Alternative Treatment

Exactly. My point exactly. Thanks for making it Natty.

Mary 

Natty~

I also use supplements, exercise, acupuncture etc. 

I used the Penguin Cold Caps which I look at as alternative since they were just being used in England at the time.

I had the inventor from England work with my oncologist in Virginia and I was able to keep my hair through chemo.

This was a great self-esteem booster and not everyone in the world had to know I was going through cancer treatment.

I work with ladies in my area now who are using the Caps to help them through the process.

Ang,

I'm so glad you had success with your onc and cold caps. When my friend here asked her onc she was warned the cancer could spread to her scalp if she used the cold cap.  I only learned about cold caps on BCO but I knew this had to be a bogus reason. Anyway she went into the local metropolis and got support for cold caps. I wish the cold cap info was more well known.

What supplements to you use?

Natty, I don't have to answer that question, but I take Vitamin D3, B12,B6, Biotin,Folic Acid, Calcium, Simvastatin and Melatonin. I may have left out a few others, but why are you asking? Is taking certain supplements a requirement for posting on the Alternative Thread?

Ok, then! 

Hi Yorkiemom,

I just assumed you wanted to discuss alternatives on the alternative forum.

Specifically for breast cancer, I'm taking melatonin, flax oil w/ cottage cheese, digestive enzymes, tocotrienols, iodine, Vitamic C, Vitamin D3, and Selenium. I did take Metformin but am on the fence about going back on it.

I am in London UK and when I was having chemo over 10 years ago, the cold caps were routinely used.

However,a good friend of mine who is a respected bc onc at the prestigious Karolinska Institute in Sweden advised me not to use them as there was a possibility of getting scalp mets thereby. The scalp is cooled to the point that there is no uptake of the chemo - that is why there is then very little or no hair loss. It makes sense to me.

I hope I have not upset anyone by reporting this.The survival stats for bc are much better in US than in UK and I believe that one reason is that the oncs in US are more clued-up about things like the above.

With regard to the poster with the various 'troubles' - I wonder if this is not a troll trying to hijack the thread with mostly incoherent ramblings.Could even be a 20 year-old man, for all we know.On the internet you never know for sure that someone is what they say they are. 'Don't feed the troll' is the usual advice - use the ignore button.

Caryn,

Are you taking anything that Yorkiemom and I are taking? Do you have a special regimen? Have you looked at the Life Extension Foundation protocol for breast cancer?

Anyone know when the info on metformin will be published?  I wanted to take it but was cautioned to wait until there was evidence that it worked - understand it can give you quite a problem with the digestive system at first.

Sandy,

There are a number of Metformin studies ongoing. I think one finished in February. You can click on each link to track.

SCROLL DOWN.

http://www.clinicaltrials.gov/ct2/results?flds=Xj&flds=a&flds=b&flds=c&flds=f&flds=t&term=breast+cancer+AND+metformin&show_flds=Y

.................anyway, let's focus and keep this ball rolling.  No more polarization, right, it does not help anyone.

Alternative treatments and supplements on the alternative medicine forum.

I do not want the thread locked.  My vote.

When the thread is rolling with ideas and support for one another, the posters are sharing their tx choices and experiences to help one another learn.  Or they read and ask questions to learn.

What I am taking and doing.  If anyone wants details on my list, ask, this is a sketch.  But to be clear, I will not defend my choices here. EDITED TO ADD A FEW*

IF ANYONE HAS QUESTIONS do a search for the subject like RIFE and my name DIANE ESSA for what I posted on previously, also pm me, you re welcome to ask anything.

• red and black raspberry seed powder - there is no other way to get the strong and proper form of ellagic acid than the Meeker berries or equivalent.  I cannot say it enough, to purchase a bottle of ellagic acid synthetic from health food store will not do it and this is your life, so please don't think that is good enough.
• Laetrile, I had to be careful and learn to go w what my body could handle.
• Taxacor (Pacific yew tree for immune)
• colloidal silver, olive leaf extract for virus, fungus, bacteria and die off of cancer cells - plus a lot of water and some drops of hydrogen peroxide food grade diluted, but I don't drink enough
• Protandim
• CoQ10
• D3 doc wants me at 200 in blood test
• melatonin nightly per endocrinologist
• T-3 and t-4, l-tyrosine, atomic naescent iodine, ActivaMune for thyroid issues, huge ones, per endo
• helicrysin and pink grapefruit oils on skin for balancing hormones
• chastetree berry extract for balancing hormones
• bitter apricot kernels and other foods high in B17 which is awesome on cancer cells, a natural
• RIFE technology
• algae oil for inflammation, by dr
• bioidentical progesterone to block PR+ cell receptors with the natural progesterone, per a very skilled endocrinologist
• flower essence thereapy for self-healing and getting to the bottom of my issues.
• ultraviolet light therapy, blood therapy IVs
• tumeric extract and powder*
• cucumin powder*

What I have taken / done and will again -

• Paw Paw
• Ojibwa tea
• fucoidan capsules
• Budwig protocol
• nutritional choices that I keep letting go and going back to them, it is so hard for me.
• noninvasive testing, including thermograms, AMAS, BIA, Navarro urine test, kineseology and bioenergetitesting, then I go to an old time healer nad see what she thinks too, but I don't bank any one thing for my life, I pull it all together and see where I am now, do I need conventional testing (PET CT or blood tests) or tx now, yet?

What I will do but have not yet -

• Protocel, there are others with great results, my integrative MD suggested this for mem but I would have to give up thyroid support, so we decided no
• Poly-MVA
• IPT chemo therapy
• cryoablation or radiofrequency ablation for any tumors
• Rose Laurel OPC with Membrane Complex in my drawer for soon, immune system oleaner product I ordered
• 714X

I was here last night, too tired to post after working so much, a good thing.  Months ago I could not work.  Now I am rebuilding my life.  I am afraid like everyone, asking myself, what if I am wasting my time on planning a future when I have only a few months before the sheete hits that wall and I wish I had been basking in the sun all day instead.  But I carry on, getting stronger is therapeutic for me.  Getting my memory back is everything, being able to write again means the world to me.  I did that list from memory, when last year this time I could not drive and I could not remember the names of people I loved.  Today I drove all by myself.  All of alternative choices.

Peace to you all.

LOVEEssa

Go for it, Natty.  Get the thread back on track  !  We're still here.

I think we need to offer Tillycat the help she came here for if at all possible .  Many of us are early stage  - she is not.

Tillycat,

Can you pls be specific as to what TX option you are seeking  ?  Some of the ladies here have researched more than the DRs .  This really is a great thread, chock full of information.  I am personally ashamed  at the turn it has taken.

Please  toss some questions out for discussion.  We are here for you.

Natty,

Since I am stage IV I take Arimidex daily and Aredia monthly. I have never had traditional chemo. I always ate well but now have buy only organic produce ( several great farmers markets in my area). I do eat meat , poultry and fish but not often and it to is organic. I was never a soda drinker but consume enough water to float a ship ( got to be careful during the teaching day, since I can't run out of class at will ). Sugar is my nemesis and I'm still working on resisting it's call. I take DIM, D3, glucosamine, MSM and a probiotic. I was taking Boswellia but not sure I felt any benefit from it so stopped it.

I hate swallowing all those pills and dread the thought of any more. I have bad allergies and take Claritan as well as Effexor.

Caryn

I take DIM, along with the Vitamin D, and I go to the gym 6 days a week.  I'm not doing weights until after my exchange surgery, but I do 40 minutes of cardio each time I go - 20 minutes on the bike, 20 minutes with the hand bike.  I haven't lost an ounce  but I feel much better on the days I go, than on my one day off.

I like the benefits of cruciferous veggies and could never consume that quantity just by eating them. No noticeable se's from DIM.

Caryn