2012 sisters

Mscich,

Completely understand with fhe freaking out. My husband for the first week would change my dressings and drain tubes. But when he leaves for work im on my own. So when i clean my tubes and all my hands start to shake and i start hyperventilating.

I have decided to forgo nipple recon. No one other than my hubby and my dr's will see my boobs. Im god withno nips havent had them for 3 mos so why now?

My PS was wanting to put in at least 1/2 of my goal of 600-650ccs. But because i did not have a lot of tissue he was only able to put 250 in each. He told me that if i want fo go over the goal we could, but im not. Ijust want to fill out a shirt without feeling insecure, or tugging and pulling up my shirt.

Mscich

Im assuming that last question was directed to me. My ONC said that due to my oncotype score which was 7 that i have a really low chance of getting cancer again in the next 10 yrs. So no chemo was not needed.

When I went into my ONC she said that she's had one person come back with an oncotype score of 0. At that time I thought how lucky she was. Then I find out she's had more issues with her medical other than bc. So I will be thankful for my score of 7.

Ok there are two pages for me to catch up on so I will go back, ive been out of commission since i had my port removed on tuesday. SO GLAD ITS OUT I can lay in my left side again, even with the bandage and healing needed it feels better!!! but I need to vent first....



I noticed a sore on my tongue last night, but when I got up this morning my upper lip underside was red and swollen and trying to eat hurt. I stopped at the oncologist today. Unfortunately I have a fungal infection in my mouth so I'm on antibiotics and mouth rinses. My mouth is hurting now too so hopefully this will pass ARGH! I hate this whole cancer thing but this too shall pass right.... RIGHT!?



some days it just doesn't feel like it! I miss being part of the world but the chemo and my Crohn's disease are a crappy combination that leave me exhausted and sleeping often.



So tomorrow morning my DH and I are leaving for Wilmington NC on a scheduled trip to visit his family. His nephew is turning 5 and they are having a big party at some kiddie place on Sunday. My MO told me not to go. I'm in Nadir and my white count is .5 now and may not be normal by then. I asked "even if I don't touch anything?" She said a room filled with children could put me in the hospital....and I already have an infection in my mouth.



Saturday is his older nephews football game which I probably can't go to because I can't be outside in the sun.... And this stupid infection will rule out enjoying going out to dinner.



Sorry ladies, I'm just tired... I know this is a long road. I realized a couple of monts after my dx that this would be a "lost" year for me... But today I'm angry and hurting. I don't want to be THAT GIRL anymore. The one everyone adjusts for, the I e who people look kindly at because they know... You know... That you have the BIG C... The one that can't just blend into a crowd. I want to be able to go away without 800 fucking prescriptions!!!! My Crohn's disease already had me taking three a day... Shit, damn it...! Now my mouths on fire, my back is sore from sleeping too much and honestly exercising was never a joy and now the idea of it is even more daunting!



Ok thanks for listening. xxoo

Scorch, love the blog. That photo at the top is awesome and the you tube videos are spot on... Glad you are happier with the new place. Honestly customer service is the easiest thing they can do in a medical office to help satisfaction. All that training and intelligence is wasted in a doctor if they can't make the patient feel welcome and important. Sorry your back is bothering you so much. Good luck on the impending biopsy. Keep up the sarcasm, love it.



Juneau I agree stay away from a building full of five year olds. Not worth it. Give the birthday boy some individual attention some other way. I know exactly how you feel, I am sick of being sick and tired of being tired and don't want this shit to define me any more. One more month and I am done with my active treatments. It's been a long year.

Day by day ladies, we will get there.



Walking three miles during chemo made my day. It got me outside in the sun and fresh air and made me forget I was sick for a while. Everyone is different but you might be surprised how good a walk will make you feel even if you are feeling like crap. Even a short one is good.



I never got the bladder symtoms with AC , I drank a lot of water to flush out the poison. I could easily imagine that it would cause bladder irritation though. Need to make sure it isn't an infection if it gets worse though.



My thoughts are with you mrscich for the bgc today. I remember it all too well. It's doable. You are young. You are strong, even if you don't feel like it...



I am going for rads treatment 14. Mild skin irritation but no obvious redness yet.



Fuck cancer I am going for a run.

Good luck mrscich! We'll be thinking about you today. Get some rest.

MrsCich - Prayers/hugs/love from Texas. You CAN do it. Soon #1 tx will be behind you. Sooner started/sooner done. You will know all of us are with you.

MrsCich - right there with the others in your pocket, you can do it and you sound well prepared. Glad you have a ride. I haven't had Taxotere yet so can't help with that, for me, feel fine during infusions and about 4 hours later same as Tazzy, flu-like with headache and nausea, 12 hours is about the worst of it then pretty well controlled with anti-nausea meds, day 4 and 5 - tired



Chrisrenee - welcome



Ramols - good to hear number 3 is out of the way for you. I have interstitial cystitis already so the cytoxan doesn't help, I do drink lots to keep the urine from being too concentrated so it doesn't irritate bladder lining as much and monitor for infection, sounds like you are on top of it.



Juneaubug - hope the mouth clears up quickly and that, in spite of being out of some of the celebrations that you have a good trip.



Tazzy - thanks for being the for all of us, have a good camping trip



Liefie - hope you are enjoying your Time in Las Vegas



Scorchy - glad you have things in place now, hope the biopsy goes smoothly for you



To everyone else, I hope your weekend is a good one



I will have all of my family here for an early Canadian Thanksgiving, getting ready in 30 minute stints of activity followed by rest and trying not to get stressed about all that needs done.

Chemo for me is rescheduled for Oct 2 as long as Monday's lab work looks Ok.

Wondering if anyone has had a blocked port and what that feels lik? My neck on that side is a little achy and it has been 3 1/2 weeks since last flush.



Take care everyone

Sitting in the BGC. IV of fluids only and a shot of Ativan. I so terrified of throwing up in this chair. Lol Here we go ladies.

Pre meds for me is Zofran and Decadron.

MrsCich -- if there is still room in your pockets, I'm there rooting you on!  I had my first Taxol yesterday and it went well -- not sure how the Cytoxan would affect it though. 

You will do fine -- you are young, strong (even if YOU don't think so at times) and there are lots of people who love you helping you through this. 

OK mrschich, what is this BCG? Learning and remembering all the acronyms is just another test of this crazy BC!

Hi All,

My DH is going on a fishing/drinking weekend with the boys... I have a lovely weekend all to myself to do what I want....love the bones off him, but sure am looking forward to a 'me' weekend.   Sunday I am doing the CIBC Run for the Cure - yearly event that raises money for bc research and raise awareness.  The one 'pink' event I am happy to participate in.  I will be walking (of course) with friends from work.  Weather is looking good for it too.  I will be walking for all of us here.

Hang in there Juneau.... Feeling your pain. All this will soon be in your rear view mirror (((hugs))))

Websister... have a fun early Thanksgiving Weekend. Agree with 2Fried... sounds quite exhausting !|

Although I am not answering you all doesn't mean I aint thinking of you cos I am. Wishing you all some positive mojo and happiness.

Here you are Juneau... for us all.