2012 sisters

Ops... Should have caught up on posts FIRST and then asked the above.... :-|



Thanks all. Starting to feel a little human. Slept for 7 hours... Wanted more but my body won't cooperate, bed is small my back hurts, my port removal incision is sore and foob is... Well a foob. Ahh... The things we do for love, eh?



DH is out playing golf with his brother, rest of his family at a 5 yr olds soccer match. I can't handle humidity and feel crap so I'm watching the Ryder Cup in the small squishy bed. :-) (just FYI- I did shower and get dressed that helped).



Just wondering- does everyone else have internal thermostat problem too? I got hot easily with little movement and csnt cool off. I prefer to stay cooled and wrapped up then got hot and clammy. Ugh. Makes going out SO UNCOMFORTABLE.

Hi all, been super busy being back at work this month as school started ( after being out last year from late feb through June for surgery and chemo- only there for three weeks in April. )



doing ok, well I guess. 7 weeks post exchange and adjusting to that. On Arimedex almost 3 months, morning stiffness and some digestion issues. Struggling to find a calcium I can stand. Hair almost an inch long, will be wearing my wig a while! Not ready for the severe look at school yet.
Re the mutiple surgeries/diagnoses/chemo/pills: "what happened? This is not me!!"



I know we do all these drugs to get ride of our cancers largeandsmall- yet I keep hearing that these med can cause health issues too. Yuck to all of it. But it is a sunny day- I will I find that happy be-in-the-moment moment.

Mrscich- so glad you are doing well post treatment. We hate that you have to go through chemo but so glad you are with us.

Finally starting to feel a bit more human since AC #3. Although been spending a good portion of my day resting in a fog from the codeine laced cough suppresant they gave me to see if we can stop the cough that is wreaking havoc on my abdomen. Can't wait to be done with all this nonsense. But at least enjoyed a good home cooked meal tonight. My Mom came to visit this weekend and made lasagna at my request. Biggest meal I've eaten since Wednesday's treatment! Been trying to keep up with all the posts, but can't respond to all. Just wanted to pop in and say hi. Doing ok. Sending you all big hugs and a restful evening! I'll be out cold in a bit thanks to some more codeine. Seems if I keep taking it and lie down, I don't cough. Maybe that is their way of forcing me to really rest during chemo...

Chrisrenee7.......alcohol is a touchy subject here since there is evidence stating that drinking alcohol may increase your risk of recurrence. I'm not sure how many responses you will get. That being said, I am also on Femara/Letrozole and although I am pretty anal about alcohol now, I have had a couple of glasses of wine since my dx in February.

I had no issues with it.....my only issue is I want more and miss my red wine. Have not heard anyone complain other than they, like me, miss their alcohol.

Marian.....good luck with the CT scan, and yes, have a glass of wine after if you feel like.

I understand what you mean.....it would be easier if we were like chrisrenee7 ....I sure do miss my red wine😪

scottie1 and marianelizabeth- I sure do miss my margaritas. I would have one at least once a week. The first time I actually wanting a drink was in July. I had a couple of sips and that was all she wrote. I sure do miss my weekly "rita times" with my gf's. So now I have gotten a new addiction....Route 44 cokes from Sonic, the more the better. Thank you both for responding.

Thanks, everyone.  I've never been officially diagnosed with depression, so I am not taking any meds for it.  I would actually feel really weird going to a doctor about it.  I felt odd when I asked my nurse navigator for Xanax for anxiety.  She asked, "oh, are you having some anxiety problems?"  To which I replied, "well, I just found out I have cancer.  Yes, I'm having some anxiety."  I mostly love her, but come on.  My depression was the worst when I was in high school (I actually attempted suicide) but I'm struggling with things in a completely new way now.  Thanks, cancer.

I asked for my Vitamin D levels to be checked when I saw my MO for my 6-weeks post-chemo checkup.  Her nurse called me with the results that I'm "a bit low" at 23, and said I should start taking 800 units of D per day.  I said it should be in my chart that I already take 2,000 units daily, and have been since the beginning of the year.  The nurse ended the call, then called me back a few minutes later and said I should be taking 3,000 units.  

Well, my tablets are 2,000 each, and I take D2 instead of D3, so I just upped myself to 6,000 per day.   I'll get my level checked again when I go back in December and hopefully I'll see an increase.

Anyway, all that rambling is just to say that maybe more D will help my mood out, as well. 

Cottontail.....I just posted something about anti-depressants and anti-anxiety meds on

" Great saying about depression".... if you have time, take a look.

I always found that to be my biggest problem too MrsC. I used colace w/stimulant and would take 2 tablets in the evening and 2 in the morning and that usually got me going. I have the same IBS issue so I really know how you feel. Once you get going, you might have to deal with gas issues. I'd usually have to take 2 anti-gas pills and 2 Imodium pills to get me back to normal. It's such a fine line.

Hope you find some relief soon.

mrscich so glad no SE''s yet except to "get going". Ater surgery I was having the same issue and taking over the counter stuff, even tried dried prunes since many have luck with them. Anyway I happened to be taking some new meds and saw that it said take with food. So I just grabbed a couple slices of papaya that I had sliced up. Lo and behold that did the trick. I thought maybe it was a coincidence but then I looked up papaya and it was described as a natural laxative. So if all else fails give it a try. lol

Tazzy hope you're behaving yourself while hubby is away  .

 Juneau hope the trip is going ok.   

Thinking about you all and hoping you're having a nice weekend!

Mrscich, that could be a sore, little soon for it but who knows with chemo. The baking soda gargles can help with that. Have you tried miralax? Gentle but effective. No stimulants in it. Lots of fluid and fiber and try a glass of warm water and a short walk in the morning, that's when the bowels are naturally most active. You can use all that in addition to the dulcolax suppositories and if need be a fleets enema. Glad the rest is going ok for you.



Ramols, glad you are getting through number three ok, hope that cold goes away fast.



Alcohol. I have cut back to just drinking on Friday and Saturday nights. That is just part of my relaxation ritual and I can't give it up. We have to live after all. I honestly thinks the estrogen effects from alcohol are so minor that I have a hard time believing it is really all that significant. The studies show that drinking 2 or fewer drinks a week shows no effect. They found an effect with three or more but that includes a whopping range of amounts. Some people who drink three drinks one night are lumped with those that drink a bottle of wine a night. There is a big difference there. Moderation is the key with everything. Have some wine and don't feel guilty. I do hope that your stomach settles and you can enjoy it some christy. But there are advantages to not drinking too of course. The one study that looked at recurrence rates was small and not that well designed in my opinion. It is easy to jump on the bandwagon and say its bad though so the medical community embraced the findings in that study quickly. There is more information about increased risks of BC in drinkers so there is no doubt an effect but It is always interseting how things change as time goes on.

First TE fill tomorrow morning. I don't know if I'm excited or nervous. In ready to get this show on the road.

I agree it sucks!

I am also getting so down...its finally hitting me ILcarcinoma..opt for bi-lateral mast.  I am 68 yrs old dont need beautiful breasts just want to look decent in clothing....1.9 cm however lummphovascular invasion...stero tactic biopsy failed went for excisional biopsy with margins not clear!  going out of my mine. scared...spoke with bs said curable but I have to let that sink in.  any encouragement will be appreciated hugs to you all Barbara