Starting Chemo July 2012

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited September 2012

    natl 12- Hope you are doing well.  You can help those red blood cells out by eating foods with lots of iron (red meat, liver (if you like it), dark green leafy veggies, spinach, iron fortified cereals and grains (Total, Cream of Wheat, rice).  My red blood counts started to drop during my rounds of chemo and fell just below the normal range.   I asked my onco about taking an iron supplement but she said she preferred that I got the iron from food rather than through a supplement.  That was fine with me since I'm not one to take meds/ supplements unless I absolutely have to.  Hopefully my red blood counts will slowly climb back to the normal range as I recover from the chemo.  If you have more questions about the iron foods, private message me and I'll give you more info.

    Wishing an easy time in the Big Girl Chair aka BGC to all and minimal side effects.  Always glad to read how everyone is moving forward with her journey and doing well!!!!!

  • Maddie57
    Maddie57 Member Posts: 296
    edited September 2012

    Hi Feelingthe magic,

    I am so thrilled to hear the stronger steroids have helped with the side effects of Doctaxel/Taxotere. I also seem to be highly allergic to the stuff, and have had some horrible side effects -the worst being the excruciating joint pain. I  must admit, I was rather dreading the 3rd one, as allergic reactions quite often get worse and not better with other drugs.

    Thought I would pass this tip along to all you lovely ladies in case you have also experienced this problem. I found my scalp was feeling really sore. It even hurt to move my head on the pillow. I read somewhere about Sweet Almond Oil. I put some on and let it soak in for a few hours, and then washed the few wisps of hair that are left, and guess what - it feels better already!!

  • cyano
    cyano Member Posts: 67
    edited September 2012

    Yay!! I'm done chemo. :):) My oncologist has been out for several months due to family problems and the last few times I saw the physician's assistant. The PA said that I absolutely needed 6 rounds of chemo. When I saw the oncologist yesterday, she said no way. 4 rounds of TC are standard for my stage/type and more rounds show no benefit with just increased side effects. So that was a nice surprise. I'll go onto tamoxifen in a month.

    I took vitamin B6 throughout to minimize the chances of neuropathy and hand/foot syndrome and so far, so good. I've had a lot of side effects, but I have colitis/very restricted diet so that doesn't help. I'm really hoping to get my fitness partway back so I can ski with family at Christmas. Even if I can just read a book in the lodge in the morning and ski for a couple hours in the afternoon, that would be great. I just need to get rid of the lead-filled legs and get my cardio back.

  • stride
    stride Member Posts: 470
    edited September 2012

    Yay cyano, done with chemo two rounds earlier than expected! What a nice surprise that must have been!

  • teeballmom
    teeballmom Member Posts: 322
    edited September 2012

    Cyano: CONGRATS!!! I'm so excited for you!

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited September 2012

    Cyano - yay x 1,000,000.

  • _Ann_
    _Ann_ Member Posts: 769
    edited September 2012

    Congratulations Cyano!  

    I can't wait for this thread to turn into a series of "I'm done with chemo" celebration posts Smile

    I had a hopeful thought today.  I'll be in chemo until December 20.  But in a way, life is just clicking along easily now.  My disability checks started coming in, my treatment plan is set, I've dealt with the hassles of various side effects with nothing major.  All indications are it only gets easier with Taxol.  So... I can sort of relax and coast now, and use the rest of this year to take care of myself and do what I can at home as my energy allows.  I can breathe a big sigh of relief. 

  • natL12
    natL12 Member Posts: 135
    edited September 2012

    Ann - good to read your positive attitude about this process.  You bring up my own spirits.  Nat

  • natL12
    natL12 Member Posts: 135
    edited September 2012

    Cyano - We are all cheering for you being done with chemo.  Please keep coming to visit this thread, so you can congratulate us when we finish.

  • PaEaglesFan
    PaEaglesFan Member Posts: 277
    edited September 2012
    Cyano-- Happy Dance for you!!!
  • emilybrooke
    emilybrooke Member Posts: 98
    edited September 2012

    Congrats Cyano - so happy to see someone else finishing up their treatment!

    I agree with Ann it will be such a monumental day when we are all finished with our treatments.

  • teeballmom
    teeballmom Member Posts: 322
    edited September 2012

    Soltantio:  I think it is a SE from the chemo.  About 2-3 days out from AC I would just have a day or two of pure sadness.  I'd cry at the littlest thing and just keep crying. 

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited September 2012

    Soltantio - I'm finding I'm having sort of constant low level anxiety that I can't explain. I'm thinking it's the chemo as well. Funny how it messes with our emotions.

  • Madelyn
    Madelyn Member Posts: 93
    edited September 2012

    Ann- great post, it is a good way to look at it.  So many of us are not used to putting ourselves first and BC does force us to do that.  Like everything else, having a plan can help us visualize the finish line.

    Well, it is day 3 of my first Taxol Treatment. If this is what I can expect --then things are looking good girls.  Because of the steroids, sleep was hard the first night, a lot of tossing and turning, just trying to get comfortable.  But no nasty half speed queasy feeling.  During AC, Fridays were my "out for the count days" and now I feel good.  My appetite is good, a little too good...I've gained a little weight :(  Now, I understand that Taxol can be cumulative, so maybe there are harder days ahead...but for now I am enjoying getting out and catching up on errands.

     "Life is not the way it's supposed to be.  It's the way it is.  The way you cope with it is what makes all the difference."

    Have a good weekend... 

  • natL12
    natL12 Member Posts: 135
    edited September 2012

    Soltantio - I'm sure the steroids are a part of the mood problem.  Had chemo Tues, Neulasta Wed, functioned at about half-speed Thurs, and Friday was HORRIBLE. Ached all over, belly issues, totally tired, and ready to cry over nothing!  Good thing I was home alone most of the day...and my DH went out to dinner with friends while I stayed home (my choice) and had Lean Cuisine.  Today is better, but I'm going to take it easy for sure.

  • sduch1
    sduch1 Member Posts: 104
    edited September 2012

    Soltantio--- I think it is definitely a side effect of chemo and coming down from steroids. I didn't have it as bad with Taxol and was in denial that I had it but then when I came off Taxol while waiting for surgery, I felt normal again and realized how much it was effecting me mentally. Now on AC, it is much worse. I've had horrible meltdowns and they all seem to happen on the days after I stop taking steroids before I start to feel better in my second week.

  • sduch1
    sduch1 Member Posts: 104
    edited September 2012

    Like, I go to physical therapy appointments in the first week after infusion and cry through them and then when I go in the 2nd week I'm fine.

  • sduch1
    sduch1 Member Posts: 104
    edited September 2012

    I think it's all the meds that mess with your mind. The steroids make me jittery and unable to relax. I definitely don't feel good/relaxed on them. This time around I've basically tried taking Ativan during the day as well to see if that helps (instead of just at night before bed). It made a world of difference coming off Taxol and feeling normal again. And, AC for me has been worse. I think it's bc not only does it impact you mentally but it also makes you nauseous and unable to eat things you enjoy and extremely fatigued so even if you wanted to feel normal and do the things you normally love, it makes it pretty damn hard. They cut my steroids last time in half to avoid the crash but I felt like then I ended up feeling more sick. You can't win! I don't think there are steroids with just Herceptin but I'm not sure. I go in for my first Herceptin only in 3 weeks.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited September 2012

    sduch1- FYI  I am almost 5 weeks PFC and had my first Herceptin only infusion two weeks ago.  No more pre- infusion drugs, no more steroids!!!!  I did have fluids in my IV but that is all. 

    As for the moodiness/emotional times, it is normal to have the ups and downs of emotions and tearful moments while having chemo and all of the drugs one takes.  This is one of the wonderful side effects of chemo since it affects our hormones.  Be easy on yourselves and kind to yourselves while in chemoland.  All of you know that normally you don't have these meltdowns and emotion swings but things are different since your journeys began.  HUGS to all and wishing minimal side effects to all!!!Cool

  • sduch1
    sduch1 Member Posts: 104
    edited September 2012

    Good to know...thanks Melrose!

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited September 2012

    Anybody having kidney problems on Cytoxan/Taxotere? The past day or two, I've had a low ache in my back and I know it's not muscle pain. I used to dance and know my body very well. I'll call my onc in the morning if it's not better but just thought I'd check.

  • Moonwillow1010
    Moonwillow1010 Member Posts: 25
    edited September 2012

    Life...I also had a low ache after CT #3. I was having a hard time getting my fluids down only because I was tired of drinking water and gatorade. So I started drinking my water mixed with cranberry juice and it seems to have subsided. I did not call my oncologist however...so I'm not absolutely sure if drinking the cranberry juice is recommended. 

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited September 2012

    Moonwillow - Thanks. As the day goes on, I'm starting to think it might be a muscle thing. I'll see how tonight goes.

  • cvmarilyn
    cvmarilyn Member Posts: 179
    edited September 2012

    Anyone else go through these peaks and valleys emotionally?  I've been really doing good the last week - then saw the end of Stand Up to Cancer and  that song "Live Like You Were Dying" was sung - ughhhhhhhhhhhhhhhhh - like  REALLY???? That song just puts me in a funk. Tuesday is chemo #4. Have any of you talked with the radiologist yet?

    Take care, I hope your week is good.

  • _Ann_
    _Ann_ Member Posts: 769
    edited September 2012

    How is everybody doing with the instant menopause?  I'm breaking into a drippy sweat several times an hour.  I have no idea if this is what normal menopause is like or not.  I have to put a beach towel under me to avoid sweating all over the sofa.  I'm washing all the bed linens (top, bottom, mattress cover) weekly and running out of t-shirts in the middle of the week.  It's pretty crazy. 

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited September 2012

    Ann - I'm lucky - I was already in menopause so I'm not getting any of those symptoms. :)

  • Maddie57
    Maddie57 Member Posts: 296
    edited September 2012

    Hi Ann,

    The sweating is awful. I am not totally sure if it is not also partly due to the chemo - they said one of the side effects is fever. It is always worse after a chemo treatment. It makes wearing a wig torture! I have found though that the sweating is slowing down a lot, so maybe it will improve with time..

    My hair is nearly all out now, but what does remain has turned a really peculiar colour. Most of it is pale, almost white blonde, but I have several spots of nearly black hair at the back. I look like a dalmation!! Has anyone else noticed this? I hope when my hair grows back it doesn't stay that way.

    I go for my 3rd treatment of Taxotere on Monday. I am a bit nervous this time, as I am majorly allergic to the stuff, and have had some horrific side effects. I see the Oncologist on Friday, and will see what she has to say about it. I am hoping stronger steroids will sort it out. 

  • teeballmom
    teeballmom Member Posts: 322
    edited September 2012

    I'm glad I didn't watch Stand Up to Cancer because I was afraid it would put me in a really bad place emotionally.  If I had heard the song, I probably would have lost it in front of my kids.

    Ann and Maddie:  The sweating is horrible!  I had my ovaries and tubes removed during my BMX and I have been wondering if that's why the sweating has been so bad.  Sounds like it wouldn't matter.  Mostly the bad sweating is at night.  I'm getting used to it but it's throw the covers off, put them back on, throw them off again and pull them back over me.  Poor DH is so sweet.  Never says anything except for "Are you o.k. honey?"  I'm up right now because our 6 year old plopped himself on top of our bed by my legs last night and I couldn't get comfortable while sweating and throwing the covers off wasn't an option.  LOL.

    Best of luck to you Maddie today with your 3rd treatment.  I'll be thinking of you.  I have my 2nd Taxol on Weds and I'm nervous.  When I was getting the Benadryl my left leg got really restless.  It was driving me crazy. 

  • Maddie57
    Maddie57 Member Posts: 296
    edited September 2012

    Hi teeball mom,

    The removal of your ovaries are probably 90% to blame for the sweating. When I had my hysterectomy I developed a heat rash it was so bad, so really feel for you with that. I was on HRT before this, and that is probably why I am also sweating - withdrawal symptoms. Good luck on Wednesday - hope it goes really well.

    I didn't really get restless legs - it attacked my joints. The first reaction was 6 days after chemo- the second time immediately. The first time was an incredible throb right through my back to my sternum. The throb and pain was so bad I thought I was having a heart attack, as the pain went right through my heart. Morphine did not touch it, and I whimpered for 12 hours. It moved to other joints then - lumbar spine, hips etc and I could hardly walk. This gradually wore off after 24 hours.The second time it started within 2 mins, and I wasn't expecting it. It felt like somone had dropped a steel girder on my lap. I literally couldn't move - I was pinned to the seat with the pain. I started going a bright shade of red - quite spectacular my sister tells me!! Anyway the cortisone injection they gave me really helped, so here's hoping.... On the bright side - any other SE's I get pale in comparison - the terrible thrush, nosebleeds etc. They are really just a minor irritation in comparison, and don't bother me at all.

     Lifeonit - you will probably find the low back pain you get is your lumbar spine. I have worked out the chemo seems to target any problems you have ever had in your joints - like a seek and destroy mission!! You mentioned you were a dancer, so you may have minor degenerative changes there which you have not noticed but the Taxol/taxotere has!

  • PaEaglesFan
    PaEaglesFan Member Posts: 277
    edited September 2012

    Thinking of you today Maddie and hope you don't have any major SE's this time.  Do they give you pre-meds now that they know you have such severe reactions?  

    Friday was my bad post-chemo day and I feel asleep as soon as I got home from work.  Woke up to the very end of Taylor Swift singing (something sad I think?) and Samuel L Jackson talking about men not liking to go to the Dr.  Duh, like women are any different?  As soon as I realized the topic of the show, I changed the channel to Law and Order reruns and went right back to sleep.  

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