Calling all TNs

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  • JazzyJ
    JazzyJ Member Posts: 126
    edited September 2012

    NYC is a wonderland! I highly recommend doing a structured tour allowing you to see as much as possible in a short amount of time without getting stuck in traffic everywhere.... If you like Italian (my fav!), I recommend Carmin's on 44th Street. Excellent pasta and wine menu! Have fun and dont talk to strangers :-)

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited September 2012

    Hi everybody.  I just got home from a few days in San Antonio.  A trip there has been on my "to do" list for a few years now.  Had a fun time but really tired tonight.  And talk about HOT!!  102 degrees every day.  When I was going through tx, my Onc told me I would not be able to tolerate the heat ever again.  She was right.  And put a hot flash on top of it all  aaaccckkk!

    Took me a long time to catch up on all the posts here on the TN thread.  Sorry that I wont be joining in on the facebook thing.  Hopefully you gals that are doing it won't leave us here BCO.  I am also on the Illinois thread and what they do there is have an email list.  One person on the thread started it by having the ladies PM her with email addresses and any other info they wished to share (full name, address, birthday, telephone number)  Then a group email is sent so everyone has the contact info.  IT is used only for sending info for the various get togethers/parties/lunches.  And also to share news when a sister is not doing well and needs extra support.  The contact list is NEVER used to send jokes or things of the like.  Just an idea.  I know having a mailing address is nice when you just want to send a hand written note of support and cheer.  And sadly when a condolence card is needed.  

    I cannot remember who was posting about sewing things for kids....Could you please post it again?  I can sew and would like to see what this project is about and decide if I have enough talent to do it.

    Inmate, sorry this chemo is so hard on you, glad to hear that the skin mets seem to be responding.

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited September 2012

    Tif....I am trying to talk a few gal pals into a trip to New York City!  I will be listening to all the recommendations!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2012

    NYC---how exciting for you TIFJ...have a blast!! 

    today I was a walking hot flash.  Had to work today as my son was on a cruise with his wife ( they worked it all out finally so stress level has gone way down on that front :)  )  It was unbelievably busy and I have to wear a compression sleeve on both of my arms as well as a crazy knit compression glove on my hand and I could barely stand it all day.  I will be sooooo mad if my period comes back and I have to do this all over again.  I worked 10 hours on my feet and my whole body is sore now.  Not like the old days when I could go forever and not feel it.  Guess the chemo and everything else has just taken it's toll on me for sure.  Not to mention getting older just stinks.  It is hard to manage 23 employees and keep morale up when you have no time to breathe the entire day.  love what i do though so that makes it all worth it.

    Maggie

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  • JAN69
    JAN69 Member Posts: 947
    edited September 2012

    Navy Mom - I believe you are referring to me and sewing for kids.  The kids camp is called The Painted Turtle.  You can get the pillow and quilt requirements from their web site.  I'm making quilts similar to ones I found on maryquilts.com. called "My favorite quick donation quilt."  Mine are slightly smaller to comply with the camp's needs.  The camp is a Paul Newman camp for medically fragile kids and their families.  I hope you find this endeavor as worthy and fun as I do.   Jan

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited September 2012

    Thanks, Jan.  I just checked out that website.  I think i can handle it!  And I will be forwarding the info to a gal pal who has a wonderful talent with a sewing machine to see if she wants to whip up some turtles and quilts with me.

    Have a wonderful Sunday, everyone.  First Sunday for Football.  Go Packers!

    Thinking Of Jenn 3 today...She just loved her team..The Saints.

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  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited September 2012

    Hello bak 94,

     Thank you for your kind words. I miss you as well. You made quite an impression on me.You have been through such a lot. Do pop in and see us from time to time. You can offer a lot of hope and encouragement.

    Fond thought are coming your way.

    Sylvia.

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  • netty46
    netty46 Member Posts: 296
    edited September 2012

    Hi everyone anyone 12 years out with local recurrence?

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  • netty46
    netty46 Member Posts: 296
    edited September 2012

    Hi anyone had local recurrence after 12 years or more tnbc?

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  • gillyone
    gillyone Member Posts: 1,727
    edited September 2012

    Hi to you too, Sylvia. I haven't been on your thread for a while. In fact I don't post very much any more, but can't quite break away entirely.

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  • borntosurvive
    borntosurvive Member Posts: 213
    edited September 2012

    Maggie:  I JUST got my period back after not having it since January 1st and having ALL the symptoms of menopause - including the terrible hot flashes.  I won't tell you how exciting this is.........GGRRRRRR.

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  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited September 2012

    Hello gillyone,

    It was nice to hear from you. I can understand that you do not post as much, but cannot quite break away!

    Please pop in and say hello on our UK thread from time to time. I was rereading the earlier pages of the thread and you and I, along with  a few others had quite a dialogue going. We are discussing some important issues at the moment.

    Wishing you all the very best

    Sylvia.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    I have to share something that was asked of me the other day. I was getting my nails done by a friend at her shop. I was talking about my upcoming mammo, then she asked this question. If my cancer were to come back would I go through treatment again. I was really taken aback. I said of course I would.. I would fight until, I could not fight anymore. I wonder why she asked this? Seemed an odd question.

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  • Titan
    Titan Member Posts: 2,956
    edited September 2012

    Maybe she has heard of people that to them the treatment was worse than the disease...or she just was curious..

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  • JAN69
    JAN69 Member Posts: 947
    edited September 2012

    Lory - Or maybe it was just one of those stupid, insensitive questions friends sometimes ask.  I'm sorry it has stuck with you.  I can recall off-the-wall questions friends have asked me.  Grrr ...... I hope I haven't said insensitive things to people in the past.  But I probably have, just not called on it.  Jan

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    I think y'all are both right. I have heard people say "they heard treatment is worse than the disease".. my comment, death would be worse. I will fight like hell! People just blink back.. no words, just quick blinking.. lol

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  • kathyrnn
    kathyrnn Member Posts: 393
    edited September 2012

    Bernie - this is what my friend said (don't think it's any different than what you've done. The other thing I remember is the creator of the group had to "invite" a person to be a member)



    "Hi Kathy!  Go to "Create Group".  You may have to do a search to do it...and it will walk you through it.  It has a box to check for "Secret" so everything stays private."



    TIFJ - believe it or not, my tip is to go to the main branch of the NY library (you've seen it lots of times in TV shows, it has the lions on both sides of the main entrance). Absolutely beautiful building, and the ceilings are like getting a glimpse of the Sistene Chapel.



    NavyMom - thanks for the heat info (not something my MO told me). I've spent this whole summer sweating like a pig!



    Babs - thanks for some reassurance. I was just telling my PCP that I was concerned about how tired I am. He's gonna do some scans if the MO doesn't order them at my next visit, but I may hold off now that I hear I'm not the only one. (Cocker will love this, since Mom is still in the hospital, I was going to sneak off to the casino, but I'm to damn tired

    To make the effort)



    Lory - I may be the weird one, but I didn't find the question all that odd. When I was first dx'd I had a long conversation with a good friend.

    My feeling was I'd of course fight the cancer as long as my mother was alive. After that, if it got to the point that fighting the cancer consumed all of my time and energy, and didn't leave much quality of life, I would stop. My friend is a nurse, and I wanted her to remind me it might be time to quit when the time came.



    Luv & inmate - I hope you're new tx's are kicking ass, with no SE.



    Hope - wondering how you're doing?



    Hugs to everyone I missed.



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  • browerl
    browerl Member Posts: 126
    edited September 2012

    Lory I don't think it was a strange ?  I have often wondered what I would do it I get past all this just to have it return.  I don't know if I would want to keep it up.  I have seen or talk to women that have been battling for years to just keep getting cut away at and I just don't know what I would do. My husband has told me that I would keep on doing it as long as it takes but that is easy for someone else to say.

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited September 2012

    What a terribly sad day this was.  Will always remember this.

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  • Hope60
    Hope60 Member Posts: 223
    edited September 2012

    Just popping in to say hi to everyone. I'm trying to keep up with my reading here, just haven't had much energy to post....midway through my first round of carboplatin and gemzar and feeling pretty wiped out.



    Tifj have a great time in ny, wish I could meet you while you're in town.....oh well



    Hugs to all you lovely ladies!

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited September 2012

    Cocker... I agree.   Watched a show last night - How 102 Minutes Changed the World.   It was like you were there... so very scary.  

    Peace, love and hugs to you all and hope everyone is ok'ish Kiss

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  • FernMF
    FernMF Member Posts: 349
    edited September 2012

    Round three of cytoxan/taxotere tomorrow. Anxious. Doing it to decrease 16-20% chance of recurrence down to 8-10% chance. So 3/4 the way through the nasty chemicals tomorrow. I like to hear from you TN's who are years out with no recurrence.

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  • JazzyJ
    JazzyJ Member Posts: 126
    edited September 2012

    11 years ago today I was stuck on Long Island after they canceled flights and closed the bridges (our corporate office is there). The air reeked of burning, the sky was frighteningly quiet, and people in shock, weeping. Many lost a piece of themselves that day...... so very sad. Reality hit home when I went to the hospital to donate blood, but the reserves were full because there were very few people who needed it. 8 days later I flew home and hugged my hubby so tight I thought he would burst! Yes, I often feel blessed today even with the scars and crappy SE's. I always try to love deeply, laugh often and live!! Some days are easier than others, but you all get that.



    Hope all of you are coping well. Or as Tazzy said, ok'ish...... Xoxoxoxo

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  • FernMF
    FernMF Member Posts: 349
    edited September 2012

    Thank God 5owens.

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited September 2012

    Remember these wise words: 

    Pinned Image

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  • JAN69
    JAN69 Member Posts: 947
    edited September 2012

    Tazzy - Thanks for the chuckle------I'm off to find a bottle.  Jan

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited September 2012

    Love it, Tazzy.

    Hope, so glad to hear from you. Sending hugs your way.

    Fern, 3 years out for me and living life.  The fear of recurrence NEVER goes away but your strength eventually returns and enables you to deal with the "what ifs"a bit better.

    9/11 tomorrow.  Such sadness for the loss of life and the loss of innocence.  Special hugs to those that experienced the horror up close.  I can't even imagine it.

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  • Wrenwood47
    Wrenwood47 Member Posts: 73
    edited September 2012

    Lory48 - I don't find the question odd at all. We all agree that the decisions we make are very personal and I believe that people who are cancer free are curious as to how we made the decisions we chose for ourselves.  I know that before I was dx'd I had two friends with BC and I questioned them. I wanted to be prepared for "just in case" I was ever dx'd. After I was dx'd the choices they made were very influential on some of my decisions. I also don't believe these  are stupid and insensitive people Jan.....people are afraid of cancer, there is an epidemic. People just want to know...maybe the way they phrase their questions, or their timing is off but stupid, I don't think so. Stupid people don't ask questions which is why they are stupid.

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  • OBXK
    OBXK Member Posts: 791
    edited September 2012

    Tazzy - I love it!



    It was a beautiful day here in NC.



    Wishing everyone a good tomorrow!

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  • JAN69
    JAN69 Member Posts: 947
    edited September 2012

    Wrenwood - I didn't mean the people are stupid, just some of the questions come off as so insensitive.  I'm sure it would also matter what the situation was at the moment.  I can see that in a quiet one-on-one intimate heart-to-heart conversation, it could be appropriate.  I was projecting some really inappropriate questions friends have asked me at very tender times.  I'm so sorry for the misunderstanding. 

    Holding everyone in my heart, especially as the world marks yet another anniversary of 9/11.

    Jan 

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