MY husband's nekked butt near that supposed oceanscape! Well maybe, but then again, I am on a helluva lot of drugs these days....

  • PinkyWI
    PinkyWI Member Posts: 73
    edited October 2012
    English and Luah, if you are getting chemo, please check with your MO before adding asprin.  Mine took me off of it for the duration and I only took a chewable baby asprin on M/W/F.  It has to do with bleeding.
  • DesertMama
    DesertMama Member Posts: 47
    edited October 2012

    As Pinky says, my MO also told me not to take aspirin at all during my chemo.

    Bernie, thank you for your kind words of comfort. xo Yes please, I would like to join the FB group if you could send me the info. Thanks.

    So my latest good news is I have organized a series of gentle yoga and pilates classes suitable for breast cancer patients and survivors. I was trying, without success, to find something to meet my needs. I was also terrified of being the weak and tired one in the class, who can't use my right arm much, wears an elastic sleeve, is missing a breast, is bald etc. Then I got the idea of creating low cost or free classes where every one is in the same boat, the instructors are versed in appropriate exercise for cancer patients, and no one feels like they have to wear a prosthetic to exercise.

    I now have enlisted a fantastic group of qualified and experienced teachers who are meeting to share and research information for teaching cancer patients, and some more advanced classes for survivors. I am making some headway on local hotels donating venues for the classes. I also have an amazing and experienced fundraiser who is organizing and hosting a benefit to help fund this venture. All of the teachers are generously giving their services at a discount or in some cases for free, so I will be able to offer these classes at a low cost or no cost to those who are financially strapped. I am really excited and this has lifted my spirits so much!

    The bad news is I am receiving even more media requests now and have actually agreed to do my first radio interview, yikes. Pretty freaked out by this- good thing I have a large stash of strong anti-nausea meds at my disposal. 

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    Karen I will look forward to seeing your old fellars botty!!! Love the bed, looks so comfy.  Was it you who went a peach color when you dyed  your hair.  I have never dyed mine and its red.  I was wondering what sort of color I would come out like if I dyed it silver.   Wishing you a  great day and weekend with minimum stress and I hope your boys make you laugh.

    DesertMama what was your hubby doing at the beach without you!!!

    Lory I wish our doctors were like yours and we didn't have to stress and wait for results. Would make it so much easier on us. 

    Can anyone tell me what are normal tumour markers and what are high.  I am to have the first of mine next week when I see my breast surgeon.  Annie          

  • bak94
    bak94 Member Posts: 1,846
    edited October 2012

    I am heartbroken, just found out about Marybe. Somehow I had missed that she had died last month. She was such a special person, I always loved seeing pictures of her bright smile! She was in my May 2011 chemo group, she always worried about scaring the lower stage gals as she was stage 4. I always told her she was such a positive influence for everyone and always begged her to keep posting there.  LuvRVing-I love the thread you started for her on the stage 4 boards. She will be missed and never forgotten.

    CS-All I know is the ca 27.29 markers 0-38 is normal. My last number was 34.6. Pretty scary, as the time before they were 27, that was the lowest mine have been, they seem to bounce around. The highest mine were when I was first diagnosed, they were in the upper 50's or low 60's. I forget, but I have it printed somewhere. I am in one of those moods, anxious, worried and sad. Sometimes I think I am sticking my head in the sand and trying to live as normally as possible. But I guess what else is one to do?

  • EnglishRose75
    EnglishRose75 Member Posts: 147
    edited October 2012

    I'm not taking aspirin at the moment--I was planning to start that after the chemo, maybe.  The oncologist said me that he couldn't medically recommend it but he wouldn't tell me not to do it.  So, I said, hypothetically, if I were to take it, how much should I take etc. and he said, hypothetically, if I were to advise you, I might suggest this...

    rachelvk: I'll check out the Taxotere boards on here.  I'm definitely going to do the icing. I'm told that Taxotere is worse for most people than the AC or FEC treatments.  I've found the FEC a bit unpleasant but do-able. Hoping I'll be able to tolerate the Tax equally as well.  Mind over matter...

    NavyMom: Yup, that about sums it up, although I don't think I will stop before I get to psychopath. It might be a case of straight jacket and isolation for me!

    Inmate: have a great weekend.

    OBXK: Hope you're doing OK.

  • Nuan
    Nuan Member Posts: 19
    edited October 2012

    Karen-- Sending you big hug. I'm thinking of you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2012

    Desertmama- Kuddos to you!! What a great idea you had, and way to push it through! Congrats on the interview! Bringing a voice and a solution to those of us needing this kind of assistance.

    Cocker- I have not had a petscan, so I a not sure if there is a wait for that here. Every other scan- bone, mri, mammo, ulrasound I have been told right away what the results were. I just can't imagine the anxiety involved with waiting to "hear". The anxiety leading up to the scans are bad enough.

    OBXK- I love that bed!! How nice that would have been after surgery. Sure would have beat sleeping in the recliner.

    English- I learned about icing after my first round of Tax, then marched in and requested ice for my hands- never thought of my feet.. :( lost 2 1/2 of my toenails. It was doable.. :)

  • OBXK
    OBXK Member Posts: 791
    edited October 2012

    Desertmama - What a wonderful idea. My pilates platform helped me so much, when it came to getting the ROM in my arms back, plus gentle toning. Well done you!

    Annie - I'd say what ever color you choose - leave it on for 45 minutes. I don't think I left mine on long enough.

  • Luah
    Luah Member Posts: 1,541
    edited October 2012

    Should have clarified - I only starting taking baby aspirin after my treatment was done. It's also believed to have protective effects for the heart. For sure, best to check with MO on taking anything while on chemo. 

  • journey4life
    journey4life Member Posts: 517
    edited October 2012

    On the aspirin question - I took baby aspirin throughout tx. My MO never mentioned anything about it.

    DesertMama - what an awesome thing you're doing and what a benefit for you and the women who join you!

    Has anyone had a CA15-3 marker test?

    TGIF!

  • momtnbc52
    momtnbc52 Member Posts: 5
    edited October 2012

    I love it . that is the first gokd belly laugh I have had since my diagnosis!  In need to pin that.  Thanks!

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited October 2012

    Inmate...hi enjoy the beach...going to look at the water soon.

    journey4life...I get them every 6 months. MGH protocol but with caveat it is not a very accurate tool. Hate if the numbers inch up.

    My daughter went to William and Mary.

    Just rode our ride on lawn mower for the first time, when no one was home and cut the lawn. No fear about that. Will my husband be surprised when I come home tonight.

    Making cranky birds. A hoot. Cranky Birds

  • OBXK
    OBXK Member Posts: 791
    edited October 2012

    Susan - love the birds. Kudos on the lawn work.

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