2012 sisters

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  • MrsCich
    MrsCich Member Posts: 409
    edited September 2012

    I agree with all of you. Bev, I too was stage 1 with no node involvement. I haven't begun treatment but I'm sure I will be here more often once I do because, you ladies have my back and I know will guide me every step of the way. I don't feel more fortunate that I was "only stage 1" because I lost both breasts and as you said...had my world rocked. Am I glad it was stage 1, I guess so if you have to be positive about any of it. We are all fighting the beast if cancer and all worry of recurrence. We are here for each other and you are one of the unfortunate sisters. What a family to be part of, eh?

  • Aruba
    Aruba Member Posts: 543
    edited September 2012

    Well, i got news to take me to a happy place and want to share.  My son just got engaged Smile!  He is a law student at U of Tennessee.  They often went to the zoo when first dating at Ohio State.   He arranged for Knoxville zoo (from a picture he gave them ahead of time) to get  "randomly" chosen for a behind the scene look at the penguins.  After seeing how they are cared for and fed etc..a very friendly penguin walked over to them with a ring box on it's wing with ribbons.  She saw this and turned to find my son on one knee with the real mccoy.  Made my day... 

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited September 2012

    Aruba.....That is so sweet, and romantic.....congrats....I have two sons, 29 and 26.....neither has a serious girlfriend....I'm 65yrs old and getting a wee bit worried if I will ever see grand kids....again congrats.

  • juneaubugg
    juneaubugg Member Posts: 951
    edited September 2012

    Mrscich. I'm Oncotype 22. My dr said the opposite. "You're too young, just suck it up and do it so we aren't sitting here in your 50s with a recurrance"

  • Scorchy
    Scorchy Member Posts: 240
    edited September 2012

    Websister: "I think what I want to hear from people is more 'I'm here for you' and then listening without judgment if you need to talk about it and helping to supply 'normal' if that is what you need at other times. Pity is not welcome but compassion and a desire to understand what you have gone through and continue to experience is."

    This is so true. So well put.

  • juneaubugg
    juneaubugg Member Posts: 951
    edited September 2012

    Ladies, too tired to catch up yet. My red cell count is low (white apparently fine). I had chemo Thursday, IV fluids Friday and more tomorrow. The Thursday I get this ducking painful irritation of S port removed!!!!!! I'll Takeuchi gambled with my one last trestment through my arm.



    Ok nap and more naps. Yes 2.5 weeks until zero more chemo treatments (god willing) 😁😁😁😁



    Welcome to our new comers. You're home.

  • juneaubugg
    juneaubugg Member Posts: 951
    edited September 2012

    Ladies, too tired to catch up yet. My red cell count is low (white apparently fine). I had chemo Thursday, IV fluids Friday and more tomorrow. The Thursday I get this ducking painful irritation of S port removed!!!!!! I'll Takeuchi gambled with my one last trestment through my arm.



    Ok nap and more naps. Yes 2.5 weeks until zero more chemo treatments (god willing) 😁😁😁😁



    Welcome to our new comers. You're home.

  • MrsCich
    MrsCich Member Posts: 409
    edited September 2012

    Geez, Juneau...lol. I think I would have left if my doc said that to me. Granted, I say that but just the other day I said I WANTED someone to make the decision for me. So I'm just a nut case I suppose. Lol



    Aruba, that is so sweet. What an awesome way to propose.



    All, is Adriamycin red? My onc said that there was one chemo she's trying to keep me off of because its brutal. He said they call it the red devil.

  • stride
    stride Member Posts: 470
    edited September 2012

    Adriamycin is the red devil. I think it must have been invented by a sadist.

  • stride
    stride Member Posts: 470
    edited September 2012

    Ok, as soon as I wrote that, I regretted it. Adriamycin is difficult, but it's doable. It just isn't fun. There was an interesting story in the New York Times online today that said in the future adriamycin might not be used for triple negatives. Thought that was interesting.

  • MrsCich
    MrsCich Member Posts: 409
    edited September 2012

    Hahaha. I wonder what the difference with all the chemos is. Mine wants me on Taxotere and Cytoxan.

  • _Ann_
    _Ann_ Member Posts: 769
    edited September 2012

    MrsCich I could not find a reference explaining it, but my observation from these forums is the majority of women get Adriamycin + Cytoxan followed by Taxol, and others get Taxotere + Cytoxan.  I am guessing the Adriamycin is used only for more advanced cancer (higher grade and/or stage).

  • MrsCich
    MrsCich Member Posts: 409
    edited September 2012

    Thanks Ann. So when y'all write AC that's just an abbreviation for the chemo your on? So would mine be TC? Hat does BGC mean?

  • RoulaG
    RoulaG Member Posts: 239
    edited September 2012

    From my understanding Adriamycin has a higher rate of heart damage - Which is not reversible. I thought, of course, this is my opinion, taxotere was a bitch!



    But I did not have adriamycin, and I pray everyday that I will not have to visit another round of chemos ever again!

  • stride
    stride Member Posts: 470
    edited September 2012

    My chemo regimen is TAC--taxotere, adriamycin and cytoxan. None of these letters is any fun. Yes, adriamycin may cause heart damanage and leukemia. Taxotere can cause neuropathy, which can be permanent. Every letter has its own special set of risks. MrsCich, has your doctor given you print-outs explaining which drugs he wants to give you and the potential side effects? That should all be disclosed, and you'll have to sign a consent form.

  • MrsCich
    MrsCich Member Posts: 409
    edited September 2012

    I got 2 forms with some side effects. I have to call them tomorrow and tell them my decision on whether or not I'm doing chemo. The chemo nurse sets up our "chemo class" and I pick a date to start.



    Taxotere is a bitch?? Oh for the love of (whomever you believe in). This is scary shit.

  • _Ann_
    _Ann_ Member Posts: 769
    edited September 2012

    MrsCich, the only saving grace about the scary side effects is that not everyone gets them.  The worst (heart damage, leukemia from Adriamycin) are pretty rare, or so I was told.   BGC = big girl chair, the chair you sit in for chemo.  Not sure if it means you have to be a "big girl" to do it, or if it's because the chair is actually sort of an oversized recliner, or what.

  • chrissera
    chrissera Member Posts: 79
    edited September 2012

    Has anyone had issues with fingernails? mine turned black and blue, likeyou shut your finger in a door, after tx #3. then they started to grow and i saw what ithought was healthy nail. now at 3 weeks PFC they hurt reallybad and it looks like at least 4 or five nails are lifting likethey will come,offf? I was not expexting this, doc saw the bruising and said that will grow out but nothing about them falling off!

    And for the past week I have had a 'backache in the strangest areaof my back, up high like above my bra strap. not where iusually get back pain, and i haven't done anything to hurt my back at all... should I be concerned? before bc the only time iwould get back pain woulxd be after gardening too long, raking,etc.

    And my teenage daughter is sick with a cold and possible bronchitis and all she want is to cuddle with me andI can't. breaks my heart! but with surgery in 10 days cant risk getting sick now!

    oh, and can i mention that my husband is acting like everything is fine... having an emotional, and when i realized the nails were falling off and started to cry he said stop it... you know it wont be like before.! Thank god I had put the knife down I was holding or I wouldd be typing this from jail! Sometimeshe need to egage the brain before speaking... I havent spoken to him since that comment!

    I think I'll go have a good cry in the shower and make myself feel better...

    Sorry for the long vent.. its been a tough day and notlookonh forward to work tomororow...

  • Nkb
    Nkb Member Posts: 1,436
    edited September 2012

    Nails- horrible pain and ugly. The pain made putting sox on, opening things, dishes and so many things hard. Getting them wet made it worse. I painted the toe nails and tried not to stub them. The finger nails hurt for about a month, now are better, still ugly. Haven't lost any fingernails, may lose a toenail or two. ( my MO said he had seen far worse)





    Cutting them short helped, not getting them wet helped, protect them.

    I finally announced I was not doing dishes ( DH cooks) until they got better, after the shock wore off, he knew I was serious.

  • Cottontail
    Cottontail Member Posts: 374
    edited February 2013

    Ugh. My arm feels tighter today than it has. I'm going to call my PT tomorrow morning to see if they can get me in sooner than Friday.



    On the positive side, the wound where my drain was seems completely closed up and the gauze was dry tonight. I left it uncovered after cleaning it.



    The weather is cooling off here, and I am extra-glum for this time of year. (I hate being cold, I hate winter, and I hate all the winter holidays. I am usually depressed and grouchy from October through April.) I have mortality on my mind. Obvs bc is a factor in my feelings, but it's a pretty all-encompassing feeling. Not good.

  • MrsCich
    MrsCich Member Posts: 409
    edited September 2012

    What?!?! Our fingernails are affected too?? I mean, I know chemo kills fast growing cells and I thought MAYBE fingernails would be included but no one has said anything about them. Ugh. Really ladies??? Anything else I should know before I decide to do this.



    I was talking to my husband lastnight about chemo and he asked if I was changing my mind about doing it. I want to know I did everything I can to kill this so I can be here for my husband and kids but Im so scared of the side effects. I think about neuropathy and other permanent side effects. If Im trying to prolong my life so I'm here for my family, what quality of life will I (or they) have if I get debilitating side effects of the poison I've been given? I know the very serious side effects aren't common but I'm taking a risk of getting them. I feel like when I sign those consent forms for chemo, I'm giving permission to kill me. I also know if I don't do it, I risk cancer coming back!!!! It's an awful feeling, isn't it? I'm wondering which I have a higher risk of...recurring cancer or serious side effects.

  • shockd
    shockd Member Posts: 68
    edited September 2012

    Thanks, Websister & all for the encouragement.  My hair started to fall out this morning.  I know you've all been through it, so I feel like a baby crying, but I am pretty sad for my hair.   On to chemo this afternoon.

  • shockd
    shockd Member Posts: 68
    edited September 2012

    And in the meantime, Chrissera, sorry for your pain.  Makes me feel like a bigger baby for crying over hair. haha.

  • Cottontail
    Cottontail Member Posts: 374
    edited February 2013

    MrsCich, I didn't have any problems with my nails.  I made sure to keep them trimmed very short all through chemo so I didn't catch them on anything.  My MO recommended keeping them painted with clear polish to help strengthen them (she didn't want me to use an opaque color, so she could see them), but I didn't.  I did get some weird lines in them - you have to look closely, but there are stripes of darker pink and stripes of lighter pink.  Otherwise, they're fine.

    Nails being affected is a possible side effect, you could lose them completely.  That doesn't affect everyone, though. 

  • MrsCich
    MrsCich Member Posts: 409
    edited September 2012

    Thanks Cottontail.

    So I go to my chemo class this afternoon and may start TC this week.  Frown  Not something I'm looking forward to but I want to start it as soon as possible so I can get it over with and at the moment, I'm on board for it. 

    I must say though, my Oncologist and her nurse are AMAZING!  I called there a little while ago and her nurse doesn't make you leave a message and she'll call you back.  They put me on hold and they she picked up.  It was so nice.  We talked for about 15 minutes as she tried to calm my fears.   I think this will be a positive aspect through all of this. 

  • PaEaglesFan
    PaEaglesFan Member Posts: 277
    edited September 2012
    Mrs Cich, I was like Cottontail and only had discoloration of my nails.  My MO nurse recommended Sally Hansen Bamboo & Green Tea for them, (It's a strengthener) but I didn't start using it till half-way thru my treatments.  I did notice in addition to the lines Cottontail mentioned, I have 'speed bumps' on almost all of my nails.  It reminds me of what happens when you have acrylic nails that are growing out.
    My toes were just find but I do admit that I had pedicures the whole time I was going thru chemo because I just couldn't stand the thought of not pampering myself just a little bit.  Embarassed  I've been going to the same person for YEARS and she keeps a clean and tidy shop and did not trim my cuticles at all.  
    The MO nurses are the bomb and will take great care of you.  It IS doable and we are there with you.
  • MrsCich
    MrsCich Member Posts: 409
    edited September 2012

    I'm so glad to hear that you still got pedicures.  I get one every 3 weeks and I do not want to have to stop. 

  • Tazzy
    Tazzy Member Posts: 2,546
    edited September 2012

    Morning Ladies, wow.. few days not posting and I can't even begin to catch up or respond to you all - that's great.

    Regarding chemo regimes.... I was on AC (4 tx) and then Taxotere (4).   On Taxotere they iced my hands... big gloves, like oven gloves, that were put on 15 minutes before tx, during tx and 15 mins after.   Although my nails became very soft, never lost a fingernal... different for toenails.  I only iced toes last 2 tx and lost toenails... big one on left is about to come off.... it did not hurt though.   Demand that they ice both hands and feet.    Remember, we can all get different SE's.

    Positive healing thoughts to all and big (((((hugs)))))

    Another beautiful sunny day here so I am going to enjoy it and these next couple of weeks before I start rads.

  • allurbaddayswillend
    allurbaddayswillend Member Posts: 355
    edited September 2012
    "so I feel like a baby crying'  - don't worry about it. It's hard not to cry like a baby sometimes over any of this.

    My DH had an episode on Saturday. :( He's already on meds for anxiety but I asked him to call his Dr's office this AM anyway because I am not up to being the usual support that I am. And my usual support isn't always that good anyway. I don't always recognize when he's flipping out over something irrational and then I end up engaging which once in a while ends up being a pretty bad argument. We have hardly had any of these over the last few years but Saturday was the 2nd since diagnosis. I'm actually not internalizing it that much right now because I'm in frikkin' chemo - a rational person who loves me would not pick a fight with me right now. I know he loves me, therefore I know he was not rational, therefore I asked him to call his Dr. :::sigh::: mental health services are sorely lacking where we live, they can't keep up. he's had three different psychs in less than 2 years there's such a high attrition rate at the clinic... But still, it does takes a little wind out of my sails... fucking cancer adding yet ANOTHER burden: anxiety in loved ones.

    Tomorrow, BGC for me: Taxol #4.
    I've always thought it was Big Girl Chair as in "Time to be a Big Girl now and do what you have to even though you don't want to." Especially on the days when I was blubbering like a baby before going in, like right before AC #4. I really did not want to be there that day but I still pushed myself to do it after having made it that far.

    Good quote about AC chemo from http://denise4health.wordpress.com/2012/02/24/why-whining-is-necessary-during-adriamycin-cytoxan-ac-chemo-and-goodbye-to-side-effects/

    "If you are awaiting Adriamycin Cytoxan, you will get through it.  There is light at the end of the tunnel.  It will get better.  Live one day at a time.   And don’t listen to those who tell you to “stay positive” in the midst of it.  Do what YOU CAN to survive.  Put yourself first.  You will be a heroine when you are done.  You do not have to be heroic now."

    chrissera - I'm having backache up in that same place, especially had it on day 3 after Taxol. We are on different chemo I think? but maybe a common side effect. Tylenol didn't help mine and I was in tears by the time I called my MO. He prescribed Celebrex for me, it's supposed to be easier on the stomach than ibuprofen I think? It did take the edge off. I also took a hot bath that day.

    Regarding Taxotere vs. Taxol, This study helped guide my MO and me to doing AC>T with me. I have had some bad luck with surgeries and reactions over the last few years so we wanted to use the lower side effect taxane on me, which is Taxol. http://www.cancer.gov/clinicaltrials/results/summary/2008/weekly-paclitaxel0408
  • liefie
    liefie Member Posts: 2,440
    edited September 2012

    MrsCich, just want to reiterate what Tazzy said about the icing of the nails during Taxotere. It really helps a lot. I iced my fingernails every time, but was not given the option of icing my toenails. Only for the last chemo, and after I had educted myself, I had my toes buried deep into two large Costco bags of frozen peas. One of my toenails fell off about 8 weeks after my last chemo, but the new nail was there already. I still have a little neuropathy in some of my toes, but it is definitely getting better, and my onc assured me that it will eventually disappear completely. He strongly advised Taxotere because it causes less neuropathy than Taxol, according to him. I was so scared of the chemo, but it turned out to be okay, not nice, but okay. Maybe stop reading about all the possible se's now - you may get a few, but not all. 

    Allurbadday, sorry to hear about your husband, and I hope he can get some help. You don't need extra stress right now.

    Juneaubugg, hope you are beginning to come out of the #3 chemo haze, and that those blood counts will return to normal. Hang in there!

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