Need some support for my senior mothers diagnosis
Hello all,
I'm new to this and I really need to talk to someone who has a family member with breast cancer. I'm 59yrs. old, married, am a Grandma to 2 grandsons and one on the way. My mother(who is 80 yrs.old), just recently had a mamogram done. She hadn't had one for a long time, so her doctor ordered one. She's also hearing impaired, so myself or one of my other sisters have to go with her to appts. She received a letter and was told that she would need to get a biopsy of the right breast. She had her Biopsy done on the 10th of Sept., 2012. They, were having a hard time, doing this, mom was compressed for over an hour, the local, that was given to her, didn't totally numb her enough and they had to give her another injection. The local made her dizzy and nauseated. She wasn't very pleased at how they did this. We were told that the Dr. would have the results in 3 days. She came to my house yesterday and asked me to call to get the results for her. She went back home. I received the call that my mom had a form of cancer that wasn't the spreadable kind, but it was such a wide area, the Dr. said that she would have to have her breast removed. I feel really sick because, I didn't want to tell her over the phone, I wouldn't know how to break this kind of news to her and I didn't want to ruin her weekend and want her to be upset, worried or all the above. I decided to hold this horrible news to myself and take mom to the appt. with the Surgeon on this Monday and let him tell her! I need to ask how do I comfort and talk to my mom when she does find out the bad news from the Dr. The Doctor also said, my mother would have to have the breast removed sometime in the next 2 months. I would really, really, really appreciate an email or a reply to this! I'm having a hard time holding this information to myself, and don't how to deal with it.
Comments
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So sorry you have to be here. Treat her as you always have, be there for her and respect whatever decisions she makes about her treatment.
"a form of cancer that wasn't the spreadable kind" I did not know there was such a thing. All cancers can form metastatic tumors. Is it possible you misunderstood the doctor? Do you have any other details about her tumor?
Sorry for the questions, but I don't understand how any doctor could tell you that.
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Hello Stormy, Thanks so much for your reply. The doctor did tell me what kind of cancer it was, but I don't remember, because I wasn't expecting that bad news. I should have written it down. I,m assuming that they will do some other tests before the actual surgery? Do you know if they will do an MRI or anything else? I just hope and pray that my other brothers and sisters can forgive me for holding this information and letting the doctor tell her! I know they all wanted to find out too. I will let them all know after the doctor tells my mother. I sure wanted to talk to my sisters and brothers as soon as I found out, but I think it's better for my mother's sake, not to have her stressed out this weekend, or them, to let the Doc talk to her about it and whatever else she needs to have done. If, my mom or any of my sisters or brothers ask if the Doctor called me back, that day, I'm going to pretend that I never got a call back. I know this sounds mean, but I'm trying to spare feelings, until the appt. with the Doctor.
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I was just thinking...did he say cancer that would not spread or that she had a tumor that would not spread?
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I would ask a lot of questions as I am of the opinion that at 80 treatment is dif than at 60.
if she has something like DCIS, in her case, I would do nothing
DCIS is considered stage 0 and it can be in a wide area of the breast but ......not my mom!
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Hello Stormynyte, The Doctor said that it wasn't a tumor, a lump, yet but he did say it was such a wide area 8 cm, and that's why she would have to her breast removed. She's never ever had any type of cancer before this. My husband has colon cancer and has been going in for radiation treatments. He's suppose to get 41 treatments, Monday will be his 31st one. This is costing us a fortune in medical bills, you know what I mean? I thought he said it wasn't the spreadable kind but I'm not totally sure I was kind of in shock and couldn't process this infor. right away. I will definitely be asking the Doctor alot of questions and get the whole enchilada about what is to come for my mom.
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I agree with that. Ask lots of questions about everything.Once you know more details there is so so much information on this site that will tell you more than the doctors will. I'm glad you found it. The people here are great!
I'm 37 and had a mastectomy a few months ago and am still recovering. I don't know if that is something I would be inclined to have my 80 year old Gram do unless it was absolutely necessary. It's pretty rough on the body. If it is something that won't spread, thus not causing issues elsewhere, why not leave it?
As far as telling your mom and the family, I think waiting is not a bad idea. Your mom might have questions that you can't answer, as will everyone else, that you can find out at her appointment. I don't see a problem with waiting until you know more to tell them. Telling them now will only cause them to worry and wish they had answers you just don't have right now.
I also recommend making a list of questions to take with you. It is so easy to go brain dead in there and forget what you wanted to ask and forget what the doctor told you. Take a pen or a recorder to get it all down. I think the stress of it all makes us unable to remember half of what was said.
Best wishes to you, your husband and your mom. *hugs*
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Hello Stormynyte, So sorry to hear about your masectomy, and such a young age! I read something on this site, that someone posted, which said that mamograms don't always show everything for women with dense breast tissue. Is this true? I didn't know this and I think I'll be asking my doctor about this, and I would like to find out if I have dense breast tissue because of my age. Yes, I'm worried about my mom having the masectomy surgery done at her age, but the Doctor did recommend it be done! This is the Surgeon, or specialist for different types of surgery. I really don't know much about nodes, or anything else when it comes to breast cancer, so any information you can give me would be very helpful and appreciated! I was trying to find out if they had something like this here in the city where I live-Stockton, CA, to have more local support for me and my family, but I don't know how to find out. I'm sending you back hugs for being there for me!!
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I've read the same thing. I think ultrasound may work better on dense tissue. I believe there are some threads about just that kind of thing that could tell you a heck of a lot more than I could. There are so many extremely knowledgeable women here I'm sure someone can give you all the info about it. I've learned so much from this site, it has been my lifeline the past year.
I live in a small town and we have an oncologist that comes to the local hospital clinic twice a month, I don't know if your hospital would have something similar? Most people here are pretty happy with him as far as I know. I drive 200 miles one way to go see my Onc at the University Hospital Breast Center in Denver. I just feel so much more comfortable with a doctor and team who specialise in breast cancer rather than one who treats them all. But the cost of gas is killing me!
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I'm wondering if you'll be ok with not telling her and your family. Maybe you could talk to mom and let her know there's something going on, sounds like cancer but you really didn't fully catch everything...kinda true, right? I don't know Your situation, but mom is counting on you to be her ears...would it be better for her if the doctor told her or you told her? I agree with not wrecking her weekend and its NEVER anything we want to hear, or say. But, she might be able to collect questions of her own. And, you now have time to collect questions for her. Be her support, she needs you. Be true to yourself...you know what's right for her.
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Hi Proudtospin, I don't have the information about what type of cancer my mom has, not until her appt. Monday with the Surgeon, I will definitely ask the doctors alot of questions. When the Doc called me Friday he told me what type but I don't remember and I should have written it down. When, I asked him why she sould have her breast removed, he said it was because the size of the area was so wide, I think that he wants to make sure they get it all. I don't know what DCIS is, but when we see the Doctor I will find out more inform. I don't think that he would have said to have her breast removed if it wasn't serious. He did say that if she waited 1 yr to do anything it would be too late. The doctor said the breast removal needs to be done within 3 months. I just need more information about the type of cancer she has, and what's next for her, and I don't who to ask this information for here at this site.
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Is it DCIS? (Ductal Carcinoma in Situ) Perhaps that is what you mean by "not the spreadable kind"? If so, and if your mother is 80 years old, she does not necessarily have to have surgery to remove her breast. There are some studies being done on "watchful waiting" for DCIS, like they now do with prostate cancer. The thing is, with DCIS, it cannot kill you. It is bad cells that stay within the ducts, and as long as they stay there, they can never hurt you.
However, in about 20% of the cases, DCIS does break through the duct and becomes invasive cancer. And that's the kind that can kill you. They do not know why some DCIS spreads and some doesn't. They have found many woman who died of natural causes that, upon autopsy, had widespread DCIS in their breasts that they never knew about. But sometimes (rarely) you hear about a woman with DCIS who had an invasive component unknowingly, and they died.
Since DCIS is not a medical emergency, you have PLENTY OF TIME to talk to doctors, do some research, maybe find a study that will do watchful waiting if that's what you want. Do not let anybody pressure you into making a decision.
If it is invasive, than she should do a mastectomy, although cancer in the elderly is usually very indolent.
Some questions you want to ask: what is the grade of the bad cells? If it is a 3, that means that they are more aggressive and more deformed and more likely to become invasive. What is the Bloom/Richardson scale? If it's 8 or 9, same thing. If the numbers are on the lower end, than the cells are not multiplying quickly and she has less danger.
FYI: my mother was a very frail late-70s woman who had an early stage (1) cancer in her breast. She had a mastectomy and did just fine. She needed no other treatment. She healed quickly. My mother died two years later of alcoholic cirrhosis of the liver so she was not in the best of health - she was always drunk and she smoked constantly and yet the mastectomy was easy for her to recover from. Mastectomy without reconstruction is not a difficult surgery physically. (Adding reconstruction makes it much harder as they have to cut through muscle.) Recovery is just a few days.
So, if she must have one, and she doesn't want a reconstruction, it shouldn't be too difficult for her.
However, I would suggest that you get a 2nd and 3rd opinion. One of the problems with mammography is finding these cancers in such an early stage that they don't know what to do. They may never hurt anybody but since they don't know, they have to treat them all as if they were invasive. If your mom was 50, I would be more aggressive in suggesting mastectomy, but at 80 years old, it seems like a drastic step for something that, quite possibly, has been in her for decades.
No doctor should be telling you to do something as quickly as yours is. That is suspicious. I had a much more serious tumor spread widely throughout the breast, and my doctor encouraged me to take my time and never said that anything HAD to be done within a specific time period.
Good luck to you and your mother.
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NC,
I am not going to give any medical suggestions. Instead, if you are going to be your mother's ears and help question the doctor, it is really important that you do some reading on this site before this appointment. The more of the terminology that you know and can grasp during this conversation, the better equiped your brain will be to move quickly to form the questions that you need the answer to.
I would consider calling the doctor first thing Monday morning and have whatever reports are available faxed to you so that you can study it before you meet with the doctor. Remember, surgeons cut. That is their framework, so a basic understanding of the types of breast cancer that she might have, the better off you will be.
I think that the KNOWLEDGE section of this web site does a very good job of outlining the types of cancer and the appropriate treatments for each of them.
All the best to your Mother.
*susan*
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Hello Fuzzy Melon, Don't get me wrong I very much want to tell my sister and brothers about our mothers biopsy results, so I can have support of everybody in my family, but I wanted to wait til the appt. with the Doctor, to find out what type of cancer it is, and find out more about it. I feel like the doctor would be able to tell her in a better way than I can, because he knows more about it. Once we find out what kind of cancer it is, we can get some information about it, treatment options and yes a second or third opinion. I don't know if there is a cancer team here where we live in Stockton, CA, but I sure would like to find out, and find the nearest one, if there isn't. Thanks for your reply
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Hello Susan 02143, Thanks for your reply, the doctors appt. is this coming Monday the 17th. I can ask him for the reports from the biopsy, and other reports at this time. Yes I do need to go to the knowledge site here and read about the different types of cancer, and get to know the terms. I'm just kind of feeling kind of drained and tired. I didn't sleep too good, just worried about this and what's in store for us and her. I'm tempted to call this site and have them mail me this information.
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Hello Coolbreeze, The doctor did call me Friday, and he wasn't suppose to give me the inform. he did, and he did tell me what type of cancer it was, but I didn't write it down and I don't remember. I was kind of in shock and it didn't register. I will be asking the type of cancer, the grade of bad cells, and treatment options and also any information regarding the type of cancer she has. Thanks for your long and helpful reply. I think I'm going to logout, I need a little break. I will check back tomorrow for more replys, etc.
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Just a word of encouragement during this most difficult time - My mom has a friend from the Senior Center. She is 88 years old and had a Mastectomy two months ago for advanced cancer. She is doing well and has been back at the Senior Center playing bingo for a month. She told mom she breezed through the surgery. She certainly is an inspiration to me!
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There is a Cancer Center in Stockton...St. Joseph's Medical Center. I went on their website to check it out. Here's the URL for the Cancer Navigation Services if you are interested
http://www.stjosephscares.org/Medical_Services/ssLINK/195482
From this link:
St. Joseph's Cancer Navigator is available to help those diagnosed with cancer to navigate through the tests, procedures, treatments, and support issues that follow a positive biopsy. We offer support with educational, practical, emotional, or logistical issues surrounding the diagnosis of cancer. We can also make referrals to other agencies that offer resources to assist patients through this difficult time.
The program is FREE and available to help anyone whether newly diagnosed, currently involved in cancer treatment, or experiencing a recurrence.
St. Joseph's Medical Center
1800 North California St
Stockton, CA 95204
Phone: (209) 943-2000 -
Linda~ Take a digital voice recorder ($20-$30) or tape recorder with you to the appointment on Monday. It's a lot of information to take in. Give yourself the time to absorb the information and formulate questions after reviewing it as many times as you need. Any MD worth their weight will allow your meeting to be recorded.
Wishing you all the best in this journey with your mom! Stay strong!
CC
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Ditto to everything Coolbreeze said.
"a form of cancer that wasn't the spreadable kind, but it was such a wide area, the Dr. said that she would have to have her breast removed. " sounds like it's DCIS. DCIS is pre-invasive, so it can't spread outside the breast. DCIS cancer cells are confined to the milk ducts, so as the cancer expands, it tends to spread out in the ductal system of the breast. That's why DCIS, although it "can't spread" beyond the breast, often does spread out broadly within the breast. I had over 7cm of DCIS and I had to have a mastectomy because of that.
Because it can't move beyond the breast, pure DCIS is 100% survivable. However over time, DCIS can evolve to become invasive cancer, and at that point, the cancer is no longer considered to be DCIS, now it's invasive ductal carcinoma (IDC). IDC can move into other parts of the body. In my case, my DCIS has already started to evolve to become IDC - I had 1mm of IDC in with all that DCIS. From a biopsy and mammogram films alone no one can know if your mother's DCIS really is pure DCIS, or if there might already be some IDC hidden in the middle of all that DCIS. The cancer needs to be evaluated under a microscope to find that out. But as Coolbreeze said, there are indicators to suggest whether your mother's DCIS (I am assuming it's DCIS from what you've said) is aggressive or not. So you need to get more information about the pathology of the biopsy to get an idea as to how serious this is, and whether a mastectomy truly is necessary, given your mother's age. That's the first step towards figuring out what to do next.
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