Rads with breathing device to protect heart

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Got call from RO just now that cat scan shows my heart close to chest wall so wants me to do rads with breathing device. Has anyone had this experience? Please fill me in. I now have to go downtown instead of lication 5mins from work for sll treatment but worth it to protect my heart. Nothing easy about this disease. Please fill me in!!

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  • Heidihill
    Heidihill Member Posts: 5,476
    edited September 2012

    It was some time ago but to refresh my memory I found this link

    http://www.stonybrookmedicalcenter.org/radiationoncology/respiratorygating

    They will first do a simulation of your breathing and you'll be able to see how you breathe on a screen with the ups and downs. There'll also be a sound aid, a voice that says exhale, inhale. (Mine was in German.) They'll put something on your chest that detects your breathing. The theory is that you only get zapped when your chest is in the field. So if they forget to turn on the sound or the visual, don't panic like I did! But better make sure this is the case, just in case I got it wrong or I had a different system. It's been four years since rads for me and my heart and lungs are still ok. I'm exercising like crazy just to be sure they stay ok.

  • Aruba
    Aruba Member Posts: 543
    edited September 2012

    Thanks heidihill. Went to do another ct scan with it today. Nothing on chest, just a button for me to hold down and then release it if i have issues. Was easy but i wonder if i am inhaling and expanding lung. Is it more in the radiation area vs normal breathing. Guess heart more important than lungs. Will ask RO next tome i ser het

  • Lee7
    Lee7 Member Posts: 657
    edited September 2012

    Aruba,

    My tumor was on the left side and my radiation was done using 'respiratory gating'.  Like Heidihill, I had a small box shaped device that was placed on my sternum in the same place every treatment. It allowed the machine to track the movement of my chest as I breathed in.  When I had taken a deep breath enough to register in a specific 'zone', then I would hold my breath. The radiation would turn on (for about 15 seconds). If I exhaled, or moved out of that 'zone' then the radiation stopped.  Once I was back in the zone, it would turn back on until the correct amount of radiation had been delivered.   I felt the procedure made the radiation safer for me. 

    My Rad Onc explained it as when I took in a deep breath and held it, my heart dropped a bit lower inside my chest  toward my back so it gave  more space between it and the radiation beam.  The danger is more from the radiation hitting the arterty than the heart itself so this helped keep it more out of harms way.  (Hopefully !!)

    It may be a longer drive for you to the treatment place but if they are doing a more precise job to protect your heart then I think it's well worth it. My drive was almost an hour to get there...and everyday for 5 weeks, but I felt much safer.

    Lee

  • Aruba
    Aruba Member Posts: 543
    edited September 2012

    Hi Lee7, So glad to hear you had a positive experience with this.  I was just looking up the technical terms for this on google..and found an article..written by my RO!  I know I am in good hands and would drive along way to protect my heart.  I just was wondering if the expansion of the lungs puts the lungs more in rads way.  I will ask that too. I had onco score of 26 and decided against chemo.  This RO said I was candidate for clinical trial for rads that was testing doing 3 weeks of stronger dose vs traditional 6-7 weeks lower dose.  I went ahead and did it and got randomly placed int the traditional 6-7 weeks.  I am curious to see if I have this box on chest too.  Hopefully will start next week. 

  • msphil
    msphil Member Posts: 1,536
    edited September 2012

    I didn,t have the option of a breathing device when I had my radiation and I have a pacemaker/defibrillator but Im doing fine, (Praise the Lord)msphil  idc, stage 2, L mast, chemo and rads and 5 yrs on Tamoxifen.

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