TRIPLE POSITIVE GROUP

Lago- so does that mean that if I had chemo first and have surgery scheduled for nov 6th the drs should know if my tumor responded to herceptin at the time of surgery?

My best friend has dense breasts and used to get cllbacks all the time (before my dx) and she would always be panicked, but the subsequent views would always be ok.  After I was dx'ed and treated her imaging center was the first in her area to get 3D mammography.  They raved about how accurate it is, and how it catches even really small stuff, so they used it for her.  You guessed it, she got a callback!  She was even more scared because the image is supposed to be so clear.  She called me, really scared, and had an appointment later that afternoon for more images.  She had a really awful year - parents declared bankruptcy so she was helping support them (and not happy about it since she is single and nearing retirement herself), her work situation was more stressful than usual and she took a pay cut, boyfriend of a year walked away, her house had been robbed - it was a bad year.  The week before this mammo her dad died unexpectedly, so she was a mess.  I actually called the imaging center right after I got off the phone with her and spoke with the director of mammography.  I told her that my friend was coming alone, filled her in on the recent events, and told her that they needed to treat her with kid gloves if they had any bad news for her.  It was super quiet for a few seconds and I was expecting the HIPAA speech, but all she said as that I was a really good friend and they would take fantastic care of her.  Her additional views were fine and she called me from the dressing room crying from relief! I was so happy!  We had always said we didn't ever want to be the ones wearing the pink hats, but I will gladly take that bullet if she can be spared.

I don't know why with my dense breasts I got 1 call back 4 years prior to being diagnosed and that's it. The area in question was the area where my tumor was located.  You'd think they would be looking a bit closer in that spot.

http://ods.od.nih.gov/

lago - they had been totally focused on my non-cancer breast for the last two years of mammograms, doing a bunch of extra ultrasound.  It makes me wonder if they had identified the ADH/ALH area and were watching it while I grew a 2cm tumor in the other breast!  The tumor on the right was almost in the armpit - I also had very dense breasts and it never showed on the mammo at all.  Ultrasound was a different story - it was there, immediately obvious, but they had not done one on the right the previous year.

I hate it when that happens...

Kayb I don't raise money for the ACS for myself. It's for all of us. The main term goals are to catch this early and find a cure. I consider myself cured until told otherwise so I do this so others won't have to go through what we did.

BTW I hit $2030 funds raised this weekend. I upped my goal to $2300. Not bad for a first timer. Currently the # 1 fund raiser at the Chicago event.

SpecialK this is a repeat I know---but what u did was so thoughtdul and just plain nice.

SpecialK this is a repeat I know---but what u did was so thoughtdul and just plain nice.

The reason for the double posts is for some reason we click post and nothing happens. The we click again, and again till something does happen therefore creating the double/triples.

kelloggs - glad you enjoyed Casting for Recovery.  My BIL is a boat-owner/captain and a physician and he helped host and teach the ladies to fly fish in that event in his local area - he had a blast too!

No more liver scans for me. Yay! Still doing the yearly bone density scans.

So I mention to my NP that I will be seeing the port surgeon next month regarding deportation. She actually sent me an email back stating she loves the word "deportation" and it's her new word for the day. I can't believe she never heard that before.

Kellogs I have no idea how I did it. I was hoping to raise $300. My team is having a good day too. I raise our goal this morning to $5000… by 2pm we passed that total.

Awesome Lago, I bow to you and your team....you ladies rock!

Lago -- glad to hear you're done with the liver scans.



Obsessing over something (ha - what else is new ) and am wonderingvif anyone has any thoughts on it. I had pretty bad lower back pain right before dx. I don't remember it bothering me at all during chemo. But now, 8 months pfc, my lower back aches again. I had an x-ray before chemo that showed degeneration and a bone scan near end of chemo that didn't show anything in my back. Could it be mets in spine that was temporarily feeling better because of chemo? Going to ask MO of course but I can't stop thinking about it -- mostly worried because of that time during chemo when it didn't hurt.

Lago -- glad to hear you're done with the liver scans.



Obsessing over something (ha - what else is new ) and am wonderingvif anyone has any thoughts on it. I had pretty bad lower back pain right before dx. I don't remember it bothering me at all during chemo. But now, 8 months pfc, my lower back aches again. I had an x-ray before chemo that showed degeneration and a bone scan near end of chemo that didn't show anything in my back. Could it be mets in spine that was temporarily feeling better because of chemo? Going to ask MO of course but I can't stop thinking about it -- mostly worried because of that time during chemo when it didn't hurt.