In shock
Comments
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crystal, joy and blessings for you, how lovely that your news was good !! Happy dance here in England for you too
Thanks bearcub, results Thursday, can't think straight just imagining it has spread everywhere. Know this is what we all go through but wish it was Friday and I would know what I am facing next. Have three days of visits and lunches out with dear friends, one I met at infant school 61 years ago ! When we meet up the years fall away and laughter is the best medicine I know. Hope you are well and happy and your chemo not too bad. ((( hug )))
Cats seem to be a good medicine too.
hope everyone is having a great Monday.
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Hi, When I was diagnosed in 2007, I also felt like it was the end, and I put myself in Gods hands and said, Lord if you need me now, give me the confort to accept, and if you want me to fight, give the strengh that I need for whats ahead, and you know what, he gave me the strengh, and here Iam 5 years later, bitterweet situation, because just when Iam celebrating my 5th year, my daughter gets diagnosed, so Iam being very strong to help her with her fight. I just want to let tell you that I understand your fears and emotions, and that you have come to the right place for support.
God bless you and help you also in your journey.\
Angie
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Angie, lovely words and I will put myself in his hands as from now.God has been so good to me over the years. When my youngest daughter was born we were told she would probably die before morning and if not she would be so brain damaged she would never be able to function in any way.
I went out on the fire escape of the hospital and prayed as I had never prayed before. She is now a 37 year old, with a beautiful five year old daughter. She has always been healthy and confounded all the Doctors by walking, talking and leading a wonderful life despite what they said. I am not deeply religious but I do believe.
In my panic I has forgotten, thank you for reminding me.
Edith.
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Angie, your daughter is also in my prayers.
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I will think of yo and your daughter. Mine was reversed, my daughter was diagnosed at the age of 27, passed away at 33, almost 9 yeras ago. I was doiagnosed a month ago. I understand what you are going thru also. May God hold you both in his arms. Jean
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Jean and Angie .. You are both in my thoughts. Angie how terrible for you to now see your daughter go through this. Jean ((hugs) .. You have been through so much and to be now starting this. Know that we are all here for you.
Joanne
Prayers for both -
Crystal:
I'm doing a happy dance for you!!!
LaDonna
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Edithester I am thinking of you today, tomorrow is the big day for the pathology results from your surgery. We have sure come a long way from our dx to telling our kids to now getting on with treatment. You are a strong woman, and I am praying for great results for you.
Bonnets I am so sorry about the loss of your daughter at such a tender age. I can only imagine how crushing that was to go through. We are here for you, ((hugs)).
Angie what a beautiful picture of you, I am so sorry you now have to watch your daughter walk this path. I am sure you are very inspirational to her. ((hugs)).
Benny how is your arm doing? -
Edith,
Hope your results were good. I go to the radiologist tomorrow, Hope things get started soon. Jean
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I'm sorry for neglecting this thread for the past few days. I have been checking in but feeling quite low with various physical pains, so of course I jump to the worst conclusions. My arm is doing better in terms of range of motion, but my breast feels like a burning baseball inside, it's very hard and extremely tender. It seems to be getting worse. I have an appointment with the surgeon on October 10 to discuss the pathology report. I am TERRIFIED of attending this appointment for fear of what more I will learn. I also have a very tender rib on the right (affected) side so am now thinking it's spreading to my ribs. I was talking with the barn owner where Diamond is boarded and he told me that his wife, a nurse, was diagnosed with BC in September 2002 and died on Christmas Day 2002. That's how quickly the cancer took her. I couldn't sleep last night thinking about this. I keep trying to tell myself that both scans were good and I was a candidate for a lumpectomy, but if it's grade 3 I suppose it could spread really fast.
I will be going out to the farm today to spend the afternoon with Diamond, my beloved giant plush toy, who has an amazing ability to keep my mind off the bad stuff. I am learning to live in the moment, whether I like it or not.
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Hi Benny and hugs to you honey.
Have you told your surgeon, or his staff/nurse, about your breast feeling like a burning baseball? Maybe they can get you in sooner then the 10th to examine you and help alleviate your concerns.
I'm praying for your path to come back with good results. I'm glad you're going to be with Diamond today, it'll help keep your mind off things.
love,
NSJ2
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@bennymuffins, good idea to keep your mind in the moment. About that pain, I am wondering if you have been pushing too hard or using your arm on the affected side too much since your surgery. After all, it hasn't even been three weeks! You are probably not completely healed yet. I had mastectomy, not lumpectomy, but I was told not to lift anything heavier than ten pounds for six weeks after surgery. Did your surgeon tell you anything about weight limitations? From your description of your activities I would guess that you have exceeded 10 lbs multiple times. A call to the surgeon's office or a quick visit with the surgeon's nurse might reassure you about the pain. Also, you might be able to get a copy of your path report without waiting until next week. They may not be willing to give it to you before you talk to the doctor, but it can't hurt to ask.
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Hi NSJ,
No I haven't told the nurse about the baseball effect. Actually, it's more like a shotput because it is so very heavy. When I wake up in the morning it's particularly bad and I have to put a bra on immediately because it's so heavy and painful. ~sigh~ The surgeon is on holidays so October 10 is his first day back. When I was at the farm the other day I threw 3 flakes of hay over the fence for a few horses and got an immediate stabbing pain, so maybe it's just that I overdid it. That's what I'm hoping anyway.
Thanks for the prayers ♥
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Benny it could be a bit of fluid buildup or just part of the healing process. 2 weeks after my surgery DH and I went on a week vacation and on the way home mine also felt like that. It did slowly ease up over several weeks. When I did see the surgeon she thought it was fluid drying up??...also pain in the ribs that went away. I thought maybe it had something to do with a doctor or nurse elbowing or leaning into me during surgery??...your pain will go away please try and not worry. Do talk to your doctors about it on the 10 or try and move the appt. up like NSJ2 suggested. If it is an infection they may want to get you on antibiotics. I am praying for a great path report for you.
I feel terrible for the barn owner whose wife passed so quickly. She must have caught it so late she had extensive spread to her abdomen or she died from some uncontrolled infection. So sad......hang in there Benny, enjoy Diamond today. -
@bennymuffins, there may be another doctor substituting for yours while s/he is away, so I imagine you can still get some answers by calling the office.
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Curveball is right! Call the surgeon's office and ask who is covering for him while he's gone. Then ask the nurse or staff to please ask if they can get you in to see him/her (coverage) or at least have a conversation with them.
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Bennymuffins, I just found out about my diagnosis on the 26th of last month. Shocked is not strong enough for how I felt. My primary care doctor called me and she was close to tears. I had to comfort her!
We are going to get through this. Don't go to the worst scenario and steer very clear of negative people (one woman I told asked me if I would continue to need more surgeries after the lumpectomy as they keep finding more and more cancer--holy mother of pearl, I had no idea what to say!)
I'm in agreement with a lot of these wise women. Try to find a center where this is all they do and will provide all treatment. And keep reading here. It is such a blessing to have this board!
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Bennymuffins, I have been reading along off & on for a while. That hard knot could be what is called a Seroma it is a pocket of fluid that forms from the plasma (clear) part of the blood after surgery when the many tiny blood vessels are disrupted. I had a small one & they can be very painful. I have read several women on here that have had them & have had them drained. If this is what it is it feels so much better to have them drained. On the other hand it really needs to be checked out to make sure it's not the start of an infection also. Your surgeon who is on vacation WILL have a Dr. on call for him. They ALL do that. If he doesn't call your regular family Dr. & see them ASAP!
As for the remark of that gentleman about what happened to his wife. That is RARE & it most certainly was so advanced! This fear even happens to US who know more about our disease & it is hard to escape sometimes! But with that said....I am gonna tell you about my friend from church. 4 years ago she went in for Gallbladder surgery....when they cut her open they turned around & closed her right back up as they found cancer. Shortly after they found that she had extensive breast cancer in both breasts that went all the way down to where her Gallbladder was. The BC was 2 different kinds of BC in each breast. They gave her Chemo before they did her double mastectomy. She also had very extensive radiation treatments to both mastectomy area's. It is now 4 years later & she is ALIVE! She is doing well & will see her last child graduate from High School this year. Yes she has been through much & has glitches from time to time. But the cancer remains gone! No breast cancer is not a walk in the park. For some it is easier than others. The NOT knowing is the worst kind of fear....when you get your path report & have a plan of action the fear will start to ease. Some days will be harder than others but as time goes by it will be easier. I'm glad you found us, WE KNOW as no one else does. We have each others back so to speak & some Day you will be that OTHER for some one else! But for now don't lift anything more than 10 pounds & no repetitive motions (over & over again) even if less than 10 pounds. Yes you should move it but not for hours on end! I am a CNA & went back to work 5 weeks after my Lumpectomy & Sentinal Node Biopsy. That was May 22....I am still sore at times & they say the Radiation treatments can aggravate it. Time Benny....time it's hard but our bodies need it to heal!
I hope this helps.....PLEASE CALL THE DR"S OFFICE! Let us know how your doing! Julee
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Bennymuffins, please call your doc's office tomorrow and be seen. Don't wait for the appointment on the 10th because its possibleyou could have an infection and if so, you need that checked right away to get on medication. Don't want to alarm you, just err on the side of caution.
Thinking good thoughts for you and give your new horse a hug for me.
Lizzie
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Benny,
Tried to post 2 times and the message didn't go thru. I'll try again.
I agree with the other ladies , that you need to call and try and get in to see your surgeon early. If nothing else to feel more at peace. I have a seroma, started out as a lump about the size of an egg. Have a friend who had one the size of an orange. She had hers drained for several days. MIne has shrunk some in the last few days. I cud actually sleep on that side for a while last night.
O also noticed you dont sleep in your bra. My dr. told me wear one 24/7. Don't like that but am doing it, s it offers the breast support. You may feel better if you try that.
Hope things feel better, hugs, Jean
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Benny, spent half an hour typing away last night and it didn't go through !!
These ladies are soooo right, remember how ill you were last time and then when you got help everything changed ? Bra in bed a definite, support needed day and night. I have a softer one for bed.
I had my pathology report yesterday. BC all out with the lumpectomy tumour almost twice as big as had been thought, lymph nodes clear:-)Radiotherapy starts in four to six weeks, also chemo, this was a bit of a shock but it is my insurance policy for my future. Before he spoke I had little pains in a lot of places, sure it had spread everywhere. When he had spoken every pain vanished, happy dance in carpark with DH and my beautiful eldest daughter.
Earlier as he removed steri strips he said my breast looked swollen, thought that was normal I replied. It was a bit warm and quite firm with the odd shooting pain. No he says lots of fluid in there ! He is handed a syringe that would have given Diamond a fright. Then with no pain or discomfort he removes that much liquid that DH and ED almost fell off their chairs ! Hope yours isn't an infection and maybe just worse version of mine, if it is the relief is amazing. Now bra fits better must have gone down a few cup sizes.
We all want to be back as we were but invest a few months in yourself. No chucking heavy things about. I don't lift anything heavy, do my exercises and I still had this.
As for what people say what is the matter with them? Think it is opening mouth before putting brain in gear syndrome. We went out to celebrate last night for a meal with dear friends. She gazes at me, how will you feel when all your hair comes out ? she says, silence at table." For the first time she will have less hair than me" says DH with tears in his eyes, then realised he has taken all this far worse than me and was trying to make me laugh, it worked, horrible moment over and gone.There will always be someone who does this to you. Many years ago when I was diagnosed with Diabetes someone said " oh my nan had that, she went blind and lost both her legs " that really cheered me up !
Happy Friday Gorgeous Girls. Dragging DH around the shops today, McDonalds Lattes ( love them ) and going to look at gorgeous scarves.
Hugs to you all and Benny ring the Doctor or I will fly over and take you there. I am a scouser ( Liverpudlian ) and we don't take no for an answer.
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Very nice response Julee. Benny you are dear to my heart. This is all so scary, I know bit so far you have had good news. Chucking bales of hay 3 weeks out is likely not well advised so just take it slow.
Sometimes you just have to get firm with folks. I did two things right away with people:
1) I told people I absolutely did not want to hear about people who died of breast cancer PERIOD. I already know people die of breast cancer and staying in a positive head space would be a critical piece of my healibg and survival - no exceptions
2) I told people I wanted ZERO unsoliscited advice about how this person or that person treated their cancer PERIOD. I trusted my medical team I needed to believe in my course of action and there was no room for second guessing or shoulda woulda coulda.
That was it I just laid the ground rules with EVERYONE right away and if people could not abide by those 2 simple things I just did not associate with them. You DO need love and support right now not negativity. Some people just don't k ow so I made it easy on them I set the ground rules.
That and I did not want folks to minimize the hair thing, but I already ranted about that.
Carrying clippers and waving them menacingly at folks with hair and a roll of duct tape in the other hand to temporarily restrain them can be very powerful, wink wink
Have a great weekend ladies. Be gentle with yourselves
Benny no slinging hay. I had that same pain after a surgery weeks out just from swinging a golf club ; (
Oh and I almost forgot. Susan G Konen in my town this weekend and they hosted their first ever survivor dinner Wed for Survivor and one guest. It was very lovely and they had us stand for years of survival. The amazing woman who founded our group is an amazing speaker, THREE time cancer survivor, breast twice and one other different cancer she dis not specify and she is in great shape THIRTY years after her first breast cancer - Thoss are the stories I want to hear and focus on!!!!
Hugs
Lesley -
Edithester I am so happy your pathology came back with such wonderful news. It is such a relief to know for sure what is going on in your body. You are much like me, no evidence of disease left just have to go in and mop up any stray cells ( if there are any)..yes your insurance policy. I am halfway through chemo now, make sure you join a thread that is with people going through chemo with you as you get so much valuable info. I am in the sept 2012 chemo girls and they have been so much help.
Your DH is such a sweetie, my DH and myself took a baldy picture together, yes he has more hair than me, lol....but we are smiling in the pic.....
I had a friend who told me right after my surgery that if it was her with BC she would do nothing, no treatment, I said you would die then and she said yes.....wow I was shocked that she feared what I had so much, did I mention she came over to show off her two new knees. As she walked stiffly away I felt truly sad, at 58 she has never had a mammogram.....and said she wouldn't . -
Benny? Don't mean to be a pest, but hoping you'll let us know how you're doing when you can.
NSJ2
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Went to the radiologist today. He remembered my hubby from 11 years ago when he treated him for prostate ca.
Have CT scan Thursday, xrays about 5 days later and then on to 6 weeks of rads. Hopefully minimal complications.Oh yes, got the steri strips removed, stop the itching!
Benny, got that bra on to sleep? Hope you are able to see dr. today.
Edith, I had a lot of trouble with the web site last night too. We were at a B&B in Ct. this week and we had 7 guests there from the UK. Had a good time with them. Glad you got the seroma drained. Mine is much smaller today.
Beautiful day here, now that we are home from our mini vacation. Don't ya know. Jean
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Benny, your lump is likely either: Seroma, hematoma or infection. None of these are cancer. Go to the doctor immediately, get seen quickly and they can put you right. Meanwhile do as little with that arm as possible. It's very important.
Since you had clear scans, it is unlikely that your rib pain has to do with cancer. It is from your surgery, which can produce myriad pains in unlikely places. Cancer is usually slow growing. Your barn friend's wife probably had cancer for many years before she was seen and suddenly died. You are not in the same situation.
Give yourself the time you need to heal and try to take it easy as you can. (((hugs)))
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Oh how I love this site and all of you on it. ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ Just reading through and feeling better as a result. I did wear my bra to bed last night and much better this morning. It is still tender and swollen but not as bad. I really don't want to have it drained because they obviously stick another needle or something in it (OUCH!!!) to do that and I am sick of having things stuck in MPOB. Will it go away on its own? Both the nurse navigator, the surgeon's secretary and the surgeon are off on Fridays. If it gets worse I'll head to emergency. I have been trying really hard not to use my arm at all for the past few days. I did bring my horsey in but she was good as gold so no straining, and I have not ridden her at all (okay, I jumped up on her bareback and just sat there motionless, relishing in the moment. The barn owner held her still so TECHNICALLY that is not riding (grin)). I promise no more slinging hay (for now). It will be three weeks this coming Monday since the surgery. I think the surgeon said I could ride at 4 weeks!!! Giddyup!
You know what drives me nuts??!! When I tell people I'll lose my hair from chemo, and they say "But you can buy a wig!". How many of us would rather have a wig than our own hair... please raise your hands! (not a hand goes up) It's not the same! I know they're just trying to make it better and don't understand, but don't tell me a wig is a suitable replacement for losing all my hair that I've had since forever. And who the heck has $3000.00 for a wig? I can't even afford my mortgage payments while I'm on disability ~sigh~ Anyway, rant over.
Okay I am heading out to the barn with homemade potato stew for the barn owner. He is boarding my horse for free until I get back on my feet again. And I promise... no bales of hay. The heaviest thing I'll lift is a molasses cookie for the giant plush toy!
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Now wait just a minute there, Benny! You were pitching 50lb bales of hay??? I thought it was "flakes" of hay.
Tsk tsk ..... I'll let you off this time but only if you share a molasses cookie with me too!

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NSJ, I flung the flakes but did help the barn owner with some bales. He blasted me for it too, told me to get back on the tractor. And I mostly used my left arm with the bales.

The molasses cookies are made of completely edible products, oats, grains, etc. I haven't summoned up the courage to try one yet tho'!

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Bennymuffin .....
First ... I wore a bra to bed for at least 6 weeks ... That was the instruction from the surgeon
Second ... No lifting over 10 pounds ... You are only asking for trouble
I had an infection in the lymph node incision ... It was painful and I let it go. If it get really bad go to the ER. You can try heat or ice but be sure it not directly on your skin.
Take care,of yourself. You are just at the beginning if this "journey"
Joanne
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