TRIPLE POSITIVE GROUP

rozem - see if you can find and watch episode 2 of a British documentary called Dawn Porter - my breasts could kill me. I just watched it tonight and it shows a woman having the same surgery as you. When you see her in the hospital a few days after the surgery she is definitely not looking restricted in movement :-)



Jenn

I can't claim Breast Friend as mine. "invisible" on the Illinois ladies called me that on the phone once. We both liked it.

Deportation Delay: My port pre-op just rescheduled to the 18th. Hopefully we can get this out in October.

Rozem I think you need to post and talk to ladies that have had the flap procedure. I know my neighbor is doing implant without the flap and so far she keeps having issues. She is back in an expander. She may have to go without or do the flap anyway.

Soltantio yes it is a busy thread and I have found it hard to keep up.  I have computer issues now at home, so I can only write from work until I get the issues resolved and seem to miss a lot.  Yes I am very high ER+/PR+.  I took tamoxifen for four years, from 1997 to 2001, when I had the bone mets.  I then was on Femara and now Aromisin and believe it or not, I'm on Tamoxifen again.  My Dr. said that after so many years not on tamoxifen, studies have shown that it can work again.  I'm just concerned that there are other hormone suppressing drugs which I haven't had that perhaps he should be trying.  This is all part of what I want to discuss in my consult next week.  I know my case is somewhat unique in that I've had bone mets for over 10 years that he's managed to keep under control.  Could be he's holding out the other drugs until he really thinks I need them.  I guess its good to know that I still have many options without having to resort to the more difficult chemo drugs.

Jenn, good luck with your surgery. 

kayb - here you go!

Best wishes on your surgery Jenn!

Had a very upsetting morning....and I know you'll all understand. I had my 6 month post lumpectomy mammo yesterday. If clear I would be 6 mo NED. Didn't hear anything yesterday so I called the BS whose office is across the hall from the Mammo suite and is extremely important to the entire hospital. I asked if I could speak to my md about my mammo results. This new young receptionist told me unless I hear otherwise i should assume it was okay. The old no news is good news. That the doctor can't call everyone. I was stunned and stammering but it's my first mammo, I'm still in treatment......it shook me to the core. This was the doctor I trusted the most and counted on for my breast care for the rest of. my life!

Went for a workout and when I got back I called the Radiology department and asked if I could speak to the radiologist to get my results. She obviously knew all he girls in my mDS office and asked who had told me that. She told me you call that office and tell them you want

your results. You are entitled to your results immediately.

Called back and spoke to an experienced receptionist who put me through to the PAs. I left a message explaining all this saying I wanted to speak to a human being who had actually looked at mammo to tell me it's okay.

Within 20 minutes I got a call from the PA giving me my results which appear to be okay with differences in the bad breast resulting from treatment and surgery. Additionally ...the radiologist wants me go have an US on the other breast because I have very dense breasts.

I tell you all...especially you newbies....that even someone who has been navigating this system for a year can get emotionally flustered and forget to be our own strongest advocate sometimes.

Also...I' plan to get my mammos in a place that gives me the results directly in the future.







within 20 minutes.

Ashla that's typical of my last too. The support staff sucks and is clueless. Always ask to speak with the nurse. You ARE ENTITLED to know your results as soon as their in. My NP called me to tell me the results of my liver scan but got the physical results this week. My NP didn't want me to stress out.

Ashla, that sucks that staff member put you through that. Good for you for following up for yourself. So glad your mammo was ok tho.

OK it's about time for Jenn right? I'm trying to keep track but this is difficult.So hope everything goes accordingly

MOON i noticed u said about u'r normal temp. I find it interesting bcause my sister and I bot thave a low normal temp 96. and so did my dad---but hat ets me is when mine is 99 I feel horrible like it's way off and I feel a fever there. Does that happen to u too? Cuz when it's almost 99 or over it knocks me out.

Rozem are u feeling better now? I hope so. I feel so bad for all of u who go thru this.

Ok...I just had treatment number 5 on tues and just started throwing up about two hours ago. I took three zofrans today (before i started vomiting) and they did not help. Should I eat? Should I drink? Should I take a Benadryl? Any advice?

Jennifer if you can drink. You dont' want to get dehydrated. If drug #2 doesn't work all your onc tomorrow and get another drug. There are many but they don't prescribe the expensive ones at first. They wait to see if the cheap fail before the insurance will pay for the $$$ ones.

Omaz thanks for posting the BC article.  A lot of information to take in.

Your welcome pearlady - lots of information out there.  Glad you have joined us here!

Thank you ladies. I took Benadryl (prescription) strength and I am trying to eat crackers and ginger ale (i think it is working). I am shocked at how fast and hard this came on. I only have Benadryl and zofran right now but will call tomorrow and get something else. I have a friend that is a nurse and she said you have to try to eat no matter what.

Thank you ladies. I got concerned because I don't recall any of you saying that you actually threw up. Wasn't sure if I need to worry or work through it. As usual you have all helped.

I hate what this is doing to my husband and kids. My dh has become so detached. I am not sure that he knows how to cope any other way. And I had to lock my two year old out of the bathroom while I got sick and she pounded on the door screaming that she needed to "help mommy" as my husband dragged her back to the other room. Telling her that mommy had to clean the bathroom. It breaks my heart. This takes such a toll on our families.