2012 sisters

Options
1109110112114115184

Comments

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Marian, hope you get good results back from all your scans and consults today. You are busy, hey?

    Tazzy, that get-together sounds like a very good idea! By the way, my son is in Kelowna for work this week, and he just loves the warm weather there. Hope you can get back to the yoga soon.

    MrsCich, sorry to hear that the fills were so uncomfortable for you. Maybe take a pain killer half an hour before, that's what my PS suggested. I never felt any of the fills, and my boob is still numb 8 months after surgery. The first few days after every fill I had to take painkillers. I'm also due for more fills, because the rads have visibly shrunk my foob, TE and all. It was overfilled before rads to account for that, but oh well, on this rollercoaster you never know what is waiting around the next bend in the road.

    Shock2behere, chances are you will not have such a bad time with #3. Everybody reacts differently. The tight chest and breathing difficulty that I had during #3 is a rare side-effect. If it wasn't for that, it would have been okay, really.  

  • websister
    websister Member Posts: 1,092
    edited October 2012

    Shockd2behere - I like what Liefie said re: treatment #3 (especially since I am good to go tomorrow for chemo 3). I will hydrate and do as much as possible to avoid the side effects and then I will just have to see how it goes. I hope it doesn't hit me too bad as we do have our trip planned and we leave on the plane Saturday a.m.

    MrsCich - hope the wig fitting took your mind off the discomfort of the fills. I took mine off after my lab appointment this a.m. and forgot I didn't have it on, went to the door without it. The person who had come to the door was a friend of my husband's and doing some work in our backyard for us. I went out later to give him a pie we had left over from our family gathering this weekend and had the wig on then. He told me he liked both looks, very gracious of him.

    halfcan - welcome. It looks like you are HER2 positive also; has your MO discussed Herceptin with you?

    Liefie - welcome back, sounds like a wonderful time. That was really nice re: Run for the Cure and your son, he sounds like a keeper!

    Better go now and get some supper on and keep hydrating for tomorrow. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2012

    Sorry if I scared any of you still awaiting #3. I think it is very true that everyone reacts differently. My story was worse this time I think since I caught a cold from my kids during round 2 and that has caused some lingering effects exacerbating the issue. So go into it thinking positively and see what happens. Like the experienced chemo warriors have told us - this will all pass and become a distant(ish) memory down the road. Together we can all do this! Websister - will be thinking of you tomorrow - and all others headed to the BGC soon, and wishing you all minimal side effects. As for me - the cough is still causing me some problems, but for sure more manageable. And I managed to get somewhat of a healthy dinner into me (been craving spinach so sauteed some of that up along with my meal), and finally motivated myself to take a walk - and managed to get two loops in tonight after dinner. So might be feeling a bit more human. Fingers crossed the chemo fog will be lifted when I wake up tomorrow morning. Sending you all big giant hugs and a restful night sleep!

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Websister, so glad you can do the chemo! I will be thinking of you tomorrow. Hydrating is the best thing to combat SE's. My wish for you is that the SE's will leave you in peace so that you can look forward and enjoy your trip. (((Hugs!)))

    Ramols, good for you on the walking. It somehow feels good to just do something 'normal' like that. The nurse who administered my chemo, told me to walk and get fresh air, because 'it gets oxygen into the blood', as she put it. Even 10 minutes outside is good. Hope the 'mists' will be gone tomorrow, and that you'll see some sun!

  • Scorchy
    Scorchy Member Posts: 240
    edited October 2012

    Juneau, you need to win the lottery after this thing!

    Off tomorrow for a CT-guided lung biopsy.  All weekend thought it was the back, but just found out today it was the lung.  (yay.)  Slight risk for pneumothorax.  If so I have to stay overnight. (whoopie.)

    Well, it's a good time to get some knitting done.  I have to stay there for four hours after.

    Any knitters out there in 2012 Land?

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited October 2012

    Scorchy, I come from Scotland and could knit scarves before I could write. When I came to Canada, I came with so many beautiful sweaters and cardigans, but I sent them all

    home due to the central heating here....they were just too hot to wear. Used to knit for my husband and sons and they just complained how "itchy" they were, so I gave up.

    Now I can't even focus on a book never mind knit ......good for you...I kinda miss the clicking of those needles.....lol

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Hi Scorchy, I haven't knit in many years, but decided just a few days ago to buy some chunky knitting yarn, and knit myself a scarf. My last effort was a green sweater (his favorite color) for DH 33 years ago when I was a newly-wed, and wanted to impress him with my diligence and competence - LOL! He has the longest arms ever, really, and by the time I had those sleeves done, my enthusiasm had completely evaporated. I gave the project over to his mother, who finished it. What are you knitting? Hope you avoid the hospital stay tomorrow!

  • stride
    stride Member Posts: 470
    edited October 2012

    I will be joining those of you with last chemo on Oct. 10! We should have a virtual party to celebrate afterwards. Mine will be round the last of 6 TAC treatments. Rounds 4 and 5 kicked my ass. My onco said 6 is never as bad as 5, so maybe its always the second-to-last one that is the worst, however many you're getting.

    My onco suggested I consider a clinical trial of more chemo after my surgery, at the same time as radiation. Sooo not sure about this. But I have plenty of time to think about it. 

  • mcook301
    mcook301 Member Posts: 509
    edited October 2012

    Hi everyone!



    Mrschich - sorry I missed sending you hugs on your first day of chemo but I am glad that part is over and sounded like it went as good as it could.



    So much that I caught up today so I am just going to say hello to everyone.



    My birthday was on Friday so I headed up to Minneapolis to go out with some friends. It was nice but I can't hang like I used too:( I had a awesome vodka martini to write home about but I stopped at one:) Saturday my bf and I had brunch at a really fun rest.. Called hells kitchen down town and it was a lot of fun. Then took a walk and of course a nap:)



    I am still pretty stiff and have joint pain and that really bothers me and I hope it gets better. I guess it could be worse but dam! I am glad people shared about their depression on here because it is nothing to be ashamed of! It is something my mom and aunts have dealt with their whole life but too scared to ask or search for help. It is something I have struggled with as well but I have learned how to manage myself and bf BC be able to pull myself out of it and have takin Meds in my younger years but i don't now.



    Love that a lot of you are doing the race for the cure or other events! I want to do another race this year as last June I had to walk a half marathon during chemo. Yep it sucked and it was hard as hell so this year I can't help to beat that race time:) I used to run a lot but even bf BC I had stop running as much but I want to challenege myself to do one more marathon or half. Just one more:)



    I decided not to do rads and I was torn about this decision for last month but I finally made the decision and I won't look back and second guess it. I am ok with my decision and know it not what every would decide.



    Sending big hugs!

  • Scorchy
    Scorchy Member Posts: 240
    edited October 2012

    Scottiee1 and liefie,

    I love to knit and find it very relaxing while waiting for all of these doctor's appointments.  I was going to take my laptop tomorrow and then I thought after giving my body over to needles, I'm rewarding myself.  Not working.  Blech.

    Working on a baby blanket now.

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited October 2012

    Scorchy- I dont knit but the last thing I want in my hands are needles. Haha I feel like everytime I turn around someone is poking me or wanting to poke. But I know knitting is very calming or so my great aunt tells me.

    Hope you all have a wonderful day.

  • juneaubugg
    juneaubugg Member Posts: 951
    edited October 2012

    Scorchy... Knot up a storm. No working.



    My take on chemo was it is cumulative.... Isn't that true? Whatever had an amazing massage today and I am not crying anymore. Took a sleeping pill early and a pain killer. I AM SLEEPING TONIGHT OR ELSE!!!!



    goodnight ladies. Wishing us all some 'winks' without SEs.

  • _Ann_
    _Ann_ Member Posts: 769
    edited October 2012

    juneaubugg, I'm glad to hear you had a better day today.  Sweet dreams!

    Regarding depression, the BC diagnosis and chemo accelerated my mood swings so badly I went on a new med for bipolar.  It finally kicked in (been on it over a month now) and I swear I feel better mentally than I did the past several years before BC.  Wishing I'd done it earlier but I was determined to cope med free.   Oh well, live and learn.  I never realize how badly I'm doing until I can see the contrast after going on meds that work.

  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited October 2012

    I'm envious! I always wanted to learn how to knit. My mom crocheted like a fiend but never taught me. I do like to cross stitch. I've been working on a Thomas Kinkade sampler for ohhh about 12 years! Seriously! I would take a few years off here and there but know I'm back into it. Lots of beautiful colors.



    Still healing from my lumpectomy. Wish the stitches would come out! Start rad on Thursday. Shld be no prob right?



    Also I'm glad I'm not the only one who had the aches and pains and flu like side effects. The first time I had the chest pains I thought I was having a coronary episode and went to ER. It was nothing and I knew better the next time. But it was scary.



    Ladies have a beautiful day and wonderful vibes to you all.

    Karen

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    mccook... happy belated birthday for last Friday.

    Not a knitter nor a crocheter.... Mum always did both, not so much now.

    As for depression, I remember when I was a kid, about 10-12 or so.  My aunt had severe depression and was in a 'mental' hospital (really dont know the term used for them now.. .sorry).  Anyway when we went in my Mum said to me "If these people had broken their leg, you'd see their cast and know what they had done... well these people in here are no different, except you cannot put a cast on their minds - that is what is broken and they are here to try and mend it".    I have never forgotten those words and never forgotten that she is open minded enough to have taken me.   Sure there were people out there who disapproved at the time.

    Wishing minimal SE Tuesday for those that need it.   And wishing everyone else a wonderful Tuesday.

    Juneau... yep, chemo is definitely cumulative.   Hope you managed a good nights sleep.

    _Ann_: Glad you found medication that is working for you. 

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Scorchy, I have also been playing with the idea of knitting a baby blanket. Don't have any grandchildren yet, but maybe I should get started. Will have to keep it a secret from the kids though. They will think I'm trying to push them - LOL. Sending you good vibes for today, and hope everything turns out well for you.

  • websister
    websister Member Posts: 1,092
    edited October 2012

    Good morning

    Won't address all the posts as I'm sitting in the waiting room waiting to be called in for my chemo.

    Knitting - as a child, maybe I should take it up again, definitely lots of waiting room times

    Depression - agree with what others have said, I have seen medication make a tremendous difference in people's lives and I am so thankful we have this avenue



    Juneau - glad the massage helped, hope you had a good sleep



    Ramols - wishing you continued healing from the cold and side effects



    MrsCich - hope you had a comfortable night post fills



    Mccook - belated Happy Birthday



    Take care everyone

  • juneaubugg
    juneaubugg Member Posts: 951
    edited October 2012

    Web sister; thanks... 12 hours! I took an ambien, 3 Ativan and one pain killer so the back didn't wake me up. Still could be sleeping but my MIL would have thought I died up there! So starting. To mend I hope.



    I'll be thinking of you today as you have your tx.



    Mcook: sorry I forgot to wish you a happy belated.



    Mrscich. Thanks for that donation btw and hoping the SEs that are most likely starting a little aren't too uncomfortable yet. I can't imagine having fills and chemo the same week. (((Hugs)))



    So I'm wondering if I will be able to walk this entire 5k... Worried. I get winded and over heated so quickly. Oh well I can try my damnedest.

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited October 2012

    Hey ladies,

    Hope the chemo effects calm down fast.  I agree that stuff is definitely cumulative.  But somehow that last dose isnt as bad, its just knowing its the last dose that helps. 

    Juneau good luck on the 5k, i will bet you can do it and will be surprised. 

    I did my 16 of 33 rads treatments.  its going fine, just tired.  The skin is a little pink.  So far so good.

    Best wishes to all!

  • mcook301
    mcook301 Member Posts: 509
    edited October 2012

    Hi



    Thanks for bday wishes everyone! Funny I thought last year I would dread turning 43 but now I am going to celebrate each bday with friends and lots of fun and love!



    Juneau - I think you will be surprised on the 5k and that you will remember when on that starting line how strong you are! We are all here supporting you! And knowing you are walking for all of us:) hugs!



    Too everyone else wishing minimal SE and sending lots of positive energy!



    I have been back to work for two weeks now and it is keeping pretty busy. Not sure if a good thing or bad but they haven't slowed down or coddled me since I have been back. It is wearing me out a bit so I am watching that but feels good to be back.



    I will tell you it is odd because Although your friends and family move on faster than I do, my journey is far from over. So I am glad that I have all of you! Hugs!



  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited October 2012

    Hi ladies,

    When I read all of your posts, I feel like a hypocrite. Why? Because I have not had to undergo any of the treatments you all have. I haven't lost my hair, haven't had to sit in the BGC, (well I take that one back I had 3 rounds of iron infusion treatments), the only thing I've had to do was remove my breasts. I don't feel like I have the right to say I'm a survivor. I feel guilty that my degree of cancer isn't the same.

    For all of you going in for your next treatments, surgeries my thoughts and prayers are with you. For the ones with SE's I hope they pass quickly.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    Chrisrenee... I will say the same to you as I said to someone else on these boards who said she felt guily cos she only had a lumpectomy.      Do not feel guilty - you had cancer... your journey may be a different road.. but its just the same.   Whether it be a lumpectomy, mastectomy, chemo/no chemo... whatever form it took... it is CANCER.   I bet a million bucks you felt the same as each and every one of us when you were told.  

    Do not apologise sweetheart.  Your journey is our journey... however you got here.

    Love and hugs to you all xxx

  • Scorchy
    Scorchy Member Posts: 240
    edited October 2012

    Chrisrenee,

    Tazzy is right.  You had cancer, baby, and that sucks all the way 'round.  Don't feel guilty--although I believe that is a wholly normal feeling.  I really do.

    I have to say that when I was first diagnosed Stage II, Grade 3, etc., etc. I felt guilty too.  I wasn't going through chemo (yet), and I didn't have that lumpectomy (yet), I didn't go through hell (yet).  And I thought that in 12-18 months it would all be behind me.  And I felt guilty because I felt like I was being let off easy.

    A month later I was diagnosed Stage IV.  But, I kind of felt the same way.  Wow, I have Estrogen+ IDC and not triple negative or inflammatory.  I feel guilty complaining.

    Embrace that you are a woman with real empathy. We're all part of this lousy club, regardless of our stage and circumstances. And for that you have all the support in the world from us here. From me.  

    And greater NY area knitters: I say we join for a day for some intense knit and bitch!  I have a lot to knit and we all have a lot of cause to bitch!  Or I could statrt a 2012 Sisters knitting group on Ravelry.

    Love to all,
    Scorch

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited October 2012

    Thank you Tazzy and Scorch for the nice words. Much love!

  • Soyaandpepper
    Soyaandpepper Member Posts: 368
    edited October 2012

    Chrisrenee7-I agree with Tazzy and Scorch, its CANCER no matter how you spin it! And it sucks!

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited October 2012

    Yup, Tazzy said something like that to me when I said I only had a lumpectomy. Funny what can make us feel guilty. But I am really getting better at seeing the positives every day. Today my first postive was a lab tech actually getting 4 vials out of my bruised left arm (6 pokes in past days for the scans) with the first try. We both were smiling!

  • _Ann_
    _Ann_ Member Posts: 769
    edited October 2012

    Chrisrenee, you "only" had to remove your breasts.  Only?  No way is that getting off lucky!  You have every right to be here and post as much as you want.

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited October 2012

    Chrisrenee....Infound myself saying stupid things like....oh I'm lucky, I just needed

    Radiation....and then ladies here gave me shit....Cancer is cancer and radiation is not JUST radiation. Soya is right no matter what your treatment it all sucks. I thank God every day for this web site as I get so much support, advice, laughs....I can say anything here and everybody gets it.....

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited October 2012

    Thank you all so much for all the weer and caring words. It's funny because I've told my mom that I feel like I should classify myself in a group of yeah you had bc but you are in the weenie club because you didn't have any form of treatment. Haha. I truly admire all of you on here for your strength and courage.

  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited October 2012

    I agree! 10 years ago I had my thyroid out for stage 1 cancer. Small dose of radiation. Never felt right calling myself a "survivor". My sister had IIIb melanoma no chemo or rad and is fine now and feels that way too. But as I've learned you are a survivor. Oh no! I feel a song coming on! I'm a survivor not gonna give up gonna work harder keep on surviving! Hehehe! I love singing!

Categories